My Husband, My Life, My Love, My Family, My Cancer
Comments
-
Bigbhome, Holy moly, girl, I can't believe that you have been going through such a stressful time and not sharing it here. I don't know how you are managing with all that worry about your DH. You had told us that his condition was life-altering, but I had no idea how truly scary things have been for you. I didn't ask questions because I knew you would share if you would ready. My prayers for you and your DH are now even more frequent. I wish I could be there to hold your hand during your dh's surgery next week. Your deep love for you DH comes through in your posts. You are sacrificing your own treatment so you can care for him. You are a strong, caring person. You are both be surrounded by our loving thoughts.
Hugs and prayers from, Lynne
0 -
Good morning all
Mae I admire your bravery. Your pockets will be full with Micmel and her perfect boobs. Well all be praying for you. Amazing what we walk through. And you do it with style.
Big so glad you set those boundaries up with your in laws. You definitely have bigger fish to fry. That’s some precision surgery there.
Magda your home looks beautiful and I can feel the joy that your son brings you through the photo.
Thinking of you Lynwood.
Tank you 50’s girl I wish I could send you some of this nice weather. When I lived in the north I did enjoy that slice of days where the sun started warming up and green appeared everywhere.
I went for a walk with DH yesterday and it was a tonic.
0 -
Lynne(50s), You amaze me! You know exactly what to say that makes me feel better! Dh is going through the same thing I went through upon my diagnosis. His whole life is forever changed from this accident. No more construction work, unless he is a supervisor only. The days of picking up heavy items, standing walls, carrying boxes of tiles are over. This man, who everyone jokes about him thinking that he is superman, is now having to deal with being a mere man. I'm watching him wrestling with the new normal everyday. This is giving me an up close view of what he has been going through with me. I have a whole new appreciation for what he has been going through with me! He is really struggling. Dr says most of the headaches will stop after the neck surgery, but there are still random headaches from the concussion. We are hoping and praying that his feeling will come back to his left side and that with these surgeries, that he won't lose too much range of motion in his neck and shoulders. Unfortunately, after the accident we were assured that his back, where he had a huge surgery in 2000, was fine. Well, that is not true. He has 2-6inch rods and 4 screws in his lower back and they moved. Not good, not good at all, so eventually he will have to get that fixed too. We have been so busy dealing with all of this, that I barely have time to think everyday. Keeping up with you all has been a real challenge!
I have been keeping everyone in my thoughts and prayers everyday and I will try to keep up with you all a little better. I did post a few questions when my progression came up and have a pretty good action plan ready. I am just waiting to get Dh back on track after after at least 2 surgeries before I implement anything.
Great pictures Tanya!
Love to you,
Claudia
0 -
Bigbhome Why is everything so complicated by something else? If the first radiologist saw it, why did everyone else ignor it ? makes absolute sense to do the neck first because the nerves there affect the shoulders and arms. So glad you have 's good doc for him.
Evidently i missed the part about your progression. Where is it now? .💞
0 -
Grannax, Thank goodness it is still in my bones. New lesson inn the left hip and a new lesion in my T5. Also, growth in my left ribs. Very grateful that it is still in my bones!
Claudia
0 -
Me too.💞
0 -
Hi to all, I have been nipping in and out, reading to keep up, but too busy to post recently. All is well with me. Treatment working as it should. Sorry to hear of problems and hoping all will be well. Also,hoping Mic Mel keeps recovering and look forward to seeing you in your dress! Love to all x
0 -
Bigbhome~ oh honey! You truly are going through way too much right now. No one would expect you to keep up on anything except you're precious DH and your sweet beautiful self. We are here whenever. If you don't check. In. Your seat is still here and this is still your place! No time could ever change that. We totally understand when priorities that involve family are a landslide of priority! We are so concerned for you and your precious DH. My heart sank when you talked about a super hero. I believe the roles have changed a little and now you are wearing the cape for a while. I understand planning and planning, only to be told.. that you have a new normal and it doesn't include many of those set plans you have. My DH and I had so many. It makes me angry. But we love you. Yes we do. Whenever you need to share you share. Whenever you're not around we understand! You have stepped into a very tricky role. You're sick and need to take it easy, and DH needs your help desperately also. I hope you can help each other through all of this cobwebbed crap we are forced to walk through. I am wrapping my arms around you. My dear sweet woman. ❤️
Tanya~ too funny. They aren't that big. One is perky but that's as far as we got lol. Still have to have the other right girl lifted. I'm not in any hurry really. I am still quite exhausted daily, the tiredness has hit new heights. I hate it. I do however really enjoy your photos. They are lovely. I wish I was takinging that walk. I can't wait for at least 60's. Very therapeutic! Thanks for sharing.
Minnie~. Hi sweetheart, understand the need for resting for sure. Taking care of yourself is sooooo important...I am so trying to feel better. I'm realizing that I used to snap right back, but enter cancer, and everything seems to be slow go for me. I start taking my 17 month of ibrance Sunday night. I am apprehensive! Don't need anymore exhaustion ugh!!!!!
