The Hermit Club
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Kltb, I'm glad you're getting a second opinion.
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Thought I would share a sweet story. I went to lunch with my youngest today - I asked her last night if she would preferred if I wore a wig rather than a hat and scarf. She said "I don't care; whatever makes YOU comfortable, I know your wig is itchy." Then I asked her what if some of the other kids asked her about it later and she said that the school counselor told them if there were things they didn't want to talk to other kids about all they had to say was "That is personal and I don't want to talk about it." So wise for 9.
Anyway, so I went for lunch, of course, no one said a thing. I even popped my head in the teachers lounge to say hi to a few of the teachers I worked with when I did long term subbing. They probably talked about me after I left, lol - I can just imagine those conversations in my head...
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So sweet ! What a sweetheart of a girl!
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Very sweet girl!!
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Thanks, she is a sweety. I forgot to add the only child who said anything to me was a little girl who said "hey you smell good". Lol. Bath and Body Works at its finest.
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klt wow when u get a u smell good from a kid u must really smell good and u'r dtr is a jewel, see how much they do understand, they don't have to know specifics but bein so kind to u about u'r comfort is so special.
Well if things o right I will not be a hermit this weekend--Sat. niht family party and Sunday baby shower-I do hope I' up for it cuz I'd like to go, but unfortunately my body rules a lot so I just wait and see.
I saw the heart Dr. today and had all my labs and B/P was super. So that's good.
Next week I see my other Drs. so I hope all oes well too.
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Camille I hope you feel like going to your parties. Glad your heart is good!
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Oh markat I have been really scared but so far it's good I need more test but at least everything I had yesterday was good Markat really this scared me more than cancer all this stuff that's happenin--Wen I was told I had cancer all I said was ood I'll lose some weiht, and I said Damn I was oin to retire and do pole dancing part time---even my Dr. who was holdin my hand said u can cry if u want and I said I don't need to and I never did.
Now I'm OMG my heart I'm going fast and I'm scared with my B/P too it's like I'm getting closer LOL and then they had to weigh me that's another OMG but I have lost over 45 lbs since all this stuff started a couple of months ago--but I need to lose 50 more anyway so that makes me happier OH I'm so screwed up my mind is all over the place. worse than usual anyway.
Well I hoping I get to go everywhere this month I have a Baptism on s=Sunday too with my girlfriends as long as I don't have diarrhea I don't care how I feel I can go-but if that starts up I get upset cuz it makes me stay home so keep u'r fingers crossed toes too while u'r tping.
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I went into total hermitude for my bad chemo week. I just didn't feel like doing much of anything so I didn't. I did go back to work this week and survived okay. Next week I'll be almost normal.
Food has been a struggle this time because my sense of taste got screwed up bad. Very few things taste good so I just have been trying to make sure I eat even if it's not the best stuff for me. I started drinking regular ginger ale (diet drinks taste just awful to me right now) and I think that has helped a bit. I don't drink a lot but the carbination seems to help my stomach a lot. The Onc Nurse that called me earlier this week said that they'd order another nausea med for me but after reading about it (Compasine?) I'm not sure I want to try it. If it messes with my head or makes me dizzy, I would still be as non-functional as I am with the constant low-level nausea.
The new kitten has been keeping us well entertained. My boyfriend named him "Hoppy" because that is what he is doing all of the time. So much energy in that tiny little body! LoL
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Camille can you take immodium for the diarrhea. I'll keep all my fingers and toes crossed and send you super good thoughts.
Jinkala I took compazine during chemo. I don't think it made me too fuzzy. I was pretty tired from day 3-5.0 -
Jinkala I'm sorry this is so difficult for u--I hope u feel better soon and use plastic utensils for eating.
Markat I have perscription meds and I take the highest dose possible for my D. Mine is extremely violent and they don't have a clue how to stop it from happening. I just et tired of cancelling things I wan to do, u know what I mean?
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Oh Camille, I'm so sorry. That sounds terrible. I would be hesitant to go places too...well more hesitant.
I was in hermit mode yesterday. I'm going to try and muster up the courage to go out with the husband tonight.0 -
Markat I hope u got our with u'r D for the evening, u need to do that and anyway it sounds good. Dinner?
I did have a great time tonite, sister cousins, friends--but I left about 2--ot home about 10:30 so to me a long day And I'm super tired and hurt alot--but we laughed alot so that makes up for it--And I wasn't very hungry so ate some--2 tables of food and desserts--NOW I WISH I HAD THE DESSERT TABLE most of it was all home made too, not mine but alot LOL
Well I took my meds so I hope I sleep tonite.
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Lol Camille!!
I chickened out Saturday night. I get so tired that by night time I just want to veg! Maybe I should take DH out for the early bird special...dinner at 330.
I did volunteer today at the school. I started having hot flashes and was dripping in sweat! Ugh!
