2013 Survivors!!!
Comments
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Liefie - sending hugs ((())). Terrible news about your niece, I agree it is very concerning to hear of so many and so young. I hope it has been caught at an early stage. And sorry to hear about the missed appointment, it would have been nice if they had called or emailed a day or two ahead as a reminder. Hope you do find your silver lining today.
Believe - my bracelet was in the mail today, it is beautiful as are you for sending it. I will wear it with pride. It will help remind me of all the angels on the Survivor 2013 thread that keep me strong.0 -
Liefie It really sucks that your niece also has BC. Everytime I turn around a cousin or someone in my family is getting it-it does seem rampant. I was shocked when I tested negative for BRAC since my mom had it plus numerous other people on both sides of my family. We need more testing for other genetic abnormalities so we can try to stop this crap. Better yet I hope that the vaccine we keep hearing about becomes available soon so that relatives of those with BC won't have to worry .
Believe I have gotten SO many complements on my bracelet- I absolutely love it . Like websister said " it is beautiful, as are you for sending it"
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Oh Liefie, that is just so rough. Your niece will have you has suport since you are an "expert." I know that she won't know that now but she will know it down the BC road.
As for the appt., I just called to reconfirm my gynae appt. for this afternoon and had it wrong - not a whole day but I would have missed it as I wrote it down wrong. I had a sneaking suspicion I wrote it down wrong but not always the case with my chemo brain.
I have written down "Dancing in Limbo," as no way I would remember it without a note.
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I hope this copy/paste works. I know that those of you working on the weight loss aren't having as much fun as those on this YouTube video but it is 45 seconds of fun! A friend who is NED two years sends me fun stuff often.
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Mcook : love that ‘she would prefer to have a return to her perky B breasts’ – ha ha !!
liefie: so sorry to hear about your niece. Yes, why are so many younger women getting it - so sad. (((hugs))))
Wanda: good to see you here again – happy travels
Believe: I told all my family on August 3 after my surgery that if they wanted a nickname for me it was NED. And people are commenting on how lovely my bracelet is…. I direct them to your website so hope for you it generates some sales. I agree "it is as beautiful as you are for sending it'.
Butterfly: hugs
Marian: thanks for sharing…. Now if I had that incentive I’d have the most toned legs in BC.
OK – back to work for me. Big honking hugs to those struggling. And big honking hugs to those not. Cant add my group hug smiley as they are blocked by work – big brother rules here
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Liefie - Sorry about your niece, 36 is so young!
2friedeggs - I am BRCA negative as well, only 44, and have strong family history of breast cancer (3 aunts on mom's side and maternal grandmother). I did the genetic counseling and she told me there was a link between younger women getting Lobular breast cancer and their fathers having pancreatic cancer, my father passed away from pancreatic cancer in 2007. She said that they were looking into different genetic mutations, hopefully they find more links soon to save more women.
Need to quit feeling sorry for myself today, but can't seem to shake the mood, tried a long bath and that didn't help either. Thanks for the hug Tazzy!
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Ditto everybody.... Ditto from me regarding hugs to everybody....still trying to get my head around my friend being dx with mets to the lungs!!!!!
Liefie....so sorry to hear about your niece.....as Marian said she will have a wonderful, supportive aunt behind her...not to mention "expert"0 -
Thank you for all of your wonderful comments about your Angel Bracelets ... And me too! I'm just a mirror of all of you!
Finally at the airport for a short getaway to the land of warm, Laughlin, NV. 73 degrees there today!
Sorry to report that my treadmill and scale didn't fit in my suitcase, ah. I did weight before leaving and I'm happy to report that I am back to 160. Got rid of those lbs that found me last week.
With my phone, I can keep up with your posts! It's like you are all with me! Not sure how much posting I will be able to do but I will try.
Yes, NED is a perfect nickname. I will have to work it into a jewelry design. We will be the only ones who know what it means. Hopefully, again, no fair that the youngsters have to deal with this!
Butterfly- maybe this short saying with help: Worry is a waste of the imagination. It works for me. Hope our bad days are just memories!0 -
Liefie- sorry about your niece, but as everyone has said she has an expert in helping her deal with this. I just wish we were able to eradicate this damn disease.
Tazzy- NED yes a perfect name!!!!
Believe- so jealous of your getaway! I so need one.
Mcook- perky B's hmmm??? I wanted a C cup and I got D's again, that's ok because they still look small to me.
To all the new members welcome! You will love our group.
