My Husband, My Life, My Love, My Family, My Cancer
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I am here, MicMel. I am reading,but not writing so much. I did all the scans and tomorrow I'll find out the results. I worry too much and feel like emotionaly paralized. Blood is good, but we'll see tomorrow. I ,like you, hate test and more than everything, the waiting. Such a great idea - yearly scans. I am sure you will get the deal and we are going to celebrate and do the happy dance for you.
ElleonWheel, welcome here!
Good night lovely ladies! Elen
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Hi all, just popping in. Very busy with visitors this week. Have been thinking of all going through scans etc. Praying for good results for all. Visitors here till next Friday, which means a lot of socialising, offering wine etc (I can only cope with one glass), but DH and visitors getting through a couple of bottles. I have a peaceful 10 days in Ireland to look forward to, after next chemo of course. However, it's great to be able to do these things and still feelgood!!
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Mae, Good morning. You have a long day ahead of you. I will be thinking of you today as you have all your tests and scans.
Hugs and prayers from, Lynne
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mae- you will be in my thoughts today. I like how you view the scans in a positive way.
micmel- you said that you would call and get your results today so you will also be on my mind. My ct scan has not posted to the patient portal yet. Keeping my fingers crossed that the ibrance is working.
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Mae-Good luck today with all your tests!
Bigbhome-Beautiful hydrangeas. My mother gave me a blue hydrangea plant one for Easter. I hope it blooms again this summer. I have to wait to plant it outside. It's still cold at night here.
Elle-Welcome! There is a great group of women on here! Congrats on your 1 year anniversary! I'll be 6 yrs soon, at stage 4 (it's been 13 years since I was diagnosed stage 1).
Blueshine-I hope you get good results today on your scans.
Lynne-I laughed when you said we could picnic in your car. Just pick a restaurant I don't mind. I noticed a couple that I gave you seem to only have street parking (Ri Ra and Surf, I looked at the pics they have on their websites), so I'd skip those. The two you listed look good.
Minnie-Enjoy your trip!
Micmel-I hope your scans go well!
I saw my oncologist today and had blood work. She said my scans were good. I was wondering about the bone scan. I thought that more intake meant more tumors, but I guess the radiologist worded it wrong. She said that the more intake in my ribs, meant that the holes in them are filling in. The 2 CT scans (that I drink banana smoothies, one at home and one there, I use a straw and stick it way in the back of my mouth, so I taste as little as possible, LOL) showed the nodes in one lung were gone, and there was no change in the other ones in the other lung, the lesions in my liver showed no change either. So I'm still on Taxotere for another 3 months (until the next scans). The neuropathy in my hands and feet seems to be getting a little worse (especially my feet, my toes hurt a lot at the end of the day if I do a lot of walking), so she is lowering my dose of Taxotere again. I get my next dose on Thursday. My bloodwork shows I'm a little neutropenic and a little anemic (I have to wait until next week for the tumor markers). No wedding shower for me on Sunday for our nephew's ( my godchild) finacee. They are getting married 8/18/18, in VT. I could go, but I'd have to wear a mask. I'll sent my gifts with my daughter.
Nice day today. Rain is coming in for the weekend. Of course we are watching our grandsons tomorrow. Our daughter and her husband are going to a wedding. I thought "The Incredibles" movie was out and we'd go to that, but they were just showing the pre-buy tickets. It's not out for a month. Maybe we will find a movie to rent. I shouldn't be in crowds anyhow.
I pray everyone gets good results with their tests. Hugs!
Lynne
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Thank you guys for good luck wishes ! I have my results, which are not bad, but there is one concern. Interval increasing metastatic lesson right humeral head in size with elevated glucose uptake. No evidence for additional prominent. While I am waiting the doctor to call to tell me what he thinks / I did X ray too/ maybe somebody knows will be this a reason for change in medication.
Mae good luck today! We are with you!
Prayers and love to all. Elena
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Blueshine, I wish the radiologists would just use normal words instead of that mumbo-jumbo that is so confusing. Did you already have mets in your humeral head? I can't even guess if the report indicates a need to change medications. Is there a summary or general impression section that gives a better picture of the findings? Sometimes the summary is more clearly worded than the detail sections. I hope this is nothing that will cause you to change treatment, but if you do need to move on, we will be here to help you through it. There are many choices out there, and you and your MO will be able to find the one that is best suited for you. To me, the eternal optimist, the report doesn't sound so bad. It is still in the bones and apparently only one area is of concern.For now, try to stay positive. Let us know what your MO says. I am anxious to hear. Keeping you in my prayers, my friend.
Lynne and MHJ, I sent you each a PM. I am so excited about Monday. Let me know if the time works for you.
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I am glad to hear that a number of you are getting some reasonably okay scan results.
Elle, I live about an hour from Pittsburgh which is where my onc is located. Ds attended college there and now lives north of the city in Butler county.
