Single life after a mastectomy

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  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

    BB- since you seem know a lot about real estate, maybe you too could become an agent for a new career option?

    And yes, once I am done with the training, I will continue on and my trainer is going to show me a 20 minute routine with kettle balls that will be good for the times I have less time to work out. The goal of these two months together is to help me get stronger so I can maximize my work outs. When I am not working with her, I am doing my cardio (walking, biking, swimming). She is showing me the full spectrum of machines and hope to have some documented routines with her. I too am amazed by how many inches are melting away, but she busts my butt with the cardio/core work outs. 

    Your energy should return more with time. I am two months out now from diagnosis and will say I could not even think about doing something like this until recently. Even though I did not have chemo, I had a double big surgery (with the appendix, TAH) plus bc surgery followed by rads and was tired for a long time (along with having to work).

    Do try to do something every day, as it will help you to build your stamina. Even doing 15-20 minutes of something will make a difference.

    Is your neuropathy from diabetes or the chemo?

    Enerva- you focus on getting your work going and doing a bit of exercise as you can but remember dear, you had surgery not all that long ago!

    It is a crisp morning today!

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

    BB- would your insurance pay for some sort of PT? My mother had neuropathy from diabetes, and it was causing her problems and her insurance paid for some PT sessions to strengthen her walking. Maybe not an option with the out of pocket stuff though. Just a thought.

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

    Today's clip from Joan Lunden on breast cancer and things she wished she had known before getting diagnosed.

    http://www.today.com/health/joan-lunden-10-things-...

  • wambles
    wambles Member Posts: 13
    edited October 2014

    Hi ladies

    I'm a double mastectomy, no reconstruction, 47 yr old, single hothead in England...

    All I can say is this..

    A nasty, unfathomable disease has hit us all on this forum.. yes, it sucks, no, we don't yet have the answers we seek, but until then.. What should we do to fit in?

    Don't know bout you lot, but I'm living in the moment. Yes I'm single, and sometimes I thank god I am as since my diagnosis I've found I really want to live. No, I don't put myself in any danger, I'm not that daft, but yes, I will have a lil snog in the corner on a night out. Its nice to know someone still wants to to be honest. After all, I'm breastless and sweating like a piglet.

    Live while you still can, ladies, and if you're looking for love, never give up. There are millions of assholes in this world, but the diamonds will always outshine them.

    Hugs

    xxxx

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

    Hi wambles- welcome to our thread from over the pond! Love your view of life. I too am trying to live life fully and to take very good care of myself.

  • grayeyes
    grayeyes Member Posts: 533
    edited October 2014

    I wonder how many other Americans here will have to look up the word snog just like I did.  LOL. 

    I agree with you, Wambles.  Enjoy these days.  :-)   If we've all learned anything at all, we've learned that life passes quickly.

    I don't know about the diamonds, though.  I'm 49, and I think the diamonds have been taken.  :-(

  • wambles
    wambles Member Posts: 13
    edited October 2014

    Hehehe.. Sorry, I forget sometimes we speak a slightly diff language. It's true though, live life for the moment. 😃

  • juneping
    juneping Member Posts: 634
    edited October 2014

    wambles - lol loved your post!!! 

    Assholes......hahaha. So true 

  • juneping
    juneping Member Posts: 634
    edited October 2014

    hi BB - I am doing okay. Saw my BS today and confirmed I had mild LE sigh....and we have a deadline this Friday. We've been having deadline every five weeks since I got back to work. Lord it's insane. 

  • milkyway2
    milkyway2 Member Posts: 186
    edited October 2014

    well come Wambles you are part of fighter crew you are free to complain and free to talk wotever you like .i am from canada 40 yrs mother of teenagers .we are all in emotional and physical recovery phase .

    junipug i saw you on chemo thread 2012 we started chemo at same time how are you feeling now textore was a poison i feel joint pain.

    Enerva you are busy girl enjoy .

    bossumblues jazzy and lifeiswonder hows everything .

    stay blessed

  • juneping
    juneping Member Posts: 634
    edited October 2014

    BB - what site? the alternative?? yes....so much fights there. some ppl just got a lot of time on their hands. you would have thought ppl come up here for support and G some of them come up here to pick fights. i don't go there that often and only respond to the positive posters.

    milkway - i was dx in 2013...and i didn't have chemo...it was a tough decision but i felt i needed the quality of my brain to live a meaningful life. sometimes i wonder what it's like to have a husband to support me financially so i don't have to work so hard. there's a woman at work, one day she just stopped coming in without any notice. G....even tho its so irresponsible but can you imagine you can just pack up and leave without worrying about bills/rents/foods/$$$$ in general..

