My Husband, My Life, My Love, My Family, My Cancer
Comments
-
Thanks for all of the nice comments on my trip and pics! I just got through catching up on last week's posts. You guys had a lot going on while I was gone!
Gracie-I hope you are feeling better now, after that fall. I'm glad you did not get injured badly.
Lynnwood-I'm glad your scans came out well, and hopefully, the kidney problem isn't a problem. I too take meloxicam daily, and was told never to take NSAIDS with it. I could only take Tylenol for pain. I take it, and I agree ibuprofen works better, but I just do the Tylenol. I get scanxiety sometimes still. Even after 6 years. My next ones are in a couple of weeks. It stinks that your insurance is denying you your PET scan. It's ridiculous how they make us jump through hoops sometimes! You and your dr can appeal it. It works sometimes. Maybe they didn't explain the situation right. I always have CTs and a bone scan every three months. I have only had 2 PET scans. Once when I was first diagnosed, and once when they weren't sure of some lung nodules, if they were cancer or residual. They were residual. I hope you get approved.
Bigbhome-I am glad your husband's surgery went well and that you are going back on the Ibrance! I know you are taking care of him, but you also need to take care of you too! I am the same way, and always put everyone else first. I am getting a little better at saying no. I found out I can't do it all. I'm sorry about his trip to the ER, I hope they figured it out! I am praying for both of you! Big Hugs!
MJH-I may just take you up on the trip to your house. Of course I don't like lobster, blueberry pie, or gin and tonics,but my husband (my driver for long distances) loves all of it! I'll bring filet mignon, apple pie, and mudlsides though! LOL
Magda-Wow! The treatments really did mess up your teeth. Ouch!
Lynne-LOVE that hat on you! It looks great!
Grannax-Have a wonderful time in Hawaii. Lynne went to the same resort, I believe. She could tell you all about it!
Mae-Love the outfit and matching totes. Have fun!
Tanya-I can feel and see the tube in my neck, as well as feel the port itself, under the skin. It's the first one I've had (and hopefully the last!). Good luck to your beautiful granddaughter on her exams.
Micmel-Try walking around the house a little. Just moving sometimes helps with the fatigue.
The Sun is shining today for the first time in a few days. Also, it's suppose to be in the high 60's! I'm getting out there for sure. Try to even off my tan face to my white head! LOL
Hope everyone is having a good day! Hugs!
Lynne
0 -
Hi all, checking in before I get PM’d, lol
Doing well, just super busy. My 2nd in command is in the hospital, so I’m back to shuffling a crazy workload for not too long, I hope.
I started a new puzzle last night and before I knew it, it was past my bedtime, oops. I’m also waiting on some white jeans I ordered for my beach trip (just over a week away!), so I can’t even prepack yet. Other than that, no changes really, feeling pretty good after the 2nd Gamma rads. Full brain and body scans on 5/18 & 5/21, I expect stable or better 🙂
0 -
Hi Mae~ lol that is actually very funny. You know me too well. Your trip Is coming so quickly wow! I also have scans that week as well.. I hope You have a blast. I love the beach. I’m so jealous of all you wonderful ladies traveling, I really don’t know how you do it. I always say to myself today I’m going to do this. Then by the time I am back from the store I’m exhausted and have had six heat flashes. It’s really frustrating. I love your beach outfit. We expect some awesome pics. Please. Good to see you! Be safe
Hello to lynne(Man)~Hope you’re rested up from your awesome family trip! I’d be sleeping for a week.
Haven’t seen Divine either ! ☹️
Much love ~M~
0 -
Wow Lynne, what a great time had by all. To be treasured x
Grannax have a super holiday!
I'm going to Scotland for the weekend to see my daughter son in law and 2 grandsons. It's not Hawaii but pretty special anyway.
Micmel, little by little to improve energy levels x
0 -
Good afternoon
Love the family pictures Lynne from Disney. Such a beautiful vacation and family time.
I’m energized by all that you guys do.
Tanya
0 -
Minnie~ you have a special time with those heart robbers. Lol how wonderful for you! Please have safe travels. Of course every ache and pain I have is bad. I have scans coming up in May not looking forward to it. Oh yeah it's May first. Scan 16 days away. Bloodwork 15. Days away. I honestly hate this more than words could ever express... when I get ready for this... I get really angry. Because it's been three months since I have had to deal with this. The mind forgets sometimes. Especially things we hate. It's baaaackkk! 😞 I'm so beaten up, this surgery knocked me on my ass. But I have a boob! I got something back. I hope I'll get to keep it for a little while anyway. Much love ~M~
0 -
Minnie. I would love to visit Scotland, post pics.
