Treating estrogen responsive cancer naturally
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Ooops!
However, it will always be how I think of you.
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Removed
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dtad, did the berberine make you nauseous in the beginning?I am losing lbs because I’m not inclined to eat!
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marjen...it didn't make me nauseous but it definitely decreased my appetite. Which in turn helped me lose the weight. Now my appetite is better but IMO it still helps me maintain. Metformin also works this way.
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Interesting about the berberine. It is in the Turmeric supplement I take. My appetite was suppressed due to surgery, radiation, etc. and has remained decreased. However, like you dtad, it is a help in losing weight - so not concerned. Since surgery, have lost just over 30 lbs and to be "ideal" would need to lose 15 more. Drastically changed eating habits as well, no rice, potatoes, pasta, wheat bread, etc. and lots more fruit and veggies so believe this has helped. Have always been a lean protein eater (have not eaten beef in over 27 years) so no big changes there.
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CeliiaC...congrats on losing weight. Weight loss and exercise has been shown to lower recurrence rates by 40 percent! I don't think berberine is in your Tumeric supplement but read the ingredients. Berberine is a supplement that mimics the prescription drug Metformin. Good luck to all.
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I have chosen to go the route of diet and exercise because the medications and some of the supplements make me feel horrible. I just had my 6 month blood work. After 4 months of going to the gym and the loss of 10 lbs. My blood sugar, cholesterol, and triglycerides are the lowest they have been in over 8 years. All are down 10 points or more. This says a lot to me about the benefits of exercise. I had changed my diet about a year ago and did not see any change in my blood work but did lose weight. The two together are a win. Nothing is a guarantee but this change is a big plus.
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dtad - you are right - not berberine, it is piperine in the turmeric. OOPS
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I just read the book "Breast Cancer: 50 Essential things to do" by Greg Anderson. It's pretty interesting. About half of the book is about dealing with the diagnosis and things to do before and during treatment, but there is a large portion dealing with what to do after treatment and getting on with life. One thing I learned was that taking 1 baby aspirin a day helps "manage the tumor cells left behind" Women who took a baby aspirin daily or 2-5 times per week were "71 percent less likely to have a recurrence than the women who took the aspirin less often or not at all."
The book also addressed a good bit on mental attitude, less stress, forgiveness, and enjoying life as part of longevity. I have seen these ideas in many places so that is no surprise.
But the daily aspirin was a surprise, and I am now starting that.
https://www.amazon.com/Breast-Cancer-50-Essential-...=sr_1_2?ie=UTF8&qid=1509541896&sr=8-2&keywords=50+things+to+do+for+breast+cancer
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Wow...what a long thread. I read some early and some recent posts. Lots of wonderful information!!
Just have to share my experience. I love that my oncologist was willing to follow me using a dietary approach and I have labs to prove it works.This month marks my 10 year anniversary from diagnosis. Just had an MRI "all clear", so very excited!
I was 57, still having heavy periods (seemed to be getting heavier). Shocked to get diagnosis. Had unilateral MX.
Was stage 2a with one node positive and 19 neg. ER+ / PR+ Grade 1
They wanted me to do chemo and take Zolodex injections to put me into menopause, then Tamoxifen. I was concerned about irreversible eye damage (from Tamoxifen) as I already have significant uncorrectable vision loss. Also didn't want to tear down my immune system (with chemo) when seems like I needed it most..
Consulted with a nutritionist (karenhurd.com) I'd heard LOTS of people were helped by for various conditions. Her explanation made SO much sense! It's a simple, healthy, inexpensive diet. Water soluble fiber (legumes or psyllium powder) six times a day is a key factor.
Hormones (and cholesterol + other toxins) bond to bile. If the hormone / bile bonds to water soluble fiber, it can't be reabsorbed back into the liver (enterohepatic recirculation) and gets flushed out of the body. If the water soluble fiber isn't there, it will get recycled and builds up yucky bile and excess estrogen.
https://experiencelife.com/article/fiber-why-it-matters-more-than-you-think/I went into menopause within a couple months. My enhanced extradiol levels went down dramatically.
It really works! Glad to answer any questions. Best to you all.
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Ah, Karen Hurd! I have a family friend who was helped by her when all else had failed. But I worked with her on a problem and had no success at all. So results may vary
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Interesting Angela! I'm from WI too (Eau Claire), and you live right in Packer Town! Go Pack (even with all your injuries!)
Yes, I do believe results may vary for various conditions.
I am totally sold on the effectiveness of water soluble fiber on decreasing estrogen, cholesterol etc. What has been your path for dealing with estrogen + ? (sorry, too lazy to try to figure it out by going back on the thread) Was your problem where you worked with Karen prior to breast cancer?0 -
I have taken psyllium for over 20 years. I guess it didn't work to stop my estrogen fed cancers. But I do have low cholesterol!
Coach Vicky
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mormor1...comgrats on your success with nutrition vs anti hormone therapy! Very interesting....
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Good news about the baby aspirin. Have been on the 1 low dose aspirin a day regimen for many years for heart reasons.
