CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Yes said day......another good one has left us...............he was after my hay day, but my kids loved him, so I am very familiar with his recordings and CD's...............I think that is part of the reason my hearing is bad...........Oh how they blasted his music.........LOL
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Whoa--been away too long (or has there been a conversation explosion here?). Welcome to all our new citizens and urge those heading out of town to reconsider, or at least return more often.
Referring to a far earlier conversation, my BS doesn’t want another mammo until a year after the original!
Still in shock over Bowie--he maintained such a quiet dignity till the end. Wasn’t aware it was liver cancer--after many searches, couldn’t find anything that identified what kind of cancer.
Letrozole hasn’t started to abuse me--if all I get is drier skin, morning & startup stiffness, and some sweating, fine by me. Just hope if I get another trigger thumb it’s on my L hand again--surgery on the R might trigger LE.
There are anti-hormonals and then there are anti-hormonals. Tamoxifen/raloxifene and aromatase inhibitors work very differently by very different enzymatic pathways, which is why the former is usually given to pre-or-perimenopausal women and AIs are given only to postmenopausal women. Tamox's enzymatic pathway blocks off tumor cells' estrogen-receptors (think of it as wiring the tumor cells' jaws shut); AIs work by inactivating the enzyme aromatase, without which the adrenals and fat cells cannot convert the androstenedione they make into estrogen (think of taking the “food" out of the “fridge" and tossing it in the dumpster). With Tamox your body still makes estrogen, even if your ovaries don't work or are gone, but it can't get into the tumor cells; with AIs there is no estrogen for the cells to “eat." Acc. to both my shrink (an M.D.) and my MO, Wellbutrin (bupropion) cancels out Tamoxifen and is thus contraindicated, but does NOT interfere with the aromatase inhibitors. Perhaps SSRIs and SNRIs might potentially pose problems, but bupropion is a different kind of antidepressant--it acts not on serotonin or norepinephrine but on dopamine.
Oh, those bowel stories (which, BTW, are perfectly permissible here--if we can't bitch about our bowels in Crazy Town, where else can we?)! My mom used to scan restaurant menus for rice and corn, and then not merely ask for a substitution but attempt to explain in excruciating detail exactly what rice and corn did to her system. My sister and I tried to head her off at the pass, but weren't always successful.
Had a great weekend (although Mother Nature had a sick sense of humor weather-wise) with my pal from New Orleans. We shopped and dined out. Saturday night's concert she played drew a full house despite the snow. Yesterday, she played fiddle with a Cajun dance band at a dance party in a rock club--despite the frigid temps, the place was packed. And for the first time in my life, I did some Cajun dancing (it is very poor form to decline an invitation to dance). Those "two-steps" (same steps as a waltz but at Red Bull speed in 2/4 time) are truly aerobic exercise--and the kind of weightbearing bone-loading exercise that we're supposed to do to ward off osteoporosis. Then we went to Chicago Sketch Comedy Fest to see my son's show "That Just Happened," which he produces and directs and for which he's head writer (sort of a male Chicago live-theater Shonda Rimes). Hilarious--the Peyton Manning sketch had my friend in stitches!
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Okay, so Ducky! What are you doing calling everyone a "block-head"??? We can't DO that, can we? I was going to post earlier, but I am assuming there was a ker-fuffle.... so I was thinking since I know not what is going on, I will wait until the feathers settle.
Your hearing is not-so-good? Probably from not only the loud MUSIC from the 60's, and your amazing talent for dancing all hours of the night, but from flying who-knows-where with that PILOT of yours!
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Chi...sounds like a fun weekend!
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rainnyc! I am so happy you are finally healing. My skin is looking great, just a weird tan. Katy, I am so sorry about your friend. He sounds like a very special person and friends like that are hard to come by. Jersey, I did not have chemo but I had pretty intense rads. It is doable. Just be sure to communicate to the team if you are uncomfortable. They can give you breaks or change things up. My RO saw my skin on the verge of breaking down. I was so red it was purple. She switched to my boosts for 5 days to give my axilla and under my breast to heal a bit. By the time I finished boosts and the 4 day Tgving holiday weekend I felt much better and could handle the last of the WBR.
I heard about David Bowie this morning. I was stunned. I had no idea he was ill and I heard his new album is great. Only 69 years old. Way too young and he seems to be so important in the childhood/teen memories of so many of us.
I had my MO appointment this morning. It was fine. He couldn't feel the node I told him about. Bloodwork was good. Onward I go.
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Good news Molly.........
Chevy....you know that altitude can cause hearing problems too...............and like my Pilot use to say "is that turbulence or did you just "rock my world"...................LOL.......
You can post Chevy..........everything is under control..........we love you here.........
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Katy: I'm so sorry for your loss. Few words, but please don't take that for lack of sympathy.
Tomboy: I'm with pennsygal, though mine is less gracefully phrased--I interpreted the suggestion for a spinoff forum for discussing movies as valid. There seemed to be interest in the subject, but it didn't quite fit with CrazyTown's raison d'etre, but was a pleasant enough one, similar to others I've seen on BCO. "Take the subject to another forum", rather than "Take yourself away from this one." if you will.
