My Husband, My Life, My Love, My Family, My Cancer

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Comments

  • Lynne
    Lynne Member Posts: 368

    Muddling-Happy 35th! Our 35th is in October (we've been together since high school, 39 years).

    Parry-Beautiful love story! Big Hugs!

    Mae-Good luck tomorrow!.

    Claudia-Thinking of you and your hubby. (Thanks Chelle for the update)

    MJH-Beautiful picture! You look gorgeous!

    Tanya and Devine-I hope you are feeling better soon!

    Our eldest child, got into a car accident on the way home, on the highway. His Mini countrymen, I think, will be totaled. He hit the back of a pick-up truck in bumper to bumper traffic (on 93 N in MA, Lynne). Both of them are ok, thankfully.

    image

    Hope everyone has a good night!

    Lynne

  • micmel
    micmel Member Posts: 10,057

    lynne(Man) thank goodness everyone is ok. Ouchie. I’m sorry honey. My goodness. That looks like a total for sure. I love the name on the front. Classic!! Hope you at least had a great Time Before that happened. So glad they are ok. Love you friend. ~M~

  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    Lynne(man), I held my breath until I read he was okay. Whew.

    My husband and I dated 7 years before we married. Not sure how he has put up with me that long! Naturally I worry about him the most when thinking ahead.

  • micmel
    micmel Member Posts: 10,057

    waving hello to Daniel and Leslie.... hope all is well in your world. Give Leslie a hug for me....the strong woman. ~M~

  • runor
    runor Member Posts: 1,615

    Hello everyone. Anniversaries, gruelling surgeries, scans, car accidents ... wow.

    I have been only quickly dropping in lately because life is pretty busy. But I see another life bump coming my way and I will post about it later when I am not so raw. I need good words of wisdom from people 'in the know'. That means all of you. No, it's not a cancer thing, but a life thing.

    Love and hugs to you all.

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107
    Hang in there Runor!! Let us know how we can help you whenever you are ready. Sometimes we need some time to digest things that pop up in life.
  • illimae
    illimae Member Posts: 5,739

    Stupid fortune cookie, I know better than that.

    All good, brain lesions still shrinking & nothing new.

    image

  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    illimae, that's great!

  • 50sgirl
    50sgirl Member Posts: 2,071

    Mae, WOOHOO! I hope you are planning to celebrate the good news.

    Hugs and prayers from, Lynne


  • illimae
    illimae Member Posts: 5,739

    Absolutely 50’s, I see a steak and scallops in my future 😃

    Thanks for all the support, love you gals/guys

  • iwrite
    iwrite Member Posts: 746

    Illimae- So thrilled for you! Time to celebrate

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107

    YAY MAE!!!! Very happy for you!!

  • runor
    runor Member Posts: 1,615

    Illimae, fabulous news! Doing the air punch for you! Woot woot!

  • micmel
    micmel Member Posts: 10,057

    Oh Mae~ I am beyond thrilled. (But we already knew it was ok didnt we beautiful friend). Have a scallop for me. Love you much ~M~

  • tanya_djamila
    tanya_djamila Member Posts: 1,541

    Good evening ladies,

    Thanks Chelle for letting us know about Big B. I'm happy the surgery is over and I pray they are healing and resting.

    Grannax waving hi to your bionic neck. When I tell people I have cement in my back they are usually aghast too.

    Lynne NH I would count all the courting years too. 39 is a lifetime. My DH and I have 38. I don't know where the time went. The picture of the mini made me gasp. I'm happy everyone is OK I hate driving in traffic.

    Mae thank God great news. No more fortune cookies for you.

    Devine I hope you feel more healing today.

    My biopsy results don't show anymore cancer in my spine. My ONC told me already that he wanted me to do radiation to that area even if the biopsy was clear. But I don't want to do radiation there unless there's something definitive. For now I'm relieved and waiting to eat a delicious steak with baked potatoe and broccoli and chocolate something or another.

    Have a great evening all.

    Tanya

  • Minnie31
    Minnie31 Member Posts: 494

    illimae great news. Never heed fortune cookies 🤗

    Looks like there is good food on the menu for You, and Tanya. Enjoy!


  • 50sgirl
    50sgirl Member Posts: 2,071

    Bigbhome, I am lifting you and your DH up in prayer. I hope that healing and recovery have begun. Rest when you can. Remember that you are just one person and don't expect superpowers from yourself. (((Hugs)))

    Mae and Tanya, Scallops, steak, baked potatoes, broccoli, and chocolate - sign me up for all of them.

