STEAM ROOM FOR ANGER
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A new low. Called to make the followup MO appointment after the confirmation of metastasis and was told there were no MO appointments available, but I could make (an initial) appointment with a Nurse Practitioner...... Unbelievable. Might as well rely on my husband.
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If I remember correctly they had 42 patients when I was there. At 15 mins. a piece, that makes for a 10.5 hr. day. Not counting the breakdowns (some of them patients) and the constant entrance and exit of patients, with the occasional emergency. That dept. actually performs well. It's not like they can say, we're full, go somewhere else or come back tomorrow.
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moving---That's awful. What are you suppose to do? Go somewhere else? You would think it would be protocol for an MO to see a patient themselves after a new diagnosis. I'm sorry to hear your news.
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I guess I didn't realize at the time how well-organized the radiation department I went to was. I think they asked me to change my time twice, by a half hour, when a new patient was having a first day and would need more time. And there was one time when I was offered choices on rescheduling due to a maintenance issue - but they let me know the day before. I can't imagine how they'd handle someone wanting different times every day - it would throw every other patient's schedule off. I never get upset with surgeons running off schedule - I've had two surgeries that were supposed to last an hour and went to four hours due to complications. I know there had to be other patient's waiting, but I was very glad my surgeon didn't rush just to stay on schedule. My appointment with my urologist ran quite late last week, due to an emergency surgery. His staff was very nice about it, and I can't imagine getting upset over it. My MO's office tries to schedule the chemo patients early in the morning, or anyone with complications. I have no problem working around that. Although I'm retired now, I've had to deal with medical and surgical issues when I was employed. I guess my job wasn't critical enough that it mattered when an appointment ran into extra time.
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After reading your rants I appreciate how fortunate I was to be at my cancer center. My oncologist was never late. I could arrive a half hour early and he was willing to see me. Out of 25 radiation treatments it was delayed once for 45 minutes due to a machine breaking down. Chemo was a whole different ball game. There were frequent and prolong delays. Most of it due you to my chemo Pharmacy being under renovation. So all the drugs had to come from the main hospital which caused a significant delay. Of course they never bothered to inform any of us of these delays. Due to my insurance canceling the contract with the hospital and doctors I am now at a new cancer center. Thank goodness my treatments had been completed. I never did get the final follow up with my RO but I did with my BS. My first visit with my new MO was on time. I'm keeping my fingers crossed for future visits.
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Rant on a totally different topic. Not that I really have any say orchoice, but I am done with the colorful weather we have been having in the Midwest/southwest tornado belt. Green is an excellent color for grass. Not for the sky. Water is a fabulous resource in aquifers, lakes, rivers, ponds and oceans. Not in your street, business, yard or home.
‘Nuff said.
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I was impressed with my radiation treatment. Of course, I live a fair distance from the radiation center, as do many others who travel great distances for radiation and as a result there is no going home between treatments. We all stay at a lodge built especially for that purpose. The lodge is a 2 minute walk from the radiation center. You get your robes and a bag given to you and you wear those same robes the whole time, carrying them with you to and from your appointments. You arrive, swipe your patient card through the scanner thingy, put on your robe, go sit in your designated waiting room where EVERYONE in there was getting radiation for something. A volunteer lady would come by with a trolley full of coffee, tea, juice and cookies and offer you a free goodie. But I never sat there for more than 4 minutes before my name was called and I went in for the nuke. Never had time to finish a coffee or juice. Then back to the lodge where you could read, watch tv, or sleep, which a lot of us did. Meals were communal cafeteria style. There was a games room with cards, pool tables, shuffleboard, coffee machine, kettle and a fridge to store special food items in if you wanted. Most people went home on the weekends. But not everyone. If you were an 8 or 9 hour drive from home, they just stayed at the lodge. It was amazingly efficient medical service in Canada, not known for its medical efficiency. But out large distance and shortage of cancer centers means people have to come from very far away for treatment.
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Runor, not bad at all ah? Sounds like a spiritual retairment with 1 minute of frying per day LOL
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Yndorian, I'll tell you a secret. I lived close enough (few hours) that I could have come home on the weekends. I came home one weekend. Had Hub come get me. But the other wknds, I stayed at the lodge. IT was pretty quiet and empty except for the other few who didn't go home.
The rooms were shared, like hotel rooms with two single beds and you never knew who your roommate was going to be. While everyone made the best of a bad situation, there were times when roomies got on each other's nerves. You're sleeping with a stranger! Beds separated by 4 feet and a flimsy curtain. (women always roomed with women and men with men). But I was lucky in that I only had two roomies and they were only there for a few nights each. I had the place to myself. IT WAS HEAVEN! Except for the having cancer part, that was not heaven. And there were many people there who were so, so sick. Over the month I was there I saw people whittle down to skeletons, not able to keep any food in them. That was awful.
