My Husband, My Life, My Love, My Family, My Cancer
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It was wonderful to have lunch with Lynne today. She is right, we did a lot of talking. I felt very comfortable as if we'd known each other for years. I can't wait to do it again so I can learn even more about Lynne and her family. She is a delight to talk to, and I love her attitude.
Tanya, I hope you are resting at home now. When you feel better and have time, let us know how things went and how you are feeling.
MJH, I have been out in my gardens a bit, but it feels like I saw a new dusting of snow out there several days in a row. I want the real spring to come. I am seeing the same growth in my garden as Lynne is seeing. I have attached a picture some crocuses. They don't last long, but it makes me feel good to see them. A little hope for spring. My scans are more-or-less stable. My TMs are continuing to climb. I liked your description of the Maine snorkeling experience. We always say that we go as far into the water as we can before our feet become numb.
Mae, Your pictures are beautiful, as always. You always face life head on, and I love that. I hope your knee is getting better.
Micmel, Have you recovered from your fall? It is time to wrap yourself in bubble wrap for your own protection.
Runor, You are welcome to drop in and sit at my table any time you want to. I am always open to a good conversation.
Bigbhome, How are you and your DH? You have had more than your share of challenges lately. It is time for your luck to change - time for something good to happen to both of you. I sense that you are finding strength from each other, and that is somehow helping you get through all this. You are in my prayers.
Hugs and prayers to everyone from, Lynne
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Lynnes-may I please be in on the next lunch?
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MJH, Absolutely. During today's lunch, Lynne and I said that we hope you will be able to join us when we meet again. I sent you a message with my phone number the other day. Let me know if you didn't receive it. Sometimes my iPad misbehaves.
Hugs and prayers from, Lynne
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Lynne(50's)- Got it! Messaged you back!
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heading to sleep. And I saw that you guys had lunch together today and it made me smile so much. That is really something amazing. I would love the opportunity to be able to do that with someone, have that other woman who just understand what we go through. That is so very awesome! I am fine. Sore from the surgery still, but everyday into does seem to get better a little and little.... I hope everyone sleeps well. Gn ~M~
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Good evening ladies
Definitely sore. The doctor acted like it was no big deal. Lol until you try to move. I think I fell asleep before I went to that dark place. The why am I here Fearful stuff. And then it was over. Thanks for the validation micmel about the pain
Thank you for all the support.
Mae I bought a knee brace from CVS fits around knee with hole in middle by the knee cap and then Velcro to whatever tightness is good for you. It provides great support.
You NH girls enjoy your luncheons. They sound fantastically.
Good night all
Tanya
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Tanya~ was just thinking about you. They never tell you how really bad it may be. They say oh it isn’t too bad. But uh yeah it is. It does really help in the long run. I am so glad you’re safe and Sound and resting. Just checking in to see if you were ok!
Good night ladies. ~M~
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Happy Friday! Love you guys very much ! ~M~
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Tanya, I’m also having knee issues. Severe stiffness then pain when I move it or stand. Been icing, heating, knee support for about 10 days. Had a scheduled onc appointment yesterday and mentioned it to her. She sent me for an X-ray today so hopefully I can get some relief. She said to expect to have to follow up with an MRI. Insurance won’t pay for MRI without an X-ray first.0
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Lynn wood I had knee problems for years. I took cortisone shots wrapped and taped them. I tried acupuncture and it worked for me. No more cortisone shots I’ve been off them for 4 years.
Mae I hope you find a comfortable way to do your race. I love doing 5ks but haven’t been able to for the past 2 years.