Grannax ~ waving hello to you ! 🌷🦋
Much love ~M~
0 -
Lynnwood-I hope that you have no progression. 36 months is great. I only lasted 6 months on Ibrance. Faslodex (my first treatment) I lasted 1 1/2 years, Letrozole-3 mos (didn't work at all), Xeloda-2 1/2 years, Ibrance/Letrozole-6mos, Doxil-3 mos, and now Taxotere-almost a year. My tumor markers haven't be in the double digits since I was on Xeloda. I went up to the 300s on Doxil, and am currently 134.4. It went down this time from 148, but of course that number had gone up from the previous time. It seems to go up and down around 10 points each time.My oncologist told me to stop worrying about the tumor marker unless it goes up 50 points. She said as long as your scans (I have 2 CT scans and a bone scan every 3 months) are ok to not worry about it. She did have me do a PET scan once after the CT scans, because there showed some new tumors in my lung. The PET did not show it as being cancerous, so I am still on Taxotere. Hugs and prayers you get good results!
Micmel-Love the cleavage story! I'm glad you enjoyed the moment!
Bighome-I'm so sorry you are going through so much with you husband. I pray for both of you to get through those surgeries. I can't believe they said his back was ok. Wow! Big hugs and prayers to you both.
Lynne-Are you ready for more snow Thursday night into Friday? Only about an inch was what I heard. I still have a little patch in the front yard, from the crazy weather on Monday! I felt bad for the people running the Boston marathon. That's so cool your Dad did it 5 times! I'm going to be so ready to fly out of here. Even with it suppose to be raining about every day while we are there. At least it will be warm! Yes we definitely need to get together with MJH before her surgery, after I get back.
Mae-Hope all goes well tomorrow! Big hugs!
Magda-Beautiful picture of you and your son! So glad you feel at home, finally! It looks like a beautiful home!
Tanya-I too am allergic to adhesives, and make them use paper tape. I believe I only had to keep my gauze on for 3 days. They had put a coating over the incisions too though, that slowly wash/peeled off. It hurt for a few weeks too. Now it's ok.
Well, my eldest and his daughter just arrived. Off to make dinner.
Hugs everyone!
Lynne
0 -
This is what you are
Doing to those brain mets tomorrow, Mae!
0 -
I realize I have a perky boob with no nipple, and an ankle spanker, that would trip you walking up the stairs next to me! Swaying all out of control. If not contained. So now I have to have a nipple tattooed in the future, and a reduction and lift. Outpatient. And no drains. But the thought of going back to the hospital. Brings me great stress. But then again what doesn't.
We are trying something new at the house to where the kids are starting to pay rent. It's very stressful for us all. Trying to teach them without seeming like an asshole or being unfeeling. My DH is very business like and tough when he has his mind set and has expectations expressed fully. It's a good quality. But to others, it's very intimidating and actually almost scary. He doesn't even have to say anything. It's like a wolf pack stare. He just looks through your soul, and it's sometimes awkward for my kids. They are his step children, so there is already that deep down iside their minds. They don't want to disappoint him in anyway. They are still getting their bearings! Life is so hard. Parenting is hard! Each and every aspect of it. Is all stressful.... no wonder people get cancer,the stress has to go somewhere. Unfortunately for me, my stress went into cancer. I believe it's also a form of PTSD. At least when I am rounding the corner of the infusion department and the smells hit me in the face and I switch onto robot!!! Every single day brings another level of depth and stress and worries. They are also never going to get better. Just change.
I hope everyone sleeps Well!! Much love~M~
0 -
love it Bigbhome!
Mae~ I'll be in your pocket for sure. Sending supportive thoughts and letting you know you're loved !
~M~
0 -
Thanks all, goodnight 🙂
0 -
Well, we’re on our way to MDA. Sure could use a coffee but must wait until they bring it with breakfast.
Thanks for the love ladies, my pocket is nice and crowded, everyone ok? Got enough room in there?
0 -
It’s crowded for sure with all of us in here, and someone’s chocolate is melting all over. Did anyone bring M&Ms? We’ll all need a good shower after this!
Busy day for me too today, but thankfully they changed my times - I was supposed to start with labs at 7:45! But they changed that to 10:30. Whew. Then I see my PCP (who is also a dear friend) then oncologist then I start my new chemo. Abraxane this time. Anyone been down this yellow brick road? Haven’t really found anything too negative (other than, you know, it’s chemo!) and my infusion nurse says I may not lose my hair. That’s probably the least of my worries, especially after my last chemo experience! I actually look kind of distinguished bald. I have a good head for it.
Off to Mae’s pocket first though! Who’s got the chocolate?
0 -
Magda, I did 5 months (my original 1st chemo) with abraxane and felt it was pretty tolerable. There’s a thread here’s for it.
0 -
thinking of you Mae. Pretty roomy pocket, just let us know if we are too loud. We can get a little rowdy. Sending thoughts of love and strength!