  • juneping
    juneping Member Posts: 634
    edited October 2014

    E - i am sorry about the date. but isn't it a good thing to just hang out with someone and have excuse to just hang out and connect with another human being? the outcome isn't so important, just live your life and enjoy it. of course don't fall for him, just enjoy his company....

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

    Wow, so there is an alternative thread where people fight? In some respects, that doesn't surprise me. Every person I have ever known who is into alternative medicine as the only way to go is very pushy about it. I have had a couple friends who are into the detoxing, colon cleanses, etc. and they have always liked to tell everyone what to do. They never seem to feel well from what I have observed.

    Milky- I am doing okay and hope you are too?

    June- I live in the world of deadlines, so I know your pain.

    Got another busy day tomorrow. Hope everyone here rests well tonight! I bet it is already morning for Wambles!

  • wambles
    wambles Member Posts: 13
    edited October 2014

    As I no longer own breasts I've decided to target the "Booty Guys".

    Zillions of squats later I hope to be shaking my ass Beyonce style.

    Well, its worth a try, no? :)

  • grayeyes
    grayeyes Member Posts: 533
    edited October 2014

    Hair loss...  need advice.

    Remember when I said that I wasn't having any side effects with the Tamox or Arimidex?  Well, I switched to Arimidex six months ago, and now it seems it has caught up with me...

    I thought it was my imagination at first.  But, no...  I'm definitely losing hair (on my head).  I always had very thick hair.  Losing a strand here and there would be normal.  But, lately, the strands are falling constantly.  It's like my head is shedding.  I can feel the strands fall all day long, hitting my arms, etc.  It's almost as bad as when I first started chemo - the hair isn't coming out in large clumps, of course, but this hair loss is not normal.  Also my fingernails - which always were healthy and strong - are suddenly very brittle.

    This can't be a coincidence.  BB - Didn't you say that you were having this SE?  Did you find a solution for this?

  • grayeyes
    grayeyes Member Posts: 533
    edited October 2014

    Thanks for the advice, BB.  I didn't have this problem with Tamox, so I thought I was imagining the hair loss.  Also, I have an aunt in her 80's who took Arimidex, and her hair is still thick and luxurious.  

    But... now I'm pretty sure my hair loss is for real.  I left a message today at my onc's office to ask about switching medication. 

    I guess I should be happy to be alive, but... I'd like to be able to keep something.  lol

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

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  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

    Wambles- shake that thang! I am working on my booty too.

    Life- that sucks about the hair. I do think my hair is thinner than it used to be, but have not noticed anything receding. I just cut my hair short after having it shoulder length or longer for many years because it just looks better with all the changes in my life. You should be able to switch drugs. I heard aromosin is the least offensive of the AIs.

    BB- I hope you are hanging in there and taking care of yourself. Have you been able to exercise at all? Do you have access to a pool (might work with the neuropathy?)

    Lili- I hope you are doing okay and feeling prepared for surgery next week?

    Enerva, June, Piper, Lili, and everyone else, hoping your day was good.

  • juneping
    juneping Member Posts: 634
    edited October 2014

    jazzy - it's the other way around. posters were advocating chemo in the alternative forum and questioned every alternative tx. the site is not meant for promoting or advertising alt tx but a place to share info and it turned ugly. i basically don't really visit or join the convo anymore. i am upset with those attitude.

    BB - thanks....my sis helped me a little but i don't want it. she has a life of her own and i just hate to spend her money. she is the type frugal on herself and generous on ppl around her. so i just don't have the heart to do it. this sh*tty BC brought us close so i guess it's the upside of the deal.....

    still at work....Bawlingbut i am leaving in 2 min. 

    good night all......going to watch some tv and call it the night.

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

    June- wow, that is not cool. No one should be pushing chemo anywhere ever. It is not meant to be for all cancers and stages. Well, no one has the right to push anything on anybody around anything, including how they manage their health. 

    I did not have chemo as I was very early bc and it was slow growing. Doctors said more risk than benefit. They said you may need to do it later if it comes back or spreads. 

    Hope everyone had a good day. Super busy preparing to go back to work next week. I need to clean my house this weekend, looks like a tornado visited this week!

  • milkyway2
    milkyway2 Member Posts: 186
    edited October 2014

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  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

    BB- if you have an ACA policy, you can sign up again in November to get a different policy. Anyone can re-enroll again this fall and choose different coverage that includes the docs you want, just like you get to do in a FT job. I may look again this fall depending on what happens with my policy (no sooner did I sign up this year when I got a notice from BCBC they were upping the premiums). I have liked some things about this policy, but not others. If they dropped my doctors, I would go find another policy that would have them even if it is with a different carrier. 

