STEAM ROOM FOR ANGER
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we dont know what happened to the people who were here and left the boards. Many left because of board issues. Many are doing well,as not everyone succumbs to cancer. Many dont read this board because most of what they see is problems and struggles. My mom is one. She's keeping her sanity by not reading this board. She visited 1 time and said way too depressing. And she does have nasty ses from AI. But in her mind, if she spends too much thinking about it shell get depressed. So she doesnt, goes along with it is what it is for things she cant change, and her spirits are not bad. Kind of like how you think so you shall be. I really like the eastern zen way of thinking. They have the same problems everyone has but how they think keeps them grounded.
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As nurse since 1974 and a polio survivor from 1952, Cancer sucks. There are other conditions that can be so life sucking. LIFE SUCKING. That the enjoyment of life is sucked from that person. Comparing life sucking ailments and saying which is worse, is cruel. You haven't walked in their shoes.
Do not assume they had control of what was occurring.
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how we manage not to be sucked out of living is key imo. Of course its hard for many no matter what the issue, but why not just try some eastern medicine as well for those who haven't like relaxation, breathing, visualization exercises to try and keep grounded? When i was in the psych ward i thought it all was bs and nothing can help me. My therapist said i sounded like a frog with all the yeah buts i said. It was funny i will admit, and got me thinking every time i said yeah but. Took a long time but it helps me and many others with dealing with shitty stuff that we dont have much control over.
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Oh my goodness Runor...that was....that is to say...oh my....damn f@$ing hilarious. Your head and my head may have heard each other across a few oceans but my voices are nowhere near as articulate as yours 😅🤣. Thank you. I was here to rant but...now I just can't.
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another morning with coffee and a smile courtesy of Runor. Thank you my friend. I adore your sense of humor. To no end. I think of you everyday! Much love to all~M~
Waving hello to roseabella! 😊 hello there !
Everyone have a cancer thought free day! Very hot hot hot today.
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I will be the one you know that died choking on something ... only it won't be a hot dog. It will be my nightly pills, that are supposed to extend my life, that end up ending it early. Ironic, no?😳
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Runor, thank you for articulating the conversations in my head! ROFL😂😂😂
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https://www.cancerhealth.com/blog/dear-every-cancer-patient-ever-took-care-sorry-get
Everyone who does Facebook has probably seen this but I just read the whole thing today. Very good stuff. Affirming. Validation of our views and feelings.
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We should get an apology from each and every one of them. I’m tempted to email it to my doctors. Thanks jaycee.
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wow - just wow. Thanks jaycee
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Wow. Thank you for sharing that. Now I just need to stop crying...
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Runor you can end the war. I know you know you can.
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But then what would she do for entertainment? Maybe should should write a script? Runor the Playwrite!
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Speaking of belittling someone's afflictions. Did anyone see the video of the ER doctor going off on a young man suffering severe anxiety? I think she was assuming he was after drugs. How many of you guys had a doctor either not prescribe a pain med or give you an incredible small number. Personally, I can't handle most drugs prescribed for pain. I get really bad nausea, dizziness, vomiting and the dreaded constipation. When I got my cancer dx and had panic big time doctors were handing out lorazepam whatever I needed to get me through the rough 2 months ahead of me.
I would rather walk on hot coals then go to the ER. I hate that place, if I am there it is urgent.
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The thing is it’s not over after two months. We don’t even know what hit us at that point, but we’re not dead like runor’s cows. I just had a recent very bad experience with a new doc. I’ve really had it with wasting my time trying to get help. I did see the video, it doesn’t get more obnoxious.
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marijen, sorry to hear. I did have one time when I had to have an mri biopsy on an area the routine mri found. My oncologist called me saying it is something and I don't think it is fat necrosis after 5 years. I got that absolute sick panic NO I can't go through this again. I took a pill settled down but ugh.
As soon as they got the biopsy results confirming fat necrosis I went back to normal. That anxiety is crippling. I really feel for that kid, it was so bad he passed out playing basketball.
I would want to know if I need pain relief or anti anxiety meds I wouldn't be given a hard time.
