My Husband, My Life, My Love, My Family, My Cancer
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Tanya, 6 months scans is very good, but if you worry maybe is better to get a little bit more radiation and have peace of mind. I would love 6 months scans, which would help me forget for a while about this monster C.
Runor, you are one of us. Don't even think that you don't belong here. You are in the same storm like us, nobody knows how long it'll take the fight but it's good to know that there is hope! Don't try to understand, it's a special mechanism, like shalter, that automatically turn off the scary thought of the coming death. We have two choices - to live miserable days until we die or to enjoy every minute of our time, that God gave us. I enjoy your sense of humor, so, please stay with us.
Hugs to all Elen
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Blieshine what a gorgeous baby.
Mae and Grannax, have wonderful holidays both of You. Relax, destress, and enjoy, oh and the odd cocktail!
Had my 24th cycle of trastuzumab, herceptin the other day, and injection of denosumab thrown into the mix as well. All looking good, my Oncologist says, Superwoman, she says! Have friends visiting for 2 weeks, so much socialising, and bbq, and 2 birthdays coming up. Need a corner to lie down lol
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you ladies are wonderful.. I am sitting here smiling. My nerves are shot. But I am smiling. I love our thread too. We keep track of each other and I can honestly say, I care about you all. Each and everyone of you. This thread keeps me going. Ya know what Runor, my heroes live here too! Hugs Mae and Grannax, Minnie~ go find your resting corner and rest! You always need to make sure you don't have an empty tank.. have a blast with your company. Blueshine 🌷🌷 you're such a sweet woman and I enjoy having you here. Truly, without you all... there would be no thread. So thank you all as well!
Much love ~M~
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Grannax, Aulani and Pearl Harbor are on Oahu. The active volcano is on The Big Island aka Hawaii. The islands of Maui, Molokai, and Lanai are between The Big Island and Hawaii. You will probably be able to see some vog (volcanic smog), steam, smoke, etc if your plane flies near the big island before landing in Honolulu. Sitting under the palm trees reading a book sounds very appealing to me.
Well, Minnie, we will all call you Superwoman from now on. It sounds like that name is well-deserved. I am so happy that you are doing well. WOOHOO, Superwoman. You have a very busy time coming up. Enjoy
My tumor marker, CA 27.29, is up yet again this month it has now reached 539.6. I suppose the cells circulating through my blood stream will eventually find their way past Ibrance, Faslodex, and my immune system, but for now, I feel good, and there has been no visible progression. When the day comes that there is an infiltration by those cells, in other words progression, it will be time to move to a new treatment plan. Until then I am doing okay.
Have a good night.
Hugs and prayers from, Lynne
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I almost forgot....MJH, it is nice to know your name now. Unfortunately it came just a little too late. Lynne and I had already decided to give make you an honorary Lynne, so that's what I will call you when the three of us meet for lunch later this month.
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50'sgirl- I'm honored! You two crack me up!
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Chicken is on the grill, Margaritas are flowing and it’s only day 1. Enjoy every moment ladies.
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Mae~I am so jealous!! Looks heavenly. I am imagining sitting in a chair next to you reading a book. I don't drink but I'll have a fancy water with fruit and an umbrella.. just to look at the open ocean brings me serenity.. to hear the noise of the waves. Enjoy! Perfect blue skies! 🍹🥃🍷🥂🍺🍸🍸🍾....
Grannax~Be Safe during travel. I hope the ash in the air doesn't become an issue at all!! Great idea for your friend with the masks. But over all pick your comphy table and chairs and enjoy every single second of your time in one of the most beautiful places I have ever been. I know it's changed. But I did go to Oahu and Waikiki, diamond head just is a mountain presence watching down. I was young, but I remember it's beauty! Also the dole Pineapple factory. Yummy!! I wish I was going!
Have a nice lunch ladies. How awesome is that!!
I am sending hugs and more hugs for us scanners. Much love ~M~
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It's been a crazy week here, Emma ended up in the hospital with a headache again, her hospital is 2 hours away, I had to come home for chemo, a true lesson in control for me, we think it is cycle related so looking into stopping that.
I am feeling pretty good, I will be scanning the beginning of June..... Hopefully all is stable.
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Keetmom~Here is another example of a hero, her precious family. Her strong DH for his family. I honestly hope Emma is ok honey. Are you thinking hormonally related ? I am sending my thoughts and love to you guys. Much love to you ~M~
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50sgirl,Lynne You maybe already read Leapfrog,s post on Ibrance tread, but just in case if you didn't, she has an interesting explanation about fluctuating TM , which makes sense to me.
Mae, Beautiful sand and the oucen is so tempting. Enjoy!
Love and hugs
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Grannax and Mae, have a great trip both of you! Can’t wait to see all the pics!!!
Blue shine, what a beautiful baby!!! Such a blessing!
