STEAM ROOM FOR ANGER
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Jaycee I just found out that PGE has a new website specifically for address lookups and current outage information since their main site couldn't handle the traffic. it is www.arcgis.com
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I've been hearing if we still have power, no pge shut off. My aunts are in San Jose. They're fine. It doesn't go by city. It goes by the grid you share. The red alert will pass tomorrow. Pge is already inspecting lines and some areas are being restored. You should be fine for mon unless where exactly you are going is out. That's where the uncertainty lies, when power will be restored where it's down. I wouldn't cancel a San Jose trip. If it was Napa or up there would be a consideration. They are always hit this time of year.
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ps.. your son can sign up on pge site for text alerts. I got 5 yesterday saying power in my area is going off soon. Still up! That site Lori posted just said for me that power may go off if needed. No duh.
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Just confirmed on kpix local news...if you have power it won't go off.
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That's good news for you Artista! Winds have just started down here in SoCal so everyone is on standby over the next 24 hours to see if they are going to lose power.
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Gotta love SDGE and their communication!
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Two rants today.
- My MIL has been diagnosed with ulcerative invasive melanoma, it's nodular and >10mm in depth. Ulcerative, invasive, and iodular are all indications of advanced stage. She's 83, in a nursing home with early Alzheimer's and is my husband's only surviving parent. She's also the sweetest person, I adore her and this STINKS.
- I sent a message to my MO a week ago about the heart rate issues that started after I went on tamoxifen. In that email I said that I'd stopped (gave the date I stopped), and mentioned that a couple of other minor side effects started around the same time but weren't the reasons for the message. I don't think anyone actually read the message, b/c today the RN was all "hot flashes are normal" about it. YES, I KNOW THAT. The HEART RATE ISSUES are what concerns me.
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edj you might need to call and actually try to talk to a nurse if possible. Explain you understand the hot flashes are normal but heart issues are not. Explain what happened to your BP and give her real numbers of what they were if possible so they can document in your file. Sometimes I think they just skim over some parts of what they see if you ask me.
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I'll see the PA next Thursday--hope he/she listens better than that nurse comprehends text!
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What is with the billing of mammograms after the so-called cure? Ever since I had treatments and was told that the cancer was gone, the mammograms haven't been free. "See you again in six months". Talk about a kick in the you-know-where! OK, I'm a little off. The mammo was free but the doctor who looked at the images and offered her "opinions" charged me over $150.00. Is it the coding to the insurance company? Or rather, have we been dumped in to an ever growing bowl of "look! they got cancer, now we don't offer fully covered mammograms! Yippee!, more money for us". The "free" one didn't catch my cancer when I believe it should have, thanks to density of breasts. Makes me want to stop going.
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It is probably the case that you are getting Diagnostic Mammograms for the next few years. Then you will go back to Screening Mammograms, which are less expensive.
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And the diagnostic mammograms are the same as the screening ones. They just cost more. Ridiculous
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According to the article below, diagnostic and screening mammos are not the same. The article is a very simple explanation and doesn’t address cost
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exbrnxgrl- I'm glad I'm wrong about it. I was going off what I was told about screening vs diagnostic colonoscopy. Which could also be wrong information
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It might be coding.
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I don’t get why they send us for a mammogram every year but neglect screening on the rest of our bodies as recurrence is 85% distant and only 15% local.
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I hadn't thought of that marijen, thanks.
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marijen, where did you get the information that recurrence is 85% distant and only 15% local?
It's actually different for everyone. Those who have a MX generally have a very low local recurrence risk - usually only 1%-2%. But those who have a lumpectomy face a risk that is more in the range of 10%-12%. That's an average for everyone; someone with a small low grade cancer and good surgical margins might have a local recurrence risk of 5% but someone else, with a large and/or aggressive cancer with narrow margins, might have a local recurrence risk of 20%.
