STFU (Shut the F*** UP)
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Yup I agree, My first optic migraine, I went to an opthamoligist , Love my docs. he saw me within the hour. Not a retina problem. Sent me right away to a neurologist who sent for an MRI of the brain to rule out a brain tumor problem, all in the same day. MRI's were new in the 80's. The noise they made then was much more than they make now. NOISY. Whew.
All things are not the same. No physical problem seen. That's when the dx was given. The key to ANY new change is see your doc. I think everyone that posted sought medical care right away.
The symptoms for a detached retina have some things in common with an optic migraine, but a detached retina is different than an optic migraine. Each have specific characteristics. Looking in the eye is the first step for any eye problem. If changes in the retinal field can be seen then they can be managed. Detached retina and retinal artery occlusion are emergency conditions that need intervention rapidly to prevent permanent disability.. Multiple tests can be done on the eye to rule out other things that may be causing the symptoms. No retinal changes, no tear. All had the eye looked at first. Once the inside of the eye is determined NOT to be the origin of the problem, then the brain should be evaluated. Once all organic problems are ruled out. The diagnosis by exclusion is optic /ocular migraine A diagnosis by exclusion means----everything else has been excluded. Of all the eye problems when ranked, an optic/ocular migraine is the least troublesome.
Each optic/ocular migraine has it own pattern for an individual. There are commonalities, but the six here, if we compared ours, we would find differences. For me as I said in my first post, after mine was determined not to be dangerous. I was offered medicine to prevent future occurences.. BUT all drugs have consequenses. The Beta blocker--Inderal offered me has system wide affects. Of particular concern to me at the time, in 1988, was it's cardiac affect. Weighing he inconvenience of the visiual disturbance against the potential of untoward cardiac affect. I chose to just enjoy the optic flashing and beautiful light show.
Detached retina can run in families. An individual that has had a detached retina can be prone to have another one
A phrase in nursing/ medicine that's use thousands of time a day is "If symptoms change or worse see your doc or go to ER"
Everytime I have an optic migraine, I'm evaluating whether it's different than the thousands I've had before. When it isn't. I just enjoy them.
Optomerist are not M.D.'s. But they are trained in school to recognize eye emergencies. An optometrist would refer up the chain to an opthomalogist. In my case, once the eye was ruled out as the source of the problem, the opthamologist referred up the chain to a neurologist. Just as a PCP is trained to recognize all system abnormalities or at least have an index of suspicion, they are not qualified to handle all system problems. A PCP refers up the chain to a specialist for a problem outside their scope of training. As everyone has noted here, all practioners are not equal in the quality of care they render.
For the 6 of us that have been dx'd as Optic/ocular migraines, statistically it is unusual to have that many in one group. I found one stat that said 1/200 experiences purely optic migraines. Two have conditions that are diagnostically different and managed differently.
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Just saw Lilli's post, our ocular/optic migraine count is ---7 Again from many post ago---Interesting.
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thanks Sas for that info. When I had my first one I did go see my eye Doctor who looked in my eyes and did whatever it is he did to tell me that it was fine. He also told me that there was no rhyme nor reason for them at least at that time.. I know one of the questions he asked me was wether I get a headache with them. Other than that I don't remember other than he said not to worry about them unless something changed with them... I haven't had one in quite some time now.
Cindy AKA Squishy0 -
Hi Squishy, same with my doc. Do you dislike or enjoy the "show"?
My first one was also different than all after ones. The visual field distortion presented as half of each person's face was bizarre. Part of my 1988 research, I found a reference that Lon Chaney Senior, was thought to have the condition. His characters all had severely distorted faces. He was a master at creating macbre characters. I'll go see if it's been written about since. My 1988 search was in the medical library. No INTERNET WEB then. Edit: no reference. LC SR. two most famous characters were Quasimodo and the Phantom of the Opera. Each were severely distorted on one side.
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Yes mine too asked about a headache which I do not get with them. I've only had one while driving and it was just city streets so not too bad. Mostly I get them sitting here at computer. But the 1st one I got was while unloading the car for a camping trip. Sassy - beta blockers do nothing for mine. I'm on metoprolol. But now have Cosopt for L eye so will see if the beta blocker in that drop does affect it. Mine always starts the same place and disappears the same way about 30-40 minutes. I've had 2 back to back with about 2 hours separation. Those were the 1st since the camping trip incident and the ones that prompted the optometrist visit. He is (well was, now retired) very good, very thorough. Caught my glaucoma, PTL. I had not had one for several months until last week. I think stress related since we were very busy last week, too many appointments for a few weeks.0 -
Got to rant for a minute. Property tax bills were sent out the last Friday of October. Did not get that one. I called a week ago Friday "OK I will send another one", verified the address. Guess what - yup no bill. Guess I get to make a trip to county seat and chew some you know what. Add that to list of places to be this week. Now - you can see it on line but what about all those oldies who do not do internet. Besides life does get busy; just imagine if something major struck and you just forgot you never got it. Just so happens this is the 1st year since we paid off the mortgage so watching it closely. And yes Sassy we did get one of those letters from the county when everything finally went through. We are usually home when the mail comes by so don't think it was lifted from box.0 -
luvmygoats -
you are right, this is the kind of thing that if you have a lot going on in your life - you could easily lose track of!!! thank heavens you are on top of it, eventhough it is a pain.
