2013 Survivors!!!

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  • shianne29
    shianne29 Member Posts: 282
    edited March 2013

    Hey all



    I'm up late again :-(



    I posted on the Canadian page but going to ask you angels here too. My rads are upper/outer right breast. But I have a rash, like prickly heat but a million times worse in the upper/inner portion of the rad breast. It hurts, it burns, it itches, it's awful!!! Anyone else ever have this? Is it normal?



    Update on the accident my DS helped out at. The father who was unconscious called DS yesterday to thank him. Everyone ended up being ok, the family is very grateful, the mom thinks he is an absolute hero (in the words of the dad who called) and Tyler, the little boy that was in the car, thinks my DS is AWESOME!!! Lol. I thought it was very cool that the family called. It really has put me into a pay it forward kind of momentum. I'm going to pay the order for the car behind me in the coffee drive thru from now on!!!

    How good would that make you feel? To do it? To have someone do it for you? Just my thoughts.

  • Chrisrenee77
    Chrisrenee77 Member Posts: 693
    edited March 2013

    Shiane- How great is that, that the family has called your son to thank him. You must be so proud of him. I can't help you with the rads question. I've paid for someone before at starbucks. It's a great feeling to just pay it forward sometimes. I have a friend that he's currently separated from his wife, this past valentines day was his first one in almost 10 yrs without celebrating it with his wife. I went to starbucks at my hospital bought him coffee and listened to him talk about his wife and kids. When i walked in, he was in the middle of sending her a go to hell email. I told him that he needs to remember that whatever he says will be held against him in the divorce proceedings if it gets that far. I told him he doesn't want his kids to know what he thinks of their mom because she will always tell them what he said. When i left he had deleted his email and told me thank you for talking him down from sending the email. He said who knew my work wife would help me with my real wife.  ha

  • Believe777
    Believe777 Member Posts: 540
    edited March 2013

    Shianne - did you get the miracle silver cream? If not, would ice packs help? My 3rd try would be the hydrocrotozine cream?

  • shianne29
    shianne29 Member Posts: 282
    edited March 2013

    Chrisrenee... Lol I giggled at the phrase go to hell email, but good for you for talking him off the ledge so to speak. Something my DH and I don't often reflect on but, we were separated and contemplated divorce years ago. During that time we did agree we loved our children more than we hated each other. Meaning we don't trash talk each other. PERIOD. Little ears have a way of hearing lol. Unless its to pick up toys!!!

    Your "work husband" would have regretted his email so good for you for diverting it!!

  • shianne29
    shianne29 Member Posts: 282
    edited March 2013

    Believe, I asked the techs and actually saw my MO. They all said just the saline soak. But just today I've developed a rash like thing lol. I have my foob hanging out right now to let some air at it. I see my PS Monday.

    Thank you o much for asking!!! You are so sweet!!!!

  • liefie
    liefie Member Posts: 761
    edited March 2013

    Shianne, so sorry to hear about your rad trouble. Are you almost done? For me Hydrocortizone cream and saline soaks worked better than anything else. You can buy it over the counter at any pharmacy.

    Chrisrenee, how wise you are to give that man such prudent advice. You are an 'old soul' indeed!

  • Chrisrenee77
    Chrisrenee77 Member Posts: 693
    edited March 2013

    liefie- i've gone through a divorce before and it's so hard. At my hospital, we have walls with our staff's story. He has his story up on one of the walls and his greatest accomplishment he says was "convincing his wife to marry him". I didn't want him to say something that was going to keep him from seeing his kids. He's a great guy and is godly man. He has his own couples therapy counseling facility. He and his wife has gone to one and she's not wanting to work things out. I just feel so sorry for him and his family.

  • shianne29
    shianne29 Member Posts: 282
    edited March 2013

    Awe.. That's so sad. When one partner wants to work it out and the othe doesn't.



    Liefie... I have 4 next week and 3 the week after. Due to the recon I've had tho I'm seriously considering a delay. I don't want to mess up anything. Lol. Ill see what PS says Monday.

  • liefie
    liefie Member Posts: 761
    edited March 2013

    Chrisrenee, now I am feeling so sorry for that man, but he's so lucky to have a friend like you. Like Shianne says, it is sucks that he wants to work towards reconciliation, and she does not. And the losers are always the children, but this guy seems like a good dad, so that will help a lot. So sad though when a famly breaks up like that.

    Shianne, hope you can work something out re rads. Yes, one does not want to wreck the recon. Maybe a few days rest from rads will give it time to settle before you tackle the last seven. Best wishes!

