2013 Survivors!!!

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  • liefie
    liefie Member Posts: 761
    edited March 2013

    Believe, love your sign! I'm applying it every day - will not allow my joy to be stolen!

    Shari, glad the cold is better. Not long to wait now - we are all here for you, girl!

    cmbernardi, sorry that you feel so rotten. I got the exact same chemo as you, and was wiped out by it. Had no strength or energy to lift a finger. It was pretty rough, but just know that it will pass. That was what I kept telling myself over and over. It was also weird how vulnerable I felt being so weak. The good news is that you will recover afterwards, and be strong as before. How many more chemos do you have? Big hugs to you! 

    Chrisrenee, your diagnosis was pretty similar to mine. After my treatments were done, my onc told me that as far as he was concerned, I was 'cured' - he actually used that word. Maybe you should just embrace it too - I can't see why not. We can't live our lives waiting for cancer to strike again, can we? My view is that I'm healthy until it comes back, IF it comes back, the chances of which have decreased considerably with the treatments. Let's live and enjoy what we have now, instead of constantly worrying over something that will in all likelihood not happen. HUGS!

  • Believe777
    Believe777 Member Posts: 540
    edited March 2013

    Good Afternoon Ladies! Thank you all for being you.

    Cmbernardi - sorry this is being so tough on you. It will get better!

    Liefie - glad you like my sign. Einstein said that, he wouldn't lie.

    Looking forward to my upcoming Pocket Outings!

    After my appointment yesterday my girlfriend and I had coffee and were talking about reoccurrence. She said, then we'd fight that battle then and with experience. Good advise. Easier said than done but with what's we've been through, we can do anything. Hopefully not more than once but we do what we have to do.

    Shari - another day closer! It won't be long now and you aren't alone!

  • websister
    websister Member Posts: 405
    edited March 2013

    Believe - I like what your friend and you decided re: recurrence - and your sign :)



    Cmbernardi - rest, take good care of yourself, make sure you a getting lots of good nutrition, especially protein. Sending hugs.



    2Fried - thanks for asking re: Mom - I found out last Wednesday that she actually did re-fracture the right hip and fractured her pelvis with the fall. She is being kept in the hospital on a senior's transition unit. The doctor doesn't feel she will be able to go back to the lodge, I am waiting to hear for sure before I let the lodge know and move her things out.



  • 2FriedEggs
    2FriedEggs Member Posts: 324
    edited March 2013

     I just realized I missed quite a few posts-

    Believe I can't believe that you would implicate me in the taking of the chocolate jujubees! (Hum but thinking about them I wonder how far from me Jo is in FLorida with those jujus) lol  Good worry sign.

    Talking about the different lingo the doctors use in regards to "cancer , ned, and reoccurrance", as I posted a while back ,when my MO sensed I was obsessing about it, he said  "I know it's easier said than done, but try not to concentrate on that train of thought. Let's leave it that if something comes up that seems out of the ordinary to you and it worries you, call me and we'll talk about it. You are a survivor, so now we want to put the focus back on prevention. We have already removed the tumor,taken some surgical preventative measures (dmx and oophrectomy) and you are taking Arimedex which even some of the stage 4 patients take, so now let's work to make sure that the rest of your body is healthy and not receptive to disease; something that everyone, BC patients or not, should be doing." 

  • Tazzy
    Tazzy Member Posts: 1,442
    edited March 2013

    Wise words from your friend Believe.    My DH has said the same thing - that if cancer ever returns we will face that battle head on and with experience.    In my mind, we are all survivors of every day life, with or without cancer.   I wont live my life worrying or wondering if it will ever return.   BC took 2012 from me and DH - that's enough time.... it's not robbing me of anymore. 

    cmbernardi: sorry you are feeling so crap - but as websister says "it does get better" - gentle hugs to you.

    websister:  hoping the best for you and your Mum - what worrying times.

    Shari:  ((((hugs)))) Just think... this time next week your surgery will be almost a week old.

    Sorry to all those I have missed answering - back to work.

