2013 Survivors!!!

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Comments

  • 301724
    301724 Member Posts: 185
    edited January 2013

    Liefie - in your pockets tomorrow! It's getting crowded so I hope you have the extra large ones:-)

  • SherylB
    SherylB Member Posts: 147
    edited January 2013

    liefie,

    One more for your pockets with prayers and hugs. I will need my pockets filled Thursday, got anxiety already because I actually feel good right now.

    Sheryl

  • 301724
    301724 Member Posts: 185
    edited January 2013

    Gotcha, Sheryl! Count on me to be with you!

  • ramols
    ramols Member Posts: 310
    edited January 2013

    please make room for me in your pockets liefie!

    Mcook - good luck in the pre-surgery countdown!

    websister - sorry to her the first RO was not so good. Hopefully take 2 will work out better. Would be nice to have you join me virtually in rads. Thinking I'll get started next week. Did manage to find lots of happy this weekend with the boys and some family friends. Still gave my hubby a hard time as he gets the brunt of my whining these days - but overall, a good weekend with lots of happy. 

    Wishing you all a restful evening and a day filled with happy tomorrow!

  • liefie
    liefie Member Posts: 761
    edited January 2013

    The wonderful support from all of you girls are truly amazing and humbling to me. Thank you sincerely. We are like one big family here, and it feels really good to be part of it.

    Ramols, so good to hear that you had lots of happy this weekend, and that rads will start soon for you.

    Websister, hope you can get the rads organized so that you can get started sooner rather than later. It gets to a stage where you just want this whole ordeal to be over so that you can get on with life.

    SherylB, are you getting a mammogram on Thursday? You probably mentioned what it is earlier, and I missed it. I feel much better about the mammogram since I read last week about a new study on 1500 early stage patients that concluded in 2011. It was found that, unless you have the BRCA gene or a family history, the chance of getting cancer in the healthy breast is 1% or less per year. That put things into perspective for me, but I still don't like the idea of that cold machine squishing my poor breast as flat as a pancake. Unpleasant to say the least.

  • Scottiee1
    Scottiee1 Member Posts: 1,790
    edited January 2013

    Liefie.....will also be with you today....I hope everything goes well.



    Ramols....it was good to hear that you had a better weekend....lots more coming.



    Websister....good luck getting everything going, waiting is the worst.



    Mcook ....same goes for you....the waiting.....grrrr



    Believe....welcome back to reality, as you say....hope you had a wonderful time.



    Have to jump in the shower and get ready for work. The snow is coming down like crazy

    so a slow drive for me. Have a great day everybody.

  • KarenZ0305
    KarenZ0305 Member Posts: 345
    edited January 2013

    Woo hoo! Pocket Road Trip! Ladies we have a busy traveling week ahead of us! I'll bring the drinks! Key lime pie martini s all around!

  • SherylB
    SherylB Member Posts: 147
    edited January 2013

    liefie,

    Thursday 1/31 is my second chemo and starting to get anxious already. Had some pretty tough moments/hours/days with the first one. Good though it won't start until Saturday if like last time.

    Sheryl

  • aruba
    aruba Member Posts: 276
    edited January 2013

    Hi gang!

    Back from a visit to Fla with my dad.  So hard to be so far away from him...he has an arthitic knee so getting around is hard.  He uses a walker but still it's bone on bone and in his mid 80's, he is not having any surgery.  I'll go down again for a few weeks in March as my brother will go down in Feb for a few days...and so it goes. 

      Room for me in the pocket for Liefie, McCook, SherylB and others this week?  I am sure I did not lose any weight in Fla..so may need you to squish over a bit?  I am on the doctor roll this week and feel the tension too.  Today is eye and shoulder Dr.  My shoulder had been bothering me for months but with everything else, just thought it would heal.  It did not, think it was my sleeping position with all the treatments and surgery.  Anyway, made appt about a month ago and now seems to be getting better..go figure.  Then tomorrow is my MO appt just to see how I am doing on Arimidex etc.  Then Thurs is the first BS appt and first mammo since this all started.  Will be ready for that to be over.....