  • shianne29
    shianne29 Member Posts: 282
    edited March 2013

    Thanks liefie xo

  • Shari0707
    Shari0707 Member Posts: 260
    edited March 2013

    Sorry ur hurting Luanne.. Thinking about u...paying it forward is nice

  • Embok
    Embok Member Posts: 21
    edited March 2013

    Shianne:



    I had a rash like yours for the second half of rads. It itched all the time --and burned, too. It felt like a weird internally generated sunburn. There seemed to be tiny blisters but they werent filled with liquid.



    Three things helped: (1) cool soaks; (2) taking a couple of breaks of a few days in the rads, and (3) a cream called Exclair -- prescription only, and a bit expensive, but one tube got me through rads. I'd ask your doc about the Exclair cream. Hope it gets better soon.



    Embok

  • Believe777
    Believe777 Member Posts: 540
    edited March 2013

    I loved this and wanted to share it with all of you...



    Why do I have a variety of friends who are all so different in character? How is it possible that I can get along with them all?

    I think that each one helps to bring out a "different" part of me.

    With one of them I am polite.With another I joke - with another I can be a bit naughty...



    I can sit down and talk about serious matters with one. With another I laugh a lot. I listen to one friend's problems. Then I listen to another one's advice for me. My friends are like pieces of a jigsaw puzzle. When completed, they form a treasure box. A treasure of friends! They are my friends who

    understand me better than I understand myself. They're friends who support me through good days and bad . Real Age doctors tell us that friends are good for our health.



    Dr. Oz calls them Vitamin F (for Friends) and counts the benefits of friends as essential to our well being. Research shows that people in strong social circles have less risk of depression and terminal strokes. If you enjoy Vitamin F constantly you can be up to 30 years younger than your real

    Age. The warmth of friendship stops stress and even in your most intense moments, it decreases the chance of a cardiac arrest or stroke by 50%. I'm so happy that I have a stock of Vitamin F!



    In summary, we should value our friends and keep in touch with them. We should try to see the funny side of things and laugh together and pray for each other in the tough moments.Some of my friends are friends on-line. I know I am one of their friends because their names appear on my computer screen often and I feel blessed that they care as much for me as I care for Them.



    Thank you for being one of my Vitamins!

  • Believe777
    Believe777 Member Posts: 540
    edited March 2013

    http://www.youtube.com/watch?v=4x1R50zNV1I&sns=em

    I hope this will make you smile too!

  • Marcie47
    Marcie47 Member Posts: 163
    edited March 2013

    Believe, that was beautiful, it is a wonderful description of what if we are all lucky enough to have, should rejoice in the love around us :) I stand and rejoice 😘 and also thank you all for being my vitamins as well 😘😘😘

  • iatigger
    iatigger Member Posts: 269
    edited March 2013

    Very nice Believe, agree totally!

  • Outdamnedspot
    Outdamnedspot Member Posts: 164
    edited March 2013

    Believe, that is beautiful and so absolutely true!!! 

    I'm having 5 Vitamins Fs for dinner tomorrow night.  One is a kindergarden friend who I have introduced to my 3 BFFs.  She lives in Bermuda and comes this way every couple of months.  The fifth is a woman who we have known for years and just recently moved back to town and a 7 year BC survivor!  

    We are all different, yet similar.  We have all had our challenges.  One affair, one child's death, one child raped, two divorces and two Breast Cancers.  We have the best times together...whether it is all of us as a group or just one or two.  I just saw somewhere that 'laughter is the best medicene and it is free!'  How true.  Thank goodness for girlfriends.

    Now I must get back to work, once the tears dry. 

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited March 2013

    Believe......so beautifully put.....I thank God everyday for all my new Vit F friends

    I have met here.

  • ireland20
    ireland20 Member Posts: 175
    edited March 2013

    Believe that is lovely :)

  • Shari0707
    Shari0707 Member Posts: 260
    edited March 2013

    Love it believe.. Love ur positivity

  • shianne29
    shianne29 Member Posts: 282
    edited March 2013

    Thanks embok I'll ask about it tomorrow.

    Thanks everyone for the well wishes.

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited March 2013

    Finally able to catch up. I had a verybusy weekend. My DD competed in the History Day Competition with a website she has been creating these past 6 months on Identifying Epilepsy. This was her first time doing this and she came in 8th out of 20 websites. I was so proud of her. She was diagnosed with epilepsy two years ago and this also helped her to understand it more. It was a long day, but well worth all the work.



    Today we have been working outside since it was finally 50 degrees. I love snow, but it is Spring already and I want it to be warmer out! They are calling for more snow tomorrow night, but not that much thank goodness.