when you had your mortgage, did you have your property taxes paid by the bank via an escrow account and are they still sending your bills to the bank that held your mortgage? if so, got to get it fixed so it doesn't happen next year.
good luck0 -
Little Goats LOL great memory. Those letters for Satisfaction of Mortgage come from whomever held the mortgage. Once recorded into the county record can prevent the mortgagor from declaring that the mortgage hadn't been paid. The mortgator(sic?) is supposed to return their copy of the original deed, that they very benevolently hold onto at the closing of a sale. Each time a house is sold a new deed is drafted after the title company has done the title search. One of the documents signed at closing if a mortgage exists is the satisfaction form. It's a domino thing.
It can be a battle to hold the deed versus the mortgator.(sic). Didn't know this stuff as a young one. One Company couldn't "find" the mortgage & deed documents when we paid it off. Hrmphhh. BUT did supply the letter. We had our copies, but in the end, it's their copies that can make a legal difference. Hence the importance of that letter and the county recording.
Even with recording of the satisfaction letter, someone can come forward with a claim of legal "interest" in a property. That's where the benefit of "Owners Title Insurance" comes into play. At closing if a mortgage is involved, the mortgagor requires "Title Insurance". Too many people are lead to believe that that protects them as owners. The Title Insurance that names the mortgator as the protected party, doesn't protect the owner. Only the "owners title insurance" policy does. It cost $$$$$ to have an owner's policy, some by- pass it, simply b/c it hasn't been explained well. SO, say a claim goes against someone re:legal Interest in the property. The policy that had the mortgator as beneficiary is paid off. If the owner didn't have one , they can end up with ---nothing. NADA.
Disclaimer: This is not to be construed as legal advise check with your attorney as always the same with anything medical/nursing check with your doc
LMG's do- you enjoy your optics or are they uncomfortable? They are inconvenient of course, I have to pull off the road if one occurs while I'm driving. Too many distortions. Mine are routinely 20 minutes flat. I did see today that it can go one for up to an hour.
Does anyone have them for more than an hour?
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LMG's Someone's screwing up on your tax statement delivery. Jelson's so right that it 's good your on top of it. Forget where it was a postal delivery person was found to have a houseful of undelivered mail. He tried to use the psych defense in court. Don't remember if he was convicted or not.
Hi, Jelson, staying or visiting. Staying I'll add you to the list on pg 403
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LMG many drugs have special things they do, even though they are in the same drug family. Inderal was the first beta-blocker introduced in the 70's. It was only used for blood pressure, and early on for tachydysrthymias- fast heart rate (that was soon d/c'd when a new class of drugs came out---for the curious--it was verapamil/nifedipine slow channel calcium blockers..
After the drug Inderal was FDA approved, it was soon found out from patients that had migraines, they had fewer or no migraines. Also, for some of those that still had migraines, the severity was reported to be less. It was a breakthrough at the time. None of the other Beta blockers have that same affect/effect on migraines. A few years later, Imtrex came on the market. Inderals use for migraines then decreased.
LMG I know your a nurse, but forgot that when I responded above, but I think I'm older LOL. The "I was around when it was invented stories". OMG How many advances since the 60's. There were advances before the 60's , but not the rapid changes we had to experience. I graduated in 74. Started teaching medics in 78. Went to use my Rodmans pharm book. Four year difference. Rodman's had material related to Beta and Alpha receptors, by 78 it was Beta1, Beta2(later whenever trebuteline came?) and Alpha1. Here we can play trivial pursuit . There was a classic drug used for each group. I think I can remember three. Pure beta( Isuprel), predominantly beta and minimally alpha(adrenaline), predominantly alpha minimally beta(?), Pure alpha(Apresoline). Forget when Alpha 2 came in. Lordy then the ACE's , then the ARB's then 2nd generations for all.
How the young one's do it now. We at least had a slower time to add all the new info as it came.
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hey Ms. Phyllie!!!
Chickie love the pix...
Good luck Ms. Mary
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When I had the incident with my eye the first time, I was at my shore home, 2 hours away from my PCP, or my usual hospital................so being it was my eye, I called Wills Eye Hospital in Philly .......this is what they told me to do.
