2013 Survivors!!!
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I felt all of you there with me and then I cleaned the leftovers out of my pockets!
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tomorrow I start my new prescription of Tamoxifen ...NON GENERIC .. NO SUBSTITUTIONS ...
My MO wrote on the script and we are going to see if getting the name brand makes a difference with my joint pain. I sure hope so. I will keep you posted.
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Nice one Karen - sorry we made such a mess of your pockets. First time in 10 years I have missed the Walk for the Cure. Had lots of others there on my behalf though.
Good luck with the new Tamox Joanne.
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I read somewhere that the name brand tamoxifen (Nolvadex) has been discontinued and it's only available in generic now. Be curious to see what they tell you. My MO is planning on switching me to Arimidex next year, so I've been reading about that a bit, and although insurance only pays for generic, you can get the brand name for only $30/mo direct from the manufacturer. Some have said they have less SEs with the name brand.
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I got Nolvadex. My insurance pays for name brand if the dr. says no substitution. I have 3 years left ... my MO said that since I was not in menopause until after Tamoxifen then I will stay on for the entire 5 years ...
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Anyone been told they'll be on tamoxifen for 10 years? At my last visit I saw the nurse since my MO left and her replacement wasn't here yet. I asked if I'd be 5 or 10 years and she said 10 without batting an eyelash. Curious if any others have heard the same...
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Ramols- My MO told me in June that I would be on my Femara for 10 years. Needless to say, I was slightly disappointed to hear that, I had been looking forward to the 5 years. Now I have 7.5 years left. We can get through it, it's just going to take some extra time to get there. My MO was telling me that the longer we stay on AI's (preferably 10 years now) the lower our risk of any recurrence. I'm all about keeping my risk lower even if that means taking this shit longer than what I want to.
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It is so hard to watch a dear friend go from fighting for her life back in April, to someone who fought back to get strong enough to teach her 11yr old son some cooking just in the last couple weeks and now she can't do anything for herself. Just two weeks ago I took her to a baby shower and she was still mobile. Visited last night and she is unable to do much of anything. She is miserable and just keeps saying she is "sick" and doesn't know how to fix it. She still doesn't want to admit that the end is coming soon. Breaks my heart. CANCER SUCKS!!!!!
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Aimee I am so sorry about your friend. This disease sucks ...Hugs to you and prayers for your friend.
Ramols. I asked my MO last time I was in and she said I was a low risk so I would not be on for 10 years. Each person or MO has their own rules and ideas.
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Aimee... sorry to hear about your friend - big hugs. Yes, this fucking disease sucks.
And then I read this : Fucking Susan Komen... she should be made illegal.
Hugs my beautiful virtual friends - you are all wonderful and yes it may be Pinktober but we saw another one
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Happy Thanksgiving to all the Canadians celebrating! I'm back in Ohio to glorious fall weather and time with family and friends. Thinking of you all and hoping life is treating you kindly!
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Thanks Aruba - hello ladies.xxxx
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Aimee so sorry to hear about your friend. My MO says I will be on tamoxifen for 5 years and then femara. Has anyone heard from lostinmo??
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ireland, thanks for reminding us ... I just pm'd lostinmo .. I will post if I hear anything.
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It has been a long but incredible week. My friend had surrounded herself in true friends over the years and in her passing those friends came together to support one another and her family. I have never gotten/given so many hugs. Just a lesson to take away, don't waste time on people who really don't care, focus on the ones that do and the rewards will be great. Feeling fortunate to have been a part of her life and now have many new friends to carry on her memory for many years to come.
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Aimee: so sorry for your loss. (((GREAT BIG HUGS)))
I am only doing five. No even going to discuss more. My hot flashes have become a huge problem in the past tow months. My period has just about stopped. My last normal period was July. I read about early onset menopause and chemo patients from breast cancer treatment, with hot flashes a big problem with quality if life... Oh and I can get with that. None of the usual treatments can be used on us. I'm really freaking misersble.
On another note, having reconstruction in my left (natural) breast Tuesday. Making it match my artificial breast better. Bigger implant and adjusting the shape. So now that Karens empties out her pockets... (Thanks for that sign btw... That was awesome)
Brest cancer walk is tomorrow. Not too many of my friends are going and I didn't raise anything this year. Not sure why, just busy and with no job to collect at, it sees a bit daunting.
Anyway. Bed time. Walk starts at 8, and I'll be up all night fighting the hot flashes for some restful moments.
Xo ladies!
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Good day today...
Me and my DH (obviously), and I also et up with my DH's.... BIL's family who leave near us, not in CT where they are. I've know Bob (her BIL) since I was 16... So he's really my family too. That made up the fact that only ONE friend came to walk with me. I'm rather disappointed by that. Seems I need to be bald for people to make the time. *sigh* expectations are a dangerous thing ladies... So I'm just going to let it go. Surgery in 2 days...
