Treating estrogen responsive cancer naturally
Comments
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I think you have been very rude for no reason.
I am very sorry if you thought I was being rude. The words Consider what your ONC says is not rude to me.You must remember that we are not speaking on the phone or talking face to face.
When you ask for opinions you will not always get the ones you want. Simply toss them!
As for the protesting too much , it really SEEMS you are conflicted...which is precisely why I was urging you just to consider your oncs suggestions.
Pls feel free to PM me if you want to 'discuss' further. I can assure you I did not intend to be rude and I do apologize for coming off that way.
We have enough crap to deal with.0 -
Oh yes, Celestial seasonings is a great one. Another good "sleeper" is a combination of linden blossom and anise seed. Just go lightly on anise seed (not more than 1/3 of the mix) as if it's too much it can cause hallucinations. You can throw in the mix some camomile too.
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You're right, I was thinking bladder or yeast infecton. My bad.
I just heard that blue blocking/orange lens galsses for an hour before bedtime help insominia as well. I've found some for under $20. I'm going to give it a try. Can't hurt and might help.
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also, subdued blue light and a satchel of lavender under your pillow.
TBH, when I was having severe insomnia due to hyper-thyroidism (AND the treatment for it) I would often get relief with... sound. I had downloaded online lots of "sounds of nature" with rain and thunderstorms and made a CD out of it. I would put it on, at a decent volume (not really loud, that is) on repeat, and sooner or later I'd fall asleep.
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There is a CD by Andrew Weil called Sound Body Sound Mind. It works on your brain waves and gradually slows them down. Its about an hour long and it puts me to sleep every time. I don't think I've ever heard the middle part that puts your brain into a deep sleep. The problem is it gradually brings you back out of it and you wake up.
Something else to try is to soal your feet in really hot water before bed. I think I read this in Vermont Folk Medicine.
If I can't sleep I use a mask that blocks out the light. I like to have the tv on but I know its important to be in darkness so I put on my mask and listen to tv. If I'm staying somewhere that I'm not alone I use earplugs. I bought a supply of 200. They save my life when I'm in the car with my sisters family. I call them The Louds. They never stop bickering and tormenting each other until they go to sleep. Then they snore.0 -
Essa, I really really hope you don't leave. :-(
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I have a question that may sound a little strange. I have been taking Arimidex. I went to a basketball game the other day with my husband an another couple. We stopped to get something to eat. Because it was Valentine Day we had to go early. We ate and I had 2 beers (over a two hour period). I am not much of a drinker, but we have a nice place here that brews its own beers. I started getting sick while I was eating and by the time we got to the game I was really sick and we had to leave. It lasted into the next day. Is there any chance that Arimidex could have caused a problem?
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Well it does say that while using arimidex it is better not to use alcohol.
Mena
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Well, what kind of sick? As in nausea/vomiting sick or upset stomach sick? And are you on any other medication?
Anyway, freshly brewed beer when it's very fresh or when it's a little too old CAN upset your stomach (as in giving you the runs) due to the yeast content. So it is very possible it was just the beer, not-related to Arimidex.
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I had some digestive issues the first two weeks on Aromasin......I was not drinking at the time......but I think it could have played in to it.
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Claudia....just want to jump in here.....although I'm on Letrozole not Aromasin ....from time to time I am nauseous and bring up and I haven't had a glass of wine since Christmas. It always happens after dinner especially...for example....my son made a beautiful dinner last night and I don't know if it was because I was hungry and ate it too fast, but after I felt nauseous and I brought up about a quarter of my meal. One of the SE
of Letrozole can be nausea so check for Aromasin....hope it was a one of for you.0 -
I've been on all three, but honestly only Letrozole gave me nausea from time to time. But different people can have different reactions, and also don't disregard the fillers. When I was on Arimidex the first time, the fillers in that specific brand was making me get high blood pressure.
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I wasn't feeling good earlier in the week so I am not sure didn't have some kind of bug (stomach wasn't feeling good and didn't want to eat). The sick I got after drinking the beer was throwing up. I really have a hard time throwing up, but when I do I can't hardly stop. Yesterday wasn't too good but I did stop throwing up. I have not been that sick in a long time from drinking alcohol. Everybody has done that at least once in their life. My stomach hurt so bad that at one point my husband asked me if I wanted to go to emergency room. It could have just been a combination of things (some type of bug and the beer not sitting on my stomach the right way). Not sure but I am not going to do that again for a long time.
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Day, yeah....what's with the nausea and Letrozole....it seems to come and go. I can go weeks and feel nothing and then a few weeks of feeling squeamish where I have to be careful what I eat.
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OK, Purple, I will unruffle my blue feathers. Telling me I was protesting too much was the rude part in my perception ---- sure, I'll take conflicted instead because when he said that about the blood, I was spinning, and "conflicted" would have been a better choice of words for a spinning sister and a felt like a gentler hand. Mostly, it was my mistake in this way.... I was so upset bcz I have been contributing to this thread and using it for support since pg 3... my choices to go naturally in most ways and my memory struggles are no secret. BUT, in my apparent crappy memory / confusion, I thought you were the author of this thread so I left more of respect to that than anything. But, doing research for more info (on Letrozole, LOL, of all things right here too on this page) I see you aren't. In 5 min, likely that I will not remember who is who and have to look again. That is why writing is best for me but still not accurate.
