STEAM ROOM FOR ANGER
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I think I can take codine, that one is suppose to cause people problems. I have had tylenol with codine with minimal unwanted effects. I can not take percocet, i will puke, dizziness too.
I had a root canal, first time, dentist prescribed pain meds. I got a letter from my insurance saying how dangerous the drug was. One dose can cause addiction. What a load of crap. I was too afraid to take it. Luckily I didn't have pain from my root canal.
Everyone is a drug addict until proven otherwise, good grief.
I am interested in marijuana put I don't want to get high. I believe one type doesn't csuse the goofy high. I still have uncomfortable nights, joint pain and dreaded ichy skin. I love benedryl but it leaves me groggy next dsy.
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You said it Meow. They give us the drugs after they cut burn and poison and then we are drug addicts. There ought to be an exemption for cancer patients. I doubt the politicians have any trouble getting whatever healthcare they need too.
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supposedly there is an exemption for cancer patients, but not for surgery for cancer patients. Lumpectomy? That’s nothing...have some Tylenol - bullshit! ORMA is advertising their great new pain management regimen for Natural tissue recon and how after surgery all the women need nothing more than Tylenol. A big part of the regimen is drinking Gatorade right up til you enter the hospital on surgery day. Sorry, I’m not buying Gatorade being a huge pain helper. And yeah all the women “need” is Tylenol because that’s all you’ll write for them. If you refuse to write anything stronger despite the woman being in more pain than Tylenol can handle it shouldn’t count. Wonder how long before someone sues over witholding pain meds or not giving enough for the level of pain/length of pain as cruel and unusual treatment. Pain & suffering monetary awards, anyone
Tylenol with Codeine or Tylenol 3 rarely works well in adults but does amazingly well in kids. I’ll take the immediate release morphine or Norco, thank you very much.
On the bladder infections, Cystex is another good option that works similarly to AZO without turning your pee orange. Works pretty quick and I think it works better than AZO, at least that’s my experience. Uricalm with mannose-D works great for UTI prevention. And for once, it’s a medicine that doesn’t taste bad. They are chewable tablets that taste like Spree candies.
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Lula, is it true that if you get off Norco you’re more susceptible to overdosing if you go back on? I was reading that today. Or is like Meow’s scare letter?
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My doctor almost fainted when I told her when I stopped exemestane I stopped the paxil. Cold turkey I didn't have any noticable discomfort or withdrawal. I guess we are all different.
I do remember a long time ago 23 years ago after birth of my youngest I took codine for pain. I must have taken another dose too soon and got terrible diarrhea. The meds I had in the hospital when I had DIEP gave me horrible constipation. Ugh, better medicines needed.
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There is a new non-narcotic painkiller coming. I have a link for it somewhere. Until then don’t have surgery?
Afriend told me tonight she stopped lexapro and trazadone cold turkey - no insurance. Didn’t feel better for six months.
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Regarding UTIs, I used to get them often. I started taking daily cranberry pills, and I haven't had a UTI since. It might be worth a try.
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My sister was addicted to pain meds, it's a horrible, vicious circle and really hard to get out of so I was super nervous about taking the oxy they prescribed after my surgery but I did because it hurt so bad. Then the constipation happened...... I was sooo not prepared for feeling as full and tight as a tootsie roll. OMG that was so painful, I called my sister and asked her how in the hell do you get addicted to that? She said you take a lot of laxatives too...... geez. I am so glad she is clean and sober and that I had no desire to do anything but flush those meds.
I am hoping that my journey won't include more surgery but if it does at least I feel better prepared maybe?
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The Uricalm with Mannose D for urinary tract health I mention above also contains a cranberry supplement😀
Marijen- can you send me a link to the article you read? I did a quick search but nothing came up.
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Lula73, all of the OTC urinary pain relief products are the same ingredient, Phenazopyridine hydrochloride. Azo has one. (They have other urinary products, as well.) Walgreen's has one as does CVS and I use one called Uristat made by the Monistat people. Uricalm is the same thing. Not for prevention. There have been several studies recently that have shown cranberry to be ineffective in prevention. Uricalm may make other urinary products but it's main one is for UTI pain.
