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New Jersey/NYC/CT/Eastern Pennsylvania ladies

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Comments

  • Bonseye
    Bonseye Member Posts: 124
    edited May 2012

    dlm217--I am starting my RT at MSK in Basking Ridge around the same time.  As long as I heal well from the TRAM surgery.....I have Dr Schupak for my RO and maybe we will cross paths while taking this part of the journey :)  My big thing is post op being able to lie on my belly for the treatments.  There is always pain medicine if needed :)  I am determined to just make it through each leg with the least problems I can cause......I will just lay in whatever position needed and deal.....Will touch base on my time frame of treatment. 

  • Letlet
    Letlet Member Posts: 55
    edited May 2012

    dlm, my PS was Dr. Disa too. Dr. Gorsky is a sweetheart, You are in good hands in my opinion :)

  • bubbe
    bubbe Member Posts: 26
    edited May 2012

    Hi Everyone,

    I'm in Jackson,NJ. I'm on AI treatment now, my first mammo since my lumpectomy will be in July. My breast surgeon is Debra Camal, RO was Oren Cahlon at Princeton Radiology Oncology, and my oncologist is Susan Greenberg. I feel blessed to have found such great doctors who are smart, talented and kind. They work well together, stay in touch with each other, answer all my questions and treat me with respect. No one should have to go through what we do, but it sure helps to have a great medical team

  • JoanQuilts
    JoanQuilts Member Posts: 265
    edited May 2012

    Amen, Bubbe!  And welcome to our little New Jersey group!

  • Snoopsmom
    Snoopsmom Member Posts: 42
    edited May 2012

    Hi, Ladies! I'm in Macungie, PA, in the Lehigh Valley near Allentown. I've been getting my treatments at the Morgan Cancer Center at the Lehigh Valley Hospital Center in Allentown. I LOVE my oncologists! My BS is Heiwon Chung, my RO is Alyson McIntosh and my MO is Usman Shah. Dr. Shah is a real sweetie! On my first appointment with him, I said I had done some research on-line, a fact that he probably hated to hear his patients say. But he said he liked his patients to become informed and be part of their treatment...not what I expected a physician to say but was very happy to hear!

    I also have a great lymphedema specialist, Linda Boyle. I don't have LE, but she's been helpful in making sure I don't get it. I will finish my last rads on Monday, then start Arimidex. I just breezed through the rads, didn't even start to get pink until week 6, no discomfort or itching, just pink.

    I'm VERY fortunate with my diagnosis...Stage 1, Grade 1, no node involvement. This is my first encounter with BC. There was only one person in my family previously diagnosed, an aunt who got her DX while in her mid 80's. I have 2 sisters, and I'm hoping I'm the "one off" in the family who will get this nasty disease! My brother is currently winning his battle with lymphoma.

  • orangemat
    orangemat Member Posts: 368
    edited May 2012

    Snoopsmom, I don't have LE either, but after my second surgery I went to LE therapist because of all the scar tissue pain I had developed. My PS didn't recommend self-massage for me (turns out I had bottomed out, so obviously my implant sitting too high was never an issue), so I developed a lot of tightness and even a neuroma (trapped nerve) in all the scar tissue that had formed alongside my ribs. Anyway, I went to Omni Therapy in Bloomfield, NJ and the therapist there was absolutely wonderful! It's a husband and wife team private practice; the husband does traditional physical therapy and the wife works with women primarily. I found their name listed in the LE therapists list from BCO. I'll probably be going back to her in the next few weeks, once I'm completely healed from my revision surgery of two months ago.

  • Karmil710
    Karmil710 Member Posts: 19
    edited May 2012

    Has anyone used the LE specialist at Overlook Hosp?  I don't think I have LE, but I do have mild swelling in both hands (I think it's related to regular old fluid retention).  I wanted to get fitted for a LE sleeve for flying.

    Snoopsmom & Orangemat:  I've heard about scar massage, but not from my BS or PS.  Is the purpose of that to decrease tightness and entrapment related to the scar-tissue?  I've been putting Vit E on my sutureline.  It's healing nicely from TE exchange 4 wks ago.