    I have caught up and sending you all hugs and good thoughts. 

                                        

  • butterfly14
    butterfly14 Member Posts: 84
    edited January 2013

    lifie, McCook & SherylB - in your pockets for all treatments this week!

  • schatzi14
    schatzi14 Member Posts: 906
    edited January 2013

    Good luck to everyone all week!Laughing

  • Tazzy
    Tazzy Member Posts: 1,442
    edited January 2013

    Quick check in before getting ready for work.  

    Karen:  key lime pie martini's sound yummy - I'm in.  Pocket Road Trip.. love it.

    Ramols: Happy you found your happy this weekend.

    Sorry to those I've missed.  Will try and check in from work Wink

    Hugs to all xxx

  • 2FriedEggs
    2FriedEggs Member Posts: 324
    edited January 2013

    I will be in everyones pockets this week as well! Karen better bring alot of martinis and keylime pie because us BC Survivor pocket pals have quite a road trip this week it looks like! Scottie, one question though; since keylimes are a green fruit can that keylime pie be substituted for a green smoothie? lol

    There are a couple threads on 3D tattoos that might be of some help for those debating 3d or surgery or for those who had the surgery but whose nipples flattened or who need their new areolas colored. There are lots of good links that have pics in them as well  http://community.breastcancer.org/topic_post?forum_id=44&id=753225&page=1      http://community.breastcancer.org/forum/44/topic/753225?page=8#post_2996279    (this link has some good pics-  http://www.permanentmkup.com/areola_restoration.php) (This site has a list of 3D artists in different areas some of whom have pics http://www.pinkinkproject.com/Links.html)

    Butterfly if you decide on the 3D and don't want to travel out of FLorida there are 2 women that have recieved great recommendations on the BC forum from people who used them; Both are on the forums so you can write to them with questions- Judy Newdom who is on the forum as Facecrafter , website www. Facecrafter.com is in Sarasota. Whippetmom said she had some tattooing done by her and highly recommends her. Another is Renee Maschinot who is in Ft Lauderdale and is on  the forum as renee-tattoos. Her website is http://www.reneemaschinot.com/re-areola-tattoo.html 

    Don't forget there are the temporary tattoos I posted about the other day that you can use or experiment with until you get something permanent.  There is a post on the BC forum about them too http://community.breastcancer.org/forum/44/topic/763735

    Hope everyone is doing ok today.

  • luvmygoats
    luvmygoats Member Posts: 2,484
    edited January 2013

    Liefie - jumping in a little late.  WHEEEEE.  Move over ladies, here I come.

  • mcook301
    mcook301 Member Posts: 314
    edited January 2013
  • mcook301
    mcook301 Member Posts: 314
    edited January 2013

    Believe- Thank You so much! I received my angel bracelet! It is so pretty and I am so glad I received it before my surgery, just another sign everything is going to be fine and someone is watching over me so I can stop worrying:)



    I will try and post a photo soon! Awesome!

  • 2FriedEggs
    2FriedEggs Member Posts: 324
    edited January 2013

    It is beautiful McCook. When I got up one morning not long after my diagnosis it was on and my husband was sitting there all teary eyed. He said have you ever listened to this? I siad I've heard it but I guess I've never really listened to it. So he replayed it then there were two of us sitting there in tears.  How are you doing today? Counting down for the great exchange? 

  • mcook301
    mcook301 Member Posts: 314
    edited January 2013

    Yes counting down and trying to keep busy:) worst part hopefully about surgery is recovery and having to sit still while doing that:)

  • mcook301
    mcook301 Member Posts: 314
    edited January 2013

    Also thanks for posting link for tats that is the first I have ever seen of them!