Now to burst runor's bubble. If you take antibiotics BEFORE a culture, you will ruin the culture's results. I need accurate cultures to determine what antibiotic my bacteria is sensitive to and what is is resistant to. Sensitivity data run with the culture tells you (and your doctor) that. What I don't understand it that the sensitivity data always list multiple antibiotics that are sensitive but they always use the same few. Cipro causes me major neuropathy. It's a large warning on the label, especially for people with CNS issues. And, I just figured this out: you can have neuropathy in your crotch and butt. Guess what neuropathy in your crotch feels like? A UTI.
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Meow
I think you may be sensitive or allergic to opioids. Percocet contains opioids!!!
I'm allergic to all opioids and cannot take morphine or anything like it after surgery. It's a bitch as they are the best pain killers - of course....
GP
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Lula, I agree, Gatorade is not a pain reliever. However, through four surgeries, I have noticed a BIG difference in nausea/vomiting depending on how hydrated I was. Maybe Gatorade could help with nausea/vomiting, but I don't remember being in less pain when I was more hydrated. My Gyn Onco told me to drink close to a gallon of water the day before surgery, preferably plain water, not something with a lot of additives in it (so NOT Gaterade).
Here in NJ there is a big push to solve the opioid addiction crisis. Very strict rules about writing opioid scripts. The first script can be for up to 5 days supply at the lowest effective dose (even for surgical pain). The second script can not be written before 4 days after the first script, and is for up to 30 days supply. The third script must have a "pain management plan" in place with the script.
https://www.njafp.org/content/new-prescribing-law-treatment-acute-and-chronic-pain
Goodprognosis: Although they are similar, not all opioids act the same in each person. The few times I've had Codeine, I felt dizzy and worse. My doctors prescribed Vicodin (Hydrocodone-Acetaminophen) after neurosurgery and Percoset (Oxycodone-Acetaminophen) after BMX/BSO. I did well with both of those combinations.
Meow, anesthesia medications are known for causing constipation.
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Here it is Lula, is Vicodin the same as Norco?
Is Withdrawal Dangerous?
Although withdrawal from Vicodin use can be very uncomfortable, it is not life-threatening. But there are complications that can occur which can be dangerous.
If you vomit and then breath in stomach contents into the lung, aspiration can occur, which can cause lung infection or choking. If you experience vomiting and diarrhea, they can cause dehydration as well as chemical and mineral disturbances in your body.
The biggest danger from detoxing from Vicodin and other pain medicationtakes place when someone decides to start taking the drug again. Because going through the withdrawal process reduces your tolerance for the drug, if you returned to taking Vicodin at the level you previously took it you can overdose. Most Vicodin overdose deaths happen for people who have recently gone through detox and withdrawal. Overdose can occur even at a much smaller dose that previously taken.
https://www.verywellmind.com/vicodin-withdrawal-symptoms-67822Maybe these people have been on very high dosages
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Vicoden , I was given that one time NEVER again I would rather have the pain then the dizzy puking I went through.
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Well I never knew people were allergic to painkillers. That’s too bad Meow, because NSAIDS aren’t good for the heart and other things.
Painkillers might provide a respite from pain, but they can do serious damage to your cardiovascular health.
A research team led by Michèle Bally, of the University of Montreal Hospital Research Center (CRCHUM), found that the use of nonsteroidal anti-inflammatory drugs (NSAIDs) can significantly raise the risk of having a heart attack — after just a few weeks of use.
The researchers published their findings in the BMJ, a peer-reviewed medical journal.
An expert interviewed by Healthline said that the findings add further insights into the existing body of evidence on the negative side effects that can come with routine painkiller use.
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Marijen - that is a VERY interesting study!!!
When I was having issues with (what I think was) radiation recall (or some kind of skin reaction due to having received radiation) - right breast turned red - my MO prescribed HIGH does of "Aleve". It didn't really do much. And, I was scared to death that this was IBC.
