2013 Survivors!!!
Comments
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Even a huge amount - mostly belly fat - the kind that pumps out tons of estrogen?
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IMHO having to deal with the weight that a drug that could keep me around for my family is worth it. You're not in it forever. But family is.
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I totally agree Karen, it isn't forever. Please think about this Juneau or at least talk it over with your MO....
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I hate the amount of weight I have put on .... I have joined weight watchers and start meetings tomorrow .... I have 3 years left on Tamoxifen so I am going to fight the weight ....
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I'm in the gaining weight group too. So sad but I'd rather be alive too so I'm just going to enjoy the fluff. No amount of exercise seems to help. My knees hurt so bad from the treadmill - now I just walk. We are 1/2 way to the finish line. We can do this!
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Well I took my last tamox today - 2 years after starting. I am now on Anastrozole - knew it would be switched. Dunno if it is a weight gainer - but regardless, like the majority - rather have a bit of 'fluff' - love that expression believe. Like I say to DH more to love and hug - ha ha !!0 -
Tazzy, I hope you are not in too much pain~~here's to fast healing! I have been on Anastrozole from the start so now a year and half and no S/E so far. Did you have a bone scan before they prescribed it? I don't know if Tamoxifen causes osteoarthritis but the AI's do so I had one for a baseline. When I asked in June at MO appt. about how often they do them I was told only every 3 years UNLESS you have fractures! Yikes! Any mention of that when you fractured your ankle?
Hope the outlaws are pitching in. We are on Bowen Is. for 5 days thanks to good friends who are away and offered their home with a fabulous view. I am taking it pretty easy hoping that my foot will heal and am really trying to get my DH to wait on me!
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Because I am in that clinical trial I have a bone scan every year. I had one in May so they said they didn't think they'd need another one but would be in touch if they decided I did.
Outlaws are being great - MIL is really helpful - FIL is a bit of a lazy bugger, but I knew that before anyway.
I love Bowen Island - enjoy it Marian and yes, I guess we are back to getting waited on hand and foot.
Love & hugs to all xxxxxxxxxxxxxx
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I'm in the weight gain catagory too. Lost 25 pounds when I had my diagnoses - found out I'm not a "stress eater." Once I got past all the treatment and the first mammogram I put back on those pounds plus a couple more. My life just got too comfortable (plus I felt like I had to "treat" myself for being a good patient). So now I'm trying to cut back, exercise and slowly (without all the stress) rid myself of some extra weight. I'm sure it would help the joint pain I'm experiencing from the femara. But I agree with the others here - pounds are numbers I can live with, my continued birthdays are numbers that are really important to me. But having said that everyone has to do what makes them feel better. If having extra weight makes you unhappy it's an understandable decision. Our lives, no matter how long, need to be enjoyable - everyone has to do what makes them feel good. At some point quality does trump quantity.
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Tazzy - let is know how you do with the Anastrozole; I am supposed to be switched in January and have a bone density booked for December. Are you taking any meds/supplements for your bones at the moment. Glad that MIL is helping you out
So far I am doing OK weight wise but not sure what the change to aromatase inhibitor will do in January - or what will happen if I continue to stress eat like I did the last two days
- busy times at work. I saw the geneticist on Wednesday of this week. She is proceeding with testing of my father and late aunt's tumors for Lynch syndrome and with testing for myself for Cowden's syndrome. She said they should have results in 3 - 4 months but that if I get a reconstruction date for before then that I should contact them and they will see what they can do to expedite them - why are results provided so much faster in the US?
Marianelizabeth - enjoy Bowen Island - I hope DH gets the hint and let's you rest that foot before you travel again
My foot/ankle shows no signs of improving on it's own - I have to confess that this week was such a busy one with work and weather that I didn't call to see if I could move up my GP appointment
Have a good weekend everyone
Take care
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Websister can I ask why they're testing you for Cowdens? Being adopted my MO thought it'd be a good idea and when the geneticist heard I had thyroid cancer she said sometimes there is a correlation. I was negative (and you're right I did get my results quick). Matter of fact they found no genetic anything as to why I got the luck of the draw. Years ago I got my birth history and the only thing it showed was thyroid disease and diabetes. Got one!
Saw The 100 Foot Journey the other night. What a great story! My goal in life is to be just like Helen Mirren! My question for my Canadian sisters - do you get Downton Abbey now or are you tortured and have to wait till January like me? Just learned George Clooney is doing a cameo! Sweet!
I'm babbling. Everyone enjoy your weekend! Going to Atlantic city for the weekend to see DHs aunt who is up from Florida. She is so much fun!