Micmel. Wow lots of change in plans happening for you. The things we have to do to get medical coverage at a decent price but it does sound like it's a good plan, a wise choice.
Your mom and step father moving, that was an big surprise to hear. Since the facility is geared to seniors would they possibly provide some help with daily things, like grocery shopping, getting to doctor, transportation? Maybe there's even a service that offers help with moving, etc. Volunteers? I sure don't know but it seems reasonable to hope. Have they made a decision yet?
It's hard when you know if you don't help, there is absolutely no one else who will. 💞
0 -
Lynne (Man), love that hat!!! It has bling!!! 😁👍 Your grandkids are darling, looks like they had a great time! You have more energy than I do for sure!
Micmel, glad your son was ok! That is very scary! I would be concerned too about all the moving for your folks. I hope you can find someone to help if they do decide to go for it.
Mae, glad to hear you are doing good after your radiation.
Grannax, sounds like a wonderful vacation! Tom and I had a two-week cruise planned out of San Diego, it would stop at all four islands. But he got sick and we never made it. I hope it’s a wonderful trip for you! We want pictures, lol
0 -
Tanya~ Hello....I believe that you my dear do an awful lot yourself... with your grandchildren always on the move. Some of your pictures, show exactly where you're off and running..you also traveling. I think it's wonderful and I agree these ladies are amazing. I hope some day to bring back my beat in my step. This month is stressful for me. As of last month wasn't. For us all really. I know it's more the Medicine, while I had the break I started to slowly to think clearer. I felt more awake and clear minded. although I exchanged that for extreme pain and. A new boob. I am going to ask him how long before the lift on the other one. Let's get it over with!! No nap today at all. First time since before surgery. Big deal. So I am Happier. Makes me feel less insecure. Get them evened our and I am thankful. Scary things we deal with and live through. Still I don't understand how all this happened.. way off track. Way wrong turn..... way way a nightmare we can wake up from. My poor DH, I want to be honest with him about my fears and about everything really. I don't want to rush the next year, because i need to take in every single second of what I am given. But I need to be in he same house with him. I am just needing that more and more. I need to see him every day. Everyday. It will help me emotionally feel happier, it's a vital thing I need. My DH's new apartment doesn't allow big dogs, in which we have two. So when DSS heads off to college, we will be looking for our house together finally. Maybe I'll get my Porch after all. I don't know for how long, but that is what I have always wanted. I am drooling with anticipation! She's getting married.(DD) So that is one that will be leaving. Now my DS needs to meet his person. I know in time. He knows the deadlines. It's not a secret. He better get a rolling!
It's bedtime. Sleep well ladies! ~M~
0 -
Gracie~ that guy was a crazy jerk to do that. What if my son or anyone had a child in a car seat in the back or something. Or a gun. It's crazy!!!!! I hope you're doing good too darling. Much love ~M~
0 -
Mic, my oral surgeon said that there is a coating they can use to protect teeth; what I don’t know is if it can protect them from systemic damage like chemo, bot certainly from rads damage.
As for your mom and DSF, consider looking into Caring Transitions, the organization that helped me downsize and move. While my transition has not been without its snags, mostly due to my hospitalization in the middle of the important part, I still think it’s the best option I’ve seen. And none of you children would actually need to be involved at all. There are franchises all over, I’d be willing to bet there’s one near your mom - where is she? Anyway, worth a look for the hassle it would save you siblings. I’m planning to write up a post about the service and the process for others who may be going through similar challenges.
DC met a couple of our neighbors today, next door is another widow, and across the street she saw an elderly gentleman trying to pull his trash cans in while on crutches. And he’s a widower (though with a lady friend). And this evening another neighbor dropped by with a bowl of fruit and a neighborhood directory. Being a small neighborhood behind a gate creates a new kind of community for me, almost like a small town. One new thing we’ve discovered is an app called Next Door, which is kind of like a mini Facebook for neighborhoods. It’s kind of fun, and it’s very very useful. Meet neighbors, find or recommend services, sell your things, find your pet, report a stalker, both in your own neighborhood and in the ones nearby (we have 56). You can download an iOS or Android app, or access it from a browser.
I always think I’ll make a short post and then I write a book. It’s the Irish blood.