    Hugs and love to you all - hope you have some sunshine where you are - beautifuld day here in the sunny Okanagan.

  • liefie
    liefie Member Posts: 761
    edited March 2013

    Websister, your poor mom has been through so much in the last few months, and you with her. So sorry to hear that. I hope that she will recover from this latest fall, and that she will find a place where she will be cared for. Wow. It's a lot to take in. Hugs to you!

  • 2FriedEggs
    2FriedEggs Member Posts: 324
    edited March 2013

    Ditto everything that our vitamin F friends, Tazzy and Liefie, said. It is so hard watching our elderly parents go thru tough times.

    Since I've always been a little superstitious, never in a million years did I think I would be rooting for 2013 so I could put so much of this stinking bc behind me. I was looking at a calendar of March 2012 and couldn't believe all that I was yet to go through.I know many of you were still facing so much last year at this time too.  Aside from my little scare a couple weeks ago I have to say, so far so good for 2013.

  • Believe777
    Believe777 Member Posts: 540
    edited March 2013

    2fried - I so agree. 2012 was the summer of hope for me. I was diagnosed in April. I was so excited when it rolled over to 2013 and I found all of you Survivors!

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited March 2013

    Websister.....yes, your poor mother has been through so much, sending you both hugs.

    Believe....ditto from me....really liked what you and your friend decided about recurrence





    I also love the message....need to get one for my fridge.



    Shari.....hoping each day gets better for you ❤



    2FriedEggs.....loved what your doc said......I'm trying everyday to improve my immune system by eating well and exercising.....makes me sleep better at night.



    I'm also in for the upcoming pocket outings.....darn that Jo.....she took all the choc jubes

    to Florida.....she has a lot to answer for when she gets back 😡



    Chrisrenee.....hope you are feeling better today about things.....lots of good advice here

    we have to try and follow....❤



    Hugs to everybody .....love you all.



  • melissa119
    melissa119 Member Posts: 127
    edited March 2013

    Just wanted to say hi to everyone! I second that goodbye to 2012!!! Could not wait til it was over! So far 2013 has been good with respect to me but there are still so many other things going on my husband asked me the other day if we broke a mirror?! If finances weren't bad enough with all of my medical bills everything else keeps going wrong or breaking! His work can breaks down, rock cracks windshield, nail in tire but is able to plug it, another tire goes flat three days later! our second car (for trucking kids back and forth to games/activities when we need both of us) breaks down twice!! $1500 later! My truck is now actung up mind u it is only 2 yrs old!! Our washing machine goes! Our toaster oven goes! And now for the topper!.... My dog has f?!$ing cancer!!! Ugh!!! Really!!? God is testing me! Anyway. But I try to keep a positive attitude :-). Hey my implants look great my ps said today at my followup! She is very pleased. Said they will change a bit more over time. Round out more and a little more cleavage and projection once swelling goes down more. I have even seen a big difference just in a week. Anyway I just have to wear the compression band for three more weeks. She even gave me a pretty black lace one :-). She told me I could walk and light exercise just try not to lift anything over 10 lbs still. Anyway enough about me.

    Where's the pocket parties?? Shari good luck tomorrow!! You will do great and it will be over before u know it. Are you staying one night over in the hospital?

    Tazzy there with u too!

    Cmbernardi hope you feel better soon!!

    Take care everyone!!



    Melissa

  • Tazzy
    Tazzy Member Posts: 1,442
    edited March 2013

    Murphy's Law Melissa... if it can go wrong it will.   My gran, bless her, when things would break or go wrong she'd break a match in half and say "that's that run of bad luck broken".  

  • shianne29
    shianne29 Member Posts: 282
    edited March 2013

    Believe... I'm so happy for you!!! Wise words from a wise friend



    Tazzy and Shari, I'm geared for the pocket parties :-D



    Cmbernardi, sorry you feel awful :-( I wish I could wave a magic wand and we'd all be cured and back to normal. Of course we'd still have all met, under better circumstances. We would all still have gained the knowledge we have and we'd all be thin!!!