I know this is a different topic - but - along the lines of MO's not doing even research.
I had multiple ultrasounds - because my MO and RO - were stumped about what was causing my breast to be red.
After I did a little research, about skin sensitivity to the sun (even through clothing), I put SPF 50 on it. And, the redness - DISAPPEARED!!!!!
Go figure - SPF 50!!!! (after all of that!!!!)
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On the UTI topic, the Uricalm I was recommending is the one for Urinary Tract Health not the one for UTI symptom relief. Here’s a pic:
Cystex for UTI symptom relief and AZO for UTI symptom relief both have the analgesic in them, but Cystex also has an antibacterial agent in it that helps inhibit the progression of the infection. AZO does make a version called Urinary Tract Defense that has both in it like the Cystex, but their standard one that advertises Maximum pain relief from UTI does not. Uristat, Uricalm Max/Maximum Strength Uricalm only have the pain reliever in them.
Marijen- thanks for posting it. I did see that article but disregarded it as it’s mainly talking about people who are addicted to Norco/Vicodin/etc on high doses who detox by either weaning down or going cold turkey who then start taking it again and instead of starting with the lower doses go right back to the super high dose they were last on. Our bodies build up a tolerance to the meds so if you're on them for a long time (like someone who is addicted or someone with chronic pain) it takes more pills/higher dosages to have the same effect as time goes by. Detox takes the body back to/near a no tolerance level, so when an individual takes that super high dose after detox it can kill them. Recipe for disaster. We are in a very different situation where we have surgery and take the meds for pain for a few days to a couple weeks, stop/wean off them, then a few months or so later have another surgery and take them again for a few days to a couple weeks. Each time we are starting back at the lower dosage and we typically also are not on them long enough to build up a tolerance either. I hope this explanation helps put your mind at ease!
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Lula, that Uricalm Cranberry looks interesting though none of my local pharmacies have it. Amazon? Could you look at the box and see how much D Mannose it has? The D Mannose I bought ("Now" brand at Amazon) says 500 mg on the front of the bottle and 1500 mg on the ingredient list. Confusing.
My MO appointment this morning was very good. PET scan June 6 is all clear. That sure changed my mood.
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I have a friend that swears by that.
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Danzing Elizabeth, I had the same thing as you had, Radiation Recall or Delayed Breast Cellulis. I had the orange peel, bright red, triple size, six weeks after radiation and they had no clue what to do about me. They gave me Keflex, prednisone, and IBC biopsy. I went to twenty PT for LE visits. Then the next year on the first hot day it was back but not as bad. And back to PT from June to Dec for 10 more visits. How don't they know how to deal with this. The second time after trying everything I put NO-AD sun lotion on it and the redness disappeared over night. I also had to go to a different Medical Group for the PT because their own people didn't want to touch it - afraid they would spread cancer??! The active ingredient in NO-AD was Avobenzone 2%/
Thanks for that great explanation Lula. People that write these articles should be more careful! Lula you are right, there was only that one article, I didn't see anymore. Also opiods with benzo's slow the breathing and can cause death. We have to think for ourselves, 15 min appointments don't cut it. I can't get my doctor to discuss anything, instead she sends me off for tests when all I want to do is get more info. Like what cause swollen lymph nodes if it's not cancer. I looked it up of course.
PS the most popular and nicest girl I knew in Junior High died from opiod prescription for an ankle break (65). Be careful everyone!
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Jaycee49 - That is Excellent news!!!!!!!!!!!!!!!!!!!!!!!
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Marijen - YES - I don't know if you remember - but - I was actually previously under name of "Scared67" and your advice on one of the radiation boards - REALLY helped when I was going thru that crazy time with my redness issues!!! (I'm just remembering - now)
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Oh that’s great Dancing Elizabeth. It was just a fluke discovery. I was putting the suncream on so when I walked it would provide more protection through my clothes.
Great news Jaycee!
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Dancing Elizabeth, I just remembered I told my MO about the NO-AD and she wasn’t the least bit interested.
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I like Marijen's new narcotic free pain medication (digging in purse for hammer, oh here it is! BONK!) No pain.
