Jewish Warrior Sisters
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Eema, I'm sorry you are being subjected to even more stupidity by the people who are supposed to help.
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Eema....you have a wonderful way with words....just read your blog...love it....but don't love what you are going through....prayers for B9.....but your onc is wonderful.......
Prayers for my dear SIL please...SIL was admitted to the hospital this AM...they still don't have a definitive Dx....at first saying flu....they have run test after test after test.....ordered CT scan this afternoon cuz xray showed somthing...possibly kink in bowel or stopped (per text from DD)...just tried calling DD to get update, but she was just getting back to hospital....that is where she is spending Shabbat....her FIL was in the background....her MIL made her shabbat dinner....DD just called me.....she has a cot in the room for her.....SIL's room has 3 walls witih a curtain.....Still waiting on results on CT scan...so don't know anything....DD was heading to the jewish chapel (as she called it) before shabbat.....SIL's hebrew name is Yissachar Dov ben Esther.....
Eema....will keep you in my prayers......Rachel...hope you are doing okay after this last chemo....
Better get off the computer...I'm in S. Florida at my parents...we will have shabat dinner, but its not like we do at home...I will make kiddush and motzei....but there are none of the special extra treat type foods that I do to make dinner special....what makes it special is that I'm with my parents....but it is just another meal of the week......soory to whine, but it just doesn't feel like Shabbat....okay...enough of my pity party.......Candle lighting is in 45 min....Shabbat Shalom....
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Eema,
All my thoughts and prayers are with you. I know how you feel as in September I was stage II and then took the express train to stage IV. Though it seems to defy explanation, my bone met was probably always there but there was no reason to suspect that. I had a biopsy, made painless by great drugs, that confirmed it. However, I pray with all my heart that is not the case with you. Shabbat shalom.
Caryn0 -
Shabbat Shalom.
Eema, So sorry to hear your news. Hope they get the biopsy scheduled soon.
Rachelvk, How are you doing?
exbrnxgrl, hope that they get a handle on things. Sure seems fast progress of disease. Did they do a complete scan when you were diagnosed?
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karen - I'll keep your SIL in my prayers as well. I hope Shabbat brings you some warmth and good health to your family.
It's late, but I will finally be lighting candles shortly, making kiddush and motzi. It's day 2 after my 4th tx, and I'm holding out okay, but I was at work later than I planned and didn't make it to services (I prefer Friday evening over Sat morning usually). And since I go right to services, I almost never make it home to light candles on time. I figure there's some benefit to lighting anytime, if only to keep a reminder the rest of Fri/Sat that it is Shabbat.
Wishing everyone health rest this weekend.
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Ptdreams,
No scans when I was first diagnosed as biopsy and then post surgical path reports indicated IIB and no reason to suspect anything else. This was confirmed by a second opinion at Stanford. It is a long story but a PET scan done for other reasons showed a spot on my right femur. Biopsy confirmed 2cm met. I don't think, nor do my docs, that it was progress of the disease. It was probably there all along. Unusual given that my bc was not agressive but it happens. That's it so far. I am on Arimidex and monthly Aredia. I feel and look great. Went back to work 5 weeks ago. Tweaked my diet a bit, work out 5 days or more a week and looking forward to becoming a grandmother in a few weeks. I realize that I have a serious disease but our family joke is that stage IV becomes me. Sorry if this offends anyone but humor is something bc hasn't taken from me yet.
Caryn0 -
Caryn, Don't ever lose that sense of humor. If you read through alot of the other forums you find gals with stageIV that are fifeteen, twenty and one who is twenty six years out according to the poster. Keep doing what you are doing and I'm sure you will be in their ranks. Hope I also last that long.
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Eema,
Hoping for an benign bx for you. I, too, had a melanoma about 18 years ago and BC dx'd 2 years ago.
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Hope everyone is having a good Sunday....Looking forward to hearing how Leah's retreat is/was....DIL is home and doing better.....
Eema.....been thinking about you all week-end....Rachel glad you are doing well...
Best get off the computer...still at my folks....off to the pool.....
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Just got good news! Still need lymph biopsy, but radiologist found An MRI from 2009 and lesion is stable! Another scan in. 3 months! Thank you, G-d, and you for Davening!
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FANTABULOUS! So happy for your Eema!
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Wonderful news!
Caryn0 -
I'm so happy to hear that!
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Great to hear. Have a good week everyone.
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Eema, good news indeed. Am I correct in understanding that because it has been there for a few years, it is NOT mets? It is just a plain B9 lesion
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Eema....doing the happy dance for your good new
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wonderful news!
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So, to keep everyone up to date with me, quickly, Dr. Radiology Fancy Pants today called me and told me that I don't need a biopsy, to wait 3 months and see what happens. I said OK because my MO is on vacation. She will have to fight this fight when she gets back.
In other news, I have a sinus infection. But not a cancer sinus infection!
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Hello Ladies. Been too busy to post. My DH had his first chemo, three days in a row, 10 + hrs each day. Thankfully, so far no SE. Hopefully the same no SE after the next session.
