STFU (Shut the F*** UP)
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(((((Di))))
Lilli0 -
Yes the Tattoo is lovely and she can go out without a top on. My surgeon said one woman wanted removal w/o recon because she did not want to have to where a shirt while gardening anymore. I'm thinking of different style of tattoo but I have seen this one before and it is very nice. I can walk the beach w/o top and then I'll get skin cancer ha ha ha I think I'll keep my shirt on. I'm sure that cost lots of $$$$$$$ and time.
Hope all are safe from the storms and I'm at work so I better get to work. Later Later
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HaHa, why does this remind me of Cami and Chevy???
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Happy Monday Morning Hooligans!
Good Luck today Di, thinking about you and sending happy thoughts! Don't wake up in the middle this time!
Hope everyone has a pain free, stress free, pissed off free kind of day!!
Well 2 out of three is never bad! I actually have to get something done today
Would much rather hang out here and have fun.
Work is way over rated, right Cami???0 -
My daughters have tats and they need to put sunscreen on them so they won't fade. I love that particular tat but DH is against me getting one. Isn't happy that our daughters have several each. I keep reminding him that it goes back to ancient times and was considered something of beauty, not the stigma that is attached to tats today.0 -
HI Kathy! Nice to see you
I am not really into tatts, but can appreciate the beautiful artwork. I don't like when people start to get completely covered and some are just not too attractive, but that is just my own opinion. Most of them are not for me. My DH has one from when in the Navy and he hates it. Tries to keep it covered. Don't think I would be happy if my kids get them either, but this type is for a whole nother reason! I told them I would drive if they want an ear pierced, but that's about where I draw the line right now! I would do my belly button if the belly wouldn't swallow the jewelry whole!!! Tatts are just so permanent, so you have to be so careful to be sure you can live with it for a very long time!0 -
Our girls' first tats were their 18th birthday present to themselves since they didn't need parental approval. I just remind them to think of what they get and where they get it because they don't want it on a body part that sags as they get older. One of our dds does regret the fact that she had a tat embellished and feels it is too big now that she has gotten older. I think I will get some temporary tats and play with them, that way I'm not committed to something permanent.0 -
The temporary ones are fun and the Henna can be beautiful.
Ha, body parts that sag.. I knew a lady that had several tatts. Well her mom decided to get one when she was around 50ish I would guess. She got this pretty grape vine. Me, I asked if they would turn to raisins as she aged!! I know I should STFU!!!0 -
4sewwhat, too, too funny! What response did you get?0 -
Ok so here is my med question and then I am going to get to work, really I am!!!
So many of you ladies have been through different things and I am looking for some input. I know we have several nurses here too. I also started a new thread to hear stories from others to help me make my decision. I am really high risk for recurrence but don't want to buy problems I don't need either. UGHHH I hope this is the last really tough, no good, right or wrong answer question I have to answer for a very long time.
SO TIRED OF THIS GIANT CRAPSHOOT GAME OF RUSSIAN ROULETTE
. Ok I feel better now 
Ducky I see you are extremely happy with the Letrozole. That is what my onc wants to put me on two weeks after my surgery if I do it.
Chevy, I know Tamoxifen was great for you too!
Cami, I know you have tried a bunch of stuff
Sas, have you ever looked into this in your travels? I always love when you post something I didn't know much about.
Mary, Chickee, Gma, Julia, SavGiGi, anyone else lurking..(I suck at names. Good with faces, but that doesn't help much here!) Come out, come out wherever you are
I need help!
Anyone else that has input or has been down a similar road, I would appreciate the input..... Here's the post from the thread I started:
I have a hystero/ooph scheduled with my exchange surgery, but haven't made up my mind yet. I had great luck on tamoxifen as I had no noticeable SEs and took it before surgery so they know it was being effective. I did not know my onc would want to change me to AI two weeks following surgery as even though I am 47, I was not even close to menopause going into all of this. He did say it could give me 5% better outcome chances and for me that is huge because with 22 nodes I was told 40-50% chance it was coming back even with chemo, rads and Hormonals.
However I have strong family history of osteoporosis and arthritis. I have seen bone issues as AI SEs everywhere. It seems to be the biggest complaint. I also see several who had no cholesterol history and now they are on statins because of this. My dad had quad bypass, don't need to go there either! My bones and cholesterol are great and I would like them to stay that way!
Ahhhh, BC the gift that keeps on giving............NOT
I just don't want to change one problem for another and don't want to rush into something I can't reverse. I don't want to have to take meds for SE of other meds, etc....
