My Husband, My Life, My Love, My Family, My Cancer

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Comments

  • 50sgirl
    50sgirl Member Posts: 2,071

    Claudia, Wow, that is a lot for you to digest all at once. Humpty Dumpty indeed. I have already started praying for a successful surgery. I am sure that surgery and procedures for your Dh's issue have changed and improved greatly during the past 18 years. It amazes me to see how quickly people leave the hospital and recover these days. Do you know how long the surgery will take or how long your DH will remain in the hospital. I hope that you have found people who can take care of the animals. I also hope that this cycle of Xeloda treats you more gently. You have enough to do and worry about without adding that to the mix. I know that it is difficult to be the caregiver, and I wish I could be there to help. You and your DH have been through a lot, and it's time for a break.You and your DH are in my thoughts and prayers. Please let us know how you are both doing during this difficult time.

    Hugs and prayers from, Lynne


  • micmel
    micmel Member Posts: 10,057

    we love you beautiful woman. You're always on our minds also and we will be in your pocket as with any surgery. You're a strong magnificent woman and person. We miss you and only want you to feel well. I am still on ibrance and I am exhausted 24 7. I feel your pain of the incapacitated feelings. Sometimes Ive been in bed so long I feel like I'm eating out of my own skin. It drives me crazy! Much love ~M~ Please know that your DH is on our minds as well. I can understand not wanting anymore darn surgeries! Positive thoughts sending your way!

  • Grannax2
    Grannax2 Member Posts: 2,387

    bigb. If your husband had his first surgery 17/18. Years ago, that means we had our surgeries at the same time. My fusion was to C 3. Because MBC was there. This was October 30,2000. The doc removed C3 as much as possible and replaced it with cadaver bone. The titanium goes from c2-5. It took forever to heal

  • Grannax2
    Grannax2 Member Posts: 2,387

    bigb why do they have to remove it now? Did it get messed up during the car accident? I call myself the bionic woman, thinking it is tougher that regular bone by no. The I wonder what would happen if I had a wreck or something. Sounds like a lot is going on with him. I hope this plan is the one that will work.

  • bigbhome
    bigbhome Member Posts: 721

    Grannax, wow that's such a coincidence! Dh had no disc between the 5th vertebrae and the sacrum. They did a fusion and installed 2 rods and 4 screws to hold it all together. He was born w/o the small piece of bone that holds those 2 things in place and his spine was moving. Without the surgery, he would have eventually become a paraplegic. He too felt like the bionic man after a year of recovery!

    The accident broke the fusion and bent the rods, now his 5th vertebrae has moved. Enough to eventually cause paralysis. Imagine hitting the trailer at 45mph, being thrown sideways and then crashing into a generator under the trailer, with no airbags to soften the blows. Only your seatbelt and your arm strength to keep you from being crushed by the steering wheel. All that force was absorbed from his head to his hips! The miracle, is that he is alive and he is not a quadriplegic! We give thanks for that everyday! Of course we curse that d%$#n truck driver everyday too. Our life is forever altered! He will have had 3 surgeries in 3 months on Saturday, and one more shoulder to go! He is Superman! Like us, he has good days and bad days! They are probably going to do his left shoulder in 45 days.

    Thank you for all of the prayers, hugs and good thoughts!

    Claudia

  • illimae
    illimae Member Posts: 5,739

    Sending out good vibes to Magda, bigb’s hubs and anyone else in need 🙂

  • micmel
    micmel Member Posts: 10,057

    Grannax~ you are a pretty tough woman, having gone through everything you have gone through. It's amazing the things we all go through. From the day we are born, and everyday after. How is your DD? Hope all is well!

    Bigbhome~ I don't like the sound of that at all. None of it. What a scary thing to go through. You are definitely both in my thoughts everyday! I understand the endless surgeries. I also don't envy the care taker role either. I mean it's exhausting. I feel for my DH everyday. Love is a very powerful thing. I am sending positive thoughts and hoping for fast healing and less evasive this Time. You're pretty amazing yourself. I hope this round of xeloda isn't too bad. I'm so sorry all of this is happening.

    Mae~ still thinking about those B52's, 52 girls has been in my head over and over again for days. I know it's because I'm seriously jealous! Hope you and DH are well!