    I've been having a pity party today. My RO was unavailable and the nurse said that the silver is not used here (?) she said its not approved for rads. I didn't even get a pain RX. I'm so tired and worn out, in pain and just feel like crap!

    I feel like at every turn I've been misled. 3 yrs ago I was told the lump is nothing, not to worry. Ended up something. Ok chemo to shrink it before surgery. MRI shows NED, and I won't need rads. path shows chemo didn't shrink it. I'm told rads is easy compared to chemo. I'm reacting worse to rads then chemo. Not to mention the infections in my tummy incision. My boob, is numb, it looks like a rock. My tummy scar is horrid and my tummy is numb. Peripheral neuropathy pain wakes me nightly. I just want my life back.

    My son is home from school and I'm trying so hard to be upbeat and positive for his sake but its hard.

    SIGHHHH!!!! 5 more rads....

  • shianne29
    shianne29 Member Posts: 282
    edited March 2013

    Tazzy, I'm going to break the whole f ING box of matches lol

  • Tazzy
    Tazzy Member Posts: 1,442
    edited March 2013

    shianne - ((hugs)).  Its OK to have a pity party.   I'll bring martini's... scottie we need chocolate jujubes..

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited March 2013

    Oh Shianne and Melissa I'm so sorry for everything you gals are going through right now. Sending you both hugs.

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited March 2013

    Tazzy darling, have you been napping.....Jo took them to Florida.....lol......😡

  • Chrisrenee77
    Chrisrenee77 Member Posts: 693
    edited March 2013

    Hi everyone! I haven't been able to post at all today, it has been crazy busy at work. Worked my regular shift today plus our monthly staff meeting so 12 hrs total. Whew, I'm exhausted. On a good note, my hubby is on his way home, he's been gone for 30 days. I'm ready to see him, hug him and kiss him! ha

      So after my blahs yesterday, I have decided I'm going to call myself NED. I don't have any symptoms, currently not under any treatments (chemo/rads). I feel better about wearing my NED bracelet that Believe sent me. I'm actually going to wear it tomorrow. I'm doing a lot better and I'm going to own being NED!

    Websister- I'm so sorry about your mom, I must have missed that in an earlier post. I'm glad she's doing ok. Sending lots of hugs her way and yours.

    Michelle- I had a very easy exchange as well. I was back to work 3 weeks later. I went back to work 3 weeks later after my BMX. My TE placement I did not bounce back as quickly, went back to work 6 weeks later. That was the hardest one.

    Believe- I too was ready for 2012 to be over with. I made myself a promise that when 2013 came around I was not going to look back. So here's to me not looking back.

    Liefie- thank you.

    Mom (scottie)- i took all of what everyone said last night and I'm moving forward, with or without hearing the words NED.

    All of you have been so caring and supportive with your comments. I love and appreciate you all so much.

  • shianne29
    shianne29 Member Posts: 282
    edited March 2013

    Ohhhh.... A martini sounds really good right now!!! I'll buy more choc jujubes. And choc almonds too!!!!

  • Tazzy
    Tazzy Member Posts: 1,442
    edited March 2013

    Scottie... now I remember you saying Jo took them with her (chemo brain Tongue Out).   But all is OK, Shianne will bring them and chocolate almonds.  

    Woo hoo - pocket road trips !!

    Chrisrenne - aka NED - that's the attitude.   I love being called NED, wear my bracelet with love and everytime I have a 'down' moment ... look at those 3 little letters and my world is good again.  Enjoy seeing your DH Wink 

    Oh! and finally it happened, got my 'mojo' back as far as DH is concerned... you know what I mean girls - sorry if that's too much info, but for those still waiting - it does return.... .and about bloody time I say.

  • Outdamnedspot
    Outdamnedspot Member Posts: 164
    edited March 2013

    Shianne, I kept a bottle of 100% pure Aloe gel handy and used that to soothe when I was having a lot of pain and itching.  Keeping it in the fridge helps too...the coolness is bliss.

