My Husband, My Life, My Love, My Family, My Cancer
Comments
-
candy, I'm glad you heard from your friend. It does sound like there is something weird going on with her husband.
Thank you, everyone, for your kind words of encouragement. I did take my Ibrance and Arimidex this afternoon without any severe constrictions in my esophagus. I waited a while before I ate my soup and that has also been uneventful. Eating should be fun, not stressful, right?
The sub story is so sad.
Carol
0 -
For the more medical side of things or questions related to liver mets, always good to have a main thread for it and of course I encourage this one too as it would also include people dealing with the same thing.
It is very scary at the start when you become Stage IV for sure. Therapists, friends, family to bounce things off of. If you are able, walking and listening to music from an earbud can also boost and stabilize the stress a bit. When I was at the point I could not sleep after being new diagnosed both as a new patient but also when I had brain surgery and radiation, I listened to you tube, usually something that gave subliminal messages with a rain sound. I also started to let my brain listen to songs to drown multiple thoughts and relaxing. The songs play in my head, different songs but I like the distraction.
If I am repeating the link forgive me, just got home.
Link to Liver thread is
1 -
Waving hello to each and everyone of you. Hope you are having a pain free day and comforting thoughts sent out for all that are in need for a better tomorrow. Couldn't do this without you…
Keris, I am so deeply sorry that you have breast cancer and starting down this path. Mental health is half this battle. There are good days and not so good days. Fear is understandable, we all know it so well. Please know that with today's medicines, this disease is treatable. Try to stay busy when you feel well enough, that's what I try to do. Reach out for help, information, support and comfort. These gals are the greatest.
Cookie, oh my word that sounds horrible. June 28th can't come quick enough. Gotta get those docs working quickly on this to get it resolved. Praying for you.
Mel, I'm gonna check that show out. Always looking for something other then depressing news on TV. We have Youtube TV, much more affordable and great shows from my youth.
Now for news that I did not think was possible. Had my first CT scan since starting treatment (on my 4th cycle of Ibrance starting today) and met with MO today. He said quote "This is a miracle". A miracle that many tumors are no longer showing up, others shrank and the bones are healing. Pet scan is next to see what lights up and then radiation. That will help so much. I told him my brain is numb and the right side of my face, but I believe it's MS related. He said Ibrance crosses the blood brain barrier so that is an added protection and a relief to know. And more news, I am negative for BRACA etc. 4 years ago I was tested and came back positive for RAD 50 gene, which it turns out was a false positive. What a relief for my family to know this.
Prayer warriors from here on this forum and in my life, a thank you is not enough. On another note, I went a bought a powerball ticket. lol
2 -
Irishlove love your news and your doctor.
Goodnight all
Tanya
0 -
@irishlove fabulous scan news! Isnt that great to hear? Good luck with the powerball - my husband has a knack for winning lottery type things so I make sure he gets a Euromillions ticket every week :) Unfortunately he still hasn't won anything in THAT lottery (he DID win the US green card lottery and the Masters golf ticket lottery both on his first try so Im hoping he hasn't used up his universal wins there). I hope your scan results go a good ways towards dampening anxiety and worry about living with MBC - you could go a good long time on this drug.
@keris113 Welcome to the thread, we all understand what you are going through. Try not to worry too much about the depression and anxiety in the first year of diagnosis - it will be there (and medicate as needed) but over time you will become accustomed to the rhythm of life with this crap, collect all the over the counter treatments for any and all potential side effect, and start to see evidence of treatment working (see irishlove above). It will give you confidence that its not all doom and gloom and to get back to living life. Definitely see if you can find a breast cancer specific therapist - I had one for 8 sessions and it helped me work out a lot of the anger I was expressing. Otherwise, keep in contact with all of us through your drug and mets specific forums and Mels Place here :)
@candy-678 oof - I feel for your friend. Just from what you are saying I would nervous for her relationship. Some partners rise to the occasion and some just cant and bug out. For her sake I hope he can deal with it eventually, but man, Verzenio will be one hell of a wake up call. Give her/them space to go through those stages of grief and all - sooner or later she will pop out the other side with acceptance. At least she spoke to you with an update!