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They are all scared silly by the govt. And they have no idea what’s going on with us unless it happens to them. What is the painkiller that agrees with you? Have you heard of Pain Contracts where you get to have surprise pee tests? Because of abusers they don’t trust even old ladies. Like TSA. I agree the anxiety is too much. It takes days out of your life. Just like cramps used to do.
Oh and check out the Walmart monitors TSA comes up on the screen. I saw that and looked up. Cameras everywhere.
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"I've really had it with wasting my time trying to get help." Oh, Marijen. That's exactly where I am. It seems that NO help is available from anywhere. I've been to three doctors last week and will see three more this week and I will get nothing. Today, I will try to get help with continuous UTIs from my gyn. Even though my urethra is an inch from my vagina, she will have no input that will be useful. I already know that before I leave to go through the process of having a pelvic exam. Clothes off, climbing on a too high exam table, sitting in horrible chairs, waiting and waiting, having to respond to a perky medical assistant asking how I am (how do you THINK I am?). Then the doctor will brush off my problems and I will let her because I will be so anxious to leave that place. But what choice do we have but to keep trying? Just be in pain forever, I guess. I am already in pain from taking antibiotics continuously for almost a month. My wonderful urology NP is leaving, their portal doesn't work, their phone system doesn't work. What am I going to do when this comes back yet again? I like to have a plan. I've had lots of plans. None of them have worked. I give up. But you are not allowed to give up.
I'm sorry if you are reading about my issues over and over. I have posted them on multiple threads because this forum is my only outlet.
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Morning Jaycee, I’m here after two hours sleep that I couldn’t get help with. No don’t be sorry about posting your troubles here. A UTI ongoing is very serious. It can lead to sepsis and land you in the hospital. Last week I smiled through a horrible inquisition! I can’t believe myself except I was so tired from not sleeping and also just wanted to get out of there. I am thinking of going to a different medical group. When you have your three appointments could you ask them who you can go to get help? Or tell the gyn you want a referral to a urologist?
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Oh, Marijen, I have a urologist, the one where the portal is broken, the phones don't work and my NP is leaving. She just couldn't take it anymore. But she is the one who prescribes Cipro over and over even though I tell them how much it bothers me. That conversation is always with a nurse on the phone who could care less. She just wants to get off the phone. Me, too. Well, I shouldn't really complain about the practice too much. They let me show up with a sample without an appointment and send it to the lab. At least they used to. I always call first just to be nice and last time they said they would call me back. The dreaded call back. Maybe they will. Maybe they won't. How long do you wait before trying something else? It's just that the whole process takes so long. Symptoms for a few days that I try to ignore. Trying to decide which doctor's office will be the least annoying. Usually, uro wins that one but his waiting room wait is very long. Getting to doctor's office. Waiting for results. Waiting for call from doctor's office with Rx or whatever. And the whole time I'm waiting and waiting, I'm in pain. And things I take for pain cause other pain. Can you tell I'm extremely frustrated? Very. Oh, and then there is cancer. Pet scan results tomorrow from an MO filling in for my regular MO.
I am entertained, though, by the new computerized voice system they use for appointment reminders. Have you ever heard a computerized voice say "Ramadevi Medavarapu"?
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I just typed a long reply and my Ipad erased it one letter at a time. So I’ll just say that today do not respond to perky, you’re not required to do that. Put on a sad-in-pain face like how you feel. But I’m not sure...what else can be done for UTI’s? Fingers crossed for you. Let us know
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I have had to go to the ER twice with severe back pain due to slipped discs. The first time they gave me enough Percocet to last a week. The second time, 7 years later, they gave me exactly 4 pills to get through from Fri to Mon. The difference? I had been diagnosed with bipolar disorder. I also have a lot of med allergies. This apparently makes me a drug seeker. I've been to the ER a few other times since then and i can always tell when they get to the bipolar part.