    Saying goodnight to

    Minnie,Tanya,Blueshine,Holmes,MJH,the Lynne's,

    Gracie hope you're feeling ok tonight.

    I know some of you are having scans. I am hoping and hoping for some good results!

    Lynnwood, Chicagoan, haven't seen you. Thinking of you!

    Patty... hope the pain is remaining under control for you. Hug those precious sons of yours !

    Keetmom~ hope the kids are good and Emma is glad to be home again ! Hope you're feeling good as well!

    Magda~ thinking about you always and sending good thoughts.

    Runor....waving hello and hope you're doing great!

    Egads.. hope today wasn't too hot where you were, I'm already sick of 90 degrees. Ahhh to be young and swim swim and have an actual summer. Like when we were young. No worries.

    Divine~How is your foot? I am hoping you'll be able To resolve this, and get on the way to healing. That is how I felt about my reconstruction, just get it over with. I don't know how you're feeling about it, but is the surgery soon? Hoping you're not in too much pain, I'm just glad you finally know what the cause is.

    Of course Chelle and Nan... always on my mind!

    GP.. how are those hands?

    Robin. Hug lil precious willy for me. Please? He's perfect! HEs a lucky doggie to have a mommy like you!

    Shetland,was glad to see you here even happier to see you're doing so well.

    Daniel and Leslie! ~

    Hope I didn’t forget anyone. If I have I’ll be back

  • PattyPeppermint
    PattyPeppermint Member Posts: 8,950

    big home. Also praying for your dh and u


  • holmes13
    holmes13 Member Posts: 192

    bigb- you and your husband are in my prayers. What a lot to go through.

    lynn- how did your scans go yesterday?

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107
    Claudia, WOW!! Your plate is full!! Sending prayers and best wishes for you and your husband!! Waving hi to all, have been reading but not posting much. I went to a pain management doctor last week looking for guidance to handle all of this joint and muscle pain. Had 6 trigger point injections in my back. The dr gave me Gabapentin, we are starting at a low dose and titrating up slowly. I am happy to report that I feel a difference after only a week. Hope it continues.
  • 50sgirl
    50sgirl Member Posts: 2,071

    Lynwood, I am glad that the pain management doctor has been able to help alleviate your pain. I, too, hope it continues.

    Divine, Are you having surgery tomorrow?

    Lynne, Did you get the results of your scans? I can't believe that it is taking so long to post your blood test results. When you go tomorrow, ask to have a copy of the results before you leave. I have done that a couple of times when I needed them for various reasons. It is easy for them to print them out.

    Hugs and prayers from, Lynne


  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    Just finished my first four 4 rounds of Ibrance & L and had scans Mon. Saw onc yesterday and bone news was mostly good, some "significant" improvement and some unchanged with a possible (not certain) compression fracture in a previously involved vertebra that we will watch. All liver lesions had shrunk since April and are now a lot smaller than at dx. I have a ways to go yet but I'm glad of improvement and good liver numbers on bloodwork. My lung issues are also much improved according to the scans also. Mostly good news and the onc says he's not changing a thing.

    Isn't it an odd life that when my doc said I might have a broken vertebra I said "Okay but what about my liver?", LOL. In my old life I'd have been shocked and dismayed about a fracture but now it's barely on my radar. As the song says, " I felt a little fear upon my back but I said 'Don't look back just keep on walking.' "

  • runor
    runor Member Posts: 1,615

    Was listening to a psychologist speak the other day. He said the truly amazing thing about humans is that we're not all wiped out into immobile paralysis by the truths in our lives. Truths being that life is hard, we are frail and fragile subject to many vagaries over which we have no control, that we toil until we die and then yes, we do DIE! He said, in light of this reality, that any of us get up and carry on is the true miracle. Life itself is just cause for a crippling case of PTSD if you look at the reality of it.

    Hearing this made me think of how we cancer patients often beat ourselves for feeling knocked down and wiped out. When people ask me how I am I say, "Well it took a while to pull my head out of my ass.." which is really the wrong thing to say. Having an up close and personal reminder of your mortality is NOT having your head up your ass - it is looking life and death squarely in the face and realizing that your best before date might be past! What I went through last year was not because I was confused and silly - it was because my head was forcibly pulled OUT of my ass and I could no longer ignore the reality of my mortality. I have to think it's the 'other people' who have their heads up their asses, those people who like to quip "we could all get hit by a bus..' which they say absolutely blind to the fact that it truly does apply to them. Because people who say that stuff think they are somehow exempt. It's a whole other ballgame when you are sitting in a doctors office and he looks at you and says, " You have just been hit by the cancer bus."