Magda~ I also had abraxane. I did loose my hair for the second time with it. Two infusions and it came out quite quickly. I hated all infusion chemo. But who doesn't. I hope you tolerate it wonderfully. I hope it kicks some ass. Just drink drink drink water through the infusion. Have them slow it down. When they administer it to you. It helps with side effects, you should also eat slowly if you can.
Hugs and loves. ~M~
0 -
Ok everyone, I brought the chocolate! Hey, one piece at a time! Did anyone bring wipes? Sorry Mae, your pocket may be pretty dirty by the time we are done! Go Mae, go Mae! Who stuck their elbow in my side? Come on ladies!
0 -
Mae!0 -
Ok everyone, I brought the chocolate! Hey, one piece at a time! Did anyone bring wipes? Sorry Mae, your pocket may be pretty dirty by the time we are done! Go Mae, go Mae! Who stuck their elbow in my side? Come on ladies!0 -
micmel- thank you for remembering me even though I am a newbie to your site. I am doing well. Monday I start my third cycle of ibrance. It seems like the third week after faslodex I get really achey all over. Yesterday we took 78 preschoolers ( I am a preschool director) the natural museum of history to see the butterfly exhibit. Very exhausting! I'm glad to hear you are excited about your cleavage. Now to get you feeling better to show those puppies off. Lol
mae- I hope your gamma went well today. I said a prayer for you this morning 😊
bighome- that is scary about your dh. I hope all goes well for him. I agree with your decision to have your sil take care of your mil. You need to focus on your dh right now..from the way it sounds your sil has gotten off pretty lucky.
magda- congratulations on the new h
0 -
Holmes~of course sweetheart I would remember you. Of course. You sent me wishes during my surgery. I do not ever forget ever something like that. I LOVE butterflies. 🦋🦋 I would have loved to go with you! I used to be the chaperone every chance I could when they were young. I was always one the mothers that went. Kids would argue to be in my group, I made sure to talk to the teachers I had to go! Times like those I'll never forget. I can feel your pain about the aches and pains. I am always achey. And I hate it... Cancer the destroyer!! Instead of Conan! Sending hugs to you my friend! Welcome back darling! ~M~
0 -
i also wanted to mention that I somehow missed Bigbhome and her news of only still in her bones. I am so happy about the non organ involvement without a doubt. But wanted to wrap you in a big hug. You're dealing with way to much my friend. I adore you and I am sorry your precious DH is hurting. I wish there was something we could allL do to really help each other. I think we would make a hellof a team. When one is down the others shine together behind. Then it is a continuing act of love and friendship. Big hugs sweet sister. Love you! ~M~
0 -
All good, I’m out
0 -
yay Mae!!! Ok my dear. Hope you're feeling well. Now we can get out of your pocket. Lol sorry we made a mess. 😝 chocolate 🍫 yum yum ~M
0 -
Mae, WOOHOO! Glad that's over. Now we look forward to hearing about good results. Take it easy for a while. Well, I am not sure you know how to do that, but please try.
Hugs and prayers from, Lynne
0 -
in my thoughts Mae xx
0 -
Hi Gals,
Bighome-thank goodness for nothing beyond the bones. Good news, for sure! It must be so scary for you and DH to deal with the precarious situation with his spine. I'm thinking of you both.
Mae-you must be glad to have the gamma knife procedure behind you. Rest easy now, dear MBC sister.
The Lynnes, looking so forward to meeting you both!
Micmel-sounds as though things have improved measurably for you. What a rough time you have had. Hoping restarting Ibrance is tolerable and you don't feel as though you are sleepwalking through life! I was very stunned to hear what happened to your son; what the heck is wrong with people? What an absolute creeper....
It is school vacation week here and I have been so busy keeping my grandson busy! Trying to be outside in the neighborhood walking, biking, shooting baskets, scooter riding, pogo sticking-anything to wear him out! He is indefatigable! Inside it's games, reading, some "screen time", cookie baking..... Tomorrow we go to an indoor trampoline park with friends.
Having liver MRI Saturday in preparation for May 22 Y90 mapping. Xeloda treating me pretty well- a few blisters on toes and slight burning and tenderness on feet, but nothing intolerable so far. So grateful for that. I just hope it works....
Starting to spiff up my house a little for a visit from my sister; really looking forward to that!
Shout out to Tanya, Minnie, Gracie, Leapfrog, Magda, Lynnwood, Holmes, Runor, Robin, Grannax, Keetmom, and all of you other dear MBC sisters. May the force be with you-love, MJH
0 -
Mae glad it went well today.
Big-time hope things get better for dh glad you still have only bones yet.
I had chemo today, Dr mentioned that I probably have 2 years at most, hit me like a ton of bricks, could it be longer maybe shorter yah it could. Trying not to obsess about it until we talk more. The other crappy thing is I was going down on my steroids and symptoms coming back so I have to go back up and can't go off right now.
0 -
Keetmom-That is absolutely horrible news but no doctor knows exactly how long we'll live. There are women on the board who were told 7 years ago they only had six months so let's hope you prove him wrong. I guess we all have to live like this-like we might die soon but we can keep hoping for miracles, new drugs, better than expected results, etc. Prayers for hope and peace of mind for you tonight.
0