Call the nearest hospital...ask if they have an Opthomologist on duty today (it was Sunday)........if they do, go immediately to that hospital......if they don't, leave where you are , and come right here.......let us know............I called Berdette Tomlin, (nearest hospital).........they put me through to the ER...where they said do not come here, go straight to Wills Eye.....................called Wills, back, and the ER said, we will be waiting for you, and you will be pushed to the front of the line................
When I got there they checked me right away, and after 1 hour and 3 Dr's said they could not find anything......that it could be an Ocular Migraine.........finally 1 Dr said, I am not satisfied, let's call in Dr. Annesley (cheif of surgery), and let him check..............he came from home, which took another hour......
When he got there, and with he and the 3 Dr's looking over me, I heard Annesley say ...........I'll be damned, there it is, up in the upper left hand corner almost hidden..............there was the tear.............right away he did Laser surgery, and just the thought scared the shit out of me..............it was nothing......but when it was over he said will see you tomorrow for a checkup, and we need to talk about this....
Next day he told me.........it is good you came when you did..........this can be very serious.........Ocular migraines are not common, but they are not uncommon either........the first Ocular migraine usually sends people running to the ER because they are scary............................after that being the diagnosis, most ignore any further episodes saying "oh its one of those Ocular things again"....................but there is no sure way of knowing, because "torn retina's" begin the same way as an Ocular episode.........so I take each episode seriously....not running to the ER, but careful
I still find the flashing, very annoying, and find nothing beautiful about being only able to see out of 1/2 your eye, and wondering if this is the time you should take this episode "serious".............mine lasted longer then 20-60 minutes.........it was hours.............
So I say........I find cancer tough enough to deal with.............I don't want to be blind in one eye too.........just a little FYI.......I do not pretend to be an expert, or an advisor.......just saying what happened to me........hugs..0 -
TO ALL:Dwilli called, running with many appointments. Wanted you to know her sx for placement of permanent implant is Nov26th. She won't return to work until Jan 5th. Sends love and thoughts to all.
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Thanks Sass! Yes, one time when I was working on white tiles, and cutting them out back in the sun, I started having these like "spider webs" come over my eyes. I right away called the eye doc.... They said to come right in, and that it COULD be a detached retina.
This was completely different than the ocular migraine's I have had. And also, I have never had a head-ache with one.....
I went in, but by the time I had gotten there, it had all cleared up. He explained that working with white, in the sun is NOT the smart thing to do.... And that is what sun-glasses are for! But boy those "spider-webs' were really scary!
The Ocular migraine I had, was it yesterday morning???, was just a mild one.... I still typed until it went away.... took about 15 minutes. And I'm back to normal.... I mean as "normal" as I can be.... shut up Cammi!0 -
I too had what looked like something coming flowing down my eye when I looked up at the the sky sitting outside near the pool drinking coffee......thought "what the hell is that, cause the night before it was flashing lights, which continued in the morning........noticed I said all night...even saw the flashing with my eyes closed while falling asleep......
The dr explained the next day after the surgery that what I saw was the "vitreous fluid" escaping from the torn area, and running within my visual field......it is scary......my SIL thought "stroke", and could not get me home fast enough........Berdette assured me from the ER call that it was probably a torn Retina,but. Will's was more qualified to make that call.........did not need them to tell me that.......
So I am very careful now not to push this off as nothing........I know what is and is not a good sign, and treat each episode with extreme caution.......Opthomologist
Eye Dr appts are as important to my well being as my "cancer follow-ups"........I have had .....narrow angle glaucoma laser surgery (both eyes).......cateract surgery (both eyes)......torn retina laser surgery (left eye), .....and early stage Macular degeneration..........so I know eye problems...
Just be careful....take these episodes seriously.......just some FYI from someone who has "been there"., and consider an Opthomologist for your eye care.0 -
Chevy, believe it or not that WAS this morning......... Interesting re your experience. Was that experience with the tile and sun recently? That's why I joke about my head---optic migraines that change visual fields --can be right or left; hearing loss that is always changing b/c there is nerve conduction loss that's permanent, but is affected by barometric pressure changes; Tinnitus that can be both sides or changes sides/ intensity/ sound (crickets, roaring surf, music--only twice, water, pissing, buzzing). Altered smell: that is predominantly absent, that can suddenly become very acute(working well). Eyes: That do all kinds of things. Vertigo: that's changing all the time. Headaches: still predominantly from brain surgery area, but sometimes moves around. Evaluating each thing when it changes is time consuming i.e. is this really new or just a variation on the old. Each new thing got doc evaluated. i.e first optic, first tinnitus, first one sided tinnitus, first music. first vertigo.