    I think feeling sad and tense and scared and uncertain and unmotivated and like I want coffee AND a chocolate bar is the ONLY SANE RESPONSE to this. Yet we all want to get back to how we were before we knew we had cancer. Is that possible? Is that even a good idea? We talk about embracing the 'new normal' (barf), instead maybe we ought to consider that we are, for perhaps the first time in our lives, having normal reactions to a reality that we can no longer ignore? Maybe we are saner than anyone around us! Maybe our distress is a sign that we are living in the moment, aware of the truth of the moment and reacting the way any thinking being would.

    These are the thoughts I am having today and I know where there is a chocolate bar that Hub thinks he has stashed in a secret place. Bwa ha ha, there are no secret places! So I am going to eat chocolate and ponder the universe. Hi all. I read and smile, worry, cry, or pray.

  • 50sgirl
    50sgirl Member Posts: 2,071

    MuddlingThrough! Congratulations for such good results after only four months of Ibrance and leterozole. WOOHOO! I always like to hear good news. I am willing to bet that those pesky little liver mets will continue to shrink and your bones and lungs will also show more improvement as time goes by. I chuckled when I read your comment about asking about your liver mets when presented with information about a possible compression fracture. It is funny how our thought processes change and adapt. I hope you are celebrating your good news. I am doing the happy dance for you. WOOHOO!

    Runor, Thank you for that thought-provoking post. I think we all have different approaches and thought processes as we face cancer and our future. There is no unique right approach and certainly no wrong one. We often react in unexpected ways to each of the good and bad things we experience during our lives. Some things become learning experiences, some make us shrink back in fear, some make us blossom in strength, some help us reach out to others, some makes us withdraw. I have had many good and bad experiences in my life, and I could never have predicted how any one of them would affect me. I have nothing good to say about cancer. It sickens and kills way too many people and destroys families and friendships along the way. I wish it could just disappear. Even though that statement is true, I cannot say that my own cancer is the worst thing that has ever happened to me. Some may be shocked by that statement, but for me it is true. I lived through the death of a newborn child, the loss of my sister (my only sibling), the deaths of both of my parents, the loss of friends during wartime, the loss of my father-in-law after years of Alzheimer's, the suicide of my friend's daughter. Those are finalities. I will never get those people back. They will never see today's world, feel the sunshine, see the warmth of a young child's smile. There is no future with them, only memories, as sweet as they are.You are right. Things will never be the same as they were before my MBC diagnosis, but every major life experience, good and bad, has changed me. Yes, I have cancer. Yes, it will probably kill me someday, but not today. Today is still mine as are as many tomorrows as I am allowed to have. I choose to look ahead and enjoy as much of life as I can because I like being alive. I have many people in my life who bring me joy, surprises, disappointments, sadness, comfort, and love. What more do I need? On the other hand, I am no Pollyanna. I have dark days just like everyone else. I have crying spells, I hated hearing about progression - both times. I am tired of blood tests, medications, infusions, scans, doctors' appointments. I fear bad news with every scan. I have been lucky enough to be able to push past it most of the time. So, here is my message to you, dear Runor. You are perfectly normal, and so am I,and so is every other person here. Even though I do not feel sad, tense, scared, uncertain, and unmotivated right now, I DO want chocolate and coffee. So, I am going to get a piece of chocolate from my secret stash (oh yes, I do have one). I want you to imagine sitting with me at my kitchen table as we enjoy our chocolate and raise our cups of coffee in a toast to a cure for cancer.