Stay off your feet ladies and rest up!
XOXO
Karen
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Karen - can't answer your question re: Downton Abbey as we only get the basic channels in our cable package and I use Netflix for Downton and other shows I enjoy. I've heard good things about The 100 Foot Journey - maybe tonight will be date night!
Re: Cowden's - history of breast cancer, thyroid problems, autism spectrum disorder, arteriovenous malformations and large head sizes for many relatives on maternal side of family. I have had colon polyps, esophageal changes, large head size, uterine fibroids, fibrocystic breast disease with fibroadenomas, lipomas, and other skin lesions that occur with Cowden's so they want to check it out.
Enjoy Atlantic City!
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Websister: I take Calcium and - Vit D - as requested by the pharmaceutical company that is conducting the blind clinical trial I am on. The clinical trial is for Denosumab which has been on the market for years to treat osteoarthritis. They are researching to see if it stops breast cancer metastasising to the bones. After breaking my ankle methinks I may be receiving the placebo
Hope you all have a good weekend. Sunshining at the moment - looks like summer has returned.
Karen: have a fun time in Atlantic City - visited there a few years ago - had a blast. Hope the weather is good to you and you can get to walk along the boardwalk.
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Does anyone happen to know anything about vitamin D and
glucosamine, MSM, chondrotin and tumeric causing constipation please let me
know?
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I take Glucosamine/chondrotin, Calcium and Vitamin D (not so much in summer as we have had so much sun) but not turmeric. I also take Anastrozole and 3-5 prunes a day. There was a lot of discussion on an exercise thread about prunes being good for ,ore than constipation but maybe they help that too but never had constipation issues when just taking con/gluc.
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I do calcium and D (thanks thyroid cancer) and add turmeric to lots if dishes. I try to stay out of the sun since there is a connection between BC and melanoma. Never had any problems
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I know I sound like a broken record, but please remember to take Vit K with your Vit D.
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thanks Mary! I take vit D and calcium now too. I had a bone scan at the beginning before Arimidex. The last one showed some bone loss after a year. They say I have osteopenia now - not sure when they will order another one. I don't really have other side effects except that I take my Arimidex and night and it seems to knock me out. Better than sleeping pills.
Tazzy - I hope you are getting spoiled while your foot heals. There has to be a rainbow somewhere!
Websister - wow all the tests. They are taking good care of you, that's good.
I'm always reading and sometimes writing on the run but you are all always on my mind and in my heart. Love my iPhone - can't wait to get tge new one!
Hugs to all!
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Why the Vit K with the Vit D. My onc/pharmaceutical co never mentioned that to me.
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please correct me if I'm wrong but I think the K helps the calcium absorb.
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I thought that it was vitamin D that helped the calcium absorb. Vitamin K is what clots your blood (have a love/hate relationship with vitamin K from my blood clot) But it's possible that it also helps with calcium. I'll be sure to ask at my next MO appointment.
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Vit D helps your body absorb calcium and Vit K2 helps absorb the calcium in the "right" place (your bones), instead of your soft tissue (arteries, joints, organs, etc.). Arterial plaque consists of calcium deposits (atherosclerosis or hardening of the arteries). If you take calcium supplements or eat foods with a lot a calcium, you want it to go to your bones and not to your arteries.
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thank you!
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http://www.breastcancer.org/community/acknowledgin...
Our wonderful moderators gave a call out to women from other countries than the US to write about their experiences. This is the link and it so interesting to see how BC is handled in different parts of the world.
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Thank you for sharing, MarianElizabeth - it is a very interesting read. In reading your story many memories returned. Hope your foot is improved now for your trip - enjoy!
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ok ladies time for a pocket party but not for me. One of my friends is having a biopsy Friday. She is pretty sure it's BC because of the way it looked in the Mammo. And yes she would know - she does mammos for a living. I said don't jump till you get the results you don't know for sure. She was a godsend to me and mine during treatment. Every Friday when I came home from treatment she had made enough food for a week so I wouldn't worry about my family eating takeout while I dealt with SEs. Her DH is also dealing with heart issues so it's just one thing on top of another. Please say a prayer for her. Thanks
Karen
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Will dedicate my yoga practice to her tomorrow!
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I be in her pocket tomorrow and any future days as well!
Hugs to everyone!!!!
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Absolutely in her pockets, Karen
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Karen - I'm in for the pocket party I will bring the cookies! Praying for good results I remember them telling me 80% of the tests were negative. They have to be right some of the time.
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