So, you're right, let's be fine. You are so right, we have enough crap to deal with. Today the cancer is very active, I can feel it throughout, like a really subtle flu.
I am sure you have days too, weeks, especially trying to bridge the alternatives with so many contraindications and a mountain of contradictions everytime you think you find an answer. I feel for you.
To all, I'm sorry, I hate stirring things. I do belong here. With 95% ER+ PR+, this has been a go-to thread for me.
Thanks for the info on the Letrozole. I suppose if that is all I had w no lingering SEs, I could handle some nausea from time to time, am having it today and not on anything. Someone somewhere said this Letrozole was suggested by their holistic doctor, so I am considering it before the other. MAYBE?? it is creating the nausea at peak estrogen times, like when more hormones are created for some reason? I have no clue how this stuff works yet. Moreso, I am considering the alternatives and knuckling down on my protocol more because I am sloppy. I have four cans of organic black beans and did not open one for months! I'm bad.
My oncologist had suggested a new? newer? one, Afinitor, but I found on bco those who were experiencing inflamed lungs and w my respiratory being my weakest point all my life, not good at all. Has anyone tried anything from an onc that is considered more natural than others? Like Afinitor and the L one?
Momine dear, you and me, same same wild boat. *_* Confused I wonder how much of this and temperament issues that I am having is from the extremely low estrogen?
Does anyone want to admit to being a basket case at times and think it could be the low estrogen? I have no idea because I have to look it up yet again.
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Telling me I was protesting too much was the rude part in my perception ---- sure, I'll take conflicted instead because when he said that about the blood, I was spinning, and "conflicted" would have been a better choice of words for a spinning sister and a felt like a gentler hand....
Bluebird
I would like to apologize again. I maintain that I meant no harm, but you are right- I could have used kinder, gentler words.
And I will be the first to admit - I am a basket case at times.
Namaste!
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HLB - how do you think it would work for someone to turn off the CD in the mid to late section? Let you sleep? Turn it back on when you choose to awake?
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Well if you could copy the cd to only a certain point so that it wouldn't wake you up, that might work. I just have always enjoyed that cd. Its meant to help you mind stop constantly thinking so that you can heal.
I am taking the letrozole with no side effects at all for 6 months now, and my tm went from 116 to 33 in that time, so you never know, maybe its worth a try? I worry about it but I would be more worried if I didn't take it I think. Once I had a blood test after 2 months of taking it I was so much more relaxed and not so panicked and terrified of this cancer. I just try to do all the other natural things too and hopefully that is also helping the cancer and hopeefully helping with the side effects. Mine is made by Sunpharma.0 -
Maybe ths is a dumb question but is there no such thing as a filler that doesn't have SE's?? Why do they have to put garbagE in our effing medicine?!!
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Depending on your computer, you can stream some music that will just play over and over.
I will jump on the confusion wagon. Another thing I've noticed, and attribute to the meds, is that my way of thinking has changed. It sounds weird but I have become a very literal thinker. I wish I could think of an example, but of course, right now when I need it, I can't. It's like I don't catch the subtleties, which is odd because I've always been a very abstract thinker.
The fillers can make a huge difference. I had to change one of my scripts because the pharmacy changed the brand they use. I get the same script, but it's a different brand.
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Scottiee, I know, right? And you walk for half a day with that queasy feeling and nothing really settles right in your stomach. And when you go to bed you think "Oh gosh, I sure hope it's not liver mets."
PTSD all the way.
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Bluebird, I am still confused
You had the PET in June, and you only got results last week or did I read wrong?Letrozole can be very effective in keeping mets down, and the SEs are not always all that bad.
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Day. Apart from ginger, is there anything else I can take for nausea??? I sometimes
take a gravol suppository but I would prefer something natural. Can I get ginger
supplements to just keep in my bag for emergencies?? I prefer of course natural ginger
but that's not always convenient as it sometimes comes on while I'm at work. Thanks Day...I know you will give me good feedback ❤0 -
Did you try making candied ginger, scottiee? Here's a recipe: http://www.davidlebovitz.com/2008/12/candied-ginger/ You could put in a candy jar and take it with you at work. I don't think ginger supplements would work, as it's the taste and smell of ginger that inhibit nausea, not the properties.
You can try mint tea if you can make tea at work. Also, lemons can work on nausea as well.
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carry some sugarless mints in your pocket and sugarless spearmint gum in a pinch too.
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Bluebird Essa, some great tips here for UTIs
naturalhealingtipsblog.com/2012/07/herbal-remedies-that-kill-bacteria.html
Hope this helps even if I'm a bit late, here's hoping it's now gone
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Day....thank you for the recipe.
Purple ....sugarless gum and mints ???.....can I get the natural ones without aspartame
and all the other crap they put in????0 -
can I get the natural ones without aspartame...
Even better!
My grandfather used to swear by peppermint and spearmint to avoid nausea . He was a pretty wise old man !0 -
You can also get stevia-sweetened mint chewing gum
http://www.steviasmart.com/new-products.html
Or candy but I'm not sure if it's also mint
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papaya enzyme is great for naucea too. Its a digestive aid.
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