This week has been crazy! We go from one extreme to another, either slow or everyone is coming in 10 at a time. So glad that tomorrow is Friday, my son has another basketball game tomorrow night and I get to wear my new shirt with his name and number on it! I always show my support and my voice during the game. my son says he can pick my voice out of everyone elses. I think he's telling me I have a loud mouth. Haha. Tomorrow I also go and get my labs drawn to see if my liver enzymes are still elevated or not. They better not be. Hope everyone is having a good day.0 -
Ditto the wonderful bracelet! Mine is the same as Tazzy's - well, the second photo, not the psychedelic one......very beautiful!
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I can't remember if I ever posted mine from Believe. I wear it everyday and get wonderful compliments on it as well and refer them to the website too. I even posted it on my facebook so hopefully it will get some people on to the site.
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Believe,
I love Laughlin, that beautiful Colorado River running through there is wonderful. If I am remembering correctly there is an old ghost town near there where Carol Lombard and Clark Gable spent their honeymoon and they have the most wonderful donkeys that come up and take carrots from you. They are so pushy that one bit me on the butt. I had put the empty wrap for the carrots in my back pocket and one actually bit me trying to get it, thankfully it didn't break the skin. We had a wonderful time visiting there. I think the name might have been Oatman??
Have fun, Sheryl
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Love these bracelets...would someone please remind me of the website? Thanks!
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Thanks to everybody for your compassion. I really appreciate it. Tomorrow will be a better day. There is something to smile about though, and that is that I am getting my second haircut on Saturday. A few months ago I was totally bald . . . a lot to be thankful for.
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outdamn- Angelbraceletsforyou.com She has some really pretty ones on the site. I'm going to order some for christmas presents this year.
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I was in the ER Monday night with blood-streaked sputum, loss of appetite, short of breath, fatigue, etc. After many blood tests and a CT scan, the final diagnosis was severe bronchospasm (the cough caused broken blood vessels; hence the blood-streaked sputum) with acute bronchitis. No antibiotics or fever, so called the onc today and was given the okay for my final round of chemo tomorrow if blood work comes out okay. Cross your fingers, toes, and anything else you think will help, please!!!! Cancelled my business trip to Omaha and SLC which was supposed to be Tuesday - Thursday and have just stayed in bed to ensure there are no hiccups.
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Butterfly: its OK to have those days. Go with it and tomorrow is another day hopefully brighter for you. Failing that wine helps
Chrisrenee: wear big pockets for your lab draws… jumping in. and that is a beautiful bracelet too.
301724: great taste you have!
Outdam: here’s the website http://www.notallangelsareinheaven.com/ so many to chose from.
On that note and all the bad news with friends/family you know being dx’d.
FUCK YOU CANCER !!
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Maryah930, sending positive vibes to you so that you can get well for the last chemo. Just rest up so you can cross that finish line tomorrow! Hope you will feel better soon.
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Maryah: crossing everything for you. Will be in your pocket. Hugs xxxxxxxxxx
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Good Evening Ladies-
Shit and fuck! It seems like when we are trying to live our lives we get reminders of BC by another dam appointment, feeling like crap, someone we know being diagnosed with cancer etc! So with that said I know we are all trying to get back to our weight before cancer and get physically fit but dam it ladies let's stop beating ourselves up! We are healing mentally and physically we just had our lives ripped in 1000 directions this past year and we were strong and fought and continue to fight! So screw a few pounds we will get there! Be proud of yourself and you know what weight, no hair no eye brows we are still tough, compassionate SOB and we also know how precious life is and we also can relate now and support each other or anyone else that is having challenges in their lives! Yes fuck it we had surgeries and are on Meds that will change our life's but don't beat yourself you! Losing your hair, eye brows or gaining weight is because we were saving our lives! Don't forget this when you look in that mirror! You did this and you were so dam strong and no one can understand everyone we have been through so I say screw them if anyone wants to make a comment about our weight or that we should be over all this now! We are still healing and have to be patient with ourselves:)
Sorry but I have seen each of you go through hell and back this year with me and I can tell you first hand there is no one that is deserving of loving their self in whole then each of you!
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maryah- Good luck with your last chemo tomorrow. We will all be with you and praying for you!
Tazzy- Jump right on in. Hopefully the new girls won't take up too much room.
Butterfly- we are entitled to have our days. If today isn't a good day, hopefully tomorrow will be. We are all here for each other, we have to be.
This site has been a wonderful place for support and love. So glad I get to call you all my sisters!