Have a good day all
Tanya
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Tanya, I have been doing acupuncture on my back for a few weeks. I will definitely ask about doing it on my knee. It's been very effective for my back pain. I wanted to check with my onc before I began. She also recommended acupuncture. I hope I get the same relief you do. I have access to a verbal recording of my medical results ( not supposed to have it but a dr I worked with years ago gave me the phone number), looks like they are diagnosing moderate osteoarthritis of the patella . They mention the sclerotic lesions in my femur, tibia and fibula but they remain stable . Best part of acupuncture besides pain relief...a local organization called Unite for her pays for it. They help all stages of breast cancer patients.0
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So let me share what's up here, I had chemo yesterday, the night before Emma started get very fatigued, to the point we couldn't keep her awake. So I went to chemo, Jim took Emma to local ER which sent her to her hospital 2 hours away. I came down when I was done with chemo, she still has a bad headache. It was tough seeing Emma's team who are like family and telling them about brain Mets,
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Keetmom, You are going through so much. I can understand how difficult it was for you to share the news about brain mets with Emma's care team. I am lifting you and Emma up in prayer. When you have a chance, let us know how Emma is doing. Oh I how wish we could take some of that weight off your shoulders and that worry off your mind.You and your family deserve a break. Big (((hugs))).
Hugs and prayers from, Lynne
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Keetmom~💔 like I have said over and over..... I just don't understand, I am sending you and sweet Emma hugs of strength and protection. I am speechless at how much I hate this disease, you're so special. I hope you know how loved you are! ~M~. You all are
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keetmom, sending you warm cyberhugs...you are going through so much my heart goes out to you.
This week I found myself in a normal, even a bit lazy routine. It was much needed. My mil seems to have stabilized at the nursing home which means dh's emotional state has stabilized here at home! A welcome respite from the melodrama. I cooked, cleaned, puttered around. Dh and I finally found time to hang some wall decor in the bathroom we renovated in January/February. I paid bills and filed our income taxes. All that regular stuff. We visited my mil several times and it seemed much calmer.
Dh's sister started babbling to him about looking into having their mother get back to her own place and finding round-the-clock care. As their mother lives across the street from us, Dh firmly told her “NO WAY." It is not in their mother's best interest. She is managing now because of the team of workers at the nursing home. She needs all of that. The idea of her coming back home is ridiculous. The perky positive cheerleader mentality of dh's sister is annoying to deal with. She has never been able to see the reality of her mother's situation. She thinks if we clap loud enough, the poison won't kill her mom. Yeah, sure, Tinkerbell. Or maybe sil is working for an extra big, exta shiny halo in heaven......It was a relief to know dh put his foot down.
Sending best wishes to all on this thread for a good weekend.
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Divine~ sounds actually like heaven. Spending that kind of time with your DH. Makes my heart smile. Taxes. Ugh! Clapping my hands for your DH putting his foot down. Hugs back to you lovely lady. ~M~
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keetmom- thinking about you now and wanting the best...
Divine-glad you are getting "normal" routine time-there's really nothing else as comforting....
Tanya- glad the ordeal is over for you...
Enjoying a weekend in Vermont with DH. We have a beautiful AIR B&B studio apartment right on Mallett's Bay in Lake Champlain. We brought our grandson over to visit his father(total loser) and other grandmother(nice lady). Grandson has been asking to see them, and we do it in order to help him in becoming an intact human being. They do not make any effort, other than sending him a giant package at Christmas. With my daughter being more like a big sister to him, DH and I are in effect his parents. DD loves him like crazy, but does not function as parent. She is doing great in school though, and I have hopes for her future success. Anyway, makes a nice get away for us.
Started my second cycle of Xeloda, and got my dates for the Y90 procedure. My sister from Florida will be visiting from 4/25 thru 5/9, and y90 stuff starts on May 22. A little nervous, but really convinced that I want the procedure.
Sending love to each-MJH
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MJH~I know what you mean about anticipating something you know you want to do. But there are always normal fears and worries. I really hope it works well with you. Sounds like a lovely place, I used to get excited to go different hotels and check out places. I miss doing that. It's funny how they always remember that big Christmas package. My mother lives far and always had sent the kids a huge Christmas package. They waited every year for that package. They still talk about it. Memories are funny things. I am happy to hear the hope and peace with your vision for your daughters future. Thank goodness for you and you're DH. You precious people!