I am truly sorry that you and SlowDeep do no longer feel entirely comfortable here in the forum you created. I'll stay, for now.
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Chi- New Orleans sounded great! Glad you got some dancing in. You must be proud of your son.
QMC- words don't have to be many to convey great comfort. Thank you.
I'm off for a dexa scan. Don't think it hurts. So yay for that!
Stopping at PO to send JAN fabric for Beppy's secret stash!
Hugs to all.
Katy
ET- control that dastardly spell checker in the sky
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Molly- so happy to hear the node wasn't felt. Put your feet up and relax now? Yay!
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Thank you, Katy. The dexascan is the easiest test ever!
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Katy: (snorts of sympathetic laughter) Spellcheckers? one of the reasons I'm glad I'm using a full-sized laptop. All misused words are my own flautist.
Enjoying Chicago, though a comparatively quiet trip; I'm recovering from the Squishy Ikk, and as is obligatory, my husband's starting to come down with it. But good food and very real spa treatments. No doctors, no medical treatments. Just a bit of brisk weather.
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Oh Ducky, you are such a little tart! Wouldn't it be fun to just do 1/2 the things we say we do? Haaaaaahhaaaaaaah! People wouldn't believe us anyway, but we can dream, right?
I just made "Bisquits and Gravy Bake".... I even put in a few diced up green-chile's.... It looks VERY tasty!
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Oh, and forgot some good news--the Medrol cleared my system just in time for the “possible occult shingles” to have receded! One fewer crazy-maker in my life.
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Chi.....good news
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Chevy that looks so gooooooooodd...................yum............
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Katy, so sorry for your loss. (((Hugs)))
I agree with penny/Katy/others that Tomboy very kindly suggested the movie thread. I just sincerely hope that we all ride this out and remain intact. Sure seems to be the case already.
And yes.."planet Earth is blue....
. Hits me hard too - Bowie was a big part of my early feisty years 
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Yes......Tomboy was her usual nice self when she made the suggestion to start a thread about movies, books tv shows, etc..........l
Long before she did I thought to myself.maybe there are ladies on here who don't read books (no time), or who don't go to the movies, or have Netflix (it cost money), or Amazon Prime, (costs money too)...so why not have a thread for just this type of interest....in fact I talked about a movie I love, then thought.......Ok, enough about Cli'nt Eastwood, and Bridges......
So yes, Tomboy was being thoughtful when she made the suggestion, and yes the content of the conversation did not fit the thread Crazytown.......
That would be no different then a constant conversation about the AI's......someone asks, you answer with your experience, and then enough said.........there are special threads for that, and nothing wrong with suggesting to someone to check them out.....actually you might get better info>
So the answer to the question is yes.Tomboy was being "NICE"
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I remember when my late sister and I heard one of our favorite David Bowie songs come on the radio, we'd turn it up and dance. Our mom would look at us like we were completely nuts!
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Jack so sorry for your loss!
Slow, I know you're doing the right thing for your health, all of us who have loved what you and Tomboy started are grateful for setting up this crazy room for all of us. Feel better soon, hope everything works out ok and please feel free to message me if you'd like.
I finally dropped back in today and it seems the whole thing went upside down!!! I sure don't know what's going on but I am missing everyone and all sorts of people seem to be saying goodbye. I'll keep hanging around and see who sticks around. This place was a real haven for late night crazies like me.
Love to Octo, Gaia, Shorfi, Cubbie, Chi, Ducky, LittleBlue, Lucy, Tom, Queenmom, Jersey, Penny's,Mommy, Not,.... I know I'm forgetting a whole bunch of you I'll keep dropping in good health, good scans, good checkups to us all.
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Ducky.. Wise Ducky.. I totally agree with your post.. Tomboy could see there was lots of interest on the boards for an entertainment thread.. and that would also free CT back up , so we could keep discussing how crazy we are.!!
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Sula.. Great to see you drop in.. Yes.. Here's to good health for one and all.!!
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Yea Luce.....................it isn't Rocket Science.................I wanted to know about people having problems with AI's........I went to the Femara thread that is wheree AI got the best adivce..........
Have LE.....am I going to bore everyone who does not have it.....or scare the shit out of those who don't and worry they might get it............NO......I went to the Lymphedema thread...............wise ladies.......all with LE..........what else would any sane person do.........
Tomboy suggested what she thought would be in the best interest of anyone who wanted to talk about "Entertainment"................that doesn't take a genius to figure it out...........duh......