    When does your policy expire? Can you get the BRAVA done before those changes go into effect? I think you were planning to do it end of the year. I would move it up if you can?

    Milky- that is a very awesome reminder.

  • grayeyes
    grayeyes Member Posts: 533
    edited October 2014

    Sorry to hear this latest news, BB.  Sometimes it seems that, for every step forward, we fall back a step.  But the BRAVA patients have been complaining about that procedure.  The newer idea - fat grafting around a TE, with the TE reduced little by little and, I guess, eventually removed altogether (?) - sounds promising, though.  But I don't know if the procedure is available here in the U.S. yet.

    Jazzy - I really need a haircut.  LOL.  I just can't afford one right now.  And now my scalp has been ticklish with hair strands falling out.  Also, my knees have been bothering me.  I tend to brush off these things, but now I'm thinking the knee issue could be another SE.  I called my oncologist's office today, and now I'm going to try letrizole (Femara?).  It might have the same side effects, but maybe it won't.  I guess it's worth a try.

    Milky - Great words of wisdom.  :-)

    Juneping - Good to see you back again.

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

    Life- I get various pains in joints that move around. Ankle, knee, feet, elbows. I know it is from the AIs, and sometimes if any particular joint does not feel good, I wear a brace. Yesterday, my left knee was bothering me but now that is gone. Last week it was my left ankle. 

    Glad you are taking a different med to see if it is better. My MO says many people don't last on arimidex and have to change. 

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2014

    10 minutes to open the door for my open house lol

    Well I am beside the house now sitting in my car, house is empty which is easy for showing lol

    I agree with you Jazz I have a few friends who do the colon cleansing and believe everybody should do it lol

    I ll post when I get home ;) wish me luck, it's cold and I am not sure how this is going to turn out

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

    Enerva- good luck with the open house. Let us know how many people come today. I hope you get some folks who are interested in making an offer. How fun it will be when you sell your first property! 

  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

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  • Enerva
    Enerva Member Posts: 2,985
    edited October 2014

    hi everybody, well I had a busy weekend and now I am anxious about tmw, to be honest I have to put on a fake smile and present back to work with people I wish I never had to see again ;( but I did not win the lotto so nothing I can do about it just need to be brave and hide how I feel inside, hope for the hours to go fast and hope so they don't treat me the way they did before. I will try to just get by and survive the week. I feel if I survive a week then I will survive the next one and so forth. The open house went slow not many people showed up. A few noisy neighbours saying it is over priced and well I kind of agree, didn't tell them so off course but in my mind I agreed lol there was a young couple who seemed interested and I sent them an email today just thanking them for attending and also gave then some more details about the area. Anyway yesterday morning I woke up with a sore throat so I went to the walking clinic around noon doctor gave me antibiotics for 7 days, I have a throat infection. I have to tell you, I don't know if I told you before but this is scary now ever since I had chemo my immune system is so frágil I mean I get a sore throat and within 24 hours it becomes an infection :( I am worry. Not sure if I told you before I travel to vzla to help my family I had 3 throat infections one after another and wile I was there I also got sick now that winter is approaching I am getting it again. Anyway I was glad the doctor saw the infection and prescribed me the antibiotics but at the same time I wonder why I am not able to make my immune system stronger? I even bought supplement and what ever I read it helps but still I can tell I am not succeeding. Ok so tmw I will post to tell you how my day back in the office goes. ;) not looking forward to it :( 

  • Enerva
    Enerva Member Posts: 2,985
    edited October 2014

    forgot to share a few pictures 

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  • jazzygirl
    jazzygirl Member Posts: 11,974
    edited October 2014

    Enerva- well you are through your first open house and it sounds like it went okay. Maybe the young couple will follow up and be interested in more, you never know! The neighbors can have their opinions too. 

    Sorry about your sore throat. I did not have chemo as you know, but did read both chemo and rads can reduce your immunity short and longer term. One thing that might help is to start taking Vitamin C every day. My doctors told me I should take it for healing and immunity during treatment and good for boosting your immunity for the long term. I take 1000 mg extra beyond my multiple vit and have only had one cold since my treatment. Might be worth trying? Hope you feel better.

    And good luck tomorrow. You and I have had parallel experiences in life, and tomorrow I am walking back into my old work scene too, that like you, I was not wanting to do, but got something with them for a few months while I am waiting for something better to manifest. I decided that this time, I am keeping it 100% professional. I can work there but have learned I really just cannot be friends with people hat work there (fellow consultants yes, but not the worker bees). I have less tolerance for the BS that goes with other people after having cancer and really had to put up a lot of boundaries last time, and will do more this time too. You can use this to get money going and then look for something better too.

    Wishing everyone here a good week!