0 -
Lynn and mjh- I'm coming to your house! All those foods and drinks sound 😋
micmel- I understand where you are coming from when you say you need to be near your dh more and more. When I was first diagnosed I didn't want to leave the house. I felt safe being with my husband and daughter. Please try to get out and mingle with people that you want to be around. Everyone is not like your neighbor. Sometimes I feel that we have a right to tell people that we don't want to talk about cancer. We live it everyday we don't need to talk about it. On mother's day my family and I are going to great falls park and I told my dil to invite her mother. She told me that her mother would ruin the day talking about my cancer and I told her that I can simply say I don't want to talk about that today but thank you for thinking about me. I go to get my first scan on the 16th. We all can be there for each other in thoughts as we are laying there. Does anyone have anything they do to make the "special drink" go down a little easier? I am such a sissy when it comes to taking liquid Medicine.
bigbhome- how are you and your dh doing?
mae- I see you have taken on extra work load.please take care of yourself.i love the outfit for the beach!
0 -
good morning ladies.~
Magda~ I am going to ask for the sealer. It can only help. And thanks again for the suggestion about the relocation services. I pray there will be one near her to help. It makes perfect sense. Thanks so much for telling me. 💜 so happy youre. Settled in you're new community. Very special thing! Maybe youll meet a nice friend to have tea with or coffee! Nothing like NICE neighbors. I am so happy for you ❣️❣️ You have angels in your corner. 🦋🦋
Holmes~ I am the same way when it comes to drinking the barium drink. What I was told by my nurse practitioner was, take chocolate syrup and mix it into the cold barium drink, she also said a few ice cubes thin it out enough to drink and tolerate. Use a straw!!! Clip your nose with your finger and just take huge gulps. I have Done it maybe six times now. Works like a charm. Thanks for he neighbor advice. The nicer it gets I'll want to do More! Not too much chocolate, but enough to be slightly colored.
Take it easy Mae!! Much. Love ~M~
0 -
today so far has been good. Another gorgeous day outside and i am glad I ran some errands and took a ride to see a senior community for my mother. It was very nice and I hope that she can get in there. I hope to heck they have an elevator! It's a senior Home they better! I don't even know what happens to people who have no family, or money, then what? It's very difficult to navigate life. The ups and downs are really terrifying sometimes. You never know what can happen. But on we go. !!
Much love ~M~
0 -
Sorry, double post
0 -
Life is something, ain't it?! Sometimes all smooth, then ramps up and off you go! Spring is always a busy season for dh and I. Weather is great. Juggling some family matters, nothing bad, only things requiring time and attention. I try not to get caught up in the busyness. I want to be productive, but guard against hecticness if at all possible.
Magda, I so love the idea of a NextDoor app. One more way technology is a positive.
Micmel, your mom moving close to you is a mixed bag. I can understand all your feelings about it. Try not to over promise or overcompensate for what others in your family don't do. Thats something I call dh out on with his mom. Told him we are not responsible to fill in all the gaps in her life as we already do above and beyond. He is often too quick to jump in to resolve matters.
And I know just what you mean about those who have no family and how do they manage. I ocassionally remind my mother in law that she is fortunate to have a son and daughter who do so much for her. (She has two more kids, too, but they do nothing and I don't include them in the conversation!) That is a bone of contention between her and I as she insists in lumping all her kids together and acting like they all pitch in at the same rate. Very irritating.
0 -
magda. Do you know if caring transitions is in the Dallas area too? I'm not actively planning to move but it does cross my mind sometimes. Then I think, how would I manage to do all that. My daughter has a chronic illness that is overwhelming, her husband takes good care of her but he has a job, too. My son lives in the metroplex but he's a doctor and barely has time to do all his family stuff. All my family is in Oklahoma. But if Caring Transitions is down here, it might doable.💞
0 -
This I what I came up with Website and phone number. I'm going to be reaching out to them soon! Good luck Grannax! ❣️❣️🌹 ~M~ Thanks Magda!!
0 -
omg lost a huge post ☹️
Good to see Divine. 💜💜I’ll try again soon. ~M~
0 -
Good evening all
I leave for Atlanta in the morning to go to my grandsons college graduation from UGA. I’ll be traveling with my son. I haven’t packed yet just washed dried and folded.
0 -
Gorgeous grandson, Tanya! And congrats on his award! Super impressive!
0 -
Tanya~ That is so wonderful! Wow his smile could light up a room... congratulations proud grandmother and family. Please travel safely and soak in every single second of this accomplishment. Thank you for sharing something so special and empowering! I wish I could have been that committed. Amazing things he can do! ❣️❣️❣️❣️Awesome job young man ! Outstanding campus leader.!! That's so very important. Setting that tone and being a role model! You must be so proud. I know I am lol much love ~M~
0 -
Yay for your grandson and great smile. Happiness is so attractive.
