2013 Survivors!!!
Comments
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Ndgrrl - your doctor sounds awful. I hope you do make a change!
Liefie - your grand daughter is adorable! I love her red hair, her dad's cute too.
Scorchy - good to hear from you. I hope each day continues to improve.
Karen - woo hoo on breaking the board. Yes, you are very cool!
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Scorchy - welcome back! So good to see you here. Sorry to hear you had such a long rough patch but very glad to hear you are coming out of it now. Stick around on here please - we love to hear from you!
Hope those of you who celebrated father's day today had a lovely day. Ours was yet one more day were I felt so thankful to be alive and here for my family. I got on a bike for the first time in I can't even recall how long... My boys are big enough and good enough on their little bikes now that walking next to them while they ride doesn't work. So my husband said he was getting on his and offered to take out the one be bought for me 3 years ago that I had yet to touch. It's true what they say - you don't forget how to ride a bike. Nothing like a family bike ride and some ball in the yard to remind you that life is good! Love and hugs to you all!
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Great to see you here Scorchy.
Been away this weekend camping - now catching up on the World Cup - yippee! We recorded all the games from Friday so have a marathon of footy to watch. Makes me very happy.
Hugs to you all xxxxxxxxxxxxxx
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Scorchy; Welcome home. I am flattered by your kind words. I too (marianeliz) was so excited to see the email from you blog drop into my mailbox last week. So grateful to hear that you are starting to feel a bit more functional. Having lived with chronic pain (sciatica) for years until I got it under control; I can only imagine what you must be going through. Please stick and stay; we need you!
ndgrrl; what a fucking dickead that dr is! His mechanic analogy is bullshit too. Here's my retort. I took my car to my mechanic (who I love and have been using for 10 years), because my brakes were making a strange noise. I've had my car for 4 years so I know what normal sounds like for it. I needed new brakes. DONE. Still have a noise. Took it back. ...maybe it's the caliper he says - tests it. nope it's fine. STILL Making a noise... it's getting worse. Took it back.... bad brake pad; he replaced it. Still making the other noise, but now it's squealing like pig! TOOK IT BACK... THIS time he heard it loud and clear... yes it's the caliper. He fixed it. For the first time in 3 months my brakes sound normal again (which is no sound). Moral of the story; just because he's a mechanic, he can't fix what he can't see/hear. I KNEW the car didn't sound/feel normal because it's my car and I'm the one who drives is EVERY DAY for the last 4 years!!! Well... it's YOUR body! He may know the mechanics of it, but you can tell when something doesn't FEEL right and any doctor should RESPECT that and NOT belittle you. I agree with Karen (who is officially a BOARD BUSTER!); find a doctor that gives you the warm fuzzies, not the patronizing attitude. We all know... be your own advocate. Bring a friend if you are too emotional to stand up for yourself. Let them speak for you. (((BIG HUGS)))
Aruba; OMG too cute.... but your DS looks a little scared. LOL!
Love to all; my bitch of a boss is here in NJ from Boston today. What a LOVELY surprise... I better get off the internet. :-|
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Thank you everyone for the advice and being in my corner. I was starting to feel like the nut job he obviously thought I was. I fought for a year to get an MRI, will get one finally in Sept cause I cried! Geez... and I see the breast surgeon this month about that cyst.
I have not had a good feeling about it since they finally told me I had it. I guess it was there before surgery- located right next to the cancer - its complex cyst so been watching it since by ultra sound every 6 months. My oncologist had said it could possibly be cancer in situ but for some reason "forgot" he said that.
My sister was dxed with breast cancer 2 months after me- Her IDC cancer was same size- same exact location and depth and she had a cyst located next too it that by fluke was biopsied an it was in situ cancer. He may argue I am not my sister but my feelings are so strongly on this. Do I think I need surgery to remove it? Not unless it needs to be, I think a biopsy is fine- I trusted a biopsy to dx my cancer why wouldn't it work for a small complex cyst?
He just make me feel guilty I was questioning things and then I felt hopeless. That this whole journey was hopeless as I couldn't have anything done an it had been a year.
I am going to get the tests done and probably will have to see him after the MRI in Sept since he ordered it and then I do not know where I will go.
Thanks again,
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ndgrrl, so sorry to hear your MO isn't listening to you. I had a conflicting genetic test, oncotype right after surgery, and mammoprint six moths later, after I had already completed radiation. Oncotype showed little benefit to chemo, mammoprint show greater gain from chemo. I fretted about the second test for a month, and we then had a "face off" about my decision. I'm such a whimp about defying authority but I had done my research too and when I told him I was going with his first opinion of no chemo he simply said he was comfortable with that decision and we moved on. He's never brought the mammoprint test up again and told me there are no guarantees when it comes to cancer. I really thought he would make me feel guilty or think I was stupid, but he was great and not only respected my decision, but told me with my favorable pathology I was doing the best I could taking femora.
