2013 Survivors!!!
Comments
-
marian- make room for me too! I'm all for a pocket trip, however, a hospitall is not my favorite place but i'm there.
Juneau and Believe- dang ladies i'm going to be traveling all over tomorrow. Good luck and keep us posted on your consults tomorrow.
0 -
juneau - WTF....??? An eyelid lift consultation ???? you kidding right? You are beautiful. Why ??
Scottie: hope you feel better soon - that sucks, but great a student said that to you.
Oh! In the flogging corner with chrisrenee too... had a glass of wine with dinner.
Chrisrenee: love your poster - that has to be printed and put on the fridge.
Sheryl: hugs to you as well for a crappy relationship.
One thing - my DH is loving all the attention I am giving him tonight - given me a whole new appreciation for him again. Not that I lost it, but I feel very fortunate.
Love you all. And really hope upon hopes we can all get together. Need to make those group hugs real.
Nite ladies, sleep well.
0 -
Thanks everyone. I would be in bed but I have to use a package of special disinfectant wipes and only after my bath did I read that I have wait an hour. Some special thing at my hospital and for vascular and plastic surgery. I have yet to pack but do have a list!
0 -
Dearest warrior,
We are in the same boat. My dumb ass husband (MAN CHILD REALLY) could not deal with the fact that I got very sick about a year ago when peri-menopause started and I lost my job. He was never around, claimed HE was doing "everything" and was not much of an asset. He said he was moving out (of MY HOUSE) and I told him not to let the door hit him in the ass. Then I went on Lo Estrin to control the horrible side effects of the peri-menopause and surprise - 5 months later an undiagnosed in situ cancer became IDC. I sold MY house in 3 days, took all the $$ and ran to Texas to live with my wonderful Sister and family and have all of the love and support in the world. While I am not yet divorced, I do not hear a word from Mr. Wonderful regarding my health or well-being. It does really hurt to be cast aside like this but we are strong women and do not need the anchors that some men become. I am so sorry for your losses and disappointments but you will NEVER be alone. Please let me know how I can assist you in any way while I am still licking my wounds. Stay safe and be well with peace, love and blessings!
Carolyn
0 -
Dear MarianElizabeth: best of luck for your surgery tomorrow -- I'll be in your pocket too, with a loaf of fresh- baked whole wheat bread just out of the oven to share with all.
Dear Mcook: I'm so sorry for what you are going through. You'll get through it, but in the meantime be gentle with yourself. Some (many) men just can't handle that level of stress.
Greetings to all, late night here after a tough work day followed by a high school potluck for out French exchange student group. I was supposed to cook, but work blew up, which is why God invented takeout! Whole Foods hot food bar saved the day! I started to make bread for the potluck but spaced out the fact that the particular recipe required a third rise, so I bought bread for the supper and that's why I have bread -- four loaves -- to share in MarianElizabeth's pockets tomorrow. I feel kinda stupid, but the house smells fantastic! Wish I could share it with you all.
Embok0 -
Hi Everyone.
It has been such a long time since I've been on this site and I can't believe how much I have missed. I can't possibly respond to everyone, but please know that you are all in my thoughts everyday.
I kinda feel like since my really active treatment is over, that I'm in limbo trying to deal with being a survivor now and really don't know how. Luckily, the hospital where I had my surgeries last year has several programs dealing with healing after cancer. Well, I started a 7 week class yesterday dealing with Cancer Survivorship and most in our group are recovering from breast cancer. I am very excited about it. The class will give us tools for physical health, emotional health, social health, mental health and sexual health. I would be more than happy to share the information I receive with all of you in a post each week if you're interested (or maybe in a blog post). Since I am sure it is copyright protected it will be summarized information, etc..... in my own words. Please let me know. It was amazing that some of what our instructor discussed in the class overview yesterday were things that most of us in the class are experiencing in each of the areas I mentioned. Some us realized that in areas of survivorship where we thought we were dealing with it extremely well, all we have really done is suppressed ourselves into thinking we were dealing with it and actually aren't. That was an eye opener. And when dealing with something, a survivor needs to take little steps so as not to get so overwhelmed that you don't accomplish what you set out to do. Anyway, please let me know if anyone is interested.
