Single life after a mastectomy

1145146148150151253

Comments

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    ladies I got the movie lol after I went for my walk I stopped at the flea market and there it was lol I ll watch it tonight also got the entourage movie which I also wanted to watch so tonight that ll be my treat lol

    I just finished cleaning a beat I will try to organize my crotches cuz there is an event in my building next month and I ll participate :) made a cute girl hat this week I must show you .


  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    image

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    E- that hat is super cute. Great colors.

    I hope you enjoy the movie. Your boyfriend, Tatum! I rented two movies and watched one last night and one today while working inside the house. There is one I think you might like called The Age of Adelaine.

    It is a beautiful day here and was outside this morning, but been inside working to put summer things away and putting more things together to take to consignment and donation. The fall purge.

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    omg I watched the movie and I am in love ha ha ha I never though channing could dance like that lol Bb u must watch it. Turned out to be a movie about male entertainers lol wow

    Ha ha ha I had no idea. That is so funny cuz I have never been to a male strip club. Don't think I ll ever go but seen him doing this was so good.

    Good night ladies


  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    bb missed your post just saw it now. Oh bb trust me I have my days when I get sad and cry a lot. I force myself to keep going . Yes it does Hurst to see my ex and yes I am sure I can have him back. But I can't afford the driving north Al the time and the 100percent effort on my part and not on his. He could be good for sex and having someone to cuddle but not good for a long term. I sometimes think "well is there a long term for me ? What if I only have a few more years ? Maybe I should enjoy now?" But I need to get out of debts and if I go back to seen him that will mean expenses I don't need right now. Plus the fact that I ll get attached again and for what? My heart can't take pain again. It had so much pain already I need to be smart and we'll that dinner was the last one.I did see what you are saying it's just not possible to be near someone we love and not been able to express it. It was a silly thing . They invited me again this weekend for thanks giving ànd I said I had plans .

    Truth I don't want to be in a family gathering

    My family is not here and it would feel wierd to be at others people s family s place.

    I am here now staring at the ceiling hope you have a good night

    Love u all


  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    E- I don't like to do the Thanksgiving/holiday stuff either with other people's families. If it is a small group, it is enjoyable, but not some of those huge 20 or more people gatherings. Unless you have family in the area and/or are going somewhere, everything else is really up to you.

    Spending time with an ex's family around holidays is too much pressure. Your ex sounds like a very one sided person in a relationship. I like what you said about getting yourself out of debt and not wanting those extra expenses that would come with seeing him. You are a different person now.

    I am going to my sister's for Xmas this year, but no plans for Thanksgiving. I very much enjoy making myself a good meal on a holiday and hanging out at home watching movies all day. I think that will be my plan this year. I usually try to get all my business and personal Xmas cards done over that weekend.

    Do you get another day off tomorrow or was Friday your holiday?

    BB- I think someone you can lean on right now would really be helpful to you with everything going on. Be careful with the guy who showed up.

    My sister and I had to team together for years around our mother's care. Our relationship has been changing since her passing (and our own health issues). Your relationship with your sis will change when your mom is gone, but maybe you can tell her you want to keep in touch for the longer term? My sister and I had such fun together on our trip last weekend. We are finally getting to a place where we can relax and just have a nice time together again.

    Going to go looking for balloons this morning and then to the farmers market. Lots to do today, busy week ahead.

    Wishing everyone a good Sunday.

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    BB- this is for you.

    image

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    ok one more hat lol

    image

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    image

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    E- purple one still my favorite!

    BB- I am glad you you like the post. I agree it is a good one to have on the fridge. It think going out with the other man and getting your mind off the stuff with your mom will be a welcome reprieve.

    I had a way cool morning starting with going down by the river to watch balloons. Got some good shots, but the best part was when I was walking to my car, one of the balloons nearby descended and landed right there! I got a whole series of shots from it being up high to when it deflated. Will share that with you later today when I get them downloaded. I decided next year will be my time to finally go up in one!

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    jazz that is such an amazing morning you got

    I have never seen one up close not even in the sky lol only in movies or TV documentary never been to a show or anything like that.

    The more you show New Mexico to us the more I like it.

    I see why you love it there .so much to do and experience.