    Karmil

  • susiesue
    susiesue Member Posts: 5
    edited May 2012

    just checking in.......went through surgery, chemo and radiation in Hunterdon county......let me know if you need info..........

  • Hortense
    Hortense Member Posts: 718
    edited May 2012

    I'm being treated in NYC, but come from way out on eastern Long Island. It's a bit of a haul and for chemo I have to stay in hotels, but I think it's worth it.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited May 2012

    I did PT with the lymphodema person at Hackensack, I have it in my boobie..after 3 chunks removed, it is bigger than the good boobie!

    she did show me how to do the self massage and I have to say, when I do it, it smooths out the scar tissue.  I am not good at keeping up with it though

     Hortense, if you can make the trip in to NYC and are comfortable, then it is the right place for you, best of luck 

  • orangemat
    orangemat Member Posts: 368
    edited May 2012

    I'm going to Omni Therapy in Bloomfield tomorrow for a full LE evaluation, now that I'm a good two months post-op. I tried wearing a long sleeve shirt the other day and one sleeve felt way too tight on my arm and shoulder-blade/underarm/ribs area. Hopefully a couple visits will take care of things, just like they did last time.

  • alexandria58
    alexandria58 Member Posts: 202
    edited May 2012

    Hi.  Anyone who is not also on NJ Get Together - we are planning an outing in July at Point Pleasant.  I am in the process of doing some head counting before finalizing the date.

  • Clowngirl
    Clowngirl Member Posts: 15
    edited May 2012

    Hi, I wanted to join the NJ/NYC/CT/Eastern PA ladies.

    My name is Sally and I'm from Connecticut. I was happily living the life of a professional clown when my left breast decided to assault me!  Tomorrow morning at 7:30 I go in for a double mastectomy. I'm very scared but would love to hang out in this group. Are there any other women in this group from Connecticut? 

  • proudtospin
    proudtospin Member Posts: 4,671
    edited May 2012

    NJ folks will welcome you neighbor,  Lots of ladies have been where you are now.

    I only (?) did 3 lumpies but my general advise is to stay busy for today, go get a manicure, pedicure or what ever takes you mind off of it.

    And to stop back after you get back, betcha you will have questions, any now?

  • bubbe
    bubbe Member Posts: 26
    edited May 2012

    Just want to wish you all the best tomorrow - and do let us know how you are doing.

  • JoanQuilts
    JoanQuilts Member Posts: 265
    edited May 2012

    Sally/Clowngirl - absolutely you can join us - this thread includes our Connecticut sisters! 

    Best wishes on your surgery tomorrow.  We will be in that OR with you, holding your hand, and making you laugh!  Looking forward to chatting with you again when you're on the other side of your surgery!

    Joan

  • alexandria58
    alexandria58 Member Posts: 202
    edited May 2012

    Now looking at the date of June 24 for an outing.

  • Rose_d
    Rose_d Member Posts: 6
    edited May 2012

    Hi all,



    Just found this thread. I am in Madison and grew up just north of Princeton. I was diagnosed on Jan 5th, 2012, 2 weeks before my 40th birthday. I have been going to MSK for my treatments. My BS was Dr. Heerdt who is amazing. PS is Dr. Cordeiro and I'm now with Dr. Gorsky for chemo. I've finished 2 of my 8 treatments (3rd is Monday) and just can't wait for this to be over. I haven't met with an RO yet but will in a couple of weeks and am really really hoping they say I don't need rads.



    I originally met with Dr. Cunningham at Summit Medical Group who I thought was really nice, but I ended up deciding to switch to MSK.



    It's nice to'meet everyone!



    Rose

  • Karmil710
    Karmil710 Member Posts: 19
    edited May 2012

    Hi Sally!  Welcome to the thread!  I hope you are healing nicely after your BMX.  I had mine in Oct, the recovery wasn't easy, but before you know it, the drains are out, your suture line is closed, and you are moving around more easily.  Wishing you an easy few weeks.  BTW, I used to live in Branford, CT. 