Wishing all of you a good week!
Take care.
0 -
Good Morning!
- we missed you! (((hugs))) And yes please post!
Carolyn- man you are one tough lady
thank you for sharing0 -
Teeball; what she said... Yes please!
Cmbernardi; what she said...
Does anyone know where 2fried is, or Ramols?
Tazzy; HATE my sagging lids. Can't even wear eyeshadow anymore I hate them so much!
Ok off to work.0 -
i'm here juneau! just too tired to post much of anything - can't keep up with you ladies right now. rads exhaustion has caught up with me big time, my inbox at work has become unmanagable, my kids have been keeping me busy, and i have a cold on top of it. doing myself a favor and took the day off work tomorrow, so all i'll have to do is run my big guy to and from kindergarten orientation and a birthday party, and take myself to and from rads. inbetween all that - i have a date with my bed and the dvr. maybe i'll muster up the energy to go treat myself to a pedi. i'm jumping into pockets where needed and sending hugs where needed. have a good one ladies.
0 -
Hang in there Ramols...you're almost DONE!!!
0 -
teeballmom,
I think it would be great if you could paraphrase anything you take away from the class and share with us. I feel sure that whatever you share would touch one of us in some way.
Thanks, Sheryl
0 -
teeball, another vote: I'd love to see your synposes of your classes.
carolyn and mcook, (((hugs))) Some people are simply incapable of truly sharing in struggles and growing through them. Our culture doesn't much help these people ever grow up either, be they man-child or woman-child. You ladies are awesome and growing and changing and are emerging as such amazing survivors. Shedding the old relationships may be painful or uncomfortable and irritating but, as I read your stories, it sounds like emerging from a chrysalis to me too. I wish you didn't have to go through this added shit. I am sending positive vibes that you will fly free from it in glorious new wings!0 -
@ allurbaddayswillend and mcook
Thanks for you kind words. Mcook, don't let me fool you, I have my crying jags but overall I try to stay tough. Being 100% Italian and (dreaming only) of vendettas against Mr. Wonderful usually helps! I cannot even speak of this whole relationship mess with my Sicilian Mom or steam comes out of her ears and I think she will have a stroke! BTW, my soon to be EX is from MN (Bloomington) but obviously he DID NOT get the MN "nice". I do LOVE lefsa bread though (did I spell tht correctly)? Gonna see if I can buy some on-line soon. Stay strong and send me a private message IF you would ever want to talk by telephone Sister.
Peace!
Carolyn
0 -
Teeballmom- welcome back. Of course I'd love to hear what you learn! Thanks for offering to share.
0 -
Hi Everyone.
Here is where I will post what I learn in the class. simplysurvivingbc.blogspot.com
I thought a blog would work well since I can then add pdf files that I may be given permission to print (or just create on my own based on their printouts).
I might be slow getting things posted.
Take care.
0 -
Teeballmom, I would also like to read your blog. We are never too old to learn, and knowledge is power.
Juneau, I had eyelid surgery a few months ago after treatments were done. It was no big deal at all. Now I don't look tired or half asleep all the time any more, and my mascara actually stays on my lashes now, and not on my eyelids.
Cmbernardi, I agree with the others here re you and Mcook. You are both amazing!
Embok, thanks for sharing that lovely bread in Marian's pockets. By this time her surgery must be finished. I hope she is pain free, and resting comfortably.
Ramols, sending energizing vibes to you! Enjoy your free day tomorrow, and sleep a little extra if you can. Rads put me into a deep sleep every night, often for 12 hours. It's probably not possible for you with the little ones. The fatique is the worst of the whole ordeal, but soon you will be done, and can concentrate on getting stronger.
Allurbadday, Sheryl, Tazzy, Chrisrenee, Websister and others, you have yourselves a good day!
0 -
Wow I am just humbled! I just received $1000 donation from a friend that I worked with that is a survivor! I never knew till today that he had cancer! I better get my ass running only 12 weeks and this is going hard as hell!
Run Forrest Run!
Holy cow I am getting nervous!
