The Hermit Club
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Hi all. Sorry I've been MIA. No excuse...
Kltb04 - I adore - and I do mean ADORE - Tim Gunn. I am a Project Runway junkie. Can't sew or design to save my life, but I certainly like to watch people that can. I love that you got to meet him.
A few updates for me. My chemo was cut short due to some neuropathy, so my surgery will be moved up. I meet with my surgeon on Thursday, and we'll get it scheduled then. Kindasortareally freaking out that it's going to be happening sooner rather than later.
One of my dearest friends is coming out to stay with me next week. I'm wicked excited to see her - I haven't actually seen her in over 8 years, even though we talk all the time. So I guess I'll be getting out of the house - I doubt she'll be content to sit out the couch and watch Food Network with me all day.
Hope everyone is doing well.0 -
Kl and CS u guys are movin' around. GOOD.
It's good to get u're surgery over with then go from there instead of waiting.
OK I thought this was cute
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Wow you guys have been busy! Nice to hear from you all!!!
I went over to a friend's house last night and had 1 too many glasses of wine…meaning 3. I had the worst hangover today and had to reschedule my herceptin! How sad is that? Pretty sad. See what happens when I try to be social lol! Hey guys, don't call Intervention on me.
Kltb that picture is great!!
Jinkala, I loved icecream during chemo. Hope the blurry vision goes away.
Cs sorry about the neuropathy!
Camille keep the pics coming! Those balloons look cool!0 -
Oh funny--Markat what reason did u give for cancellin herceptin? hahaha Well it was worth it wasn't it? U got out and had a fun time.
And I'm all black and blue on my face after having 2 teeth ulled, had to go into the bone.-Well I took some meds and Hope I can go back to sleep
For u Markat0 -
Oh no! I hope you aren't in too much pain! I had to have a root canal in January (during chemo). Man I hate dental work. I just told them I wasn't feeling well...which was true. It actually put me back on the right schedule because if I went yesterday it would have been early anyway. Labor day screwed up my schedule. I should have gone in at least for the fluids, probably would have made me feel better lol. That picture is hilarious. I almost spit my coffee out laughing!! No more wine for me for a looonnnggg time.
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Hi everyone. I'd like to join the Hermit Club because that's just what I want to be at the moment. I had my BMX and DIEP surgery a week ago today and just left the hospital. I am staying with my mum for a week or so as I live on my own in a different town. I honestly think I could manage on my own already but it's not worth the arguing.
I had a hard few days post-op but am now doing really well - at lest physically. The last few days I've been really weepy. I didn't want to be in hospital, but I didn't want to leave either. I just want to be completely alone for a day or two so that I can just be how I want to be and feel how I want to feel. At the same time I'm concerned that will make me worse. I have a history of depression since my first diagnosis at age 16 and although I don't think I've ever been over it, day to day living allows me to keep my head above water, so to speak. Just this past week in hospital has changed everything. I've always struggled with adapting back to 'normal' life after feeling kind of institutionalised and just this week in hospital has set me back.
My mum keeps upsetting me. She's such an aggressive person and although she was great when I was unwell in hospital, she just doesn't get how I feel. She said I was 'crying like a big baby' yesterday because we argued about the plan for my discharge day (it's really not worth explaining). I have a 15 year old brother who she's constantly yelling at and I just don't want to hear it. I'm going to have to rely on her to take me to my first few follow-up appointments but I just want to go back to the hospital alone where there are people who seem to care and understand more.
I was planning on having a friend stay with me for a few days once I get home but I really just want to be alone. I have been texting friends and updating via Facebook but I just don't want to talk to anyone. I didnt step out of my hospital room once in the whole week, even when I became more mobile. I'm afraid the more I try to hibernate the more difficult it will be to get back to normal and the longer I'm off work, the less I'll want to go back. Everyone will be expecting some kind of emotional trauma from the impact of this surgery but I don't think it is that. I am not exactly thrilled with the way I look right now because I look a mess but I know that I will heal and any imperfections can be fixed later. I think the experience has just brought previous issues to the surface as I've not been fit enough to be able to distract myself.
Thanks to anyone who reads all of this waffle mess! It feels better to let it out.