  • stride
    stride Member Posts: 151
    edited January 2013

    I'm a little worried about being a nattering nabob of negativity, but I am struggling a bit. I recovered from my mastectomy pretty quickly and gave myself a bit of a break before starting rads. I'm nine treatments in, and I'm getting a bit demoralized. I have some flexibility with work, and today I came home and immediately went to bed after treatment. I no longer have any desire to do anything. Everything feels like a struggle. I should be working now, but I just don't care anymore. It's not the rads--it's having real life that I'm finding difficult. I don't want to bring anyone else down, but I am wondering if anyone else feels like this. There's a part of me that does not want to invest in my career anymore, and I really hope this is a temporary feeling.

  • mcook301
    mcook301 Member Posts: 314
    edited January 2013

    stride- honey you are not alone in your thoughts or feeling! I have had periods where I feel the same way! It is ok! You can't do it all and need to take time to mentally heal as well as physical from what I believe. Rads I heard knock the energy out of you too:( Going to work when your head is screaming I have BC and treatments etc is freaking difficult! Hang in there! My therapist who I was working with was awesome to help me through some really shity days! It was nice to talk to someone who gets it and she did. She suggested I journel and make a list of goals that I wanted in my future that helps me a little to get it out. Still sucks and sorry I hope you feel better soon! Hugs!

  • butterfly14
    butterfly14 Member Posts: 84
    edited January 2013

    stride   - I have been going through phases like that too. Really hard some days to get my self to move and enjoy what I did.

  • Lifeonitsside
    Lifeonitsside Member Posts: 14
    edited January 2013

    Stride - I just finished all my treatment last week - ended rads, now just follow up and estrogen-blockers - but I'm suddenly in a deep funk. The therapist at one of my support groups said expect that. We've been through a war - or are going through one - and it's okay to feel that depression and that anxiety. Even anger. I have a lot of anger. But I'm just trying to ride it out. Feel it, embrace it, acknowledge it and eventually let it go. Find things that do make you happy. I took a tango class last night and left exhilarated. Woke up in the blues - the man I am still in love with but broke up with in Oct is having his birthday this week and it's bringing up all kinds of things, combined with the post-treatment blues. But I'm just letting myself feel that without judgement and just keeping one foot moving in front of the other. The good days will come. They have to.

  • luvmygoats
    luvmygoats Member Posts: 2,484
    edited January 2013

    Thanks Mccook. I find it occasionally when I listen to country. Beautiful and it has made me cry more than once.

    My DH has turned me on to easy listening. Now I grew up with Beatles, Three Dog Night, Chicago but was always more of a Barbara Streisand, Andy Williams, Robert Goulet (corny I know) girl.  DH listens to easy listening to relax b4 going to work. Try Kevin Kern for relaxing. Piano music. I like especially "From this day Forward". If I can't find some at Half Price Books I think I (DREAD the thought) may have to pay retail.

    Mccook - In your pocket for exchange on Friday. What an exciting (or beginning) to your week.

    SherylB - In your pocket too. We are great travelers, aren't we??

    Karen - I had to look up key lime pie martini. Not a great martini drinker but they sound yummy.

    Ramols - Glad you found your happy (happys plural) this weekend.

    Tazzy - How's work coming? What did you do for fun this weekend?

    Aruba - Glad you had a good trip to see you dad. In your pocket for multiple visits.

    Websister - When do you visit the 2nd RO?  Yes, with a return to work April 1st even with the 16 treatment Canadian protocol not so much time.

    Stride - (((BIG HUGS))) to you. There is a light there and no it's not a train in the tunnel. Some days I still feel shitty and want to sit and cry. But overall it is better. Your comment about recovering from MX so quickly is telling. And with chemo b4. Your body needs some downtime. Rads are wearing and your just about 2 weeks in and that's just about when fatigue begins or so that what literature and I've read. So not so surprising. The weather in most parts of the country would send me to bed PRONTO. Are you keeping up with your protein intake? I lived on Greek yogurt with nuts, raisins. I read another comment of yours (sorry, not stalking, looking for your location) about getting multiple rads angles. Gosh, sweetie, there is a big answer. Again, ((HUGS)) to your. Wish I could do Tazzy's hug GIF. 2Fried and I are about the same time. Look at the fun she's having. IT WILL GET BETTER. I admire so much what everyone has gone thru and are going thru. These boards are my sanity.