Jaycee, you didn't burst my bubble. I am well aware that taking an antibiotic would muck up a culture. I just reached the point where I refused to jump through the hoops and waiting for a culture while a mild infection became a raging nightmare. I did not care what my bacteria was sensitive to. I said, give me some pill that will pretty much kill anything, and I usually had a broad spectrum antibiotic. Also, my repeat infections were generally attributed to the same bug because I did take many cultures for many years until I said, NOT DOING THIS, GIVE ME A PRESCRIPTION AND DO NOT MAKE ME COME IN HERE EVERY FLIPPIN TIME! I do not need a culture to tell me I have an infection, I can FEEL it.
Neuropathy in the bladder? Will the madness never end? Once I took an antidepressant and had an all over bad body reaction to it and one of the side effects was bladder spasms and it felt like I had lost control of my bladder, it hurt, it was the most miserable thing! No anti-depressants for me. When things get bad I just ask Hub to apply Marijen's new non-narcotic pain killer, and deal with the lump on my head later.
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So funny runor as usual! Nothing like a good laugh at the end of the day! Anti-d’s bite for sure. I took one cymbalta and was sick for a week. What makes doctors push them anyways, the duh factor? Don’t know what’s wrong with you so duhtake some of these! Mother’s little helpers. I’m still looking for that link but in the meantime a club will have to do.
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jaycee- great news on the PET scan!!🎉 I checked out the NOW brand Mannose-D you mentioned. That's ALOT of pills to take and it looks like they're on the big side. The 1500mg comes from taking 3 500mg tablets. Then you are supposed to take them 3 times a day. That's 9 pills a day just for urinary tract health! I cannot even imagine. Of course I'm also a horrible pill taker and tell my DH that choking on my pills is what will kill me in the end, so no surprise there -LOL! I'm guessing that dosage is for treating a UTI though based on what I read in various studies? The Uricalm urinary health dose is 50mg D-Mannose + 400m cranberry extract (which also contains D-Mannose). Here's a pic of the back of the box:
Marijen- Interestingly, death “caused by" opioid use in non-addicted individuals is usually not caused by the opioid part of the med. it's usually caused by the acetaminophen part. Acute liver failure from overdose of acetaminophen. Especially when people unknowingly take Tylenol on top of the Norco/Vicodin.
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Thank you, Lula. I have to apologize to you and runor both for being snotty earlier. I always get nasty while waiting for scan results and then get (sort of) nice after I get them, especially if they are good. I need to figure out what I am going to try next to avoid another UTI when the 10 days of Cipro are up. That will be Sunday. Maybe D Mannose? Uricalm? There are so many possibilities and combinations, a trial and error approach would take forever.
runor, I know you know that a culture is required to see what antibiotic will work. I may opt for your approach. Most of the bacteria I have had have been susceptible to Cipro and I always end up with extra of that. I'll just keep it around and take as needed. There is actually research that shows this approach is viable for many women. I also got a supply of low dose (125 mg) Amoxicillin for suppression. It s a children's chewable. Then there is a 100 mg Cipro I may ask about, also for suppression. I just don't know how much more Cipro caused CNS damage I can stand.
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Jaycee, I in no way felt you were snotty. I'll have to watch myself to see if snottiness is a new effect of all this cancer bullshit. I have heard myself once or twice threaten to kill someone and not feel the least worried or remorseful because "I have cancer and am going to die anyway, so shooting you and going to jail for it, pffft, no biggy." One could call this snottiness I suppose.
I believe in past I did have a broad spectrum that was most often the Amoxicillin that you mentioned. And the idea that you have to take a pill twice a day for 7 days is NOT always the case. The jury is out on this and I was told years ago that they were finding if you took a pill at the first sign of pain, then maybe two or three more over a day or two (however long it takes) you are fine to quit when you feel better. 7 days not necessary. Knowing that sure cut down on the yeast infections! I can take a day or two or three of antibiotics and not get a yeast infection but 7 days and I've got antoher battle on my hands for sure.
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