Minnie you rock! I’m freaking out that I’ve been taking Nexium all this time and worried I’ve been causing the Ibrance not to work!! Geesh!
Micmel, hope you are resting and healing! You remain in my prayers!
My scans start June 1, the finally see onc in the 15th to see if I’m changing to chemo. I’ve got a lot of decisions to make.
Thinking of all of you and have read your posts, I know I’m leaving off names but I do think of you all and pray for your intentions. You are the best group of ladies and I’m so blessed by all of you
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Blueshine, Thank you. I just read Leapfrog's post. My TMs have been increasing steadily since October and by a larger amount each month rather than fluctuating. They have increased by 400 points in 7 months and jumped 140 points this past month. I am not stressing over it since my scans show stability. My MO said it is "of concern" and "needs to be monitored", but TMs alone are not a reason to change treatments. Interestingly, some of my other blood tests have improved during that same period, and this month for the first time in 3 years, I am not anemic. I know that eventually I will once again see progression, and I know from experience that I will handle it.That time has not yet come, so I will celebrate stability and continue to enjoy what my DH and I call our bonus time. (He and I were both diagnosed with cancer in 2015 - me stage IV denovo, and DH stage 3. I, of course was initially convinced that I would not last 6 months (so dramatic), and DH was in serious to critical condition for months after surgery. It made us appreciate what we have and grateful for every day, so we decided this is bonus time.) Anyway, Leapfrog's information is good to know because I think many people see their TMs fluctuate. Lulubee also added that being dehydrated can cause a temporary slight increase in TM results, also good to know. These boards are a wonderful source of information.
Keetmom, How is Emma doing? How are you handling all this? It sounds like you have a plan to try to control the headaches. That is good to hear. Sending you hugs.
Mae, That sand looks so soft. Save me a beach chair. I am on my way.
Tanya, You have another graduation to go to? You are a very busy mom. I look forward to more pictures.
Micmel, I hope you have a good day. What is the date that you DD is getting married? Are she and her son-to-be husband planning to move out then or not until September?
I have been busy running around to grandchildren's baseball games, soccer games, and track meets. I love seeing them smiling with their friends and teammates and having such a good time. We are planning to go to Massachusetts tomorrow to see two other grandchildren in their baseball and soccer games. The weather has been really nic lately, but tomorrow it is supposed to rain. Unfortunately, the soccer game will be played in the rain and the baseball game will probably be cancelled. We shall see. I have done some weeding each day this week, but like Mary Jane (honorary Lynne), I am not supposed to plant anything new until late May. My perennials are growing nicely, and I did buy some petunias to put in a pot for my front steps. I just needed that touch of color.
Hello to everyone that I have not called out here. I think about all of you and include you in my daily prayers.
Hugs and prayers from, Lynne
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Gracie, We were posting at the same time, so I hadn't yet read your post. Have you called the Ibrance's (Pfizer) toll-free number to ask for advice about Ibrance and Nexium? The Ibrance website has that phone number listed. They claim to be available to answer concerns and questions. They should have data available about possible interactions or can advise you where to turn for information.
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Mae-Love the pics. It looks so peaceful! Enjoy your vacation!
Grannax-Have a wonderful time in Hawaii! We went to Oahu, with a 1 1/2 an newborn, 31 years ago. It's beautiful, but a long flight (the newborn was fine, it was the 1 1/2 year old that cried for all but 1 hr of the flights!). We met my sister there (she was stationed in Okinawa Japan at the time), and we both stayed with friends who were stationed in Oahu. She also went to the Big Island (aka Hawaii), and saw the volcano. We should have done the same at the time. Enjoy!
Keetmom-Praying for you and your family. Hugs!
Tanya-Enjoy your next graduation! Boy do you have a busy spring!
Lynne-Only my eldest grand, is playing soccer. 9 am on Saturdays, and we only have to go to Hooksett. It's her first year playing. They are all still swarming the ball at 7 and 8 years old. Half her team are playing for the first time as well. I hope my daughter signs up her boys in the fall for soccer (she decided not to sign them up for baseball this spring). I love watching the games as well. Enjoy going down to MA tomorrow. I hope it doesn't rain. That stinks about your tumor markers rising yet again! But no progression is the important thing! I'm going to ask her next Fri to do tumor markers again. It's been a month since they were done.
Hugs and prayers to all of you!
Lynne
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Lynne 50s girl, I'm glad you are feeling ok. Us ladies have to go with how we feel right now! Live for the moment.
Mae, that is a view!! Enjoy every moment, and every Margarita!!!
Best wishes to everyone having scans, we all knowhow you are all feeling as the day approaches xxx
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Pirate ship selfie!
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That is so awesome! I love it. Good selfie for sure. Love the water!! Have a blast and be safe!! That ship is awesome!Much love ~M~
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Mae. I hope I get to see a pirate ship in Hawaii. Ha💞 Where are you?