  • Believe777
    Believe777 Member Posts: 540
    edited January 2013

    Yes, we have become great travelers! In your pockets, probably counts as lifting weights, wouldn't you think?

    Lifeonitsside: it gets better! I remember the let down after rads and the black nipple. They are gone now and my breast is almost soft again. At my last appt I asked my RO if I was Cancer free now? She said technically, after surgery we are Cancer free. Wish I would have asked that question sooner! I promise it will get better. I'm also on estrogen blockers -Arimidex. Hate it but with it, they say the recurrence rate is down by 90%. Sounds like good odds to me. Only 4.5 more years. An aching wrist is my only side effect. I may have e rays to see if I broke a small bone but that's probably wishful thinking.

    Welcome home Aruba!

    I was back on the Beast today- didn't miss it at all but I love to pass a mirror and see a smaller behind in the mirror!

    Hugs to all! Make it a great day - as long as we get to choose!

  • allurbaddayswillend
    allurbaddayswillend Member Posts: 40
    edited January 2013

    Stride - ((Hugs)) don't hesitate to call your GP or MO or whoever and bug the hell out of them if you want an anti-depressant or anti-anxiety or anything like that.  If you wish and can, get to a therapist or a psychologist. I got a referral to a psych and really got a lot of good processing done with her. Our radiation clinic has a social worker that we have to see and is a BC survivor so she was great to talk with also.  Even if it's just to kvetch, sometimes one on one like that is a different animal than a support group or even posting here. or post here constantly with all thoughts, I know no one would discourage that. These feeling may be temporary but they are there, no denying it, right? what a frikkin' rollercoaster ride we all get... I don't wish it on anyone.

  • 2FriedEggs
    2FriedEggs Member Posts: 324
    edited January 2013

    McCook those 3 Ds are incredible and the rub on tats that last a couple weeks are interesting.

    Stride like everyone else mentioned you are not alone. Hang in there-my moods started to fluctuate alot after everything was done (all but the fine tuning)- Strange but to me it was kind of like post-partum depression. Although for me that has all pretty much passed, motivation is another story. If I get motivated to do more than one thing a day (other than dally on the computer) that's an accomplishment. lol

    Aruba-welcome back. I know how hard it must have been to leave your Dad. Hopefully you can get back for another visit soon.

    Believe-welcome back! That's good that the Ro gave you that good news. I am also on Arimedex but was a little taken back when I read a study about how if you are a post-menopausal women on ALs and you have a high BMI/overweight it doesn't have near the effectiveness (50%) as it does in women who are not overweight. Dang I am going to have to loose now to get the benefit of the arimedex. It said with Tamoxifen the overweight stats were equal to those of a healthy weight. You're lucky you are slim and trim and just using that beast to stay fit!

  • luvmygoats
    luvmygoats Member Posts: 2,484
    edited January 2013

    2 Fried - I read those stats too. Gosh darn it I need to get my fat a** up outa this chair and get moving. Off to unload laundry at least.

  • Blessings2011
    Blessings2011 Member Posts: 1,801
    edited January 2013

    No time to respond to everyone individually, but I'm sure we'll all catch up as we squeeze into various pockets this week!!!

    Sending out prayers and love and hugs to all, and the strength and patience to deal with whatever comes our way this week.

    Wishing all of us good healing!!!!

    xoxo

  • Believe777
    Believe777 Member Posts: 540
    edited January 2013

    2Fried- I missed that about Arimidex. With my total weight loss I'm no longer obese, just over weight (really just too short). I'd love to wave good bye to 15 more lbs.

    Stride- I worked through rads too and had the same lack of interest in my career and was totally exhausted. . Fortunately I was able to retire. I could have actually lasted longer in hind sight, radiation totally zaps you but you will eventually get your get up and go back. It just takes time. Hang in there, if you can.

    MCook-glad your Angels arrived and you like them. You will never be alone! Plus, we are all in your pockets!

    Anyone who is tired... It must be from all of us in your pockets . Let us know when to leave you alone.