Ladies, I am very excited about the Royal Wedding! It moves me that this young, bi-racial, feminist American woman is marrying into the royal family!!! Very exciting! It says so much about Harry that he is marrying this woman. In celebration of the day, tomorrow I am making a dinner of balsamic chicken served over angelhair pasta (one of our favorites) along with a bottle of wine and jello cake (another favorite) for desert. I'm getting up early to watch, coverage starts at 4 am, maybe wont get up that early but soon after, and the ceremony is at 7 am. This is eastern daylight savings time. I cannot wait to see all the pomp, circumstance, pageantry and of course the wedding gown!!! There is also a question of whether Harry will shave his beard for the occasion. I loved when William and Kate were wed, and look forward to viewing Harry and Meghan's nuptials tomorrow.
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50sgirl, I have only one page of the PET report and it's really hard to understand. I already had lasion ,met, in the humeral head, but now is a little bit more. My office didn't give me the report of the x ray, before the doctor to see them, but I don't think it's right . I am going to the radiology center to get them. You were talking about patients portal. Is it something that I have to register for ? I wish I could look online and read them, even if I don't understand everything, I can find the way. Thank you for responding. I don't know what I would do without you, my friends!
Thousands hugs. Elen
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Devine, I am following all the news about Harry and Megan and can not wait until I see the whole ceremony. They love each other really and are beautiful couple.
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Elena, it is definitely a good idea to go and get the full report. Some centers might not have patient portals. Even some that do, won't post the reports until after the doctor has signed off on the report. I am lucky enough to go to a place that usually posts one day following scans, sometimes two. I did have to register for the portal. I was encouraged to do so last year when I had kidney surgery and was an inpatient. Little did I know that the scan reports would automatically appear, too. I used to have to go to medical records to pick them up.
Lynne
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Thinking of you All today
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Divine, I'll be watching too! I've always loved the royals, especially Diana. I remember getting up early to watch her wedding and then again sadly to watch her funeral. I know she will be looking down as Harry and Megan wed. She left her marl in the world for many reasons, but especially for how she raised her boys.0
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Tumor markers down after months of elevating! Keeping the pedal to the metal; gonna ride like the wind as long as possible!
Yeeehaah!! MJH
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will be watching in Spain too, at a very civilised 1pm! I think she will be beautiful and Harry handsome and I wish them all the luck in the world, because it is not easy to be a Royal. I hope Kate and William help, they seem to have it sussed!
Good results ladies, hope it continues.
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woohoo mjhjan!! That is great!!!!!!!
micmel are you ok? Haven't seen a post from you today.
I can't wait to see Megan's tiara. I heard she may use Princess Diana's.
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I just can’t get into the royal wedding. It just doesn’t interest me. Lots of my friends are watching though
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Mjhjan, great news on your tumor markers! Thinking of you Micmel, you are quiet today, hope you are hanging in there!0
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50sgirl, I tried but they said I could get them only from the MO office and of course they gave me only the summary. I registere for the portal ,but only for blood work. Next month I am changing the doctor and the whole office. Problem solved.
MJH , nice to hear good news. Celebrate and forget for a while the Beast. Let him sleep for a looong time.
MicMel, how are you! I am not used to see this tread without your name even for a day. We are waiting to hear something wonderful.
Hugs and more hugs. Elena
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Hello Ladies~. Just a busy day today with my DH coming up earlier this week. My scans haven't been read yet so... I await over the weekend, which I hate. But I'm holding onto those tumor markers. They are usually the story with me. Hope everyone is doing well. Rain all weekend it looks like. I'm still LOL at 50's saying i would hunt you down. It's only because I care. Lol. So funny.
Waving to Mae ,Blueshine, Elle, Bigbhome, MJH, congrats on markers! Minnie, Lynne (Man)...Runor.. Magda... Divine, I am excited also. Loved Diana more than I can express. Was devastating when she was killed.. love the entire thing ! And adore Harry also!
Hello Holmes. Lynnwood, Gracie, hugs to you too darling!Hope you're all good today! Much love ~M~
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Divine, nice to meet you neighbor! I am just south of the city in Allegheny County. My onc is with UPMC. I'm really lucky... there's a satellite UPMC Cancer Center mere minutes up the street from me and also in an independent hospital just as close. I feel very fortunate to have the excellent resources we have here in Pittsburgh.
Count me in on the wedding...although I confess I set my DVR and will be watching after the fact. Saturday is my only day to sleep in a bit. I, like the rest of the world, adored Princess Diana. I admired all she did to better the world and feel the same way about her boys. They both seem so happy and it warms my heart. And I love all the pomp and circumstance...and the fascinators!!
MJH....YAYAYAY to the falling tumor markers!! Mine just did the exact same thing and it's such a relief.
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There's also some question whether Meghan will wear her hair up or down....my guess is up in front with a tiara, and down in back. Can't wait to see what tiarra Queen Elizabeth will loan her. I also heard her gown cost $550,000.00 which Meghan paid for herself. That musta been some salary per episode she received on Suits!
