2013 Survivors!!!

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Comments

  • websister
    websister Member Posts: 405
    edited June 2014

    Aruba - what a beautiful picture! Love your dress! I will definitely be in your pockets next week, thanks for your support - and belated Happy Birthday!

    Believe - you definitely deserve an optimistic PT 

    Tazzy - hope you enjoyed your shopping trip and that your follow up visit went well!

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited June 2014

    Aruba.....beautiful pic.....your new DIL is lovely.

    Believe.....sooooo sorry you are going through this.....❤️

    Jennifer....thanks for the belly laugh....too funny

    Tazzy....hope you are still healing well.

  • Believe777
    Believe777 Member Posts: 540
    edited June 2014

    Well - I got a call back on yesterday's mammogram. Need to schedule another pocket party for tomorrow - sorry for the short notice!  They told me to set aside 2 hours for another mammogram and ultra sound. This is on my other breast. Knowing you will be with me will make this bearable. Keeping lots of positive thoughts.  Never a dull moment. 

  • Tazzy
    Tazzy Member Posts: 1,442
    edited June 2014

    Jumping in your pocket Believe - bringing goodies Smile

    Follow up appt. went well - she is pleased with how I have healed.   I will now work from home for the next 2 weeks... well do a graduated return to work.  All is well.

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited June 2014

    believe - I am sarry you got called back, but definitely count on me in your pocket for however long it takes!!!!!  Please let me know if you want me to bring something to snack on. 

    Aruba - love the picture!!!!!

    Hugs to everyone!

  • Joanne_53
    Joanne_53 Member Posts: 714
    edited June 2014

    Aruba what a beautiful family picture.

    Believe ... In your pocket for as long as you need.

  • iatigger
    iatigger Member Posts: 269
    edited June 2014

    Believe,  count me in your pockets tomorrow.

    Aruba, great pic.

    Tazzy glad your recovery is going well.


  • luvmygoats
    luvmygoats Member Posts: 2,484
    edited June 2014

    Aruba - Loved the wedding pictures. Gained a great DIL, huh?

    Believe - In your pocket tomorrow. What time your time?

    Tazzy - congratulations on a smooth recovery.

  • aruba
    aruba Member Posts: 276
    edited June 2014

    joining the pocket party!

    image

  • Believe777
    Believe777 Member Posts: 540
    edited June 2014

    Tazzy - great news about your recovering well. Working from home doesn't sound bad either. 

    Aruba - love the puppy photo!  

    Luvmygoats - my appt is at 10am my time. They told me I'd be there 2 hours and a radiologist will read the results before I leave. Ready to get this part over with... 

    Hugs 

  • Believe777
    Believe777 Member Posts: 540
    edited June 2014

    My appt today is over!  Big sigh of relief. They didn't find anything they wanted to stick a needle into... I have to go back in 6 months. I didn't ask a lot of questions, I wanted to just run before they changed their mind. I'm seeing a pattern here. They do a mammogram and then follow up with ultra sounds. Maybe this is just our new normal. 

    Thank you all for your company!!! I really appreciate your love and support.

  • luvmygoats
    luvmygoats Member Posts: 2,484
    edited June 2014

    Yay Believe. I know you must feel great relief. Yes, if we know what to expect we do so much better. Enjoy your afternoon.

  • aruba
    aruba Member Posts: 276
    edited June 2014

    Trying to lose an ounce while doing a happy dance for Believe!!!  Saw this today  and wanted to share...

    image

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited June 2014

    Believe - GLAD TO HEAR EVERYTHING IS OK FOR NOW!!!!!😄😄😄😄😄😄😄

  • Momof3GreatKids
    Momof3GreatKids Member Posts: 285
    edited June 2014

    Aruba - I love your message!!!!!!!  It is great timing as I have been trying to set up a meeting with my sister that I have been having trouble with for over year. 

  • luvmygoats
    luvmygoats Member Posts: 2,484
    edited June 2014

    Aruba - Mind if I repost your owl wisdom to another thread?

  • aruba
    aruba Member Posts: 276
    edited June 2014

    Momof3..glad the timing was good.  I hope all goes well with your sister!