    I ll get ready and go for my walk but I am sick with a cold again. At least my friend called and she will meet me there so it ll be great to walk and chat with her. More fun to walk with a friend.

    Hope this cold goes away soon. Got a msg and tmw at 10:30 am I am to see my ps he ll have a look at my rad side .I am not having many hopes but I have a good line if he says be happy to be alive lol

    Jazz I ll tell him what u told me .

    ; )

    I ll post after I get back from my walk

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    omg bb, I wish is nothing I am glad you are checking it now. I am so scared with the fact that I don't know much about what is on hold for us :( I wish there was a way to Prevent us from been always scare like this .I ll have you in my meditation since I don't pray anymore. Hope your mom gets better soon too.

    My friend and I went for the walk and she was venting about her straggling with her daughter and the last grade before going to university. Her daughter is very hard on herself and is trying to reach good grades to go to med school but unfortunately her marks are not high enough so the girl seems to have depression and things are hard on my friend. I just listened and listen I told her to ask her daughter to try to think of a plan b in case her marks don't improve. I feel so sorry cuz I don't really think she can help her daughter only the child needs to focus. She tells me she see how her daughter study but gets interrupted by the phone or TV breaks and I told her. Hum that is not a great way to study. you need off the phone and TV for the time you are trying to study . She tell me her girl is still like a child with temper and she just can't control her.

    I honestly see that I in a way think I am lucky I had no kids I could not put up with a child the way my friend does.she is so stressed and I feel it is just she does not have the tool to get her kids to understand what's important and what's need her entire focus. The kid is depressed cuz her mark are going down instead of up yet it's no Making an effort to look into other options she wants a particular university and that is it. The kid is a perfectionist and it's her way or no way. My friend told me that many teachers in the past warned her about it. And that now she does not know what to do. I told her maybe she need Profesional help? Like a student adviser I have no idea. I ll research to see if I find any to send her way.

    On the other hand coming home I was thinking how the world is so mess up people full of stress about stuff is so simple to others.

    This world is just very unbalanced

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    Enerva- I hope your visit to the PS goes well. I hope the doctor is better with you this time. My BS is always snotty with me, others I see in the MO's office are better. I remember that they know nothing about our lives, what we have been through, etc. We are simply a medical chart to most of these medical professionals. Walk a mile in another shoes........

    I am glad you are enjoying a nice long weekend. The walk sounded healthy and sorry about your friend's daughter. When I went to college and grad school a long time ago, we did not have all the "electronic devices" we have now to distract folks. From e-mail to social media to texting. My biggest challenge way back when was just saying no to social opportunities that would arise. Young folks still have those too. And maybe the young woman should think about a plan B, like medical research. I think there is a lot of pressure on the young kids and jobs are tough for them to get too.

    And the world is a complete mess. Every time I turn around, someone is sharing some huge life changing problem. So many people I know in midlife now have serious health problems. I have a cousin whose husband is in ICU and don't think he is going to make it. I am going to call her in a few hours.

    BB- I hope there is nothing more serious going on with your back. It seems that your CA levels have not stayed high consistently from what I remember? It is also possible you are experiencing some spinal compression from the bone loss with the AIs. My bone density test indicated not much loss in my spine, but a lot more in my femurs since I started the AIs. My mother had a broken hip and and saw where that goes so it freaked me out and I started the Prolia shots. I think you need more info, and remember all they have said at this time is more tests. I hope your doctor can get you in quickly for the additional tests.




  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    ladies I finished a cute girl sweater. I have quite a few things to sell next month .

    Tmw I must work late since I ll go in late just hope it not a waist of my time to go to that apoitment.

    image

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    bb when will you see your MO?

    Hope soon .I got a cold again :( weather was nice this weekend and I wish stays this way.

    Jazz I hope all works out for your new work .

    I ll post from the hospital tmw.

    G nightt

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    BB- I do think that is enough bone loss to ask them about maybe trying some Prolia shots. When I started the AIs, I asked about whether I should continue if there is too much bone loss and osteoporosis results? He said that some women don't have any bone loss issues, others do. He said with the exercise I do, I should be fine, but my results indicated a continued loss after being on it 18 months. I had opposite of you, like 3% in the spine and closer 5% with the femurs. I told my doctors the bone loss was not okay with me, especially that I had several years yet to go yet on the drug. We did a baseline when I started (slightly osteoporotic), and the bone density was much worse after 18 months.