    Hello Rose D:  Yuck, BC what a birthday present!  So sorry.  Wishing you all the best with your remaining txs.  I did my txs at Overlook Hosp, but got a 2nd opinion at MSK- great place.

    About the summer get-together... it sounds great, but it's too soon to commit to anything yet.  July seems so far away... 

    Happy Mothers Day!

    Karmil

  • JoanQuilts
    JoanQuilts Member Posts: 265
    edited May 2012

    I am done, done, done, done.  Some 3 hours PFC.  Go me!

  • bdavis
    bdavis Member Posts: 3,192
    edited May 2012

    YAY!!!!

  • alexandria58
    alexandria58 Member Posts: 202
    edited May 2012

    Congrats, Joan.

    On the outing - now set for June 10, at Point Pleasant, starting with lunch at Farrell's at 12:30, and beach after.  Please let me know if you're coming.

  • Gayle56
    Gayle56 Member Posts: 111
    edited May 2012

    That is great.

    Gayle

  • orangemat
    orangemat Member Posts: 368
    edited May 2012

    Yay Joan!!

  • Dutchie
    Dutchie Member Posts: 37
    edited May 2012

    Hi! Just came across this thread and it felt good to see some familiar places...I'm living in Somerville, just north of New Brunswick. Treatment at CINJ/RWJUH. You all sound like amazing ladies! Just wanted to introduce myself.



  • JoanQuilts
    JoanQuilts Member Posts: 265
    edited May 2012

    Hi Dutchie!  Welcome to our little group!  Hope you will hang around and join in the conversation.  We had an all-Jersey get together a couple of weeks away, with more to come in the future and you are most welcome to join us.

    Have a great day!

    Joan (joanquilts)

  • beegee
    beegee Member Posts: 9
    edited May 2012

    Hi!  This is a great thread.  I live in the Lehigh Valley, and get my treatment at the Morgan Cancer Center at LVH, as a few others here.  I started out elsewhere, but ended up hospitalized after my first chemo, and I met my current onc while in the hospital.  I was very impressed with him--Dr. Nair, and when I tell people who my onc is, they all agree that he is great.  He's always smiling, keeps up on the latest research, consults with many other professionals, and spends lots of time with his patients.  One time when I was with him, I started to feel guilty because I was afraid others were waiting and I was hogging up his time!  My experience with chemo, surgery, and radiation at Morgan has been very good.  The care is coordinated very well, and I have never had to wait too long (well, one time at radiation, the computers went down), everyone is friendly and supportive.  

  • JoanQuilts
    JoanQuilts Member Posts: 265
    edited May 2012

    Hey Beegee!

    Welcome to the thread!  It's great to have another Pennsylvania gal on board!

    Joan 

  • bucky317
    bucky317 Member Posts: 178
    edited May 2012

    Congratulations Joan!!!!!! Whoop hooooo!!!!

  • scaredycatwoman
    scaredycatwoman Member Posts: 4
    edited May 2012

    Hi  I am having a terrible time getting the experts MO to agree on my chemo...and it is causing me extreme anguish.  They are all contradicting each other!!!

    I had my surgery at Cornell_Weill--wasn't in love with the surgeon but that part is over and done.  I saw an MO at CW  Unfortunately it wasn't Dr. Anne Moore but someone else in her practice and she recommened doing TCH --and that ACTH was too hard on heart

    Then I saw an MO at MSK (Unfortunately not Larry Norton--they say he is not accepting new paitients) and she recommended ACTH  Said they never do TCH and that ACTH is not too hard on the heart   OPPOSITE FROM CW MO!!!!

    I saw an MO who heads New Hackensack Hospital  Breast Center who presented himself as a nutcase but who is supposed to be brilliant and he said he hated TCH but got on the phone and spoke to the MO at Cornell and he said he would do TCH if she put her reasoning in writing--What was that about --I wanted his opinion--not just to have him listen to her.  But he did say no to ACTH

    Then I saw another MO at Englewood--I am not sure why because it is not known for its breast center--and he said he recommended TCH  and he wouldn't recommend ACTH--too hard on the heart.

    I am spending so much time that could cost me my life just trying to get a plan in place!!!