He said his job was to be my advocate, not to treat me like he was the only person who knew things. He's been very kind about listening to my concerns, even when I'm sure he thought I was crazy (doesn't breast cancer make us all kind of nuts) Interestingly he finishes every appointment with a hug (with or without my husband being in the room) and told me the first visit that sometimes that's all he can do for a patient, give them a hug to let them know he understands their fears. He can't always fix them, but he's here for them and is willing to listen. Find someone who is there for you, I think it's important to be treated with dignity, even if we're wrong it's our bodies, our lives, our decisions.
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KKuziel= Can you ship your oncologist to ND? He sounds great!!
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Lol Juneau, think it is the new DIL who may be scared..in the deal, she gets me as a MIL
Saw this and wanted to share..
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Scorchy.....you made my day too.....welcome back.....❤️
ndgrr......your doc is a moron!!!!! AND his massaging of your leg is TOTALLY INAPPROPRIATE....please find a new one.
Liefie.....such a cutie and your DS is not bad either.....lol
Believe.....I so want some of your baking.....I miss it.....lol
Countdown now to my retirement .....9 days!!!!!!
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OO Scottiee I missed that you were retiring. I love it - well except for having to watch the budget closely. I am never bored for long. You live in such a vibrant city I bet there is always something going on now that you will have the time to investigate it.
Scorchy - so good to see you. Hope those rads blasted those little stinkers away and you're feeling better.
Liefie love your GD's picture. Do redheads run in your family?
Believe - I had to look up your cookie. Sounds yummy. Might pick up the ingredients for party making fare this summer.
ndgrrl - you know my opinion. Won't expound here. But agree I would like kkuziel's MO too!
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Hi folks, have nt been on in ages but think about you lots. Lostinmo/ Scorchy so happy to hear your news. I had my 3 year cancerversary on saturday and didnt actually think about it at all until today....too busy living life!!!!.finally its happened..life has moved on...long may it last. In your pockets whenever needed. Thankyou my friends for being here.xx
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Ireland, good to "hear" from you. So glad to see everyone checking in! Please keep it up!
Just got back from my mamm and BS visit and all is good. RELIEF!!! I got three 3D pics on both then had to wait 25 mins for radiologist to read. Finally get called back to BS and nurse takes BP before I hear results, BP has been trending higher since BC diagnosis but today was all time high. Going to PCP for a bp recheck tomorrow and am sure I'll be on a bp med.
Had you all in pockets and so appreciate the company!
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Ireland: I think it is wonderful when life moves on..... when we were all here going through tx none of us ever thought that day would come.
Aruba: happy dancing for your good news.
Hugs and positive mojo to all - may life continue to move on xxx
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Hi Ladies,Just checking in! I've been reading and to sum it up:
Yay to all getting happy news around their cancerversaries, in pockets with big gentle hugs and healthy snacks (chocolate is healthy! Darnit! We've all seen the email that tells how it's a vegetable!) to those needing it and a big woohoo to those getting on with your amazing lives with nothing to report but normal everyday stuff.
That's been me. Just getting ready for summer and the kids being home. Lots of days at the Jersey shore (under my umbrella of course) and three weeks from Tuesday I will be heading to Aruba with my family and friends. I have tears in my eyes saying that because it took my DX to make us realize how short life can be and even though we did our usual to Hershey we weren't seeing the rest of this wonderful world. We just took for granted time was on our side and we all know it's not. So as I sit here telling you this I hope you hear my message and get out there and see the world as much and as best as you can! We all live in beautiful areas in our little parts of the world so enjoy them.
Believe - just got my package and thank you! The bracelet is beautiful and I know my daughter and I will fight over who gets to wear it first!
Juneau - welcome to homeownership! It may be a pain however it's your pain and now you know what to ask for when people want to get you Christmas and Birthday presents. Lowes, Home Depot, local merchants, so on and so forth. However at the end of the day it's yours. So enjoy it. And tell your boss to SUCK IT!!!
Now back to life - time to go empty my trunk with my warehouse club purchases! Ahhh reality - such a pleasure!
Enjoy the weekend my wonderful friends!
Karen
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Luvmygoats, no, red hair does not run in our family. We have dark hair. Maybe it comes from SIL's side. He is blonde with blue eyes.
Ndgrrl, so happy you do not have to see that dr again soon. I'm amazed that he chose to be an oncologist - obviously ill-suited for it. Maybe pathology would have been better. Then he would not work with patients directly at all, only with cells on a slide under a microscope - lol.
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hi all. Just waiting for mom at a restaurant for dinner al fresco. Beautiful day. I took a vacation day and laid in the sun. ahh
Surgery anniversary next Thursday. In feeling pretty emotional about it. Wasn't like this when my diagnosis date rolled round.
Just needed to get that out. xo
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Scorchy - so good to hear from you, missed your blog, glad you're back!
Ireland - wonderful to hear that life is full and busy!