    Hugs and prayers from, Lynne




  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107
    Lynne and Runor, your posts have struck a chord in me. After 3 years metastatic I mostly function on the thought that I am not going to die today. But oh when those dark moments come! My sons girlfriend has a 6 months old nephew that looks exactly like her. I see my one day future grandchild in him since he looks so much like Nicole. They bring him around to see me because I love babies so much. I was holding him last weekend and out of the corner of my eye I saw my husband watching me with tears filling his eyes. I immediately knew that he was thinking that I would probably never hold a grandchild of my own. Of course I started to cry then my son caught on and we all started to cry. You never know what will bring these feelings to the surface. Chocolate and coffee sound good right now and may we all toast to a cure! Thanks for letting me vent!
  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107
    Lynne, you have certainly seen a lot of tragedy in your life, very sad things. I agree with you that cancer has not been the worst thing to happen to me. I have been fortunate in my life to have not suffered as much loss as many but without a doubt the loss of my father has been the absolute worst thing I have lived through. Even after almost 9 years I can hardly speak of it without breaking down. Like you said, it is the finality that they are gone forever. Absolutely heartbreaking.
  • micmel
    micmel Member Posts: 10,057

    Lynne(Man)~waiting with you to hear some good results for you. I hate waiting. It always drove me crazy. I check the patient portal like im stalking the hospital. You are on my mind sweet woman.

    Muddling~ 🍭👋 🍫~ congratulations to you my friend...that is so awesome that ibrance is making that cancer dance away. That’s so wonderful. I am doing the happy dance for you!
    So great ! ❣️❣️❣️🌹 keep it up my friend!

    Runor~ there is always so much truth and feeling to what you post. I enjoy reading your thoughts and adore your no holds Barr. Humor. I value your thoughts and words. So very much. Always.

    Lynne(50’s)~ you have endure some serious losses. The strength I am so used to seeing within in you is obvious, in what you have weathered throughout your lifetime. You’re an amazing woman and person. You’re family is very lucky. I am trying to adopt the I’m living today and many more ahead mantra. I need something of more positivity to go on everyday. Somedays I still can’t believe I have been through all those surgeries and blood work, infusions, hair loss, scars, pain, fear that’s crippling both inside and outside. So much to fear. I read this article about a little boy who’s skin is turning to stone. In the US, since his diagnosis it went from a small hard lump in his thigh and spread rapidly to his stomach area and is now starting to creep up into his flesh in his lung area.. the skin is becoming too tight to get full breaths. He sleeps 18 hours a day. He is 6. It really brought struggles period into my focus. No matter who you are. When you ask yourself why me? Like I do everyday, I pull out that article. Because, I am 48. He is 6. None of it makes any sense. Like Runor said. We all
    Endure hell at one point or another. We just as humans don’t have a choice. The only difference for the majority of people that really haven’t been shown a flash of the grim reaper are the ones in denial. Not us. We are strong and we love each other endlessly!

    Lynnwood~ I have had all of those same thoughts and worries about grandchildren, seeing the tear in the eyes would have blown my heart apart, you sweet woman. I want one too of course. One day I was watching tv and this news story was on and it was about young kids these days and the challenges they face and what they will be facing in this horrible but beautiful place we are. The population is out of control, somehow, someway, global warming is a thing. Although, they don’t know how really bad yet it’s been effected. I just told my kids. If you don’t prepare and have a very large bank account and job to assure that your kids aren’t going to a bad school, or forced to live in area that is dangerous with crime or drugs. Don’t just have a baby to have a baby. In this life now. Things are hard. Even sometimes two incomes in the family isn’t even cutting it. Without children, your life can be your own, you can do what you as a person, want to do. It changes your life, forever, and sometimes people don’t do change well. Being secure in your life, is a must. There is just no other way to make sure the child will have a safe life without stress or danger. As much as possible of course, the other thing I worry about is genes. Now my daughter has to worry about breast cancer. And so on and so on. It’s another inner struggle for sure. I don’t know how any phrase Rest In Peace can apply. I don’t know how I would ever be at peace always worrying about my kids.. missing my DH. Also not having a clue what death really is a scary thing as well . Who wants to suffer. ?
    You’re not going anywhere anytime soon so who knows things happen.
    Much love to all you ladies. ~M~
  • Lynne
    Lynne Member Posts: 368

    Claudia-Thinking of you and your hubby. I pray for both of you everyday. You'll be on my mind Saturday. Hope all goes well, and you get the help you need! Big Hugs!

    Lynne-I agree, cancer is not the worst I have been through. There are many things I have been through that were worse. Very well said, as always!