    I have had 2 Prolia shots so far and told the CNP this summer I want another bone scan in December. I figure within a year we should knoe if this was working and will get that done on 12/18. The CNP said my insurance company may only pay for it every two years. I told her I would pay for it out of pocket (few hundred dollars max). I won't wait two years to find out of this drug is working. If it is not helping, I will not continue with any more shots. Then I may have different decision to make.

    I decided I would do the Prolia shots to try to mitigate the bone loss so I could get through this 5 years (now half way through). It is a twice a year shot and you can feel a bit flu-ish within the first two days, but it was not anything I could not get through. I might talk to them about this if your insurance will pay for it. They use this same drug (denusaub) in higher concentrations for patients with bone cancer.

    Also, your chiro sounds right on top of the bc world. I think that is a very good thing, because not all folks who help us understand our world. My massage therapist was very on top of things, but some others I have work with have been less knowledgeable and giving a bit too much unsolicited advice.

    Let us know when you get your apts so you can find out more about what is going on. I hope your headache goes away with some sleep.

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    Enerva- this could be you riding the Gypsy Vanner horse!

    image

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    jazz thanks for the picture. Also for so much info on the bones lost .

    I don't have a clue but it's so good you have some information for bb to get some questions down for when she see her MO.

    The little dog in my floor is still barking the owner left him alone all weekend

    I am so mad that people are so inconsiderate specialy with the dog .by his crying you can tell he is small puppy and just hates to be left alone.

    People should not be alow to have dogs if the animal is going to be left alone most of the day I use to rush home for my dog and felt so guilty. Never went away without having someone one stay or watch for the dog. Even here if they asked me I ll gladly babysit cuz is so cruel to listen to it bark and cry all weekend :(


  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    Enerva- that is terrible to leave a dog alone all weekend. Even cats don't like it, but dogs needs to be let out to go to the bathroom, etc. Can you let the person know their dog was barking all weekend? Some people are terrible pet owners. Maybe you could offer to pet sit if the person is willing.

    My sister left her cats at home for 3 days when we went to NY with no one coming in and guess what? When her partner and the friend that went away that weekend came home, the cats crapped all over the house. The pet sitter went with my SIL and then they came home to the mess. They all acted surprised, but I said "your animals don't like to be left alone." My sister drags her animals back and forth between the two house now. The whole thing is insane to me, but then again, that is why I don't live around family!

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    Tell me a story about her that does not have you in it boys......

    image

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    Because we have all touched a bit of the brokenness. A time for breathing, healing and rediscovery.

    image

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    BB- you may want to just make an apt with the MO this week vs. trying to get answers over the phone (which most of them just won't do). I was not familiar with the term osteolytic, but in reading up on it, it can related to tumors but also other things too. Hopefully your doctor will see a case to get the MRI or other tests that you need. The chiros comments have you scared. Maybe they can get you in tomorrow?

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    I noticed June has not been here for over a month. It looks she posted here last Sept 9th.

    Hope all is okay June and that you are just busy with work! If you are moving on, I wish you the best!

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    BB- keep us posted.

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    oh bb I am so so sorry so much crap going on.

    Well guess what ? Went to see ps and there fore started my work at 11 am so worked till 7pm today :(

    The worse part is that I again waisted my time .he looked at me and said yes I see what is happening here. This is what radiation does when implants are use for the recon . I then asked can it be fixed .?he said no I wouldn't want to touch it now. If it gets worse then we must have a second operation to see about fixing it. So I looked at him and said is there anything else I can do? Massages or any other known solution? He nop no really that is one of the down side of radiation with implants. Then I say so what should I do just watch it ?he said " yes let's keep an eye if it gets worse then come back. " then I said "what are the chances of it getting worse? Or better? He said "it won't get better but maybe it won't get worse" so I said then if it stops and stay as it is that is how it's going to be? He say "yes I would just leave it alone."let's wait another year .

    Well I looked at him and put my cover up mu chest and said ok so much for wasting my time. I have to wait for things to go worse in order to fix them. I also adked them how can i deal with the burning .? He said just stroke it up and down." I got up and said wow i must be brave to touch my breast at the office and on the train and every where i go cuz it burns at all times now. He disnt answer and got up and left the room.