@sunshine99 how frightening! I hope they can move your appointment forward, as far as you can tell, does it have any relation to heat or cold of the food/drink going in?
Mel - did you see how the wife of the CEO was like a descendant of the Macy's owner family and her great great great grandparents died in first class cabins on the Titanic? Sometimes I wonder in life just how random it really is. But it is a good thing they died of explosive decompression and aren't just floating in a tin can, asphyxiated, to one day be caught in a net or washed up on a beach.
Its soooooo humid and damp and hot here its driving me nuts. Slept ok I guess? but woke up cranky. Hubs was hovering helping with the cats while I was trying to make coffee and I straight up just told him look, not feeling great just leave me alone right now lol. Day 4 on Xeloda and I feel ok I guess but Im so over this damn leg/hip and now the other knee is bitching. Not really nauseous but not really hungry either, just… bored. And damp.
0 -
Irishlove - time for the happy dance 💃🏻💃🏻💃🏻. What great news!
0 -
@keris113 I'm sorry you are here and thinking about things no one should have to at 37. I'm older than you, diagnosed at 49. I highly recommend a specialized therapist. I have been seeing one monthly from my treating cancer center. It really helps.
The Kisqali thread isn’t very active, but people will respond if you have questions. I have been on Kisqali and Letrozole for 14 months (one Lupron shot, then had my ovaries out). I work, travel and am training for a half marathon in Aug. Cancer sucks, but it does get better.0 -
Irishlove—- Great news!!!!
0 -
@keris113 I am in your pocket today lending support and calming thoughts as well.
I went out last night with DB and SIL and walked around the mall. I was not pleased with my performance. I was huffy and puffy and sat down for less than a minute. Little annoyed this was pointed out but whatever. I need to get out on the daily with the walking, will work on that. Got another recycle bin, tired of buying plastic all the time.
Today I am planning several small walks, already doing laundry. Tomorrow will be bedding washing in the bathtub with the wand washer. Always working on other things as well. Get more Amazon gift cards to save for cat food out the games/surveys.
Bought more eggs, cheese and english muffins last night. Planning on doing something with my stuffing mix, might take part of the box instead of the whole thing and add to the beans mix with some rice and eggs. I want to try steaming the stuffing in my egg cooker machine, put the rest of the stuffing in an airtight container instead of making the whole box. We will see.
Edited to add, cannot steam the stuffing mix, mixed with the rice, added water and dry chicken broth, making a poached egg with cheese for the top, should be pretty good. Also shrinking portions so I do not overstuff. This seems like it will be pretty good. I still have the other stuffing not used in an container and go from there.
0 -
irish I believe in miracles and I am thrilled for you! Let's keep the streak going…ongoing daily prayers for all! Hoping the same for DH.
Umbrella's up again here….can't wait to see the sun return…how glorious will that be!
We officially start our summer rental by the water today! My zen place to relax and forget my "real life". Looking forward to morning coffee by the water and beautiful sunsets. Will wait until rain subsides to move in…hoping late tomorrow🤞
Still thinking of Sadie, Kitty hope your doing ok.
Carol hope it's a good day without spasms and you can eat some real food!
Shana Yup, rain and more rain. Relax and binge watch something feel good.
Mel It's great when you can get "sucked" into a good show and forget your worries. Did you watch Yellowstone, 1883 and 1923? I really enjoyed 1883 and 1923 the most. Waiting for 1923 to return…
Candy I'm glad your friend reached out to you. Hope she will continue to do so, we all need that!
mara Don't blame you for feeling annoyed that your lethargy was pointed out..really?? You are aware of your of your struggles and don't need it highlighted. To me you sound like you are a little energizer bunny that goes and goes until you can't anymore. Sounds like you accomplish more in the day than most "healthier" people! You keep on going, your doing just fine!!!💪
0 -
irishlove, a great miracle! I got four years of no active disease on Ibrance… praying you get at least that.
cookie, a summer by the sea… Enjoy every minute of it.
Mara, you are an inspiration to us all to get up and go.
Will get Faslodex shots today. Praying for no subsequent pain. Enjoy your day everyone.
0 -
Today I am taking it easy physically but I agree with you, it does not matter how many times I may sit, I sit 10 seconds or so, get up and get moving, do the same at home as well. I am not so annoyed, SIL is just making sure I am still healthy as the both look out for me.