Love u0 -
Liefie - thanks for your encouraging words. I have my consultation today for eye lift surgery. So tired of looking tired. I'm probably too old but I intend to be around for a long long time. I keep watching to see if Juneau reports in about her consultation. My appt is 4pm.
Mcook - wow, it sounds like you have a secret admirer with that 1,000 donation :-)0 -
Well, eyelid surgery or not... you are all beautiful to me. Which I know don't count the same, but..... !!!
Teeball... thanks for sharing.
Mcook. That is amazing from your friend. Yep, better get running. Do you know where you are running through yet..... just thinking of our get together.
Hugs and hello to everyone xxx
0 -
Hi
So my ex boy friend mother who was Danish had that surgery and it was because her vision was being compromised by her lids sagging or potentially sagging. She did fine and looked amazing but took awhile to look normal. I say just make sure you find the right doctor and see some people's end results0 -
Mcook, I agree with Believe; it seems you already have secret male admirers . . . $1000 is a lot!
Believe, I had the same problem as the Danish woman Mcook has written about. My lids were hanging over my eyes, especially in the mornings when I woke up. Not pretty, and it took a while until the puffiness would go down before I could see properly. A good surgeon is paramount. I had to ice my eyes for a few days afterwards - very important for swelling and bleeding - and I can now hardly see where the cuts were. In another few months the scars will be gone. It was done under local anaesthetic, I did not feel a thing, and it took just over half an hour. Good luck!
0 -
Teeballmom......welcome back.....I would love to read your blog....thank you for sharing.
Marian....thinking lots about you today ❤
Mccook.....yup....a secret admirer....a generous one at that......hang on to him....lol
Juneau.....everyone is getting a break this week, you included....no floggings until next week 😋
Ramols.....you sure have a lot on your plate....try to be good to yourself and take it easy
if you can.
Everyone else that I missed ....hi 😘0 -
Hi Juneau and all I took a few weeks off. I was kind of in a funk when I realized I have MO appts blood tests etc all coming up. So I have been doing busywork like painting , gardening etc but I have been following all.
McCook Screw the S.O.B. I know thats easier said than done but just look forward to whats ahead. Heck it could be Adam Levine himself now. Like everyone says there is someone out there for you; don't ever doubt yourself.
Marian Hope surgery went well.
Tazzy hoping you passed your mammo with flying colors. I know I stress now anytime I have to do any kind of test; even a routine blood test.
CherylB amd Carolyn Im sorry the way thing have gone for both of you too. I hope things get better for you both as you both deserve true love and support.
Scottiee1 sorry to hear about your cousin but glad she can take part in the "new" radiation study. My BS had alot to do with that research in Chicago. She is a brain and the such a good doctor. If she believes in it I believe in it. Just wish she'd have come to Florida alittle sooner I may have gone in that direction too. Anyway here is a short video on it as she just got it approved here too http://www.clickorlando.com/news/Cancer-removed-in-one-dose-with-radiation-treatment/-/1637132/18002646/-/11to6e1/-/index.html
Websister- you're looking great
Chrisrenee I'll have a beer with you McCook and who ever else wants to join in! Sounds like Scottie may even join us so we have to get to it fast!
Teeball nice to hear from you Sounds good.
Believe and Juneau good luck with the eyes, but I wish you hadn't mentioned it. I was always so busy worrying about saggy boobs when I had them that I never noticed how bad my eyes look ! Oh well mine are staying that way for now.
Have you all seen the study about breast cancer patients and ptsd? http://www.webmd.com/breast-cancer/news/20130301/1-in-4-breast-cancer-diagnoses-may-spur-ptsd We're legit!
Sorry if I missed anyone. Take care all
0 -
2Friedeggs.....Thank you so much ....that's exactly what she is having....just
watched the video so now I have a better idea ....forwarded to my cousin....much appreciated.
PS....read about this study today ....I think we knew this already .....lol0 -
Scottie I believe dr Ivanov was the 1st one to do these trials in Chicago. She and her partner made a presentation at the National Breast Cancer conference as far back as 2009 with the news of its success and they have publish alot on it. Google ivanov and Iort and she is everywhere. Like I said though she is a fabulous doctor, an excelled in everything biology languages you name it. Like I said if she believes in it then I think your cousin should feel very confident in it. This looks like the trial she will be in-several states listed at bottom
http://clinicaltrials.gov/show/NCT016446690 -
Wow - 2FriedEggs - wish they were doing that procedure in my area. I think I have the 2nd disorder too! Life after cancer, still better than the alternative. Thanks for sharing these links.