    Tanya, WOOHOO for the good biopsy news. Earlier you had asked about my new treatment. I am not on chemo, just on tamoxifen. It has been 3 1/2 weeks since I started it. I think it will be easy compared to what most others are on. The last week and a half have been full of severe bone pain with a bonus of a pulled back muscle and even stiff neck - oddly, no joint pain which I had expected. I am on the mend now, I think. I am still hobbling around like an ancient person, but I can laugh about it.

    Divine, How is your foot feeling?

    Lynne, That Mini looks terrible. I am glad no one was hurt. Are they feeling sore today?

    Gracie, I hope you are feeling okay.

    Grannax, Where are you? I haven't seen you lately.

    Hugs and prayers from, Lynne


  • ElleOnWheels
    ElleOnWheels Member Posts: 57

    GOOD GOLLY!!!!!

    I leave for a few weeks and so much has happened I will never catch up! Waving hi to all and sending so much love, especially to those going through difficult times.

    Divine...hope the healing is going well, Bigbhome...thinking of you and dh, can't even imagine....Mae!!! great news,so happy! Micmel, you're a sweetheart to think of me when I've been away for so long. Eventually (hopefully) I'll get all the back pages read and know what's going on with everyone.

    I'm good...almost through my crazy summer season. Four shows down....On Your Feet, Titanic, The Full Monty and Brigadoon. Two more to go....Beauty and the Beast and Thoroughly Modern Millie. Three more weeks!

    xoxoxo~ E




  • micmel
    micmel Member Posts: 10,057

    waving to Iwrite. Hello Kathryn. Always love to see you here. Have you seen or heard from Z? I am starting to worry. Haven't seen her much. Hope all is ok with you and yours.

    Of course Elle~ I try to remember everyone in our little family here ! You're amazingly busy wow. So many things going on. I am in total awe. Glad to see your name Home here also. Big hugs for you!

    Magda~ hope you're ok sweetheart!

    Love to all ~M~

  • Grannax2
    Grannax2 Member Posts: 2,387

    I'm here. Still recovering from keeping my grandkids for two days. It was fun but I wasn't at my best. I have a sinus infection and don't feel all that great. I get sinus problems with Ibrance, taking Mucinex daily usually helps. This time it wasn't enough. And I got started on antibiotics late. We still had fun, I just wasn't as energetic as I needed to be.

  • Lynne
    Lynne Member Posts: 368

    Just to clarify. That was NOT my Mini. I have a Mini cooper Convertible. This was our older son's Mini cooper Countryman, hard top. Same colors though. He has 2 thin black stripes on the sides of the hood, while we have 2 wider white stripes going down the middle. He said he wasn't sore this morning (lucky), he was sore this afternoon from squeezing under a house for his job though. The adjusters will be looking at his car on Fri. Right now he has a rental car (chevy Impala) until Fri, that the ins co is covering. He's checking out used Minis again (he's had 2 red ones, a cooper and a countryman, his car before that was red too, he's had that plate for a long time). He's not sure if he's going for a Clubman or a Countryman, but he wants the AWD. He didn't need snows, like his brother and sister did with their's. Our's only goes out once in awhile in the winter (we have an SUV), the roads have to be down to the tar.

    Tanya-Happy to hear good news about your biopsy results!

    Mae-Glad to hear about your good results too!

    runor-Hugs! For whatever you're going through!

    Went out to eat with some former co-workers tonight (half have left the company, most of the ones still there are working from home now). We had a great time! Lots of catching up.

    My sciatica is killing me. Ever since we went for the motorcycle ride a week and a half ago, it's been bothering me. I finally called Pain MGT today, and the earliest appointment they could give me was in September. I said that's not going to work. I informed the receptionist, that the PA said she would squeeze me in earlier, she transferred me to the nurse's line, and I left a message, saying I had stage 4 breast cancer, and I could not wait 2 months for an appointment. It hurts when I walk, sit. lie down, and that's taking muscle relaxers, cbd, usiing a heating pad, and I even broke down and took an oxycodone this afternoon (they expired a month ago, but I thought I'd try), nothing helps. I need a steroid shot! I went to dinner with my wheelchair tonight so I wouldn't have to walk.

    My oncology office finally got back to me after I called them yesterday, about my Dana-Farber appointment. My appointment is next Thurs at 5pm. Hopefully, all the traffic will be heading North as we travel South. After the appointment, it should be smooth sailing. They also gave me 3 chemo appointments (If I choose Gemzar), the following 3 weeks. We have the wedding the 18th (we are heading up there Thursday now) and the 25th we leave for vacation for 10 days. I hope I don't have side effects for whatever I choose (I have had SE's with the other 3 chemos I have had, and had to take steroids before and after chemo, YUCK!). I really don't want to be feeling crappy for either one! At least the week of vacation , I have off from the oncology office. Once a week for 3 weeks than one week off. Not happy about it. We'll see what the breast oncologist says Thursday!