    Lynnwood-I have been on Gabapentin for 12 years. I had a complete hysterectomy (ovaries, and everything else) iin Dec 2005 (I was first diagnosed Stage 1 IDC, Er and Pr+ at 43). Of course I went into instant menopause (I was still very regular). I was having 50 hot flashes a day. I was starting to wean myself off it, after 7 years of hot flashes, when I the cancer came back. I told the oncologist I was no longer having the hot flashes, so I was weaning myself off of it. She told me to stay on it, because it was probably helping with the pain. I take 3 in the morning and 3 at night. I too lost my father (4 months before I was first diagnosed on a routing mammogram). Mom found him in a chair in the kitchen gone (she was asleep on the couch in the next room). Very hard with him not being sick (although he didn't feel well that day, and said he'd go to the dr's the next day if he still was feeling lousy, after Mom pestered him to go that day). 13 years later, we still miss him everyday. My Mom is 80, and has COPD, I live in the same neighborhood as I grew up in, as does my youngest sister (she can see both our houses from her house). I talk to Mom just about everyday, and see her at least twice a week. She tells me that I can't go before her. I said it's not in my hands. That would be another hard loss when she goes. I get in tears when I think about missing my 3 children (who are not married, number 3 child is) weddings (when I was first diagnosed, I just wanted to make it to my 3 younger kids high school graduations, and I did, they are now 32, almost 31, 28, and 23), and future grandchildren, my 3 grandchildren growing up, my husband living without me. I try not to dwell on it, but it pops up at least once a day. Cancer stinks!

    Muddling-Congrats on the scan results!

    runor-I hope you enjoyed all the chocolate and coffee!

    Ok, for all you inquiring, my bone scan showed uptake in my ribs (just like the last scan) and again they said it was probably the chemo working and the ribs filling in, no new spots, the abdominal ct showed everything remaining the same (even my reproductive organs, which were taken out in 2005!) in size and no new ones, the chest ct showed 2 new nodules in the mm size, and an old nodule increasing in size, which they said may be the treatment no longer working. I see my oncologist tomorrow. I'm thinking she'll want to change my chemo. I had told her that if I need to change my treatment, I was going to get another second opinion for the breast cancer oncologist at Dana Farber, in Boston. Every time I've needed to change treatments, I got her input on it. Only once did the two of them have different opinions on what drug to do next. I haven't seen her in about 2 years, so it's time to see what else is out there. Our youngest keeps asking me when are we going to visit him in NY. I was waiting for the results of this, we may go the beginning of August, depending on appointments, and when I start the new chemo. We have a busy August coming up. Our nephew is getting married the 18th in VT (we are staying over Fri and Sat), and we are going on our summer vacation (that we usually do in July), the 25th (hubby's 55th birthday) through Labor Day. I hope nothing gets messed up because of this!! I'll let you guys know what she says tomorrow! Thanks for thinking of me!!

    Another thing going on. I think that my empty nest is already over after a month. Yup, my almost 31 year old daughter and her boyfriend, had a fight 2 nights ago. She packed up everything, but it is still in his apt. She slept here last night (Daddy is a softy, grrrrr!). She's not sure what she is going to do. I knew this was going to happen. Well at least I've got to have some quiet for a month. I have a feeling she'll be coming back home.

    Tonight is my husband's golf league night. While he's gone, I am going out to dinner with a friend. She always makes me laugh! She's been through quite a lot in her lifetime. If she is picking me up, I will have a big fruity alcoholic drink. Now where is that chocolate (not a fan of coffee, unless it's ice cream or Kahlua)!!

    Enjoy your Thursday everyone!

    Lynne


  • divinemrsm
    divinemrsm Member Posts: 6,614

    50sgirl, I appreciate the honesty of your post in saying mbc is not the worst thing to happen to you. It is very sobering to read of the many losses you've experienced in your life. What gives you strength to always move forward? You are very caring and thoughtful, so despite your losses, it hasn't made you bitter. And I get the part about not being a Pollyanna yet still looking for meaning and purpose in life and maybe doing our best to make sure the good things outweigh the bad while acknowledging that the bad can get really sh—ty. (Sorry, couldn’t find a better way to express that.)