0 -
Mae~ getting ready for your beach jaunt!? I am so jealous, there are no words. But Ill admit, you look good on the board walk or any place you chose. That outfit is cool and the bags are great! I am totally a bag person! ! Just post pics !!!! Please ? Much love to all ~M~
Hi Gracie~ hope your ok
Lynne(Man)~ Hope you're recovering from your trip, you deserve it.
Keetmom~Hey there darling lady, how is everything going? I think of you everyday and I don't want to bug you if you're with the kids or having family fine. I'm sending every happy thought and strength over miles. Thinking of you tonight!
Magda~Still going to ask for the sealer for my Teeth. So glad you shared that and that organization. I just hope she qualifies. Thanks for the good information.
Tanya~ How is the port healing, for me it took a good little while, especially to cough. It felt like someone then beat me too a pulp. It took awhile for the awkward ways to lay down , it's usually someone else who knocks it when they hug you or they hug to long or too. Either way!! Just keep getting your rest. I hope you'll feel better soon!
Divine~ you are so right about the mother thing, it's already stressing me out, when she moved down there all those years ago, I thought nothing really about it. She always wanted to be near Elvis 🕺, ended driving the tour bus for a decade lol she loved it. But then she hurt her knee at Home. so it went down dramatically.. i know she could no longer run. the tables have turned. Sometimes. It's just better if they lived closer to us at this point ! Good night ladies. I am beat!
Much love ~M~
0 -
Tanya, Your grandson is a very handsome man. You must be so proud of him. Enjoy every moment of the commencement and celebrations. What is he planning to do now that he has graduated? Will he be starting his career or going to graduate school? The world is a much different place than it was when I finished school. There are so many different paths to take now - more opportunities but also more competition. I don't know what direction I would take if I were starting out now. I just know that I would be excited and overwhelmed at the same time. Have fun on your trip, but don't overdo it.
Lynne, it sounds like your trip was fantastic. I love all those pictures. How is your mom doing now? I hope she is okay.
MJH, I am glad you have had this time with your sister. It is too bad she doesn't live closer, but I am sure you two enjoy being together whenever you can.
Lynne and MJH, We have to make plans for lunch. Lynne, let me know when you will be done with this month's hell week. MJH, let me know when you will be ready to meet. We will plan accordingly. I have no more trips planned until the end of June.
Micmel, I hope things work out well for your mother. I was lucky to have two great parents. They were always around for my sister and me and later for my children's events and activities and had close relationships with all of us. They were very independent, sometimes too much so. As they grew older, they never asked for help so I forced myself upon them. Lol. They appreciated everything I did for them, and I love the time we had together. I know that isn't the case for a lot of people. They taught me by example. They were kind, loving, giving, accepting people. I hope my children will think the same of me some day. (But they will probably just talk about what a mean, grouchy old mother I was Hahaha.)
Bigbhome, How is your DH? I hope he is feeling better
My DH and I arrived home yesterday. The trip was lots of fun. It was amazing to see so many young people learning, thinking, and competing. There were 800 teams at the competition, 400 middle schoolers and 400 elementary schoolers. They were divided into 5 divisions within each ( 5 middle and 5 elementary), so 80 in each division. The division winners (2 team pairing) plus one wildcard team pairing competed in the finals. In the elementary group, 9 of the 12 finalist teams were from China and 3 from the US. There were many countries represented. The US, of course, has the largest number of teams since it took place here. The Chinese robots were amazing. My grandson's team was paired with them in one match, and they received their highest score with them. (Since 2 teams compete together rather than against each other in matches, both teams receive the total match score.) It was a good experience for my grandson and his teammate. They met many children from all over the world. Teams often met before each match to plan their moves. They learned to communicate and strategize with people who did not speak English by using diagrams and various sign language. Google translator was available to them, but the kids seemed to get along without it. The entire event was amazing. It was well planned, well executed, and fun. My grandson's team came in 21st in his division, so they didn't make the finals, but the still had a great time.
I will catch up with everyone later. We had our wood floors refinished while we were gone and have to finish moving the furniture back into the rooms. The floors look brand new. I just want to leave the rooms empty and stare at the floors!
I have blood tests and MO appointment on Monday, Faslodex injections, too. I think I have gained 100 pounds since last month's appointment. Way too much good food!
Hugs and prayers from, Lynne
0 -
50sgirl- it sounds like a good time was had by all!! It was a great learning experience for your grandson and his team mate.
tanya- have a safe trip. You have a very handsome grandson and it sounds like he's going to make a difference in this world.