Michelle0 -
Michelle, it's always better for u and us to get things out and u've come to the riht place.'I'm sure u may not feel to bad but I think u should have u'r Mom to help u as long as u can take it. Even if just a few more days. Then u can go home. Most of us feel like u do now all messed up for a while, some longer than others--but as u feel better and get used to this horrible idea of having cancer it does get better. Maybe cuz of u'r history u have to push ur'self harder and working to--but in the meantime allow ur'self to feel sad and not a super woman--Just be u. And if u'r not on anything for depression talk to u'r Dr. and if u r it'll kick back in. After all u've been thru a lot both physically and mentally so give ur''self healing time and try to ignore u'r Mom and let her just take care of u, then go home and heal. We're all around here alot--But I am the Queen of hermitude so u can't be worse than me. LOL And u might even go home and feel better more at ease with everything. So don't feel bad about how u feel, never apologize to us we get it.
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Hi Michelle. I'm sorry you are going through so much right now. You just had a major surgery! Of course you feel like crying! I think I finally stopped crying last month and I had my BMX in May. Like you, I wasn't emotional because the way I looked, but because the stress of everything.
Could you take a taxi to your appointments? My mother and me really clashed after my surgery. She was so emotional and I needed someone calm and cool. She took me to my follow up appointment and went to the gas station while I was inside. Well she got lost and ended up on the interstate. I waited outside for over an hour on a bench lol! My husband took me to my appointments after that
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Markat that picture was especially for u. Good timing I say. And markat I feel worse about Dentists than I do about Drs. It's funny cuz they don't hurt while they're working on u--One tooth just popped out the other he had to take it from my bone. So I'm all purple now Oh and misersble hahhs
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Well I dragged my butt in and got my herceptin
My nurses are so awesome. If I'm counting right, I think I only have 3 left! I should have double checked with them today.
Hope everyone's having a great day!0 -
OK markat that one is done--u've almost finished YaY
I hope we can all sleep tonite---Not that I don't like talking to all of u, but I need sleep LOL I have to rest up for my nite out Saturday--if I go.
I'm going to try--I've got a new pair of shoes.
Yea like I could wear those.0 -
Camille are you still going out tonight? If you are, have fun!
My husband has a cold. God help us, he must be dieing… He actually asked me if I thought he should go to Urgent Care. Um no, lets save that $100 copay and buy the $10 Mucinex. Obviously if he starts a fever or hacking I'll make him a doc appt Monday. Men are so funny. So I'm being a nurse this weekend.
Kltb- when is your surgery? Is it this week? Sending you prayers (hope that's okay) and good vibes.
Hope everyone is having a great weekend!0 -
markat - roflmao - mine is the same way. Yes, surgery is Monday...have to be there bright and early at 9 a.m. And I don't turn down any prayers!! I guess I am about as ready as I'm going to be. House is cleaned up, rented hospital bed is here (trying it out, it's free!), have lots of pillows ready. Kids are going to be going to respective friends' houses tomorrow night and going to school with them on Monday. Our neighbor has already sent over one casserole and is sending more food tonight and a friend is bringing over some more freezer food today.
camille - hope you are still on for your night out! I continue to lol at all these pics you post. OW on the tooth issues.
CSMommy - have you gotten your surgery rescheduled yet?
Michelle - welcome - it sounds like you have been through a lot. I hope you are feeling better.
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kltb04 ...Good luck with your surgery on Monday ...sending lots of positive energy to you!
CSMommy... my TN sister, have a great time with your friend and no worries about the surgery. After chemo, you can do anything;)
Michelle.. welcome, wish you didn't have to be here, heck wish none of us were here...but a good group of hermits are here for you
camillegal...love the jokes
markat..LOL on the husband, yes, they are all alike that way:)
have a nice weekend all
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Thanks for the responses. I am feeling a little better now but I know that I have much more time left to adjust to everything. I am hoping to go back home in a few days' time, but expect that I will then feel lonely. That said, I'm not sure I'm up for many visitors either! What is wrong with me?! What do I want?!