    Had EKG and chest xray today pre-surgery and just received a call to go in tomorrow to get the pin in. Its done under local anesthesia, and hopefully I'll be on the road to healing a broken bone soon!


  • 50sgirl
    50sgirl Member Posts: 2,071

    I didn't mean to leave anyone with the impression that I have had a miserable life. The fact is, I have been living a wonderful life that has had some tragedies along the way. The good times far outweigh the bad. I had a happy childhood. My parents and grandparents taught me the importance of love, faith, kindness, justice, hard work, loyalty, trust, education, individuality, and family, among other things. They also instilled in me a love of reading and lifelong learning. I got a good education, have had wonderful friends, and married my high school sweetheart. I have sons I am proud of. They are not perfect, of course, but they are loving, curious, and open-minded. Let me list of some of my favorite memories: Christmas (every Christmas), birthday parties, going to the beach, watching my father finish a marathon, going to summer camp, being in the delivery room when my first grandchild was born (can you imagine? i would NEVER have allowed my MIL in the delivery room, much as i love her), my wedding, traveling with my husband, taking my kids to Disney World, receiving a note from my then-8 year old son that said "Dear Mom, Here are two dollars - one for love and one for happiness. Thank you for being the best Mom in the world" (He signed it with his name as well as his two younger brothers. I still have that note. I read it often when he was going through those lovely teenage years. I still read it now, too, and i still tear up), being a stay at home mom for a while then having a successful career, having my college-aged son (not the same one as the 8 year old) thank me for having those strict rules when he was in high school because it gave him a good foundation when he went out in the world, having the honor of spending time with my father during his last days (yes, they ARE precious memories in spite of the outcome), zip lining with my dh, skiing, visiting Washington DC area with my aunt and uncle, seeing my mother earn her masters degree when she was 66 years old. (i was so proud). Bringing my dh home from the hospital after 3 months of being very sick and having him here now healthy and happy. I could go on and on because my life has been full of good memories, but i know this is really boring..

    hugs and prayers from, Lynne

  • divinemrsm
    divinemrsm Member Posts: 6,614

    Oh my, 50sgirl, far from a boring post! How wonderful you’ve had all these memorable experiences and milestones in life. And no, you never come across as living a miserable life. Quite the opposite! Thats what is so inspirational to me.

    Speaking of never allowing a MIL in the birthing room while delivering a baby, I well remember when I was having my son, he came 2months early and it was a whirlwind morning. Dh was with me and his mom was outside the room and a nurse asked me if I wanted my “mother-in-law” in the room and I emphatically replied, “NO!” This remains one of the most satisfying moments of my life! Haha!


  • 50sgirl
    50sgirl Member Posts: 2,071

    Lynne, I am sorry to hear about your disease progression. if it is time for you to move on, I do hope that the next treatment is a bit kinder to you than your current one. You have been on your current chemo for a long time, and it sounds like it is tough to tolerate. I have to add that I admire the way you handle it. You are wise to get a second opinion, especially at Dana Farber. I just wish they were around the corner instead of in Boston. So your empty nest is being repopulated? Well, there are worse things of course. You did say that it was very quiet there during the day. Maybe your daughter and her boyfriend will iron things out.

    Divine, My mother had a copy of the Serenity prayer on the wall when I was growing up. It has always stayed in my mind. I think she often found strength from those words. She gave my sister and me each a charm with that prayer engraved on them. I am sure you know this: God grant me the serenity to accept things I cannot change, the courage to change the things I can, and the wisdom to know the difference. I don't always adhere to this, but those words have popped into my mind many times over the years. Some have said that we should not blindly accept things we cannot change, and there is truth to those words, but some things truly cannot be changed. In those cases, all we can do is accept them and move on.I will be thinking of you tomorrow and hope that surgery is quick and boring. By boring, of course, I mean without complications.

    Hugs and prayers from, Lynne



  • Minnie31
    Minnie31 Member Posts: 494

    oh my, so much reading in the last day. BIgb, sending prayers for you and your husband. 50s Lynn, I hope that joint pain eases. Agree with you too, that we must accept the things we cannot change. Grannax, thinking of you. Micmel, yes that is my wig on top of my little granddaughters head. She did it when she thought I wasn't looking!! Questioned me as to why I didn't have any hair. So I told her I had been sick and had some nasty medicine that mad my hair fall out . She accepted that and never mentioned again.