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Hi mormor1! Yes, my time working with Karen Hurd (over the phone) was probably 4-5 years before my diagnosis, and it was for chronic skin disorders (delayed pressure urticaria and chronic idiopathic urticaria).
I haven't decided yet what I'll do about the ER+ part of my diagnosis. I know that I'm NOT taking Tamoxifen. The medical oncologist has given his blessing on that decision, thankfully.
I grew up near Chetek and have been to Eau Claire countless times!
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Cool Angela that you are right from the same neck of the woods. Chetek is beautiful. Eau Claire has changed a LOT, in a good way. I actually grew up in Menash, quite near Green Bay, so guess we traded places.
So glad your medical oncologist has given you his blessing to not do Tamoxifen!! That can be a battle. My surgeon who did the MX was so disrespectful to me about my alternative decisions. That was stressful.Looks like you caught it early and it's DCIS. Glad for that!
I hope you consider Karen....or even if you don't do the full program, add beans / psyllium powder to your diet (at least 3 to 4 times a day)....and cut sugar?? I'm still doing the diet. It's not that hard...meat, veggies, beans. It's become my lifestyle and I feel really great (decades younger than my actual age).
Wishing you all the best!0 -
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Anyone HER2+ and refusing conventional treatments?
I was HER- first time around for DCIS (2013). 2017 recurrence, they've tested it twice with results "unequivocal". Retested for the third time, and it turned out to be HER+.
It'd be good to hear there is someone else who's gone alternative with HER+.
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is there a top natural path in north dallas. Someone that can help iDC? Would Medicare covers it?
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Hi. This question is for any members who are using natural supplements rather than anti hormone meds to prevent recurrence. Has anyone had an estrogen metabolism assessment tests done through a 24 hour urine test? It measures select estrogen levels and other important cancer ratios. Just wondering if I could get some feedback. Thank you
Roch
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roche....I do not take anti hormones. Would love to know more about that urine test. Who would do it? As far as I know only naturopathic docs test hormone levels. Would appreciate more information. Thanks!
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dtad -sorry for the delay-
There are several different hormone tests available from what I've researched, using urine as opposed to blood or saliva. This test tells you the type of estrogen your body is producing, and depending on which specific test, also measures many other things of concern. More thorough than any blood or saliva testing. I have had my hormones tested with blood twice since my surgery and it only tells me total estrogen and also the estradiol amt. so I don't know whether the estrogen my body is producing is the good or the bad kind. The estrogen metabolism test is supposed to tell you the various types of estrogen being made, helping us to understand how we're clearing estrogens from body to avoid such states as estrogen dominance. It cost a few hundred $$, and I am contemplating having it done. Just wondering what treatment would be recommended if test reports "bad estrogen" being produced? More supplements? or pharmaceuticals?
which I am totally against? My gp doctor also includes naturapathy in his practice.
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Interesting discussion. The urine test sounds worthwhile, will be interested in following if you do this, roche.
I had blood testing of enhanced estradiol levels. It was helpful until I went into menopause, not sure how helpful it would have been after that. It was dramatic enough to convince me and my oncologist that the diet was working!
Vicky, I took the water soluble fiber (1/3 c legumes or 6 gm psyllium powder) SIX times a day to get the levels down! At one point, I took it 8 times a day. Now, on maintenance, I just do 3 times a day.Kyoko88, my nutritionist does consults by phone, all over the world. She was very helpful for my ICD stage 2b cancer. She is not very expensive. (about $100 for initial in depth health review intake & plan and $46 for 20 minute consults after that). I didn't need to consult very often as my progress was good. I just had a clear MRI and I'm 10 years out this month from diagnosis! YAY!! I doubt Medicare would cover for her and maybe not for many alternative approaches, unless possibly an integrative MD
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roche...very interesting. I think my problem would be finding a doc that would do it. I live in the NYC area. Any suggestions?
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dtad,
I live in central NJ. It seems to me that there is an an abundance of naturopathic, functional/ integrative doctors mostly located in NYC or somewhere in California. As close as the city is to me, it's still too far for me. I just find it overwhelming to start going into the city. Have you checked into any of the doctors? Check out Suzanne Somers book, Knockout. There are doctors and professionals listed in the resources, listed by state. Let me know what you think and or what you come up with. And I'll keep researching also. I was also hoping to find others in this and similar forums who might be familiar with this test. I'm just a little surprised.0 -
roche....IMO the reason others including myself have not heard of the test is because its non conventional. Most MOs simply do not test our hormones. I'm definitely going to look into it. Thanks so much. PS I also live in central NJ, New Providence. How about you?
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dtad,
Agreed. Presently, I am not under the care of a MO. I did visit one recently to ask if I should be monitored by her, being I'm not taking Tomoxifin. Doesn't seem necessary. If you learn more about the estrogen metabolism assessment, please let me know what you think. I'm taking many of the recommended supplements as I assume you do too. I live in Freehold. I lived in Union county many years ago, then Middlesex, and now Monmouth.0 -
I am in cranford Nj and would be interested in finding out what naturopaths are available in this area
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