CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Octogirl: pocket party for you at your appointment as well! and yes, absolutely Crazy Town for one's mind to first leap to mets. (Heck, I'm bracing myself for my first post-treatment mammogram, and the fact that all those scars may show up as a suspicious spot on the films.)
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Does it ever end.......I had a torn retina which the repaired with laser surgery......had cataract surgery, and glaucoma surgery...... Then after the cataract surgery they said I had macular degeneration (early stage).....I told them how come no one ever found that and was told the cataract's were hiding it, and until they were removed no one would have ever found it........and believe it or not my sight is better then some of my kids, and in good light I can read a telephone book.........so WTH is going on with me....LOL.....
None of the surgeries I had was bad.......waltzed thru them all with no problem.....(wonder how that happened)....but I do have to go back quite often which I too cancelled many appts.......always a new excuse.......main one....I hate the damn 2 1/2 to 3 hour time in the office waiting for the eyes to dilate which I do poorly......
But if it's any comfort the cataract surgery was non-eventful, and what a difference when it was done.....but I will make that appt........soon, for sure, well pretty soon.....really I will...........lol0 -
Hey Jersey Girl...I had 1mg of Ativan in the afternoon and one in the evening. I slept like a queen...snoring and all. I needed that. So much on my mind with that upcoming injection on Friday. I am so hoping that I get some temporary relief.
Either I'm crazy...but I think all the crap that has been going on here in CT has went absolutely over my head. I did notice a slight shift...but didn't think anything of it. I mean really, where else can we go to talk about "mets", be scared to death and tests reveal nothing. But you ladies here let us have it and not think any less of us when we complain. My swollen belly...I'm thinking it is something, but no one...not even the oncologists see any problems.
I love you ladies to pieces...I really do.
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Slow...I am hoping that you are getting some relief. My sweet DH suffers with RA and is on all sorts of meds.
Proud...Let me know how you make out with consult about getting the injection. Hopefully for you...it will work the first time and you won't need another injection
Octo...In your pocket too,
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Welcome BlondeDoris! I have met you on another thread and it's good to see you here! We are with you, waiting on good scan results. Pull up a comfy chair!
Split-bean! 🙋 (waves) welcome back!
Shorfi- have been thinking of you. Glad you got some good rest. We need to get those Ativan sprinkles for our fancy coffees around the fire! Thinking of you and many hugs.
Octo- I so get both why you had to wait and why you play the card now. Let's get this over with so we can go back to peering at hair follicles with the magnifying glass. Eye stuff is always scary. I think if you every day. Pulling for you.
Thinking warm thoughts to all of you. I'm on my phone so I know I missed someone.
QMC yes they always warn you after surgery that spots/activity shows up. Crazymaking!
I am very sad this morning that an old friend passed from throat cancer. The friendship was old. He was not. He was not a smoker. He was diagnosed about six months ago. They thought they'd got it. (Had the tx works) His partner and he and I (and my mom- and this was her first up close and personal with a gay and interracial couple- and they all fell in love. She adored them both and vice versa. It was fun to watch) had many wonderful meals and gardening parties together. He was a wonderful man. A university literature professor. Well read and traveled and forgave me many ignorances. The world has lost a beautiful soul. Brings me right up short this morning. I appreciate being alive and treasure the beautiful people in my life. And you all count importantly in that category of beauty. Hugs to all on this sad morning.0 -
Katy...I am truly sorry to hear about your loss. Like you...I treasure the "few" friends in my life...and I really treasure the friendships that I have made here in CT.
{{{{{{{{{{hugs}}}}}}}}}}
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Thinking of you Kathy.........good friends are hard to let go of.......
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Kate, I'm so sorry to hear of the loss of your friend. I'm sure he treasured your friendship too. Take time to mourn and then take Jack back to the beach for some fresh air.
Octo, Eye issues are scary, I know. So glad you go to a university medical center. I go to UCLA every 4 weeks for shots for macular degeneration. Sending a bit of courage as you start your new medication.
Slow, Thinking of you today and hoping you are feeling better. Holding your hand.
Good morning from California, where the sun is shining between storm. Jan
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Eye appointment is for next month and required every so often by my insurance. It's just to see if I need new glasses.
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JAN......MD is a worry.....so far I require no more then minor things to keep it from getting worse.....keeping it in check for now.......hope yours is under control....'hugs
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I am keeping a wary eye on c-town, because what is happening behind the scenes is not over yet. The book of Moroni is involved, and really, I think it should be stuck to. I love c-town, will be reading, and you know what? Sneakiness is one of the character flaws that I find exceptionally disgusting (i.e., editing posts after you have written them, to appear to be 'nicer', than you really are. Gandhi indeed. Hope it helps. I think pretty much, my posts stand. Unless I have edited to add to, and not take away something that I have said. So, I guess for me and slow anyway, that trouble coming down main hat trouble down main street has did it's job, pretty much bowled us over.