    Runor, thoughts very close to my own. I do eat the chocolate! I think I am well past my best before date. Inoperable hip/pelvis which seems to be getting weaker. However I will keep going out with friends and doing as much as possible. Lynne Manchester, sending love and prayers to you too xx

    It's been lovely spending time with my daughter this week. She will be 40 in September (I'm in my thirties, she says). Her husband is a genuinely good guy, good husband, and father to their 2 boys. They've had a great time in the pool, swimming and diving, then eating too much ice cream etc. I feel so lucky compared to our young women members. I have seen my grandkids, even though I feel I may be robbed of the years when they become adults. So far, the Scottish connection of my family at age 8 and 11 are lovely young lads. I'm proud of their Mum and Dad for the job they have done

    Night night from a hot Spanish summer evening. Thinking of you all! Eat the chocolate, wear the good perfume, x

  • micmel
    micmel Member Posts: 10,057

    Lynne(Man)~ if changing treatments knocks back the progression you speak of, I honestly hope it is mild and won't be such like hell week now giving you problems. You are amazing the way you have tolerated this chemo. I had 9 abraxane treatments, and I could barely walk and the neuropathy was getting pretty bad. I don't know how you even do that. You were in my thoughts. I hope timing works out how you need it too with your plans.

    Divine ~ I will be thinking of you tomorrow and I am hoping you'll have quick healing and at least now you know what's going on with your foot pain! Local interesting. Will you have to have a brace or cast? I am having a local procedure done on the 30th of July. Removal of a lump of fat necrosis that has developed from cells from fat grafting reconstruction that have died.... and two other adhesions on my stomach. Since I've lost so much weight, my stomach skin is shrinking, and it seems that the scar tissue has fused with some underneath tissue above my liver scar operation area. So they have to severe the tissue, because every time I move the two tissues go two different ways and it pulls in severe pain in two different directions. So I told them I don't want to be put out again, I'm sick of that.

    Lynne(50's)~How could anything you say be ever boring.? That is what this thread is about,our thread. Family, love, friends, loving people, those stories are your life. I sit with tears streaming down my face as if someone I grew up with is sharing a memory with me.. memories like that are so very precious. I feel honored to be able to read this and share that with you. You're a wonderful bunch of ladies. I care deeply for you all..... much love~M~

  • micmel
    micmel Member Posts: 10,057

    Minnie~ that pic is adorable and I smile every time I see it. She seems like such a little funny spit fire. Loving that. So happy you enjoyed your time with your family. Nothing else really even matters. I hope spending time like that is making you feel better as you eat that chocolate!! Much love ~M~

  • keetmom
    keetmom Member Posts: 299

    Made it home from vacation, laundry is clean, but Emma comes home in 2days with 2weeks of laundry😭.

    I came to conclusion on this trip I can't worry about how my smile is, I can't pretend these years aren't exesting, anyone that knows me knows I have brain Mets I need to embrace who I am, I will share a picture on next post.

  • keetmom
    keetmom Member Posts: 299

    image

  • micmel
    micmel Member Posts: 10,057

    Keetmom~ I love the picture of you two! Looks like a happy Lil young lady to me, with a loving mother who is strong and living every day to the fullest..pace yourself on the laundry. Two weeks of camp clothing surely won't have a great smell of course. But I hope that she has had a blast! Nothing like the memories of camp. I still have mine. Only went one year , but I still remember the feeling of being free and running and playing. Nothing like being a child. I just wish Emma didn't have to battle so hard at her age already. She is amazing. Just like her mother is. Thanks for sharing the pic. I love it! Much love my friend! ~M~ We're you in a bird sanctuary!? Looks neat! Good night everyone !

  • PattyPeppermint
    PattyPeppermint Member Posts: 8,950

    muddling through. Good news !

    Glad to catch up on e ergo e else. Too lazy to take notes or remember specifics


  • micmel
    micmel Member Posts: 10,057

    Hi Patty beautiful! I hope you were able to rest last night. I was a little restless, sometimes my mind is like a movie of my life that won't shut off . Keeps me awake for hours and hours. I love you girl friend!! Much love ~M~