0 -
Thanks again 2Friedeggs.....too late for me but how wonderful for women like my cousin
who will have this new tx.0 -
Carolyn- First off- good for you for leaving his ass behind! second- You aren't too far from me, I'm in Pilot Point and work in denton.
Mcook- you have your very own mr. moneypants! You better run and run fast for thousand dollars.
Ramols- Your schedule sounds as busy as mine, only problem is i'm not losing any damn weight.
Juneau & Believe- I'm tired of being cut on, after I get my nips done, i'm done with surgery for long while. Good luck with your upcoming procedures.
Scottie, Websister and Tazzy- ya'll have a great day.
2fried- welcome back, did you have to take a BCO cleanse? ha I've tried to take a break from all social media but it didn't happen.
teeballmom- would love to read some of your information
marian- hope you are doing well, let us know!
Getting ready to go to bed, it's been a long day at work and even longer week so far and it's only Tuesday. Hope everyone has a good night.
love and hugs to you all!
0 -
Chrisrenee lol yep a bco cleanse-just as tough as any other cleanse since I had to keep myself busy to stay away. Not only did I get myself in a funk over it coming around to that time again for doctors visits, labs etc, but I used that Berts Bees lip balm on my chapped lips and dang if they didn't swell up all around my lips and they blistered to boot. It was a week of burning and itching and looking like a clown. lol
Believe and Scottie yea I wish the technology would have been around for me as well . I did switched over to the doctor after I had had the lumpectomy but she was just getting the ok here about that time and for me it was after the fact. I went on to have the nsbmx anyway but I was so glad I changed doctors as she is such a caring doctor and very up to date on all the newer procedures. Yeah right on the ptsd, huh? Duh they could have enlisted alot of us for the study! There must have been a new study or something because even though it had been mentioned before seems it seems to have hit the internet bigtime over the last 5 days again.
Well I got tazzy, McCook,Chrisrenee and anyone else up to dancing on tables with them, a dance partner!
Have a nice day all!
0 -
marian; sending you good vibes and hope you're resting comfortably.
Carolyn: good riddance to bad rubbish... but FUCK if you deserved to be treated that way.
ok - so I had my appt yesterday re my eyelid lift. I was upset last night since I need $1800 upfront to cover the anesthesiologist and hospital. The Carecredit loan I can take out will only cover the physician, not the facility... BUT today I realized I never rolled my 401k from my old job to this one so I arranged to move it and I'm taking the monies out before I put it into the new account so now I have the $$. YAY! He did say he couldn't do lipo from my belly into my breast becuase I have enough skin (aka my belly is so big) that I'd be left iwth skin hanging - I need a tummy TUCK if I wanted to effect change there). He also went on to say he wouldn't fat graft for my breast anyway. He thinks my recon'd breast looks great, but my augmented/real breast could use a bit bigger of an implant and a lift. My original surgeon didn't lift it, and I kind of felt the same way; so I'm going to ask her at my appointment next month.
I feel very confident about the PS. He is a refence in magazines like US, Star, People.... he doesn't have any assistants at all. He made it clear that he does EVERYTHING. No surgical assistant, no one else to remove stiches. He gives clients his cell phone number following surgery - just complete transpancey. He also came highly recommended by my BS who is AMAZING in her own right. In fact there were some local newspaper articles up with photos of the two of them in regards to their work on BC and reconstruction. He was out of my network and way too expensive out of pocket for me to have considered using for that.
I did get on the scale today - down .8! I'm nicely surprised. I haven't been counting anything, just trying to eat well for the most part, and certainly protion control; and of course I'm exercising at least 5 days a week. I'm still hating my body, but I am trying really hard not to look at the outside. I just have to remind myself... If the scale keeps going in the right direction and I keep exercising EVENTUALLY I'LL HAVE TO BE THIN(NER)...
OK back to work - it's been super busy here.
0