0 -
50's~wow! That sounds like such an event! Great job grandson! They will never forget those Chinese children. Isn't that something special? The things that the young ones could do if they wouldn't looose their focus with distractions of life sometimes. Seems like most countries are passing us by in the math and science areas. We need that to stop. That is where information Is needed, I sometimes think, these youth don't want to do anything they don't have to. They would take the easy way around. (Not all of them, but a good amount) how awesome that you were there to support him!!!! That's not mean, that's wonderful! The thing with my mother stresses me out. A lot. I am settled in my ways here. I know she will want me to be down there a lot and I understand, the point of bringing her here. But at some point I may very well move out of state with my DH finally! Then what? Btw it's 85 degrees here. Crazy ☀️ weather! That's ok. It will go back down. Pollen is going crazy also!Rest up, sounds like you have been busy!
Holmes~ hi there! Hope you're doing well. Good to see you!!
Gracie ~ you ok darling? Been a few days !?
Bigbhome~ always thinking of you and DH
Hello to everyone else.
Divine~this thing with my mother stresses me out. I can't pack her things nor help her move. I live four states away. I just hope there is an organization like magda suggested. Will be able to help. I don't do well with stress! I'm running out of steam and somedays. I honestly feel lost. Ugh! I need things to slow down! Please ?? ☹️ My head is spinning with everything happening at once. Stop!!!!! 🛑. Anxiety attack! Much love ~M~
0 -
Like I don’t have a face anymore. Always lost in MBC.... I want to get off and see myself again. Figure out what happened and why. I just want to feel normal again.... I would do anything anything at all!
0 -
Micmel,
it was encouraging to see so many kids who are interested in robotics. The robotics program is designed to encourage interest in STEM and applies those subjects. At the beginning of the season, the teams are presented with the "challenge" that will be used in competitions throughout the fall, winter, and spring. Each team of kids has to design, build, program, and test their own robots. They are also required to maintain a design notebook describing what they did and how they did it. They also document any changes made. ( My grandson's team redesigned their robot a couple of times during the season as they saw more efficient ways to work it.) The robots must meet certain size and materials requirements, but the robots can vary in functionality, shape and design as long as they are within requirements. Each team works with a coach or mentor, but the coaches/mentors are only there to advise. They are not allowed to design or build or program. During competitions, the kids participate in several matches paired up with a different team for each match. During the world championships this week, each team was in 10 qualifying matches. Highest Scoring teams moved on to finals. In addition to the matches, the team's are interviewed by the judges to see how well they can describe their work and issues they had. Several teams were disqualified and unable to be in the finals because the robot was designed or built by the coach/mentor. Anyway, the team's learned to apply math, technology, engineering, and science as well as teamwork and collaboration. I was happy to see girls participating, but there were still not as many as the boys. The organization is actively working to get more girls involved. At the end of the day, the participants are just like all other kids. The teams were made up of all kinds of kids with all sorts of interests. How did the celebrate the end of the world championships? They all went to the amusement park next to the expo center and had a blast. Kids are kids!
Does the place your mother is moving into have activities? Many of them have a lot of group activities for all sorts of interests, and they encourage new friendships and get people involved. It can be fun. Maybe your mother will find things to do within that new community of friends. As someone else said, sorry I can't scroll back to see who it was, most senior communities offer transportation to stores, doctors, etc. they also have field trips, some of whichseem quite appealing to me. I hope your mom gets involved in all that.
Hugs and prayers from, Lynne
0 -
Hey Gals- enjoying my sister's visit very much! and the recent 80 degree temps!
Tanya- Ditto on the handsome grandson! What a gorgeous smile! My husband grew up in Georgia and graduated from Georgia Tech. Atlanta is fun, but sooo crowded! I know you will enjoy the trip!
Minnie-Oh boy, do I love Scotland! I hope you just have a lovely trip!
Grannax and Mae-have the most fantastic beach vacations!
Lynne(Man)- Loved your photos and detailed description of your family trip. Thank you for sharing. Truly, you and your husband are welcome here. I can show you some pretty spots and we can make surf and turf! I can meet you and Lynne for lunch May 10,11,14,15, 18 or 21!
Lynne (50's) -trip sounds great, and to come home to refinished floors! I listed potential dates for lunch above!
Micmel-worried about you. I know MBC has put all of us into a complete tailspin, but it hurts my heart that you struggle so. I so want peace of mind for you. You are just such a warrior and I know things are eventually going to settle. Rest easy, love.
I'm here with all of you in my heart-as always, may the force be with you. MJH
0