    Believe- I am in you pocket tomorrow for your appointment!



    Shari - another day closer to getting it out of your body! I completely understand your wanting it out. I had surgery 2 weeks after I found my lump and thought that was too long to wait. I'll be in your pockets Thursday also. Keep yourself busy and it will be here before you know it.



    Hugs to anyone who needs them!



    I can't believe it is almost Monday and time for work already. The weekends fly by so quickly.



  • SwgeeWi
    SwgeeWi Member Posts: 199
    edited March 2013

    Feeling a little blue. (Okay, yeah, I tend to minimize things.) Anyone else feel a big let down after treatments were over? I was so up during rads! I thought when I was done and healed I'd be so motivated to get exercising and just get back into the swing of things. Not! (It doesn't help that it looks like a blizzard outside right now, either!). I've been really tired since Friday, (Started Tamo. on Wed.. night). Is it just going to take a while for my body to adjust? Is it still from rads? Is this temporary or should I ask for my anti-depressant to be upped? Ugh!!!

  • shianne29
    shianne29 Member Posts: 282
    edited March 2013

    Momof3; congrats to your DD. THAT'S AWESOME!!!!



    SWgeeWi; sending big gentle hugs. I think it's normal, my mom said she felt almost abandoned after all her treatments ended. After many months of seeing Drs daily/weekly, being on your own can be scary.

    The tamoxifen may be partially to blame as is the weather. Try to relax and do something nice for yourself, you deserve it!!! And as hard as it seems, exercise always helps. If you need to up your antidepressants, so be it. Mental health is as important or more so than physical health. Good luck!!

  • maryah930
    maryah930 Member Posts: 122
    edited March 2013

    Swgee ~ I felt a down and stressed after my last chemo.  No more weekly appointments, blood draws, etc.  I felt like my safety net was pulled. I had 4 weeks of doing nothing to fight this beast.  Now, I take Femera and feel a little better, but it's difficult sometimes. Headache? Backache?  Did the chemo miss something? I have to take a step back and force myself not to think negative. So far, I luckily have had no SEs with the Femera, but then I think, what if it's not working? Starting yoga so I hope that helps and keeps me focused on the positive.

  • Shari0707
    Shari0707 Member Posts: 260
    edited March 2013

    Feel a cold coming on.. All stuffed up.. Hate that I never got sick on chemo and now four days before surgery I am congested and feeling crappy.. I need to hav my surgery Thursday... Just need to rest and get my immunity back up.. I definitely blame my stress levels and lack of good sleep for this cold.. Ggrrrrr!

  • Outdamnedspot
    Outdamnedspot Member Posts: 164
    edited March 2013

    Swgee...I felt like that too, all over and what do I do now?  I was tired and bitchy.

    I found a group in my area put on by the Canadian Cancer Society called 'Living Well Beyond Cancer' and it was a 6 week, 3 hours/week course.  It helped by getting me out of the house, being with other people like me and was something to look forward to.  Maybe there is something like that in your area.  I think it is important as a lot of us feel that way.  Good luck.

    Maybe some sunshine and warm weather will help us all!

  • Layla2525
    Layla2525 Member Posts: 465
    edited March 2013

    Aruba,thanks for the Easter bunny,she has got some moves. Guess I could take pole dancing lessons from her.

    Shianne, I know what you mean,everytime I manage to lose 3 pounds,I gain 4 back! ugh,even so taking Zumba but I need to be at the gym every day. I cancelled the membership cause I realized all I ever did was show up for the Zumba. I found one at the comm ctr where you just sign up for Z.

  • mcook301
    mcook301 Member Posts: 314
    edited March 2013

    Ok I was lost this weekend! My computer or my phone would not let me log in here! Maybe lingering chemo Brain!



    Believe - love it!



    So I was in a restaurant yesterday and there was a book there written by a waitress that worked there. I chatted with her and instantly feel in love with her so I bought the book and it was an easy read but I really like it. If you ever had waitress in your younger years you would get this book. It was about her living in DC During 911 and the sniper and she was working full time and waiting at a restaurant in the cities and her numerous adventures and life lessons. Check it out if you are looking for a mental break. It was called upside down kingdom by Jody brown.



    Well I have to get some work down tonight and then I am traveling to des Moines for the week for a dam convention but atleast the weather looks fabulous to do some running at home with my sister!



    Hope everyone had a good weekend!

  • Shari0707
    Shari0707 Member Posts: 260
    edited March 2013

    Hiya mcook missed u girl