How's everyone feeling?0 -
Feeling your hot flashes markat too! I think I am having a combo...chemo and chemopause ones. Delightful.
Blankets on, blankets off repeat all night. Other than that Taxol is ok, #3 tomorrow so we will see. Have a new Oncologist and she is easy to communicate with, also very optimistic so a good combo.
camillegal.. glad you had fun at the party, too bad you didn't think of packing a small dessert package to go, next time
hope all are having a nice day
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Oh I'm sorry markat but leavin in the evening is harder to do--yea go for the early bird special u get more food LOL
I'm really hermatuding today I've got a cold or sinus infection and feel crappy so I'll have some chicken noodle soup. The old remedy.
It's rainy today anyway so it's fine o hide in my room.
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It's nite everyone was busy today, I guess---and it was cool out--I stayed in with my sinus infection and see the Dr. tom anyway so I'll just keep on getting meds. So my hermitude lifts for a while tom. I'm supposed to go out for dinner with my siblings (LOL) fri. night and I want to feel good so I can eat, and not have diarrhea either. So I really can't eat the day before and take an extra pill--I have to figure all this stuff out just to leave the house. That's why it's easier staying in LOL Oh besides what I wear and my jewelry---it's a big deal for me.
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I hope you can go out and enjoy yourself! Let us know how things go at the docs.
I volunteered at the school again and went to my in laws. Tomorrow I will be a hermit until it's time to shuttle the girls to dance.
Whatevah- I hate the hot flashes! I don't notice them as much at home. I was sweaty at school again today. I was so afraid of embarrassing the girls, but all the kids were so sweet.
Kltb, sissydi, cs, jinkala, and the lurkers...hope you're all doing well. You guys must be out partying
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Hi gals I'm here!
markat - sounds like you are getting out and about quite a bit! I hope to volunteer more after surgery and all that is done, maybe after Christmas. It looks like the meanie moms aren't in charge of our PTO anymore so maybe I will do more.
camille - I am loving all these pictures - hilarious!! Hope you are feeling better from your cold. We had a rainy weekend and we totally needed it. I love staying in when it is raining!
whaevah - I hear ya on the hot flashes - I call mine warm flashes because I don't actually get hot and sweaty, just warm and uncomfortable. Hope your #3 went well.
Jinkala - try the compazine just to see if it helps. I didn't have too many issues with it. I took Zofran at first but my MO told me the antinausea they give in my IV was similar to Zofran and to take Compazine the first few days after TX. I had the low level nausea - just enough to make you feel like CRAP for days when I was on A/C.
Counting down to surgery - 11 days to go. Still cleaning, still cooking, haven't bought a thing. Still don't know whether to rent a hospital bed (100% covered) or buy a recliner (can't find one I like). Oh, and I had my port checked Monday - a 10 minute procedure that was a 3 hour ordeal because I had to go through the outpatient surgery center??? Anyway, the radiologist did not seem at all concerned about the lump above my port (that I was so worried about) - said he wasn't sure what it was (a tiny clot, scar tissue?) but that there WAS a kink in my line under the clavicle. And that over time, it might need to be replaced because it could break - wth?? So anyway, I still don't know what the knot is but apparantly it isn't a tumor or anything so....maybe my BS can tell once she gets in there, lol!
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Oh Don't get me started about hot flashes--LOL I stopped those years ago---Now they have reincarnated themselves. Disgusting
Markat u are getting out --good and don't worry about the sweatin it makes u look like u'r working harder than the others.
Klt the countdown to surgery ugh u really are doing things tho-wow I'm impressed---I akway thought they should not tell u about surgery and call the day before and that's it. SUPRISE, SUPRISE!!!
Well I went to one of my Drs. today mag is still low so she called the heart Dr. and I increase mag med. And she gave me an antibiotic for my sinus infection all in all things were ok--she's my GP and very nice--young--I see my onc and card. next month It's funny now with computers they go over all u'r meds everytime and they're all generic names ???? I'e got now 15 don't know 1 name except he one for aromosin and I just say yes to all of them--I think I'm right tho. LOL
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In total hermit mode today...and probably all weekend. My stomach is bothering me, wah!
Kltb, hope you are getting things done or doing whatever makes you happy before surgery.
Camille hope you are feeling good.
Hope everyone has a great weekend!0 -
Markat just stay put if u don't feel well. and yes Klt--u r ambishest (sp) that word doesn't look right, but then what does.
I'm going out tonite sick and all--I promised my sister and I'm not contagious tho. It's rainy and damp and I'd like to stay in and eat ice cream in my flannels--mmmm that sounds good and I also have a taste for cheesecake right now. Oh well We're going to a rest. that nothing is over 500 calories blah--I do that everyday now it's worse at a restaurant. I want real food Well my SIL said he'll have something for me when I get home hahaha then I'll get into my flannels and curl up on my chair and let u know how it was. In the mean time
Just so u don't forget about me and how I love my hermitude.0