Aruba - happy dancing with you - re: blood pressure - it may have been higher today due to waiting and concern over mammo results, hope it is lower tomorrow - some tips - make sure they have the right size of cuff, take some deep breaths before they take it and, even if they ask you a question, don't talk while they are taking a reading. Hope you won't need meds
Scottie - congratulations on your retirement
Juneau - sending gentle hugs - I so remember our dates being close to each other/ - today is my second cancerversary - from the date I was diagnosed - my surgery was June 29th
Glad you had the day off, be gentle with yourself and allow yourself to feel everything that you may have pushed down back then in order to get through it all. Then look in the mirror and tell yourself what a strong and resilient person you are! Take good care
I know I have probably missed commenting on some posts - I was having trouble logging in earlier this week. Thinking of you all
Take good care
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Websister-you hit the nail on the head. My BP was much better today and my PCP took it twice manual vs the machines used in MO and BS offices. No meds at this time..recheck in 3 months. I feel like i played dodgeball all week with all the Dr. Appts. I am grateful but feel drained. Next week taking dad back to Fl and then two weeks of getting him settled and to all his Dr. Appts. Then the vaca with hubby to celebrate #30
Karen...I know you will love Aruba..i do lol. Cant wait for your trip. Details and pics!!0 -
Hi all!!!!!.....sorry I've been MIA.....the last few weeks have been pretty hectic at school, between end of the year tests and marking of pares etc., PLUS packing up all my "stuff" for the big day next week....June 27th
I will officially be a retired old school teacher...haha
Ireland....it was so good to hear from you....sooo happy you are finally enjoying a "normal life" ....I do agree, things do get better the longer we are "out"
Aruba.....enjoy that vacation girl....you sure deserve it.
Tazzy......I didn't know you were half Italian!!!!....there's hope for you yet girl.....haha (private joke with Tazzy)....❤️
Scorchy...again....happy you are back with us.....❤️
I know I have missed mentioning a ton of you but I send my regards and love to all.....in pockets if needed.
Have a great weekend everybody....
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Scottiee....Retirement and a birthday all in one weekend! Celebrate ..you earned it!!
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Aruba.....thank you for your kind words and pic....❤️......almost forgot about my birthday......lol....
Soooo much going on next week.....end of school, end of my career, birthday AND my nephew is flying in from the States.....OMG.....how will I get through it all....
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Scottie, congratulations on your retirement. I retired eleven years ago from the Michigan Public School System. Enjoying most every minute of it (except the bc). ENJOY!
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Karen - Congratulations on breaking the board!
Scottie - Happy Birthday and Happy Retirement!!!!!
Aruba - glad the blood pressure went down and hope it stays there! Enjoy your vacation also.
Ireland and Scorchy - it was great to hear from both of you again!
Juneaubugg - sorry to hear your anniversary was tough, but glad you were able to enjoy the day and take a break from work! I am still hoping and praying you are able to find a new job soon! Also hoping you enjoy your Outer banks vacation in 2 weeks! I know I can't wait for mine!
In pockets as needed this week and sorry if I am missing anyone! HUGS to everyone!
What a busy week for my family! My DD (2nd born) graduated this week from 8th grade. She also won 9 different awards. She is definitely not letting her Epilepsy and learning disabilities get in her way of anything. I am so proud of her! My DS (1st born) had all 4 wisdom teeth removed last week also, but is doing great now. My youngest DD (3rd born) had tryouts for the competitive soccer team and has made it on the team. And they all finished strong in school this year. This week was very busy, but I am so thankful that I was there to enjoy it all!!!!!!
I started strength training with my shoulder this past week also and feel great that I can start using it again, all be it very slow! I also go for my delayed mammo on Tuesday. I just hope my shoulder can behave and move as needed to get it done! My original appointment was May 13th, but mad to be delayed because of my shoulder surgery. I also bring both DDs for their yearly physicals. I will take anyone available to be with me in my pockets!
I thought about taking my DDs into the mammo so that they could see what it is like since they need to start having them at 20 years old, don't want to scare them if my shoulder makes it more painful this time. They are growing up so fast!
Thanks for letting me brag about my kids!
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Jo6202.....thank for your kind words.....glad you are enjoying your retirement....I hope to do the same.
Mo of3great......you must be so proud of these kids of yours.....great achievements.....congrats!!!....you can brag away here....lol...we love to hear stories about our kids....big and small....❤️
Enjoy the rest of the weekend ladies....
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momof3 - in your pockets for Tuesday
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momof3 - I would take them in. My dd is 13 and you've made me consider asking her if she wants to see what it's all about. And congratulations on all your kids achievements. I love bragging about my kids. So I will. My DS is kicking butt (no pun intended) in karate and started helping the younger classes learn. And my dd is starting acting classes. It's a wonderful thing.
Scottie - congratulations to you and. Happy birthday. Enjoy retirement. But remember if you get bored you can always tutor here and there. Make a little extra $ for the wonderful trips I hope you will take!
Juneau - hang in there. The right one will come along when the time is right. I've been where you are and it happened for me and everything thereafter fell in to place and led me to where I am.
Enjoy the day I'm off to ride coasters at great adventure!
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Scottie: happy belated. And hope for me....? not sure about that - ha ha !!
Just back from camping in WA - Concunully State Park. Was beautiful - now back to work tomorrow.
Hugs and love to all. I know there are many I missed too. xxxxxxxxxxxxxxxx
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Scottie - happy belated.... retirement... oh that sounds SO GOOD right about now. Off to a job interview. Wish me luck ladies!
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In your pockets Juneau - best of luck !
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Juneau......good wishes coming your way....
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