    There that is the best Canadian Dr. Ps head of plastic at princes Margaret hospital can do for a patient who's nipple is turning to one side due to radiation.

    Anyway you all know how I feel about that. No point of saying anymore.

    All I can say is be aware of the consequences radiation has when implants are use. The way he spoke it is a extremely important and we'll known side effect of rad which the imbecile of his colleague never explain to me .oh well I had no other choice since I kept my skin and my nipples just a price to pay I guess.

    OK almost at the train station ll come back here later

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    Ha ha ha bb.

    I was thinking a few nights ago wile meditating and dreaming about winning the lottery that if I ever do win I want to get you and jazz and all here in a project to help new diagnosed woman as per all this bs the Dr are saying to us when we get sick and been miss informed it's the worse .

    I tell you if my internal scars keep on growing and the nipple gets pull over the side then he may have to get rid of the entire breast. Is that what he wants that freaking idiot?

    I ll keep on massaging it and hope and fingers crossed it doesn't get worse and I can just let it be the way it is now .

    I tell u if I had money I could make public all that had happened to me I would not care I would pay big money to advertise information about the recon I had and what was told and what went wrong etc etc it's so easy for him to say to me oh for the burning there is no cure just stroke the breast wth? ? Moron if he had implants in his balls then I want to see him stroking his balls in public at all times to get the burning away I told him the burning doesn't allow my bra to even touch how do u espect me to stroke it?

    Moron 1000 times moron

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    E- that was really disappointing if not outright upsetting what happened with the PS. BB is right about too much "pink spin" about how they can make everything be normal again. No one is normal again after this, regardless of treatment. We are almost half way through yukky pinktober month.

    Wishing everybody here better days.

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    I am with you jazz I rather see this pink month over.

    Bb sending you and you mom love hugs

    Simplicity hope you are ok

    Life, June , milky hope all ok

    Night

  • jazzygirl
    jazzygirl Member Posts: 11,975
    edited October 2015

    Good morning ladies- I had a business dinner with my hospital client and was offered something interesting by them that will start half time right away and FT come January for 6-9 months. I accepted it and we are beginning work on the contract today and going in to meet with her next week to map out our statement of work. I may still help my teaming company here I have been working on a contract with, but told myself yesterday if the healthcare org offered work, I would take it and fit some other things around it the duration of the year I have been working on.

    BB- I would say the 90% is accurate about the mammos. One of the areas (my DCIS) was not found through mammo, and repeatedly mammo plus ultrasound. It showed up when I had the MRI on the other breast after dx and the additional tests you do. Even the imaging center radiologists said they were quite surprised when the saw the finding on the other side. I think it is good for women to hear that so they don't have a false sense of security around the mammos. Probably why they push women to do the monthly self exams. Both of my masses were small and could not be felt.

    I have an early breakfast with someone this morning. Must get my day going.

    Wishing everyone here a better day today



  • Enerva
    Enerva Member Posts: 2,985
    edited October 2015

    jazz congrats on the new job.

    I didn't hear from the job but I have a feeling I know why. It turned out my coworker whom also told me about the job had also applied for it so figures . But yesterday she told me she will take another job with another company she had 2 interviews and was offered 20k more of what she makes now. I am so happy for her and now maybe I ll hear something since yesterday she told the hiring manager that she won't take the job. I really hope I get the interview or at least that I change teams .

    Anyway my friend from Denver went to venezuela she is there now and she is hating everything .I am not surprised she is very picky and vzla is not what it used to be back when we were kids. I warned her about it and last night kept me up late telling me all kind of things that are driving her nuts. I asked her to contact my brother since she has no money exchanged her aunt is telling her she has jo one to but her dollars etc so much bs. In vzla everybody wants to buy dollars lol anyway hope my brother resolves her issue. He always does for me.

    My friend is so crazy she has several appointment with doctors over there she does not understand that vzla is no longer a great place to see a Dr or any professional. The country is in chaos but it is good this is happening cuz last night she finally told me after 3 days all she wants is to get on the plain to go home lol

    Have a great day every body me I am on the train going to work as usual