My breakfast of a small portion of stuffing, talking about a spoonful, little rice and an egg and cheese were good. Heated the rice and the stuffing in some chicken broth and poached the egg. Only needed some salt, no mayo which was good. Have to think of a bean meal soon but we will see.
0 -
@irishlove doing the happy dance for you!
0 -
into light ~ good to see you glad you’re doing well. I’ve been on ibrance for over 6.5 years. I am the longest running ibrance tx in my oncologist practice. He is very pleased.
Mozuke~ welcome to our second home. I’m sorry I must have missed the posting somehow. This new set up sometimes still trips me up. I hope you’ll become part of the family.
Candy< hello sweet womanMara~ same to you my friend.
love to all and hope today is at least okay for all of us. Here for pocket duty or what’s needed!0 -
Thank you everyone for your words of encouragement! It really means a lot and this seems like a great group, again that no one wants to be a part of. I will be sure to check out the other forums but will check in here as well as I am on treatment. Hope everyone has a nice weekend 🙂
1 -
Well, one step forward, many steps back, managed to fall down in my apartment. Struggled for over an hour trying to get up, could not do it. Had to call an ambulance. I did not go to hospital but going to call next week to find out what to do. Makes me afraid to go out by myself. I did not hit my head but my coordination is out of whack.
0 -
Oh noooo Mara ,sorry to hear this! Sorry that you struggled so long I can only imagine how tiring that was. Glad you didn't hit your head. Big hugs❤️
1 -
Oh no Mara, I'm so glad you didn't hit your head but it must have been so frightening, not to mention exhausting, I'm glad the ambulance was able to get you on your feet and not take you to hospital
0 -
Thanks guys, it just ticks me off. I am not sure but I thought the paramedic was suggested more help than just my wellness check. DB wants me to schedule an appointment that he attends too. That is serious business. I will have to phone next week. Will stay home and walk on the treadmill going forward, still follow PT and watch some of the ways they show you can get up. I am also watching my place for obstacles. Tonight I am resting though.
1 -
Mara~oh no. My goodness. Thank god you’re ok and yes didn’t hit your head. To be not able get up scares me too. I’m just glad you’re ok.
0 -
Mara- I don't know if you have Assisted Living apartments in your town, but that sounds like what you need. We have housing like that in my town. Apartment setting, with your own apartment, but a call system for a nurse if you need her. And the nursing staff comes around to the apartments and help with meds, meals, etc too. Similar to a Nursing Home, but more independence for the person if they can handle that. You have your own apartment within the complex. Check into that with your DB. You need to be safe.
0 -
@mara51506 — glad someone helped you up.
Falling is a fear I am trying to get over are 2 falls in my home in April which resulted in the Fire Dept being called twice. Fir me, I think part of my wobbly legs was caused by low hemoglobin (7.5) resulting in not enough oxygen in my body. While I do not live alone, I am alone for many hours a day. And DH cannot get me up when I do fall. If I am on the ground, I need help to get up… period. Scary.
Really glad you didn’t hit your head. Is there a neighbor that could have a key that could help if another fall happens? I did give a key to a neighbor so they can open an exterior door should I be home alone and have to call the Fire Dept again.
Hopefully there won’t be any other falls.
1 -
0
-
@mara51506 Oh my goodness falling is so frightening. I think at minimum you might get medic alert alarm. We lost a neighbor to a fall. I took a knock around getting tripped up in my walker recently, and fell into the street. I think it hurts our pride more than anything else.
@micmel Oh wow 6.5 years on Ibrance. Tell me more! My MO said he has a patient that's almost 10 years, so I guess that means from Phase 1 Clinical Trial. Mayo is close, so is Moffitt, so I guess that could be accurate.
@sadiesservant and all else who are temporarily MIA, please know we are thinking about you.
To everyone, thank you so much for the great support. I think I'm just gonna celebrate this for today as I'm so aware how changes can happen.
DH had his biopsy. The IR said it was a small sample under his armpit and hoped it was enough. If not he will need to return for heavier sedation and more invasive biopsy. Hmm, $150 copay and stress of doing it again. He said NO thanks. We will have the results the end of June.