Then there are dr's appointments: his and her's. I had my LAST Herceptine, finally, and had cut off my wedding ring on the same day. I was worried that I will have to spend hours in Cornell's emergency room, since nobody knew where else I should go to have the ring removed, when between my MO's office and Cornell Hosp, I simply stopped at the SKCC Urgent Care and a very friendly nurse took care of it on the spot, no waiting no fuss. I'm so often at SKCC with my husband that the place is beginning to feel too familiar.
hrf, how long after treatment did you have your port removed? My oncologist said that I can have it removed any time I want, but some ladies on the boards here keep the port for some time after treatment. I am quite undecided.
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Eema - so does this mean this is DEFINITELY not a metastatis? This is what I am hoping and praying for.
Joan
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antonia, I had it removed within a few weeks following last tx and I think before rads began - so less than 3 weeks. If it stayed in, it would have to be flushed on a regular basis - so didn't want to be doing that. Also because it is a foreign object in your body it is possible to react - for me that meant meant the possibility of thrombosis (which occurred when I had a PICC line) so I just wanted it out. In hindsight it would have made my Zometa infusions easier - every 6 months - but I didn't want to have it for 3 years.
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antonia - sending healing thoughts to both you and your husband. I'm sorry about your ring, but I'm glad you had a place that could take care of it for you.
I'm dealing with thrush after my lastest chemo treatment. And the knee that's been injured on and off over the past few years decided to act up out of nowhere. But at least the fatigue seems to be minimal this time, so I guess I can juggle the SEs it keeps throwing at me.
I had forgotten to start studying a Torah reading for March 2, so I'm hoping chemo brain stays at bay and I can learn it without much trouble. It's longer than I'm used to, but I'll do my best.
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Hi all
I wonder if I could get some travel tips....I am going to Israel in a few weeks (hopefully).
We will likely stay in Tel Aviv. For most of the time we will be hosted as part of a group, but a friend and I are staying for 2 days on our own.
We have be both visited previuosly (tho for me it was just once as part of a group). As we don't have a lot of time, we are not going too far afield. I admit I am ALWAYS a nervous Nellie in any travel situation but maybe moreso here. I would feel better if I could go over our itinerary--if you are up for it, could you please PM me?
Many thanks
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English.....Leah_S lives in Jerusalem...she is at a retreat this week, but she generally checks in atleast once/week....she would be a great resource. I in 2010 and 2011, but spent most of my time in Jerusalem. Have a wonderful trip. Karen
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Hi all, back from my retreat. It was WONDERFUL. I think one of the best parts of the retreat is that I'm normal there since all the women have cancer (yeah, I know, it's not good that so many women have cancer but you know what I mean). There were various workshops on emotionally dealing with this, on gettting support, etc. There was also fun stuff, entertainment in the evenings, etc. I come back from this every year feeling ready to deal with what I need to. It renews me.
English Major, I got your PM. I then made a mental note to ask my DH your questions since he knows the country better than I do. Memo to self: mental notes are as valuable as the paper they're written on. I just wrote a real note and will get back to you. By the way, I don't live in Jerusalem but on a moshav called Matityahu that's about halfway between Jerusalem and Tel Aviv.
Leah
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Hi ladies,
Last week was the first anniversary of my sister's death. It was very surreal to light the yahrzeit for her. It burned for over 30 hours and was both painful and comforting to look at. The empty glass is still sitting on my dining room table. I can't bring myself to throw it out. Is that strange, morbid, normal? Have a good Shabbos.
Caryn0 -
Caryn...I totally get not wanting to throw the empty yahrzeit candle holder away....keep it as long as it brings you peace.
Wishing everyone a good Shabbat. Hugs, Karen
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rachelvk, thanks . I don't really mind destroying the ring. I was simply worried that it was becoming tighter and I started feeling tingling in the left arm and feared swelling would cut off circulation. I have a mild case of LE and I still have an imprint of the ring on my finger tree weeks later.
I hope thrush in your mouth clears up soon. I vaguely remember dealing with it, too , and I know that it is bothersome. Chemo can bring on a lot of unpleasent SE, and I had many of them, but the good part is that with time I erased the memory of many I had, partly due to chemo brain, which still hasn't cleared up.
I have noticed that your surgery was almost exactly a year after me. Believe me, a year makes a big difference. Hey, I have got my hair back. It is completely gray, it is short, it is baby fine, but it is all mine. Today I spoke over Skype with my old school friend who lives in Dennmark, and she was somewhat shocked seeing me so gray. But I am fine with it. After all, I am a grandma, twice over.
Rachel, what is the Torah reading for March 2? I am trying, but I think I am not doing all that well on my own. Good Shabbat.
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Caryn, I know how you feel. My Mother's yahrzeit will be next week. She passed away while I was at the tail end of AC, in a deep hole from SE and couldn't spend much time with her. I miss her terribly every day.
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Caryn - I wish had words to comfort you. I can understand not wanting to throw the candle away.
Antonia - Thank you for the encouragement. I still am counting my blessings because despite the thrush and a few other SEs I'm dealing with, I still feel like I haven't been as knocked out as many others. I'm sorry about the LE - I hope it's not a serious problem that bothers you regularly.
I'll actually be skyping shortly with a friend from Russia (I lived there for three years in the 90s) who is coming out this week with his girlfriend; or rather, she's coming tomorrow, and he's still waiting for his visa from the US consulate. Oh - the Torah parsha is Tetzaveh.
Shabbat Shalom.
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