BTW the first music lasted two hours---850 am thought it rude that neighbor playing music so loud, until I figured out it was in my left ear. still was buzzing in my right ear. Threw the terms tinnitus and music in google. Musical ear syndrome. Never heard the song before Then heard it on the Blues station a couple weeks later New Caldona By Jordan. At the time it occurred, it faded into a Glenn Miller something with really loud horns. Stopped @ 1050. 2nd time it was a xmas song, but was so low level couldn't figure out what it was--I think it was frosty the snowman. Odd thing, ever since that day there have been more days of absent tinnitus in the left ear. The POSITIVE is, in doing the research on Musical ear lead to an article about RESETTING tinnitus. When it gets too loud I learned to set a vibrator next to my ear and it changes it.. COOL.
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Hey All!
Been trying to keep up and hope everything is going alright for everyone.
Chevy, thanks for noticing. I missed you too.
I'm headed to the basement for a while. If I see Veggy I will tell her to get her butt up here because you all are looking for her.
I've had migraines for 23 years every month. I don't get the pretty picture show and they hurt like hell. The LSD ones look like more fun
Take care ladies.....0 -
$$$$$$4444444 so happy to see you, Stay out of the basement ---Okay see if Veggy's there and come right back.
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Ok, I'm the exception that didn't run to the doctor. My first one lasted about 20-30min. It was hard to walk because the right eye had this line of shimmering color. I found out it was an ocular migraine when my SIL told me.
I did have flashing lights after a fall on a tile floor and I did freak out and go to the doctor for that. I know I hit my cheek bone on the floor because it had a bruise. I have the vagus nerve thing that drops my blood pressure and causes me to faint, so I don't remember the fall at all. Just woke up on the tile floor in the bathroom. I had a mild case of food poisoning.0 -
Not more fun 4.........actually quite annoying if it lasts for very long......nothing fun about not being able to see.....at least with strobe lights if you shut your eyes tightly enough they go away....with this Ocular shutting your eyes does not change anything other then the bluryness goes away, but you can still see the flashing either way...it really sucks......
I have a daughter who had Epilepsy and she could not go to Disco's because the flashing lights could bring on a seizure.......she since had brain surgery and the Epilepsy is gone.......
That has nothing to do with Ocular migraines, but was just saying about flashing lights being annoying..0 -
"In the fog" not "above the clouds" this morning.
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Fog is beautiful. Too bad it's so cold and penetrating.0 -
GMA......wow, pretty neat.."and kind of spooky too....hope your feeling ok today......Oregon I'd so beautiful....was there just 2 times....once on my way to Yakima, Washington,.........and again on my way back to Pa.........Amazingly gorgeous area, and so was Washington with Mt. Rainier .0 -
$$$$4444----your description that it occurs monthly. There are migraines that are hormonally connected. If your's is, they historically are less or gone after menopause. So, have hope, they may go away, wouldn't that be lovely
So, our count is 8 ocular/optic migraines
1 standard(but hateful) migraine---$$$44
2 hx of retinal tears( or 1retinal tear and 1 predisposed to tears___________.Flatsy what are yours again.
I think this is terribly interesting considering the stat is 1/200 for ocular/optic migraines.
Foley so glad to see you, I too miss you as well as your pics.
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Morning all
Like Wren I didn't go to the Dr because I had migraines for years. Had visual disturbance with them and still do. Sometimes the ocular show lasts over an hour, I just have to sit it out . Have had them whilst driving and that's not fun, luckily it is usually only one eye.u sister gets them as well.
By the way the errant foob has appeared. It was still in my bra!!!!!!0 -
I had migraines for years but I was given an RX for an Alpha Stim 100 and that thing WORKS!....clip the clips on my ear lobes and within 20 minutes most migraines are gone....sometimes it takes up to 60 minutes....but not all day and all night!.....my miracle machine is also very portable.
Sas......So all that have the ringing/singing ears need to run out a get a VIBRATOR?
hugs to all.....six days more wakes ups before my surgery!
Di
Yea for the hiding foob just hanging out in it's "home"!0 -
Phooey! I was hopeing she'd say she turned the grands upside down and it fell from a pocket. LOL
Sas, I didn't/don't get migraines. It was a one time only thing from the acorn. That was before my 4 hour open TMJ surgery. Killer headaches, worse than migraine.0 -
Alyson tooo funny in your bra. Alyson do you have a headache after the light show?
Di, Equally interesting. $ would likely want to check that out with her doc. But if her's are hormonally based it may not make a difference........................ I have a vibrating bed, so I just don't use a pillow, turn the vibration as high as it will go. Also, Have a long handled back vibrator
Just FYI never use a vibrator over or near the carotid . You might need a doc or nurse to show you where the carotid is. There are pressure receptors in that area, and it's an area that plaque can build up. Manipulation in this area can be dangerous
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Wren, curious if it's not invading your privacy. Why no pacemaker?
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Sas,
Is your vibrating bed also electric adjustable bed?....We have dual adjustable beds, but didn't bother to get the vibrator unit....but it is wired for it....just plugs in....do you like it?
Di0