UTI is kicking my butt but I can stay on IBRANCE while fighting it with cephalexan. All the cranberry and mindful urination and here it is again…. Another storm is coming, gotta find the cats and feed wildlife.
Have a wonderful weekend.
Laurel
0 -
Mare, my neighbour has a key to my front door and let's himself in once a day, I've also made an appointment with social services to come in once a week to do my cleaning and washing, I can also arrange some one to cook for me if I buy the ingredients, that means I can keep my independence and not have to move in with my daughter, I'm not sure if you can arrange something like that in Canada
0 -
Thank you everyone, I am unsure I can afford assisted living but it would be a consideration if could afford it. The paramedics did mention requesting some supports and my DB wants me to call my radiation oncologist to talk to her. He actually wants to come.
I have been looking at a lot of videos on youtube about seeming easy ways to get up like if I am on the ground. Anyway, PT and treadmill walking will be the order of the day tomorrow and just be more careful. It is only the second time falling in house but I need to get to the point of getting up myself. Others falls were outside. Once I feel confident or stronger, may ask DB to come up to my place so I can practice getting up.
0 -
@irishlove Oh I’m so glad for your good news! What a relief. Also, I’m thinking of your DH. My DH is going for a core biopsy of the lymph node in his armpit next week.
@mara51506 Sweet Mara, It’s so scary to fall..and it hurts to fall. I worry about it all the time since I had a few during the last 5 years….Ankle issues, knee replacements, walking the dog, and once walking into the supermarket 2 years ago. Now after new treatment for MBC, I’ve felt more unsteady, especially when I go downstairs😬.Plus when you fall your feel like such an idiot and embarrassed.🙄
@micmel Hi love. Have a restful evening 💕👋
I’m heading off to bed. It’s been a busy day today. We took our 2 dogs to get their allergy shot for the itching of seasonal allergy. Our DD is a vet Tech and told us to bring them right over, she’d give them their shot without an appointment, no need to see the Vet. So in they went, so happy to see her. They are so funny because they love going to the vet since they were tiny little puppies..they are brothers….Pugs. So after that fiasco, we brought them home, then ran out to pick up some things at the supermarket.
G’nite everyone else. Sleep well. ♥️🩵😴🌙
0 -
@shanagirl Oh I hope your DH is gonna be just fine. Mine had his armpit done, too. He's miserable that he can't swim or mow the lawn for a few days. Your pugs sound adorable. We are down to two pitties, Minnie and Pigeon. Both bait dog rescues. Concerned about Minnie showing signs of seizures, she's 8 or 9 and possible tumor on her back. It's super small, so we are watching for now.
0 -
Keris, sorry you are here amongst micmels loungers, but we are all here to lift you up when you need support.
Mara , glad you were not seriously injured after your fall. Can you get more PT specifically to help you get up once you are grounded? I hate getting up from the floor even if it is not a fall.
Irishlove, good news !! I have been battling UTIs on and off all this year. I went to see a Urologist. These are the practical suggestions he gave me. Drink 3 and half pints of liquid everyday, avoid alcohol, caffeinated and fizzy drinks, milk does not count as part of the total. Cranberry juice ,unless it is so strong it's bitter, does not work, take super strength cranberry tablets instead. Take D Manoose supplement. TMI, clean cotton underwear, wash your private bits daily and wipe from front to back after using the bathroom. Hope this helps. I knew most of this, but the reminders seems to have helped, I haven't needed antibiotics for 3 weeks now , a record for me this year :)
0 -
Denny, I have had some PT exercises that are supposed to strengthen legs but my problem is not the strength, it is my coordination. Oh well, today is a new day and life does not stop. I tripped and fell, only the second at home fall, last actual fall was in the wintertime. Luckily no injuries, just being more careful and still walking. On treadmill today with a little marching. Sits to stands etc. I also found that an easier way to get to my hands and knees on youtube would be to roll from back to stomach and bring up hands and knees. So regular PT, walking both march and treadmill or outdoors as well. I cannot stay home.
Slept well last night, got a full day of walking, treadmill has handles so feel safe. Still have surveys, chores and lovely laundry to do. Doing regular cloths and taking my sheets in the tub this afternoon. Eating healthy, rinse and repeat.
0