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Divine, Your royal wedding menu sounds wonderful. What time should we all arrive? I am very interested in seeing the wedding gown. I was already excited about it, but now that you have said it cost more than half a million dollars, well holy cow! I could buy a very nice house for that and even furnish it. I just can't imagine paying so much for a dress. It must be absolutely magnificent. I think the world needs a love story right now, especially a royal wedding, to remind us of the magic, the beauty, and the joy of life. There is so much evil and sadness in the world lately that this is a welcome distraction. I am glad that Harry and William have both found love and happiness after experiencing so much tragedy. I hope they remain happy.
MJH, Well, WOOHOO, WOOHOO, WOOHOO for lower tumor markers. I am smiling for you.
Elena, Well, that stinks! I don't understand why they can't release your own records to you. It is funny how different places have different rules. Well, I will keep thinking good thoughts for you.
Micmel, I was a bit worried when we didn't hear from you. I was going to make everyone send you PMs. Enjoy your weekend with your DH, even with all the rain. I think your scan results will be good, so don't worry about them.
Have a good weekend everyone.
Hugs and prayers from, Lynne
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Whoa... that must be some dress!!!
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The dress will definitely be magnificent for sure. I think she is lovely and I am in full agreement that the world needs some happy things to celebrate, I just hope against hope that there will be no outsider interference with any problems or people with issues to flaunt. No people running vehicles into the public and or and crazy people like at this again tragedy with the Texas school Shooting, I just hope it's a wonderfully perfect day with sunshine and it's a wonderful memory. Those boys have been through enough. It's supposed to rain here all day. I hope that means it will be sunny for them. How about her walking herself down the isle? I would do the same thing for sure. I have my tv set as well, just in case,the dogs will Have me up, but DH likes to give me a break with them and he feeds them so I can sleep. But I don't think illl go back to sleep tomorrow morning. Not when he's here I love spending whatever second I can with him.
Lol at 50's for the Pm attack I avoided. It was sweet, thank You! Off to bed. Rest well everyone. Good night ladies. Much love ~M
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I am also super excited for the royal wedding! Suits is one of my favorite shows so I have been following Meghan Markle for years. I think she feels more confident doing things her own way (such as walking herself down the aisle) in that (1) she is 36 and more comfortable in her skin than 20 somethings getting married into a royal family (2) this is not her first wedding as she was married before and (2) she is self-made, wealthy, successful and famous in her own right with a positive public image and persona. This will not be the first time the world is judging her (although the stage will be much larger this go around). I like that she breaks the rules with some of the attire and other royal family etiquette, but at the same time, remains classy, beautiful, professional and fabulous. As far as suits is concerned, I am sad that she is leaving Suits and have no idea how the show will recover from her character and storyline which is front and center as a key attorney at the firm and fiance of the main character!
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WAOO! The wedding! Since 7 o'clock I am crying. It was majestic, like fairytale in our reality.! They could not choose someone better than Ref. Michael to talk - The Power of Love! The love can change the world, the love has a healing power? And I think I see this power of love here , in this treads, we lift each other, bring us in to the light, support each other unconditionally. How true it is, there is always light in the dark!
Love and hug
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i woke up late and didn't see it. I am watching it now. Can't wait to see the dress!! She always looks amazing. So I'm sure it will be wonderful. Did he shave or didn't? I don't think he should. It would be too shocking. For a wedding. I guess I'll see. Hope all is well. I'll report back with dress commentary. Lol
Much love ~M~
I am also thrilled That the weather was marvelous for them, I also am thrilled Diana Spencers brother was included. Her dress cost $500,000
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What a beautiful wedding! The weather was glorious, as was all the pomp and pageantry surrounding the day!
I love all of your comments. 50sgirl and Blueshine, yes we can all use a reminder of the magic, beauty, joy and healing that love brings! Micmel, we have you to thank for this thread that helps us stay in touch with a better side of life as we share the ups and downs that brought us here.
JFL, I love all the points you make about Meghan. Harry didn't choose a fluff cake for a mate. Meghan is a woman of today, and of her generation. She is able to make amazing statements through her choices of practically everything without hitting anyone over the head with her perspectives on life. Super classy. I never watched Suits, but my son does. It surprised him when Meghan got engaged to Harry. He said, “Mom, imagine if you learned Penny (Kaley Cuoco) on The Big Bang Theory was going to marry Prince Harry. It is unexpected as you are used to seeing her a an actress ." I loved his analogy to help me understand what Suits fans felt; he knows BBT is one of my fave shows.
Micmel, I breathed a sigh of relief that the crowds we so joyful and no attempts at ruining the day were made. Thank goodness. As Meghan and Harry rode the carriage thru town, it was noticeable how she was visibly moved at times with the throngs of celebratory crowds so happy for their union.
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Divine, yes it would be like Penny from BBT suddenly marrying a Prince!!
The wedding was even better than I expected. I so much loved that it was THEIR wedding, done their way, with the signing and the empassioned speech about love. Odd that two of Harry's ex girlfriends were there. I am sure it was painful for them to have it in their face that it is not them up there.
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