I did ask for the surgery but they never explained the pros and cons fully. I am finding out all that stuff on my own. The doctor had NO trouble telling me there would be sexual changes though!! Lol
It was a gut reaction to want it gone and less to monitor. Felt like it is a ticking time bomb, but now I am just not sure if I am trading some peace of mind for a list of other potential problems.
I just think right now maybe I should stick with the tamoxifen, keep the girl parts I have left, and monitor closely for a little while longer. If the Tammy blocks the receptors, but my heart and bones get the protection from some estrogen, is that a bad thing?
Any thoughts???? Thanks in advance!0 -
Kathy, I got a scowl and an eye roll!!! But then it looked like they started wondering if I might be right!!!0 -
Oh wow 4444 biggy is right.I'l give an opinion but remember I never read up on anything..My niece got Bc in her mid 40's when her mom (my sister) and I had it too.-Actually we were more upset about her than us. She was Stage 3 and after her chemo and rads--she opted for the hysterectomy (her reasoning) was she figured she's get rid of another target, she went on Armidex and doing OK--she has 3 kids the younges now is 14 but she says she has days where she crashes still but not a lot but she's very busy and like u has an excellent attitude--since u'r age is much closer to hers I'm just giving u her way of doing something. I had already had a hysterectome 10 yrs before all this and I had it cuz of cancer business, but caught right away.
My sister is on Femara and she's not doing to bad on that one, just some aches and pains but still working FT, I'm on aromasin and I hate it--but again everyone takes these meds differently so there is no telling what kind of SE's to expect--there are no rules. Good Luck 4 with whatever u decide.0 -
I'm on Arimadex. The first few weeks were rocky. I had to start Effexor for hot flashes. I also have some cardio issues, ca scares me more. MO told me to take calcium and vit D3 daily for bones.
I'm a walking mess. Something is gonna get me sooner or later. Hope later! We are all different, and must do what is right for us.
One question though. If you don't take it, and the beast comes back, could you live with the what if?0 -
For Turkey Day, thought I'd show you what a Scottish turkey looks like. At least in my Am-Scot town. Colored by 6 yo GS.
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I think you do have to beware of where you might put tattoos....especially the young ones. As we shorten up and ....get flabby and have other things happen as we age.....don't want those tattoos shifting too far from where they started out.
4....I took Arimidex - later generic Anastrozole. I had few problems with how I felt although I did start eating expensive chocolate to counteract ( and it worked well ) rise in sugar levels and rise in cholesterol and so did keep my numbers at good levels. Was very active so I also lost 50 pounds.
I know many will likely ask about the chocolate so pm me if you want to know. I don't sell it.....just buy it, but I know we are not supposed to "advertise" here. All in all though, for the above reasons, and just because pill-taking is not really a natural thing to me I was glad and am glad to be finishing up my last couple of weeks worth and my MO did not recommend my staying on it.....Yay.
Of course a little scary.....it has been something of a security blanket this last five years and helped me feel that I was still active in caring for myself --- but sometimes you really do need to fly free and un-encumbered if you can. So.....in many ways...I can't wait. Also hope that I will not have those pesky problems --- will have to stop eating chocolate too for a bit, that I did not have before of cholesterol or sugar. I'm sure I won't.
Hope you all have a fantastic day.
Lilli0 -
4---Funny except if I fell Chevy would have to just laugh with me while we call for big time help----everytime I've fallen in front of people everyone laughs including me--my family laughs harder than anyone else--well Joey is the only one that doesn't==But I do have a unique fall--it's in slow motion, don't know how that happens but everyone imitates it when it's over, I've seen more floors than a hooker.
Yrs ago I sould not consider a tattoo and if my kids wanted one I think I would cry, but now I even mentioned to them about getting a tattoo on their ankle or shoulder and they are livid that I think this way--they are so old-fashion and they are in their 40's My youngest is the worst. She's such a prude--I really never was one (except for tattoos) I don't know where they got it from. When I had my drains in they couldn't stand helping me and they thought it was disrespect to me to see anything Oh geeze My GS used to help me and in no time at all he totally learned how to measure it and put it back in pllace and never saw a thing--so a tat for them would be unthinkable even for me Silly how kids are.0 -
Thanks for the input ladies! I thought I knew what to do, then the docs throw more at you and you read more stories then your head spins like Linda Blair again!