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Hi Jaycee,
I haven't read all the way back through your posts regarding your continuous/frequent UTI's. But I had the first one in my life back in December and then again in May. I never dreamed it would be so uncomfortable. Both times, I got the quick test in the doctor's office but they also cultured it out to see what antibiotics would work. Started me on Cipro, but changed when they got the results back. First one was klebsiella bacteria, second one was e. coli...which meant that the antibiotic that worked on one didn't work on the other. Just curious as to whether your doctor is doing this. It's crazy not to and just continue on with the same antibiotic that's obviously not working. Plus that wreaks havoc with your natural gut bacteria. Also...have you tried a good probiotic? I don't mean to be all "up in your business", just trying to think of something to help.
Misty
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Misty, good to know for all of us! Thanks.
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ARTEXASQT, I never take antibiotics without a culture. I buy sterile containers online and use those to take samples wherever. I also buy the test strips online and test a sample first. I'm an old hand at this. Been doing it for YEARS. The cancer drugs just add to the fun. They keep my white count low and my lady bits dried out. I take at least three probiotics every day. They actually work, which is more than I can say for some drugs/supplements I take. My gyn spent at least 30-40 minutes with me. She is very good. She just replaced a gyn I've had for years who retired recently. I'm really glad I got another good one. She did two vaginal cultures and is testing for everything. She really renewed my faith in doctors for the moment. Not all of them ... just her.
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Marijen, I really tried to keep my face at least serious (thinking of your advice) but I love to joke around with the nurses and get in a dig at the same time. They are another office with a skinny counter at check in and that is one of my pet peeves. I have a photo on my phone of the one office in town with a wide counter and show it to them. It is wide enough to get out your insurance cards without dropping anything, even if you use a cane and drag around oxygen tanks. (No, I don't do either of those things but have seen people struggle with both at a narrow counter.)
I have to go look at your PM now to remember what else I meant to tell you. Gyn appointment was a success. I really like this doctor even though the practice is very child bearing centric. Everyone in the waiting room was pregnant.
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Great news Jaycee! So glad it went well today. The photo thing is something I would do too! Great minds think alike?
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Mustlovepoodles, several of my MS compatriots have a much harder time getting pain meds now than they used to. Always being accused of being drug seekers. Real pain needs real drugs. I hate this "all in your head" crap, too.
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This pain med hysteria has gone way overboard! I am still pissed off that after my lumpectomy, and hemorrhage and then all the internal sutures ripping out as my boob blew up like a beach ball, and she operated on me AGAIN that same day and sewed all that hamburger back together again and I was black and blue to my pubic bone and I got Tylenol. Plain fucking Tylenol. I was in so much pain I was almost vomiting. It was INHUMANE that I laid in that damn hospital bed barely able to breathe for pain. And the pain lasted for weeks! I'm usually pretty tough but that pain landed me back in the emergency room two days after surgery because I could not move. Could not breathe. Could not blink my damn eyes without daggers of tearing, ripping pain. Next time, I'm going to the tack shed and getting the stuff we sedate horses with, putting it in my purse and if they offer my Tylenol I'll take their damn Tylenol then snort a line of horse meds and not feel a damn thing, for a week. Stupid hospitals. Stupid policies.
Jaycee, I think it is cruel and unusual that they make you go through the whole culture routine and wait and show up for prescription. I reached the point with my endless bladder infections that I said NOT PLAYING THIS GAME ANYMORE! And screeched until doc wrote me a scrip for a big ass bottle of bladder pills and I ALWAYS have some in the house and take one at the FIRST sign of uh-oh. Also, I used to take something called pyridium (spelling?) It is a pain killer mostly for bladders, I think. It makes you pee brilliant orange. If you are a guy you can write your name in a snow bank amazingly well! It does not get rid of infection but sometimes takes away that AAAGGHHH feeling that often accompanies a bladder infection.
But our medical system gets a failing grade for pain management.
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if I’m not mistaken, the bladder pain killer is now sold over the counter by the name Azo. I used to get the prescription stuff too & couldn’t wait to take it. The Azo is not quite as effective which reminds me to ask my doc if taking a larger dose might help. Knock on wood I haven’t had an uh-oh in a couple of months (think I’ll say a few thank God prayers now). I also found out, the hard way, that steroids will make a UTI even worse. It is insane how much our lives are like walking a tightrope that only we who go thru this every single day understand. Hugs to all
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