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Tomboy, Octo, Ducky, Jackie and all the rest of you, I appreciate all your generous support and great sense of humor. Hope you will stick around. I sure enjoy your posts. Just three days left of radiation and I guess then will be getting Tamoxifen prescribed and then some nice lymphatic massage as soon as my poor boob is healed a bit. I'm a little freaked out from what I have seen on youtube about this kind of massage . . . have you seen that Seinfeld episode? It is hard to believe how happy and excited I am to be almost done, considering a week ago they called in the social worker and the chaplain to talk to me because I couldn't calm myself down. I can look back and laugh at it now. My neighbor went to my GP and I begged her to please put in a good word for me, that I haven't been myself with all the pressure I've been under. So she did and what did he tell her? That I should stay off the Internet! Ha ha ha ha. Oh well, at least he hasn't fired me for being too wacky.
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Hi Crazies,
Thank you so much for all of your calls, texts, emails and PM's. I really am overwhelmed with all the caring, compassionate women we have on this thread. You've all moved me to tears more times than I can count these past few days (good tears). I just want to reassure you all that Crazy Town will live on. I feel that I owe you all an explanation of what's going on with me.
My DH has banned me from BCO until after my doctor appointment on Wed. Shhhhhhh.......I won't tell if you won't.
He is sleeping, so I thought I would pop on and clue you all in. As far as I'm concerned it will be business as usual once I figure out what the heck is happening to the cranky left side of my body. For several weeks (3), I've been getting left sided numbness. One morning I woke up and I couldn't lift my left arm. The problem has been intermittent, but recently I've been also getting numbness on the left side of my face. My RA doctor was out of town last week, but she authorized a Depo Medrol shot for me. My C-Reactive protein levels are high which is typical with RA. I've got A LOT of inflammation. I'm not a doctor, but I'm hoping it's a pinched nerve or maybe the inflammation from the RA. I have RA of the spine so realistically, that could be causing my symptoms. The shot did help my flare, but unfortunately, didn't resolve the numbness. I also feel like a have a very slight slur.You've all freely shared so much here, so today I'm going to share my BIG fear. I'm not really thinking any kind of cancer, but the reason I've been putting off having it checked is because my mom died of Lou Gehrig's Disease. She presented with numbness and slurring. I've been trying VERY hard not to let my mind go in that direction, but I must admit, I feel very SCARED. Scared enough that I really wanted to ignore the symptoms. I'm a person that likes living life in denial. It works for me. Some can understand that mentality, some can't. When I was diagnosed with BC, I didn't want a sentinel node biopsy because it wouldn't have changed my treatment plan. Many in my life could not understand how I could not want to know my stage. I didn't want a number to define my outlook.
I got up the nerve today to call my PCP's office and explain my symptoms. I have an appointment on Wednesday morning.
Now I'm going to address what is going on our thread.
BCO gives us the ability to block a member or a thread . It's never been a feature I've used on BCO, but sometimes we need to do things that keep us OUT of Crazy Town. I've been here long enough to know that the story you see out in a public forum, never tells the story of what is going on behind the scenes.
I think it's important to move on from this as soon as we can. We all have A LOT going on in our lives. I've always looked at this thread as a place of comfort and healing. A place to let our hair down in a safe environment. Sometimes when we feel that is threatened, we can feel CRAZY. We can't control the actions of other people, we can only control our own.
I'm counting on our mods to make sure this is a safe place for us all. So please, let's move on and get back to complaining about our craziness!! Did I mention I think I may have left sided numbness cancer????
I love you ladies. Together we are strong. As my mom would say, "Put that in your pipe and smoke it."
Edited: I'm the typo queen.
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Slow Deep Breaths, I realize that I haven't really been a part of this wonderful place called Crazy Town and you don't know me, but I will be praying for you. I can't imagine the terror you feel but I have a fairly good idea how crazy it makes you. I have Alzheimers running rampant through my mom's family. My sister died of it at 56 and my mom and her sister are both end stage. Every little episode of forgetfulness drives me nuts with fear. I hope you feel better and your appointment can address the problem easily.
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All I can say is my adopted daughter is one superwoman..........love you Girlie.................she must take after her adopted Mother..........just kidding, just kidding...........LOL........about me that is...........WTH you all Know what I mean.................don't you........hahahaha
She is the Queen and I am guess who.......
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I am finished with all that , too, and thank you all for keeping the town going!
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Ducky: Queen Mother of Crazytown! :-)
Slow.... we love you. So in your pocket for the doc's visit. Many, many hugs.
Octogirl
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Eggroll! (Waves and blow a kiss) So glad you're almost through!!!!🎉🎉🎉🎉🎉 I have been absolutely uncolsolably melted down at my MO and GP office. It's all the trauma, so many months of being poked and stuck and picked and prodded. I think PTSD is a real factor. But I have calmed down, and the docs forgave me and don't treat me like I'm crazy.
Sula and Lucy 🙋🙋🙋 great to see you. I'm not going anywhere.
🐙🐙🐙🐙- Octo- just saying hi because I love this new octopus icon I found, haha.
My dexa scan got postponed today. It's a non event anyway, except financially, since we are in the new year with a brand new double $$ over last yearout of pocket., ugh!
We are going to be all right. Love to all!
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https://www.youtube.com/watch?v=sL-fSNHgqPw