  • Tazzy
    Tazzy Member Posts: 1,442
    edited March 2013

    And dont forget the saline soaks - they really helped me.   

  • Chrisrenee77
    Chrisrenee77 Member Posts: 693
    edited March 2013

    Tazzy- congrats on your MOJO coming back! I thought it would never happen after i started Hormones after my hysterectomy. Then it came back about 6 mos before my BC diagnosis. Then the Femara and effexor just really pushed me over the edge, had no desire. Needless to say, (TMI) sometimes "toys" are a necessity. If it gets things going, that's all that matters. Surprised

  • Chrisrenee77
    Chrisrenee77 Member Posts: 693
    edited March 2013

    I'm hoping this works. Last night i went to my nieces Kindergarten rodeo. My beautiful niece is in the pink shirt and black cowboy hat. It's pretty long but it's so worth the sit through. At the very end that IS my big mouth yelling. One proud aunt here. :)

    https://www.facebook.com/photo.php?v=4561024186882&set=vb.1329894111&type=2&theater

  • shianne29
    shianne29 Member Posts: 282
    edited March 2013

    Wooohoooo!!! Here's to mojo returning lol!!!

    Outdamnedspot, I'll get some aloe and try that. Thanks.

    Tazzy, I'm soaking in saline ;-)

    Chrisrenee, she's a darlin!!!!!

  • Chrisrenee77
    Chrisrenee77 Member Posts: 693
    edited March 2013

    Shiane- thank you! She'one of the love's of my life.

  • Joanne_53
    Joanne_53 Member Posts: 714
    edited March 2013

    Shianne, you need to use polysporin and hydrocortisone cream ... That is what my RO told me. I had some skin breakdown under my breast and under my arm around the lymph node incision. I wore a cammie with a shelf bra but wore it inside out.



    Enjoying my vacation but was a bit chilly today .. Only around 68.



    2friedeggs, where are you .... Sorry no jujubes here ..

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited March 2013

    Just a quick post to say hi and HUGS to those who need them. I have had a very busy week so far and the rest is going to be even busier!



    I am reading posts when I can and I want each of you to know how much I really enjoy reading and being here even when I can't post.

  • shianne29
    shianne29 Member Posts: 282
    edited March 2013

    Joanne, that's a great idea about the cami inside out!! Fortunately I'm small enough I've been going without anything lol. But I have a "date" coming up and was wondering how to make the girls look even. I'm going to see my all time favourite band. I know a lot f ladies are Adam fans but I LOVE Randy Owen, I'm going to see Alabama.

    My MO and RO said nothing on it but saline and Glaxol base. I'm going to try some 100% aloe on it tho. There is no skin breakdown, it's just so irritated and the underlying ribs are so sore and tender that even rolling over at night hurts. My husband woke me up last night saying I was crying in my sleep. I feel like I haven't slept in nights!! This is worse than chemo for me.

    At lest with chemo, they were eager to help with SE's getting anything for this is like pulling teeth!!!

  • Shari0707
    Shari0707 Member Posts: 260
    edited March 2013

    Hi ladies.. Sorry to have been so absent...was resting and had a bunch of pre-op appointments yesterday... Breast surgeon was not concerned about cold but plastic surgeon was a little concerned because of anesthesia and everything. Needless to say, he had me worried bc he mentioned delaying surgery... But he said rest today and see how I feel... It's mostly a head cold but he said of I had cough then he would wante me to wait... God I have been counting down the days to this and a measly cold could mess it up... So anyway I feel ok just doc got me worried.. Really want surgery am definitely feeling nervous for a number of reason.. Thanks all for rember ing and I know we r all dealing with things.. Luanne hope u feeling a little better for ur son and for urself....

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited March 2013

    Shainne - be very careful with the aloe if you have any open areas. I have used aloe many times, but when I put it on when my skin was broken it burned even worse and brought me to tears within seconds. You are almost done so stay strong and it really gets better quickly once you are done.