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Michellej
You have been through so much already, to feel sad or overwhelmed is natural. Cry it out and let your mom know that it is perfectly normal to do so. We all do there here, it is an important part of our healing, acknowledging our feelings.
Have you considered talking with a therapist? IMO it is a great avenue to explore, so why not?
sending (((hugs))) it is not an easy process, we can all agree with that...cancer sucks...big time
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OH I'm LOLing everyone right now---I love the husband thing--Most are like that-it's actually funny.
Ok I started this over an hr. ago--my cousin called talked to him about 1/2 r, my other cousine call again--I was talking to mu dgtr,,Ohhh
I' not going tonite I really wanted to o--but I don't feel well enough to stay out til midnight, ciz it's about a 45 min ride. But I love to spend time with them--lots of fun. I wish they all lived like 10-15 mins from here like the rest of my famiy. See everybody should live around me--It's all about me LOL
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Kl- Glad you have everything together for Monday! I will be praying and thinking of you. Make sure you update us as soon as you feel up to it!
Hey Whatevah!
Michelle- I think what you are feeling is totally normal. You are still recovering from a big surgery. Emotionally and physically, you need time to heal.
Camille- sorry you didn't make it out tonight. I wish they all lived closer to you too! Hope you get some rest and feel better soon.
The husband is still wallowing in self pitty
He's allowed that a couple times a year I guess, lol.0 -
Feeling so much better today.
My sense of taste is still a bit off but much improved. My vision is back to normal (at least normal so that my glasses all work like they are supposed to). I already did some shopping though was very disappointed that Trader Joe's didn't have the Salmon stuffed with feta and spinach that I've come to love. It's so hard finding things that taste good during my bad week AND are still really low carb.
The down side of feeling better today is that I will have to go into work tomorrow.
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Jinkala glad you are feeling better! Sorry you have to work
Kltb hope your surgery went well and you are doing ok.
October is upon us! Can't believe it really. I've already spotted the pink box of Lays Potato chips snack bags…really?!
Hope everyone is having a good day!0 -
Jinkala---So glad u'r feeling better and moving along. But that work thing isn't so much fun.
I'm back to hermitude for a while--no drs. app'ts for a bit so I need not bother goin anyplace and no parties--well a lunch or 2 this month--that's all.
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I lived.
.Doing ok now but Recovery room was awful. I just hurt so bad and was having an awful time waking up. Plus the entire hospital went live with a new computer system and noone knew what the hell they were doing. I just cried and moaned and groaned like a big baby. I didn't really like the recovery room nurse. They were all so damn busy worrying about the damn computer. But anyway.
Have been up and to the bathroom 3 times. Some pain of course and the drains hurt Major nausea when I got up the first and third times so I got some zofran for that. Have a demoral pump for pain.
Clear liquid diet tinught. Gross!0 -
So glad to hear you are on the other side KLTB! Just keep pressing that pump:) The drains suck but hopefully you won't have them long. If you have any questions just ask! I'm no pro…but been there, done that.
Hope you get some rest!0 -
OH Kl---that's horrible for u. Just keep on pumping--pump it up--even tho it only allows so much so what just do it. This will pass--and I hate liquid diets oh---I hope the nausea goes away quickly.
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It's better now (nausea). I think that can be worse than pain because if you lie still enough the pain wont bother you.
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Klt I think they run pretty even. but whatever makes u feel better for now.
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TOO CUTE0 -
Aww that is cute Camille! I'm being a hermit too. My husband suggested that I should join a support group. He doesn't know that I post on here lol. I wonder if they make support groups for men with colds
Are you feeling any better? How is face/mouth?0 -
Markat u are so funny--I laugh at u all the time. ---support for men with colds hysterical. I love the way others thinknthat we can just gon on and we're fine.
And a lot of women are But I never feel fine and I'd rather not be bothered unless I'm in the mood-I've changed I know but that my life now--I'm not lonely or anything just changed I don't know how to 'splain it.
I'm much better still feel the stiches, but they're disolving and my face is still puple but can't chew well so it's cheesecak and ice cream for me LOL
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Kit.. happy to hear you are home and resting ((gentle hugs))
Taxol #5 today, hermitute works for me
love the pics here, hope everyone is doing OK
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