    Off to take another muscle relaxer, cbd, and pain killer! Have a good night everyone! Hugs!

    Lynne

  • micmel
    micmel Member Posts: 10,057

    Lynne(50's) hello dear. I am very sorry you're dealing with bone pain. It's freaking awful. The only thing that helped me was Claritin. I also used lidocaine ointment in the joints and it helped tremendously! Also, good ole aleve alternating Motrin in between. I hope you can rest well. Sleep is a must!

    Lynne(Man)~sciatica BOo!!!!! I am bummed for you about that. It seems that may be a trigger for you, riding on the back for so long. You're a trooper for sure. Glad to hear no problems for your son and pain from the accident.

    Grannax~I also am battling a sinus infection and have been a lot since starting on ibrance. How many cycles are you on? I'm convinced all chemo is accumulated and the more you take the worse the certain side effects can be. At least for me.

    Minnie ~ always have to smile at your avatar because of the story behind it.

    Mae~ menu sounds awesome and so happy your fortune cookie was way ass wrong!

    Lmao @runor saying “I'm doing the air punch for you “. Something I was able to clearly picture. I am thinking of you sweet friend and am here when you need an ear. We all are.

    Divine~thinking of swift healing for you my friend!

    Hello Patty!! Daniel and Leslie...Tanya...MJH....Chicagoan....Lynnwood...Magda.....Chelle...muddling..

    Much love to you all. ~M~

    Have a nice restful sleep!

  • oxygen18
    oxygen18 Member Posts: 10

    Dear Parrynd1,

    Your story is so very beautiful and touching and wise.

    I wish it could be widely read, and reread.

    The two of you are in my thoughts, and I sure hope you respond to treatment far better than anticipated, and I hope for new treatments.

    I'm sending hugs and good wishes.

  • illimae
    illimae Member Posts: 5,739

    Micmel, I haven’t heard from Z either but I sent her a message though Fitbit and I can see that she is still very active (girl gets her steps in, whew!)

  • runor
    runor Member Posts: 1,615

    July 26 will be one year since I finished radiation. I remember Hub coming to get me from the cancer lodge I stayed at for 3 weeks. I remember how tired I was, how weird it felt to have been away from home so long, the longest I have been away from Hub in over 30 years. It felt awkward and bizarre. Cancer had invaded our lives.

    Thinking about this makes me feel .... I'm not sure I know the word. It's like when we stand in silence to observe something of great importance and gravity. I look back over the past year and feel a grave silence. It was shattering. We survived. Sort of. For now. For short or long, no one can say. But for now, I am here. It might have gone a different way. For many it has. I feel very much that I need to be still, be silent, reflect and see where I have been, who travelled with me, how many of us are still on this journey that demands that we live even as we carry the burden upon us.

    This anniversary feels significant and my heart feels sober and heavy. I know in this circle of women there is understanding.

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107
    Runor, as always beautifully and eloquently stated. Totally get it.
  • micmel
    micmel Member Posts: 10,057

    Runor~ of course today is a significant thing to you. It was walking into a fog, one may never see the clear of day again.You hang onto that stage you are. You're doing fine. We love you. Of course it's emotional and it will always be that way. It should be, or something is wrong with you! Not many people can stare cancer in the face head on and not be knocked to your knees. I don't even care if it's stage 0. Cancer is cancer is it's fuc*ing scary. You are correct 100% to say you should never feel bad for sharing things here. We all know what it's like to have the bottom drop out from under your life. Good thing is for you, someone caught it for you. I think you're amazing. I adore you and you keep your wonderfully supportive humor and special friendship that I have come to know here from you. Lean on us. You are like family. You are not going to be stage four my sweetheart. They are on the ball. I won't allow it. I'm sorry you have to experience an aniversary for this at all. But one thing to remember in your own words. “You made it". And you will continue to be just a ok. You have one hell of a posse surrounding you that does have stage four and we are pissed. Like someone said we will build a circle around you and beat the living shi* out of any thing. coming near you!! Much love and you're in my thoughts. I am sending love over the miles. You are one of my. Sweet sisters. Much love ~M~

  • keetmom
    keetmom Member Posts: 299

    Well just got done at oncologist office, my liver numbers are up... ALKPHOS is at 301, AST at 113, and ALT at 125, they checked tumor markers, told them I would find out next week unless they have a plan, by the way tumor markers last time were at 1300, down from 3000. I just want to feel good to go to Colorado in 56 days

  • illimae
    illimae Member Posts: 5,739

    keetmom, have you had mets to liver before and could something else cause a change in the test results?

    Sending my best good vibes your way 🙂

  • keetmom
    keetmom Member Posts: 299

    Yes I have had Mets before, since beginning, they don't think anything else could raise them.