Got my drains taken out today. So I am Happy, Big difference. I am thankful to have them out of my body. Maybe now even more healing. My abdomen is still quite tender and sore. I have to see him for a check up in four weeks. Personally, I don't care if I ever see another doctor again. It does get to you. I know you all understand. I am sorry for us all to hve to live that way. A circle. I soon have to start my ibrance again, all aboard the terrible fatigue train! But please keep working. So I will take it ! Good night ladies. Sleep well! ~M~
Sending keetmoms family love and support ❣️
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Keetmom, I’m so sorry you have so much to handle right now.
Micmel, yay!!! No damn drains!
Hi to everyone 🤗
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Morning all, finished the donut dash. Now off to lunch, then cooking a thanksgiving dinner tonight, just because 😋
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YAY micmel, no drains. Do the happy dance! You are no longer tethered. One more big step toward healing. 💞
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Micmel, so glad you got those drains out!!!! Now you can start to get some healing going!!! Yea!!!
Spot on my face is not cancer. It can be removed, but am going to wait now before I do anything.
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Illi, congrats on finishing the donut dash! Thanksgiving dinner? If you have an extra seat at the dinner table I am free!
Ha, ha. Sounds delicious. Just returned from a 3 year old's bday party with my son. Getting my nails done today and other than that, trying to rest. My body needs to heal from the Y90. However, steroids prescribed after the procedure are keeping me up. Having a hard time sleeping although I desperately need to sleep.
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First shower without drains. Now I don't stink!!! What a big difference. I'm thinking of you all. Keetmom and family.
Hope everyone is ok this weekend. ~M~
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we are home Em is feeling back to normal .no real answers.
I luckily felt ok the whole time we were on hospital.
Mic. Glad your drains are out
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Keetmom big sunny Saturday hug. You’re in my prayers.
MJH your getaway sounds lovely. Nice outing before the y90 procedure. I had to google it to find out what it does.
Mae love the tutu how’s your knee hold up. Thanksgiving dinner sounds like just the thing.
Micmel so happ y you’re drain free.
Divine I hope your weekend is a normal as you like.
Take it easy all
Tanya
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Gracie~ That’s wonderful honey. Wonderful. Yay team! Love you sweet thing!! ~M~
JFL~ loving the manicure thought! What color?? A spring color I hope ?
Today my son was driving home from work, and was a victim of road rage. He was cut off by someone while driving in a circle......he laid on his horn and the man stopped in traffic..... got out of his car and came over and grabbed his glasses off of his face, while my son sat in his car and broke his lense and cut his face. He came home with his face bleeding... It seems we all cannot catch a break.wtf??????? 💔😡😭
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I am so sorry for your son! That fills your mama heart full of rage and fear. People! I hope your boy is okay, that shakes a person up really badly.
So happy your drains are out. They were a 'drain' on your sunny disposition (nyuk, nyuk). I think I will go watch some Three Stooges movie and imagine slapping some obnoxious driver guy, take that, boink, right in the eye! Hugz.
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thanks Runor. I am still pretty upset. What if he had a gun?? He was on his way home, almost in his own neighborhood that's hes lived in for 20 years!!! He got the plate number And apparently someone called in what was going on, someone saw the entire thing. So he has that in his corner. Last we knew he was going to be arrested. I was just so heart broken. All of us are going through so very much. And this happens. My son is freaking. 21 the man was I'd say 35. Based on what I have heard. It's just disgusting. My son should be able to get his glasses replaced. But who has the extra cash laying around to purchase them? Why do you think people have insurance. So they don't limp on their way out of pearlVision center. After you've taken it up the rear for the bill!! He didn't do anything wrong and now his glasses are broken. People are so mean. Like who does that? 😞😡💔
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micmel congratulations getting the draining tubes removed!! You have to feel so much better. I'm so sorry about what happened to your son.
Mae congratulations on the run. Love the tutu!
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