I was also bored stiff. I would go out into the landscaped areas and pull weeds. Pick up garbage. More than once I walked past the common washroom, heard the toilet running, took the tank apart and repaired the flushing mechanism. Bored. But soon the radiation kicked the stuffing out of me and I was burned and exhausted. I slept a lot. Peacefully. In my neatly ordered, air conditioned room and someone else made dinner. I admit I enjoyed the private space, peace and solitude while being bored stiff, mortified at having cancer and missing my home and family. I'm a contradiction. I still stay in touch with some of the people I got to know at the lodge. One dear lady has passed away and that breaks my heart. I think of her still.
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My radiation place was great. It was just 15 minutes from my work and I was in and out fast and they were so nice to me. I did my treatments on my work lunchbreak.
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My Cancer centre is in Sudbury, which is about two hours from my home. If I would have had rads I would have stayed at the Daffodil Terrace Lodge but I ended up skipping the rads. I was able to spend one night there when I had a really early scan appointment. It saved me from getting up at five am for the trip from home. The place has a lot to offer, but I'm sure I would have been bored stiff after a couple of weeks.
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12 people were shot dead today in my beautiful city. A disgruntled employee randomly shot 12 people at our municipal center. I was in the grocery store across the street when it happened.
I thought I had a bad day because my Taxol leaked all over my back. 12 innocent people were gunned down at work. Damn I had a very good day in comparison. This was way too close to home. My development is named after that municipal center.
Family members of the victims are being briefed at our local middle school tonight. They are all having a really terrible day and I am so sorry for them.
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DawnE1962, I am so sorry for the grief and added stress. I won't say "thoughts and prayers" because it doesn't mean crap without "discussion and action."
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Dawn, there are no words. So sorry.
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Yikes! I am So sorry! No words either! Hugs, that is too close to your home
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That's horrible Dawn. I didn't even watch the news last night and missed it. Those poor families. It does make what we are going through seem so small. I wish events like this weren't so common now
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dawn- how sad and scary. I cannot imagine how you must have felt during the shooting. When are we going to have an intelligent discussion about these mass shootings in our country. No other country in the world has these type of mass killings. We need action and intelligent discussion.
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Dawn, ditto the other comments. So very sorry this happened and that you were so close to it. Also, when will we wake up and take action against this violence?
That said, good to know you were at least physically safe. Cannot not imagine the emotional impact, please take care of yourself.
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i am truly sorry that your community is going through this. Just wrong and terrible. All for what? Anger !!
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Dawn, I am so sorry. This certainly puts other problems into perspective. Venting can be healthy but this is a good reminder to also count our blessings.
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Dawn, what a frighting and incomprehensible fact. Poor souls who are now with God. Poor family members, I'm sorry for all of them. Death is so unexpected sometimes. Take care about you. I send you HUGS from the other side of the world
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Dawn, I just learned this morning, as I don't watch the news much...
How very sad...
I'm from the SF Bay Area and last month a deranged man drove into eight pedestrians in a crosswalk thankfully all of them lived, however, one of the victims, a 13-year-old girl was very seriously injured.....
It breaks my heart, because my daughter is 12 1/2 years old, almost the same age is this girl, and it happened so close to home...and I don't know how anyone could be so evil.
Hugs from across the country..
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I just saw on our news about twins that were born on Wednesday here and the mother died from childbirth complications. Spent the day volunteering for an event for foster kids and the foster parents. Makes my problems and worries go into perspective.
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It makes me cry everyday to see someone died of violence,hatred,crazy drugs.
There's never a day that someone and so many are victimized anywhere in this world.
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BCINCOLORADO--very heartbreaking!
Dawn--so terrifying! but glad to hear you and your family are safe.
It makes me cry everyday to see someone died of violence,hatred,crazy drugs,complications.
There's never a day that someone and so many are victimized anywhere in this world.
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I couldn't have my surgery yesterday because there was no anesthesiologist. Laboral union things again. So, after one day and one night at hospital, dressed and ready to enter to have my surgery they send me back home. My surgery will be rescheduled, it suposse to be next tuesday but it isn't sure, so the wait continues... I'm so nervous!
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That is a Shocker Yndorian! Hope you’ve managed to calm back down......and Breathe
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yndorian- there isn't anything worse than the waiting. My surgery was delayed by 3 weeks. When I was notified I went off the deep end for about 15 minutes. I was pissed. So my advice to you is take a deep breath and hopefully everything will be on track for next week. I can appreciate your frustration and fear.
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Yndorian, it appears your surgery has been delayed 9 months less the time for chemo and radiation What country are you in? Is your tumor still 3cm?
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Marijen: I'm from Argentina. Unfortunely this things are very common here. I'm doing all my treatment in a public hospital. I have had my dx in 9/18, starting chemo 10/18. I'm 38 days PFC. The tumor size is 0.9 x 0.4 now and my armpit is negative ( they still going to take all my underarm nodes because it was positive before chemo). My MO wants the tumor out as faster as posible, I expect to be the lucky girl next week because there is a long list of patients for surgery.
Karen and Joe, thanks for the advice. I'm trying to breath deeply and take it easy.
HUGS
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