As for distant recurrence risk, this can vary from as low as 4% or 5% (or lower) for those who have non-aggressive cancers and low Oncotype scores, or as high as 30% (or higher), for those who have aggressive cancers and/or high Oncotype scores.
So for some people, local recurrence risk will be higher than distant recurrence risk, and for others, distant recurrence risk will be higher than local recurrence risk.
When it comes to breast screening, for those who've a a lumpectomy or UMX, the other consideration is that they also face the risk of a new primary breast cancer. Once we've been diagnosed with breast cancer one time, our risk to be diagnosed again - at any point in our future lives and in either breast, and possibly with a different type of breast cancer - is about double that of the average woman who has never had breast cancer. For many women with DCIS or early stage invasive breast cancer, this could be the highest risk they face, higher than local recurrence risk and higher than distant recurrence risk from the previous breast cancer diagnosis.
So breast screening aims to find both local recurrences and new primary breast cancers. Combined, for most women those risks are greater than their risk of mets. Not for everyone, of course, but for most of us.
As for the effectiveness of breast screenings, that's a different topic!
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That's what I was thinking Beesie!
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Well I'm still looking for it. I posted an article/study somewhere here about two years ago I believe. Either at Stage II Sisters, or Will 30% Go On to Metastasize maybe. Anyways the percentages would be like 85% of the 30% that metastasize and 15% of 30%. So Beesie can you figure that out? Does it fit with an average of your figures? Needless I am not happy that we don't get some kind of full body screening just to be sure.
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marijen, I'm totally guessing here but if the article you read was about the 30% of early stagers who metastasize, perhaps they were saying that 85% develop mets without there first being a local recurrence, whereas 15% develop a local recurrence first and from there they develop mets. I don't know if that's what the article said but that would make sense. I do know that the vast majority of patients who develop mets do not first have a local recurrence - their only recurrence is metastatic.
If that's what the numbers you saw refer to, then there was no discussion at all about local recurrences that never develop into mets, which is the majority of local recurrences.
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That sounds right Beesie. I am most concerned about distant recurrence.
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Studies, etc. are what they are. But each individual (as we all know) are unique. Isn't it better to err on the side of caution or catch it before it gets full blown? I knew several who's insurances wouldn't allow for further testing even though the chances were possible there. Some of them also waited because, "if it feels worse...go to the immediate care/hospital". "You know your own body". A doctor recently took a chance with me to have me tested for heart problems (possibly a result of meds or maybe not) even though it's probably good old anxiety. She says it's their job to err on the side of caution.
P.S. Before I started chemo over 2 years ago, they did a PET scan from head to knees to just make sure that it hadn't spread. It took me more than 6 months to convince them that I should have a DXA since my joints gave me problems for years anyway. They agreed to do it FINALLY, right before radiation treatment started, as a base line and since I was told that bones could be effected. Numbers shnumbers! I'm picturing myself telling them that I was right, after I break my hip from a fall.
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Sorry gang but I need to vent some rage about cancer! It took my buddy Joe this morning!
I wish cancer would get itself and F&$%#*^ DIE!!!!!!!!!!!!
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MOmmy, sending hugs to you in your loss. Even when we know the end is near, it still hurts mightily. Take care of yourself as you grieve Joe's passing.
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MOmmy, sending hugs to you in your loss. Even when we know the end is near, it still hurts mightily. Take care of yourself as you grieve Joe's passing.
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Thanks! My heart is shattered into a million tiny pieces.
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Mommyof2, My heart goes out to you, your family and friends. It is so hard when fucking cancer takes our family and friends and every person lost is a tragedy. Healing thoughts and sympathy are coming from me to you and your family. I am so sorry.
Sorry about the swearing but I lost my mother to cancer and I have stage IV and it really makes me angry when this disease takes the people we all love.
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Yeah. I am ripped up inside while trying to help another friend deal with this. Joe was like a kid brother to me and it really hurts.
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I am so sorry for your loss mommyof2. Cancer is awful no matter what kind it is.
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