    Luvmygoats..Whats  mine is yours sister!

  • luvmygoats
    luvmygoats Member Posts: 2,484
    edited June 2014

    Aruba - Thanks sister! Winking

  • websister
    websister Member Posts: 405
    edited June 2014

    Believe - glad today went well, looks like you and I may be every 6 monthers for the near future, we'll see what Monday brings for me. 

    Tazzy - glad surgeon was pleased, take good care and rest up, don't work too hard from home

    Luvmygoats - so good to hear from you again

    Aruba - great quote and loved the puppy in the pocket picture, I'll bring him along on Monday with me if you don't mind

    Take care everyone

  • Tazzy
    Tazzy Member Posts: 1,442
    edited June 2014

    Yay... doing the happy dance Believe - what a relief - phew !

    Aruba, love the puppy pic.

    Yes, first day today working from home.....and really by 2pm I felt done in - so packed it up.   That's the positive to being at home.

    Hugs all xxxxxxxxxxxxxxx

  • SwgeeWi
    SwgeeWi Member Posts: 199
    edited June 2014

    believe I'm happy dancing for you, also!  Yaaaay!!

    Aruba, your family is beautiful. What a great picture!

    I'll ask for a pocket party myself on the 16th. I had my follow up visit with my MO & BS a week ago for the shingles/ cellulitis hospitalization.  Started back on the Tamo, no big surprise there. Today felt like one big hot flash (shit!!). My BS said I can't keep getting cellulitis and being hospitalized.  There's a chance for sepsis and she wanted me to meet with a PS to discuss a mastectomy with reconstruction/tummy tuck (DIEP flap surgery) and reduction on my right side.  Of course I got online to look up DIEP procedure. It looks like they cut your body in half when they do the tummy tuck for God"s sake! Then I doubt they would fix my other side at the same time which means another procedure later. Talk about depressing!

  • luvmygoats
    luvmygoats Member Posts: 2,484
    edited June 2014

    Swgee - There is a really good DIEP thread on here. Liefie had it done. Go on there and hash it out with them. They can give you some good advice and pointers. Check out the surgeon's reputation. Is a major surgery so you want someone who has done bunches with success. Don't know why they couldn't do both sides at the same time. They do bilat. DIEP at the same time I think. Again another good question for the DIEP gals.

    Another thing to consider. Do you have an infectious disease doc who treats your cellulitis? If not it could be another avenue to explore. Be thinking about you as you make your decision.

  • SwgeeWi
    SwgeeWi Member Posts: 199
    edited June 2014

    thanks luvmygoats! I had breast reduction surgery in 08 and my BS thinks my lymph channels in my breast have had this triple whammy (surgery, surgery, radiation) and they can't handle the lymph fluid. I know they consulted inf. docs both times I was in the hops.it's just all so overwhelming. My DH has MS and he's been falling a lot lately and our house feels like it's doubled in size in the past year! My sisters said they'd come help which is nice, but it's not the way I wanted to spend the summer, especially after this winter! I need to be recovered in time for school to start back up in September , tho.

  • ramols
    ramols Member Posts: 310
    edited June 2014

    Hi All - I've been terrible at posting and sending hugs and jumping in pockets where needed - but I'm always in those pockets when needed. I likely haven't posted lately because life has been good and busy. OT is doing wonders for my shoulder, ribs, etc. I feel like I finally found someone who knows exactly what I'm talking about - and what to do to fix it. So all has been well and I haven't felt a need to post (although I'm always popping in to read and see how you all are doing). So - since it is Wednesday (Juneau :) and I now have something to complain about - here I am... :) Had my annual appt with my gyn today - which as much as I love him, gives me great anxiety since he found my lump. Today is exactly 2 years to the day of my mammo/sono. Anyway - my appt was just fine except for the pelvic sono they did. I think pelvic sonos are standard of care as far as he is concerned for BC patients - especially when you're pre-menopausal and on tamoxifen. So while my lining and all the things they worry about appear to be behaving fine - my ovaries apparently are not playing by the rules. They seem to be covered in cysts - those bad ovaries! He said that when you're on tamoxifen, your ovaries are usually good with no issues - they don't expect to see activity. So there I was thinking to myself - ok, he is telling me he's not worried and we just need to keep an eye on things - no big deal, i can handle this. Then he tells me we need to recheck them in 6 weeks. I was figuring 6 months. 6 weeks threw me for a loop. While he wouldn't commit to an answer - I think he's going to suggest I get an oopha when I go back in 6 weeks regardless of what the scan shows. Forced menopause at 39 - lovely... Sigh... Anyway - I'll take it one day at a time - as we've all had to learn to do - and not worry about it until he gives me something to worry about. Hope you're all doing well. Love and hugs to all. And Juneau - i miss you too - lets do a visit soon!

