STEAM ROOM FOR ANGER
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Jaycee, wishing you the best results from the radiation, and I hope you tolerate them well. Many people seem to, which is encouraging.
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Jaycee - wishing you great results from radiation and kicking the big C.
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My new RO last name is Call. Think about the ramifications of that.
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Jaycee, bummer but at least there is something to try, especially in " normal person"mode. Hoping for the very best outcome for you. Stay in charge!
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Jaycee, sending you strength & peace b/c this just sucks.
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Jaycee,
The insomnia sounds awful. Best wishes for your radiation treatment.
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Jaycee, I am so sorry. exbrnxgrl has a post about cannabis. Have you thought about using it for insomnia and nausea? keeping you and JCSLibrarian in my thoughts.
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Jaycee, I am adding my good thoughts and wishes for you, hoping the WBR gives you relief and helps you function better. You have really been through the ringer lately.
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Jaycee - wishing you all the best with WBR and that your able to get some ZZZZ's too. Thinking of you my friend.
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Rhosgobel - well. Don't I feel dumb. Here I thought I got cancer due to cosmic shitty luck. All along it was me not washing my vegetables. Now I regret not smoking cigarettes knowing that it was vicious veggies that were going to take me out. She couldn't talk about herself like that? I do not know how passive aggressive people can say this shit with a straight face. I really don't.
I am pissed off and gobstopped on your behalf.
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well said runor
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Jaycee and JCSLibrarian...my heart goes out to you both. (((hugs)))
Yes, well said runor.
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Things are moving very quickly right now. I had my radiation planning yesterday. Now I am off until Tuesday. I need the break. Lots of issues and questions but I plod along. I put this in steam because I have a nurse at this new doctor's that I really don't like. Her name is Shirley. She talks to me like I am an idiot where it is actually she who is. I will have her every day the entire time. Sigh. Otherwise, my new RO is wonderful. We talk forever about all kinds of things. The steroids are keeping me awake all night but they got rid of the brain swelling so all other symptoms are gone. I am incredibly wired. Jumping out of my skin. But I don't feel bad at all. No pain, no sickness at all. I will post in steam, death and dying, and wherever. I will NOT have my own thread. People don't last after that.
You people need to calm down. You are all too jumpy.
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Oh no! I as someone who has logophenic variant progressive aphasia which is also an FTD disease I know some of this one too. My heart goes out to you. I do not know how much you know about it but there is a good website at Johns Hopkins about it. https://www.hopkinsmedicine.org/health/conditions-and-diseases/dementia/dementia-with-lewy-bodies
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jaycee: we are jumpy because we care. I am sure we are all glad that the swelling is down and you are doing better.
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Hey, Jaycee, you could tell that nurse off and then blame it all on the steroids. Just think of the possibilities.
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Wishing you the best jaycee. They gave my husband a dementia drug along with the steroids for the WBRT. He also took Ativan everyday. I'm glad the steroids are helping and hope that's all you need med wise to get through these treatments. I'm scared for you, it was brutal for my husband, but that was a different situation. I see many here have gone through it with good results.
We do chuckle thinking back and remembering the non stop talking. I never heard him talk so much in all those years!
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Jaycee, I like Shetland's advice. Tell the nurse to piss off then say it's the drugs talking. And yes I am jumpy. I'm jumpy because the medical tape I use to stick my cotton pantiliner in place came unstuck from my panties and glued itself to my pubic hair. When you find your panties are taped to your pubes by tenacious medical tape you jump, then you yelp, then you walk very, very carefully, with your knees touching each other and thighs not moving, to the bathroom to perform a delicate yet awkward rescue. This usually only happens as I'm striding through a mall then all of a sudden, yikes, holy shit, something is ripping my pubes out! It's tape. Medical tape. No way to be cool while this is happening. (rooting for you, you know this. In your pocket to pocket punch nasty nurses)
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runor--how nice it must be to have pubic hair. #chemoproblems
Jaycee--another vote for Shetland's excellent solution to the Nurse Shirley. Glad you're better.
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Jaycee: Elderberry said it all. We do care. Maybe we only know each other from this site but i think about you ladies everyday as I'm sure we all do.
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Oh hey put me in the punching pocket. I can do that for you also.
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Janet, I don't post much anymore, but I read every day, and I'm thinking about you and hoping that the radiation beats back those brain mets and gets rid of the terrible symptoms you've been having for the last few months.
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runor, you need to write a book. I was holding my stomach with laughter reading your latest post. Not that it is funny to be in pain, but to read your oh-so-relatable description had me doubled over in sympathy laughter.
jaycee, let 'er rip and let her have it. If you want pocket duty from a bunch of us, I'm sure she'd hear shrieking from your pocket(s) from all of your ticked off sisters!
Carol
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runor - made me laugh to find out that I am not the only one to have a panti-liner stick to pubes rather than the panti. Even though I don't have many after chemo, it still hurts to rip it off.
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Runor and BlueGirlRedState count me in as a third one who does not enjoy that pulling sensation!
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Ooh, I remember that nasty crotch tangle! One great thing about hysterectomies is no more pads or plugs, although I've kept a small supply of each for years because my brain can't wrap itself around the idea of never having daily leaks or gushers ever again. But as tenacious as those adhesive strips are, maybe it's time to hang the minipads on the patio as a more stylish alternative to flypaper or no-pest strips. 😀
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Alice, please post a picture when you do that. I keep some of those supplies around for when granddaughters visit!
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For an assigned art project one creative student at the college made an entire wedding gown from minipads. It was not only creative but quite lovely. Not sure of its wearability though.
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That sounds....tacky. 😉
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