So, instead of my whole post being deleted, I had begged the mods to this time let me edit out the part they asked me to, that someone may find offensive, as it does a little too much to remind everyone about who/what/why/where/. So,even though I really dislike edited posts, here goes: Starting here, and ending here.
And starting here,and ending here.... Okay! Everything else is my original! Thank you mods for the opportunity to edit myself, sorry it took me so long, it was a weird day, up to and including the death of David Bowie, whom was dear to my heart. With him dying, there really is something wrong with the world today.
I will tread here lightly, because i am fiercely proud of what c-town has become, but since what happened with me happened, I am ashamed to say, I just don't know who to trust. And THAT, my friend, is the nature of the 'trouble' someone was laying asphalt for.
But to cheer you and I up, here is something from a friend of mine:
"Gandhi"
I had a dream Mr. King If you'll beg my pardon
I was trespassing A sacred garden
And the blossoms fell And they dropped like candy
And nature cried Gandhi Gandhi
And nature cried Gandhi Gandhi
When he was a boy He was afraid of the dark
His mother would fast And pray at his feet
And the lamp burned as he slept Slept as he dreamed
He was dreaming of his sisters Dressed in white muslin
Dressed in white muslin Dancing in a ring
He was afraid of the dark And the lamp burned
And his mother fasted And prayed as he slept
Dreaming of blossoms They were burning his throat
He had eaten flowers Fell burning
Flowers fell burning From the young girls' hair
He was whispering Into his god's ear
Let the children be so Let the children be so
And the lamplight flickered flickered And his mother withered like Job
And he lay there dreaming And the blossoms fell
And Tilak's trumpet Proceeded to call
And the blossoms fell And they dropped like candy
And the people cried Gandhi Gandhi...
I had a dream Mr. King If you'll beg my pardon
I was trespassing The sacred garden
And the blossoms fell Well, they dropped like candy
And nature cried Gandhi Gandhi
Hey little man Awake from your slumber
Get 'em with the numbers Get 'em with the numbers
He was frail and shy And the cast of his mind
Was mercurial Was mercurial
As the sacred verbs Scrawled
In the dust On the floor
On the floor Long live revolution
And the spinning wheel And a handful of salt
And a handful of salt The untouchables
Dropped like candy They called to him
Gandhi Gandhi The children of god
With hands full of candy They called to him
Gandhi Gandhi Feel our woes
Man of the giving Rejoin the living
Rejoin the living Awake from the net
Where you've been sleeping And their climbing climbing
The flowing hair And the golden flowers
Of the young girls Well they dropped all around
They dropped like candy And people cried
Gandhi Gandhi Awake little man
Awake from your slumber And get 'em with the numbers
Get 'em with the numbers
One Two Three Four hundred
Thousand million people
People People...
Awake from your slumber Awake from your slumber
Awake from your slumber And get 'em with the numbers
Get 'em with the numbers Long live revolution
And the spinning wheel Awake awake
Is the mighty appeal Oh, people awake
Awake from your slumber And get 'em with the numbers
Get 'em with the numbers
I had a dream Mr. King
If you'll beg my pardon I was trespassing
The sacred garden And the blossoms fell
Dropped like candy And nature called
Gandhi Gandhi Gandhi Gandhi
Awake from your slumber Awake from your slumber
And get 'em with the numbers Get 'em with the numbers0 -
Hi crazies--
Figured I'd better post before the list of people who've gone before me got any longer. So many crazies, so much activity...
Ducky, it's hardly surprising you have mixed emotions about giving up the shore home. It will be a relief to have it done, but even so, it was a big part of your life, eh? Meanwhile, though, 5 years out: that is something to celebrate!
And the same to you, JAN69: 5 years!
Lucy, your early morning beach photo is so tranquil. Makes me, I don't know, want to board a plane! Glad you and DH are finding retirement more a blessing than not.
Katy, so very sorry to hear about your friend. He sounds like a very special person, not to mention a link with your mom. Your quilt is beautiful, a serene piece of original art. I love the colors.
Cubbie, I lived on seltzer and lemon juice during chemo. For all of you lemon addicts who are not Octo, I am here to tell you that Trader Joes usually has a fairly economical bag of lemons on sale. They're small but good.
Proud, how was the spine doc?
Blondedoris, hope the scans came out clean. Will you let us know?
Octo, how are the sides of your head? You're reminding me I must make an appointment with the eye doctor. I've been putting it off for the stupidest of reasons: I need new contacts, but with brows and lashes coming and going, it's been more comfortable to hide behind my glasses. But. Crazytown.