  • ramols
    ramols Member Posts: 310
    edited June 2014

    ok - so maybe today is thursday, not wednesday... I need a vacay! :)

  • teeballmom
    teeballmom Member Posts: 56
    edited June 2014

    Wow, I can't believe it's been over a year since I posted on here.  Seems like life with my 2 little ones has me going 100 miles an hour with no end in sight, but I am so grateful to be able to be here with them so I WILL TAKE IT!

    I miss all of you and think about your support through everything almost daily.  It's so great to see so many familiar names still.  

    Love you all.

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited June 2014

    Believe.....I'm sorry I missed your pocket party but I'm dancing now......big relief!!!!!

    Tazzy.....glad you are continuing to heal well....❤️

    Sheila.....can't believe everything you are going through!!!!....It's really true what they say about BC being the gift that keeps on giving. .....can't wait to see you again and give you hugs...((()))

    Hugs to everyone else.  ((((()))

  • Believe777
    Believe777 Member Posts: 540
    edited June 2014

    Ramols - nice to see you posting. We all know where to run when we hit a bump in the road. What a wonderful group of women we can call our friends.  Follow up appts are stressful but it just shows that someone is watching out for us and has our best interests in their minds. One day at a time sounds like the perfect strategy. 

    Swgee - another bump in our road to recovery. So sorry we are finding challenges, the good thing is that we are still here. 

    Websister - I think everyone else is on a year check in schedule. How did we get so lucky to be on the 6 month list. At least we are in good company. 

    Scottie - Jazz is adorable. My poodles live until they are in their 20's. Wishing you many years of juicy licks!  Will he remain black or turn silver?  Liberty is my 4th poodle. 

    My pt appt got moved up to June 9th. Being on the cancellation list worked. She told me to plan on a 45 minute appt.  I thought I was going in to just get measured for a sleeve. Anxious to see what can be done. 

    Tballmom - we don't all post as often as we did but we do our best to keep in touch and know to turn when we need some hugs and encouragement. Appointments are always less stressful when our pockets are full. 

    Juneau - you missed your Wednesday check in. Sorry about your tv that I saw cracked on FB. I don't suppose a warranty would cover drops. Isn't home ownership fun?  Good luck in your job search. 

  • ramols
    ramols Member Posts: 310
    edited June 2014

    argh - i just lost my post for you believe... I was sharing some information about sleeves. I'll try again... :) If you're looking for fancier, have your LE therapist show you the Juzo ones. They come in some colorful patterns. I got a black one with white swirls on it as my fancier one rather than just the medical beige. You can also check out lymphedivas - as they have an array of patterns and funky options. But there is disagreement in the LE world about whether or not they are as effective as the regular brands. So talk to your therapist. And make sure to ask them about getting a gauntlet or glove in addition to the sleeve - as just arm compression without hand compression can cause hand swelling. And if they suggest a nightsleeve and you're not opposed to spending some money - check out the Solaris Tribute. I LOVE mine! It's like a gigantic arm-length oven mitt that provides some serious compression and is easy and comfortable to sleep with. And most of all - do all the exercises as regularly as you can. They work! Good luck and PM me if you have any questions.

  • Believe777
    Believe777 Member Posts: 540
    edited June 2014

    Ramols - thank you so much!  I will check out the sites in advance. Are you wearing a sleeve 24/7?  I thought Christy said she wears hers about 12 hours a day. I'm wishing it wasn't summer. Oh well. I'm sorry I didn't ask my mo earlier the right questions. Better late than never to get the relief I need. Thank you again.