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Maryah - With you tomorrow in your pockets with fingers, toes crossed for your last chemo!
Chrisrenee - Also with you tomorrow for your lab draws. Here's hoping those dang liver enzymes are down.
Don't have any real sisters. One brother that I talk to only occasionally. Love all my sisters here!
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luv- sorry cheri,robin and I missed you on sunday at our meet up! Hope you are feeling better. Maybe next time!
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Maryah and Chrisrenee - add me to those pockets, Maryah - I'll cross anything that crosses with the exception of my eyes, don't want to scare people or hurt myself
Goodnight my sisters0 -
After reading all your posts and catching up all I can think to say is FUCK YOU CANCER! FUCK YOU for taking our hair and then just when we can see the finish line, taking our brows and lashes. FUCK YOU for afflicting those we love and showing no mercy. FUCK YOU for making us worry about our weight whilst FIGHTING FOR OUR FUCKING LIVES.
Hugs to all.0 -
Morning lovely ladies. Thanks again for all your support! Feeling a bit more up I guess (or trying to at least). Had another survivor dropped in my path - at my son's kindergarten registration last night of all places. It was a long wait so we got to sit and chat for a good 45 minutes. She is a 9-year BC survivor who had a miracle baby girl post-chemo 5 years ago. Seems she has a large network of BC survivors here and gave me her number telling me to call to start joining them for dinner and chats.
Lifie - so sorry about your neice. Sending big hugs!
Maryah - rest up and feel better. Good luck getting that last chemo date to stick!
I know I've missed so many others - you all chat more than I can keep up with these days. So big hugs to those who need it - happier days will bless you soon. In the pockets of those who need support to make it through tests and waits. Love you all!
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OK so no time really, but HAVE to tell you. I went to Pilates here at work yesterday during lunch for the first time. I was a little late so couldn't talk to the instructor until after the class. Turns out she's a survivor. 2 years now. She had a UMX (left). We talked for about 30 mintues. She gave me a big hug, and wants to possibly join us on our retreat this fall. Like Rmols said - we are everywhere. What strikes me is so many women don't seem to really KNOW about their disease. She didn't know what an oncotype was or why she didn't need chemo. Or her pathology for that matter.
The other woman at work, who came up to me when I first started and asked how I went without a wig (that was her way to start teh conversation as she is still in a wig) - I asked her today what her pathology was? She went to have her port cleaned out last week and brought me back a hat (so nice) that they offer patients at the center where she goes. So I asked if she's getting herceptin or why she was there. She said to get her port cleared out since it's between treatments. I asked why she was going to need additional treatments, what was her pathology. She said she didn't know, just that it was a particularly aggressive cancer. I asked if she was triple negative. She said she didn't know and figures it doesn't much matter. WHAT?! To so blindly trust the drs and ask know questions; have no idea. Maybe she's stage IV... I suppose then it wouldn't matter so much would it - you just fight with anything they offer you. so I didn't ask any more questions. I was really just trying to open a dialogue since she approached me originally, but I suppose she's not interested in talking about it.
I just find it so hard to believe, even if you were at stage IV that you wouldn't remember the pathology you were dx with. crazy to me.
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Great post mcook... thanks for reminding us. Was needed.
Juneau: for some people it is easier to deal with if they dont know. My friend at work, a 3 year survivor had lumpectomy and rads but didn't know her stage or grade. She said, what difference, I had cancer and wanted it out. In all honesty at the beginning, although I knew my grade and stage, it didn't mean anything to me.... it was only half way thorugh chemo that my brain emerged from the fog and wanted to know everything about this fucking disease in me. So I can understand those women you spoke to. For some people, ignorance is bliss.
Yay... Friday!
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Juneau,
I am with you. I can't imagine not knowing everything I can about this treatment, disease etc. Even if I didn't have the cancer I would want to know since I really like to learn about anything that pops into my life. I am a huge Google fan, as I will look up anything.
I truly hope I am comfortable with my head being bald because I have always hated hats, scarfs etc. and no way will I wear a wig. I am pretty sure I will not have a good looking head because it is so big, like to think it was brains but lately believe it is just air. LOL. Plus I have an scalp issue like a few pimples (I know TMI but don't have them anywhere else) that might be follicles getting irritated and since I am a nervous picker (I hate it!!!) there will be scars for sure.
Anyway, everyone have a Fabulous Friday.
Sheryl
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http://www.youtube.com/watch_popup?v=yEH4Yum4nN4