JerseyGirl, I was a white-hot mess going into rads. I think it's partly that the initial momentum after diagnosis carried me through chemo and surgery. I was a trooper, the most compliant patient you ever saw. But by the time I hit rads, this whole drama had been going on for 7 months, and I was tired. Then the dailyness of rads just sucks up so much time and energy. You can do it, but your inner warrior could hardly be blamed for wanting to put her feet up, you know?
Molly, welcome from the rads thread, where you've heard me complaining for this last month and more (see above).
Saw the RO's nurse for a follow-up today, and all is good. Skin healing if not completely healed. Such an attractive pink--not. But I don't have to go back--dearly as I love the nurses and the RO there. Woo-hoo! Next doctor visit is MO, and not 'til February 5, with just a tiny little Herceptin infusion in between now and then.
Waving to Queen, Gaia, Slow, Tomboy, Shorfi, the various moms, and anyone else who needs a wave!
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Mods, please, understand. Things are just not settling down, if Beppy and I don't even feel as if we can can come to the place she made. We would love them to go back to the way it was, but for her and my part, it has felt like a fatal blow. I know that I have lost my naivety here, about good intentions, and it is a really sad day, that I will never feel safe here, again. The mods did ask that I modify my previous post, but I am trying to figure out where. If they leave it stand, I promise you mods, it will be my very last post, ever.
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JAN and Ducky - congrats on five years!!!
Katy - the quilt is just beautiful. So sorry for the loss of your friend.
Tomboy - I remember well when you asked a member to start a movie thread. I would say that you suggested that because she seemed to have a lot of energy (as well as time) for posting, and that her CT posts were going off on tangents that were not necessarily relevant to this board. I thought it was reasonable, and also kind - turning what may have seemed like a negative into a positive. I hope others will chime in on this.
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I'm just popping out here for a sec... just finished up a Herceptin infusion, and I'm feeling punky... no sleep whatsoever last night....
JackBirdie, I'm so sorry for your loss! Good, dear friends are hard to come by...
rainnyc, thanks for the shout out... I to was the compliant, keep the momentum going, patient from DX to now... chemo, surgery, etc., and now that I've had a bit of a lull before starting rads, it's all hitting me. I was talking with a military friend of mine who served in Iraq and when I mentioned what I was going through he was like, "You sound like you have PTSD, like so many of us who've gone to war." Wow! I never really thought of it like that, but it makes sense when you think about it... we certainly are at war with stupid BC!
I seriously think that docs should look at helping to treat patients for a form of PTSD related to BC treatment.
Anyway... sending hugs to all of you amazing crazies out here. I'm heading for the porch, a comfy chair, and a nap...
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Pennsygal/ chiming in. Agreed.Very kindly and wiely interpreted and said. I am very sorry that this is not over. My advice is to ignore by blocking other threads and people if they are distressing to you.
Let's just stay here together and comfort each other as we always have. I think we are safe within the confines of CTown.
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Jersey- yes! PTSD is a subject that has come up here and many of us have wondered also about the benefit of including similar treatment for us BC survivors still in the trenches.
I hope you have a peaceful and restful map. Know that your fellow crazies are standing sentry outside your door and you are safe to let go.
I think you are very brave and strong. But even famous war heroes need a break from the front. A night out in Paris. A blessedly peaceful nap.
🙏🏻💤💤💤💤💤💤💤
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While I do not know what is happening...it could be the meds that I take...I wish we could just stay together here in CTown and like Katy mentioned...just continue comforting each other.
I don't know about you ladies...but I need this place...if I didn't have it I would be running down the streets stark naked and screaming bloody murder
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Rain...thanks for the shout-out. Made me feel special. Yay...for finishing up the rads.
Tomboy...You should be fiercely proud of what you have done here in CTown. You have helped to provide a safe haven for many women who would not otherwise say what they truly feel. This place keeps us sane and I am proud of you as well as Slow for maintaining the thread. Love you girl!!!
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Omygod! I just found out David Bowie Died today, of cancer... I am having body-wide shaking, because this man was a huge part of my teens and twenties... He just re-leased a new album, yesterday! I can't believe it..
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(((Shorfi)))
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yes Bowie had liver cancer... Was on tx last 28 months. Very sad.
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Tomboy.. I know.. I felt the same when I heard he died :-(
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I heard it this morning on Good Morning America. I adored and loved him for many years.
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The lyrics of his last video just released are "look up here.. I'm in heaven " :-( Makes me cry :-(
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BLOCK, BLOCK, BLOCK, BLOCK..............THAT IS WHAT ITS THERE FOR...............LET THE MODS HANDLE THIS.......THEY ARE NEITHER BLIND, STUPID OR NOT UNINFORMED.......
All we need is love.....................
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I blocked, sweetie.
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Only way to do it...................good for you
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Oh lucy, Hugs... very sad day.... a light went out in the world that I treasure,
"Floating in my tin can
Far above the world
Planet earth is blue,
And there's nothing I can do
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Good for you Tomboy...
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