"Round and Round and Round we go, where she stops, nobody knows?" Think that was Gene Wilder from the original Charlie and the Chocolate factory.. Boy do I know the feeling! And see how I worked chocolate back in to be relevant!!! I would love if you would send me the chocolate info Lilli!
Spookie, my choice is either stay on tammy with no SEs and they saw evidence it was working OR have the surgery and go on an AI and see what happens. I wouldn't be without anything. But still....
OK really gotta get to work or I am going to break my leg again kicking myself in the Ass tonight when I still have work to do.0 -
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44444444444........LETROZOLE IS SLOWLY KILLING ME.....I HATE IT......ACHES, PAINS, NEUROPATHY........,WOW! WHEN DID I SAY I WAS HAPPY. WITH IT..........I MUST HAVE MEANT. SOMETHING ELSE
ITS AWFUL, BUT YOU MAY DO OK.......SOME DO.........0 -
oh yea, and bones are gone to shit, thinned my hair, and have thought about going off it....been on it for 2 1/2 years........sucks the QOL right out of you..
Remember I am 78 with an oncotype score of "8"....quite low........you are way younger, and have been warned about recurrence........
Try it.....you may do fine............not to mention no recurrance.....it is worth trying.......you can always stop.....
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Ducky,
I am kind of known for my sarcasm
Have to say if I were you and onco was 8, where you are at I would quit. But that is just me. Your CA doesn't look like it was super advanced, although cancer is cancer.
I know I could do fine on it. Everyone reacts differently. I am great on tamoxifen, others are miserable. Problem is I do feel GREAT, so do I keep with what I am doing or go down a path that I can't come back from. I can always take the path, once they cut it's a done deal.
And I gotta add, they cut it out, it is not allowed back. I did the stupid chemo even though it is not know to work on lobular cancer, but I did it so I could say I did whatever I could. I did the rads to cook it, but I know there was nothing there to cook. All just precautionary in my book. I know I sound like I am in denial but I am NEVER going down this road again.
I channel my grandmother these days. In 1967 they opened her from jaw to hairline. Found inoperable lymphoma wrapped around her pancreas, aorta and a bunch of other stuff. The closed her up and gave her 6-12 months. She was 49 at the time. They did some rads just to do something. Well she died when she was 91 and never had a recurrence! Yes, I channel my inner grandma these days!
Off to Sams Club. Have to cater the school districts all day meeting tomorrow. They may be well educated people but man can they make a mess!0 -
Wow 4, you make so much sense........your not in denial......you did so much, send your Grandmother story is certainly convincing enough.....
My MIL got BC cancer at 78, same as me......the tumor was as big as her friggin nose, only did Rads, and only 24 treatments, no boosts.I had 38 with boosts.....that was it.....did get a mx cause that was all they did back then, and very radical.......she lived to be 96, never came back........died of old age...,,,,,so you tell me...
Still say when the good Lord wants you, he will take you......just wish I could believe it, and get off this shit......your right, I should., Granny tells me the same thing, and I .agree with you 100%, but then there is that "what if"......it all sucks......
Also went to BJ's today......now my ass is beat......hugs girlfriend.........0 -
Ducky I'm sure I said this before, but my mom had a BMX when she was in her early 40's and no chemo or rads or meds--and she died at 88---again no rules. So 4444 whatever decision u make I'm sure it will be right for you.0 -
Cam......glad your ok..........and so right......don't you often wonder if this is all bullshit.........maybe if more money was put into research for a cure or vaccine, instead of these friggin killer drugs, that kill us slowly, and not the cancer.......I know what I am talking about.....
I worked in "big Pharma"...........billions is spent each year for researching new drugs, and 1/2 never make it past the FDA...and then they start over to get the drug passed that the FDA just threw out....more money......some stay in the pipeline for years, (more money spent)
So maybe we are the fools, who are guinea pigs by taking them, and who knows what they are doing to us.....can something that makes you feel that bad ...be good????????....many are very new, so basically we replace the "rat" that took it first............
If we only knew the truth........0 -
Four, I can't advise you. I've been on anastrasole (Arimidex) for a year and a half. My only side effect is really mild warm and cold flushes, and those only intermittently. You could always go back to Tami if the AI is miserable.0 -
Ducky I CAN'T HANDLE THE TRUTH-----
Seriously tho the little bit I read on true research has blown my mind at what they really do and I'm so not tolerant of it. Like I've said the only reason Herceptin was completed it was privately funded--it was turned down by the FDA and AMA for no more funding so imagine what else they do.0 -
Example..........went to BJ's today...........walked around the store.....legs were hurting........got what I wanted........put the shit in the car......now legs and back are hurting.......drove home.....unloaded the shit.......now knees, legs, back, and feet are hurting.........put all the shit away........can barely walk........in the recliner, cause if I don't sit down, I will fall down.....this is a day in the life of a Letrozole patient with SE's................and this is QOL........