Xo
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juneaubugg - love the pictures! I will be in your pockets Tuesday and praying all goes well for you!!!!! I agree with not having expectations since they seem to always seem to take me down also. I was thinking of you this past week as we were in OBX again. The weather was great and we were even swimming in the ocean. Now back to reality. It is so great to get away from everything for a while.
I have been very busy, but think of all you ladies everyday! You are all my sisters!!!!
HUGS to everyone!
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Great day at the Jones Beach making Strides Walk today! Was cold and windy - but awesome. My boys were rock stars. My 6 year old walked the entire 5 miles and my 4 year old walked the first half of it before getting in the wagon. Some pics below. Full team pic first - I'm the one in the front on the right holding the little boy in the green/black jacket - that is my 4 year old. The kid in the grey/black jacket on bottom left is my 6 year old. And the handsome smiling devil all the way on the right with the tan coat on is my wonderful hubby. He had team hats made this year - the said Team Mighty Miller on the front and on the back they said "Built R.A.M. Tough." RAM are my initials. And the sign he had made for us last year. Love him so... Next pic is me with one of my dearest friends who is about 5+ months preggers and did the whole walk with us. And last pic is at the turn around point where folks post signs. I honored all my BCO sisters. Love you all!
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Ramols- You look great and your family is gorgeous! Congrats on your walk today, you and Juneau were very busy. So proud of you both.
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Ramols, great pictures ... Your boys were rock stars ... That is a long walk. I love the hats ... And RAM tough.
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Way to go ladies.Since I have been off Tamox and on Anastrazole my hot flushes have gone my achy hips have gone. Guess there has to be perks of being past menopause.
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I switched to the NAME brand Tamoxifen to see what that does for me ..... My MO doesn't think you get joint pain from Tamoxifen but I think my joint pain is worse with the name brand. Also I have some skin irritation (rash) on my hand that I didn't have before. I have 2 years left come May so I guess I can hang on .... (I am hoping).
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Amy - sorry to read of your loss
Juneau and Ramols - so good to see your pics from you your walk, you both look great!
Juneau - in your pockets tomorrow
Tazzy - great news re: anostrozole - how is that ankle healing for you?
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hi ladies!! I'm home and about to crawl into bed. Didn't remember it being this painful/uncomfortable. The human memory is amazing; how it lessens the bad parts and makes it seem not do bad. Although this time I had a lot of pocket work to re situate the implant to change to breasts profile...AND I didn't have all the work to replace the TE and reconstruct the other side along with it. BUT it's iver and I'm hoping for a good result. She's pretty amazing (my PS) so I am not worried.
Ok to bed with me.
Xo ladies.
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sleep well Juneaubugg and let us know how you are doing when you can.
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Ankle is healing amazingly. I am 3-4 weeks ahead of where the surgeon/physio said I would be so I am happy. Gonna try a graduated return to work next week. Just 2 days. We'll see how that goes. I have been doing my exercises every day and a few extra.... I think that has been the key.
Hugs Juneau.
Hugs and love all xxxxxxxxxxxxxxxxxxxxx
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Hi, I will be taking Tamox for 10 yrs. I was told that it's been shown to be better for you if yu take it fo rlonger so it's teh new protocol where I am.
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Juneau - hope you are recovering well
Tazzy - wonderful news re: ankle, you are doing amazing! good luck with the two day work week next week - wonderful progress!
I am having an MRI on mine tomorrow morning so hope to get it going in the right direction too
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Hello Ladies! Where do I start!?
- to those that are healing - rest up and you'll be up and about in no time.
- re Tamox - I asked my MO and she said 5 years but will ask again to make sure. I hope not because the aches I get from it are awful. I started seeing an acupuncturist and that seems to be helping. At least it eases the aches up so I can get on the treadmill (not that it's doing any good but I keep on keeping on)
- re the walks - yay us! If not for nothing it's nice to get out and celebrate our survival with others. Juneau I know how you felt - my oldest friend sent me a text after the fact apologizing because she forgot. Really?! In her defense she was wrapping up loose ends after doing a Wounded Warriors bike run in memory of her dad.
My end has been crazy! 10 days ago my FIL had a massive heart attack and had to get sent from Princeton to Univ of Penn to have a stint put in. They couldn't take care of him in Princeton because of all his other health issues. He had a rough time in CCU. He had what is referred to as Sundowning or ICU psychosis. But happy to say he is home and doing better. Long road ahead but just goes to show we need to take care of ourselves. The kicker is he had a stress test 3 days before and was waiting for results!
Ok - back to work. Getting a jump on tax time. Why I torture myself I don't know!
XOXO
Karen
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