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50sgirl, you are right, the most important thing is that you are stable. And maybe even more important than that is your high spirit and the determination no matter what to enjoy the life. I hope I'll come one day to your level of positivism. I wish you never to have progression , or if it happens to be when you are very, very old. For you and your Dh!
Prayers and hugs to al
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Grannax, I’m in Destin and loving it! Speaking of Hawaii, DH has received an invitation for us to spend 20 days house/dog sitting in Kauai in Oct., we’ll see, I don’t want to jinx it but wow.
The boat trip and swimming was great yesterday and I saw a small 2 ft shark that swam about 10 ft from me, it was so cool! (I love all sea things, ocean, critters, etc). Looking into parasailing tomorrow or Monday maybe.
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I love the spirit soaring on this thread. Look at you Mae. You're amazing. I admire your gusto for doing all things cool. I have never been that close to a shark before. I think I might soil my bathing suit. Lol. Or potato sack, my stomach looks like a road map after all my surgeries. People will think they need to follow my stomach as directions on the island. Please be safe and loving life. Much love to all ~M~. My sweet DH is here so I And elated and happy 🌺🌷. Happy mother's day wonderful ladies. Love you all ~M~
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50’s, I haven’t been able to get through on that number but will keep trying.
Mae, live that pic! You could be a pirate lol!
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Mae the pictures are gorgeous. Destin FL? Have a wonderful time. Blessings.
Yes 50’s and Lynne NH another graduation my DD gets her masters degree in psychology in Buffalo. We leave Tuesday. Our baby girl lives nearby so we’ll see grands and stuff. My GD will be our last graduation on May23 high school. She has MD and she’s been a sting fighter through it all and will go to the local community college.
I’m off to book club today (when breath becomes air) and then a bridal shower for one of my former students.
My stomach has been feeling strange all week. Since I live in the world where every malady is cancer it’s concerning.
Have a great weekend gather those rosebuds or petunias, swimming with sharks and pirate ships!
Love you ladies
Tanya
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Gracie~ Hi sweetheart, so glad to see you posting! I think of you everyday! Soon a call would have ensued! I hope you're doing ok! I am sweating scantime big time. My sinuses are all messed up because of my allergies so that freaks me out. Glad you're here! ❣️🦋
Just like Tanya said. Every ache, pain, stomach discomfort, headache, muscle burn, or heart burn we panick. At least I do. Maybe my headache is because I just don't eat. I eat maybe at 500 pm and then it's like a bird. I have a gag to textures without taste. Ibrance, along with the heavy IV chemo, altered my sense of taste. Nothing appeals to me.
Mae~continue to have a blast... love the pics.
Much love ~M~
Bigbhome~thinking of you and DH!
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Hello to all,
I read this thread every day but don’t always have the brain cells to concentrate enough to type up a post of my thoughts. I wanted to wish all the moms a Happy Mother’s Day tomorrow. Things around here are slowly getting back to normal. Dh’s hectic work schedule is winding down, mil is stable at this point and the weather has been beautiful. Dh had today off and we spent the nicest day at home, leisurely doing chores and relaxing. Very good for the soul. My best to all.
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Hi all, we’ve got 3 mom’s on this trip, so tomorrow night I’m grilling us steaks, I believe the kids are doing breakfast 😬
I lost my cool hat to the Gulf of Mexico soon after taking the pirate ship selfie, so I found another great one. I couldn’t have asked for better weather, it’s beautiful here. Got big, big plans for tomorrow, if I don’t chicken out.... stay tuned.
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Mae, I like your new hat even more than the one you lost. Are you really think of parasailing? You would have a spectacular view. I don't think I could do that. I was proud of myself when I went zip lining a few years ago. I was a little nervous to try, but I loved it. My sons were surprised when my DH and I sent them pictures.
Divine, it is nice to hear that things are finally settling down for you and your DH. You must be exhausted.
Micmel, You should talk to your MO about your lack of appetite. It is not healthy to eat as little as you have been. He may suggest something to stimulate your appetite. Maybe your palliative care physician could suggest something or, if the lack of appetite is from your medications, recommend adjusting them.
Tanya, I read When Breath Becomes Air several months ago. It was well written. I also read The Bright Hour. I did not think that it was as well written, but I had read that the widow of the author of When Breath Becomes Air became friends with the Widower of The Bright Hour when the latter contacted the former after his wife's passing. He wanted some advise on how to survive such a loss.
To the mothers among us, have a happy Mothers' Day tomorrow. For those among us whose mom is still alive, give her a call tomorrow. If you love her be sure to tell her that. Words are easy to say as long as they are true, and they mean a lot to the person you say them to. For those of us whose mom has passed, take a minute to think of a warm memory of her. It could bring a smile to your face and a warm feeling to your heart. If you mother was or is a real witch, ignore her and just enjoy your day.
Hugs and prayers from, Lynne
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Allie graduated from college today it was a wonderful day.
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