Before that F/n drug I ran around BJ's.....and 2 more stores after that.....not after cancer, surgery, Rads, I did great after all that.........after that fu-king Devil pill my life went down the toilet.........and you suffer in silence because no one wants to hear you bullshit complaining...........
Eventually no one asks you to do anything anymore, because you hold them back.......but they are too nice to tell you.......so they just don't ask, and eventually it comes out in a conversation what they did, and then comes the excuses for why you were not asked, and you never hear the truth, cause no one wants to hurt your feeliings.....
Oh well shit happens.........I will STFU....Did I hear someone say....FINALLY! THANK YOU GOD.....LOL0 -
Fffffffffoooooooooooooooore! See, I yelled FOUR~ !!!! For 4! Okay, Interesting to read what you say, although I DO like your pictures..... !!!
Okay, yes I took Tamoxifen..... for 14 months..... Then as most know, I lost my hearing..... A FEW women on here, and elsewhere have also lost their hearing while on Tamoxifen.
After much research.... and crying ...... And hearing aids, I am fine now! Seems as though there IS a warning on Tamoxifen, and the generics that it MAY cause strokes. So a small stroke at the base of my brain-stem near the auditory nerve, caused me to lose my hearing overnight! Then I lost the hearing in my right ear, but only 50 %.
THEN, after treating this as just a "cold or sinus" problem for a month, I quit the Tamoxifen, after I saw that this DOES happen, also because it is in the same class as a chemo-drug. Chemo is hell on hair.... and the little nerves in your inner-ear, are like little hairs.
And then I read that a small percentage have this "gene" that pre-disposes them to these strokes from Tamoxifen. In fact, there is a test now, that can be done.... But I didn't know any of this......
But, it could have been worse. I have had my hearing aids for over 2 1/2 years now.... And it's been almost 4 years, Dec. 4th that I had my surgery! So I think I'm pretty lucky..... My Onco score was 19..... but I DIDN'T want chemo..... I thought I was too old.... And I was just too afraid.
So if Tamoxifen is working for you, I would say stay on it..... what am I missing here? I'm only deaf, I'm not dumb....Ha! Anyway I can still hear a little..... Besides all the Tinnitis is enough noise.....
Cammi, are you still alright? I'll bet you guys were totally afraid!0 -
Thanks Ladies!!
To be clear too, I know I have options with the different drugs, if one is too bad, switch, wait and see. My bigger concern right now if whether to remove the ovaries. The tammy blocks the receptors in the cancer but your bones and heart still get some estrogen and the good things it does for you. the AIs block ANY Estrogen production. That is why the hot flashes can be so bad and the cholesterol can go up, and the bones can deteriorate. That is why I am wondering if I am trading one problem for others. Meds can be switched but once bone loss occurs, hard to get it back.
I hate these effing questions. No good answers anywhere and no right or wrong. I will refer back to the CRAPSHOOT reference!!
Ducky, I do know that people once off the meds, the SEs start to improve and can go away. I can only speak for me, but if I was in your shoes I would really have to think twice about taking something that makes me so miserable. Have you tried the tamox? or just the Let.?
Cami, you are right we can't handle the truth. The truth is there is no money in healthy people. If you give someone a vaccine or a cure, they are done paying you. If they are "infected" (sorry I refuse to see it as sick!) then you can string them along on drugs, tests and treatments forever. Until the gov't takes over the whole system, then some of us will be deemed too far gone for treatment. Bastards!
Thanks Wren! You too Chevy. Going to get ear candles for my kid this week. School sent a letter he failed the hearing test. He was like, "yeah, whatever" so I told him I was going to shove something in his ear and light it on fire! We have had them flushed before and they clog up bad!!
Thanks for your input too Sas!
Sorry if I missed anyone but if I go back that page I will lose this. Well I guess I could copy and paste it back, but I have groceries to put in the freezer.
Thanks Hoolies!!
Thinking a good thought for you Di! Let us know how you are doing!0 -
4......pm coming your way.
Lilli0
