My Husband, My Life, My Love, My Family, My Cancer
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Micmel, my first thoughts are with you today as you have your procedure. Hope your recovery is quick and as pain free as possible. Love your new room! Lynne( man) so sorry to hear about your sons accident! I always worry about my kids in a car. They drive where there is a lot of deer and I am constantly telling them to be careful.0
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Lynne, also hope your sciatica pain is resolving. Tanya, glad to hear your spine is clear of cancer, have you made a decision about radiation? Grannax, sinus infections are horrible! Glad yours is finally resolving. I have watched Dr pimple popper and it’s very interesting! Minnie, waving hi and hoping you are doing well!0
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Keetmom, great pictures! I am a picture fanatic and have tons all around me. After all, what else would I rather look at then the people I love the most! I’m glad that you are finding it easier to accept help.. we all need it and there’s nothing wrong with that. Bigbhome, glad to hear your husband is recovering, one day at a time and it takes time as we all know.0
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Runor, hope you get some answers regarding the blood in your urine. As others have said, there are many causes for it. Please keep us posted. Glad to see your relationship with your daughter is on the upswing... another one day at a time situation. Divine, so horrible that you walked on your broken foot for so long! As you said, we always put ourselves last. Glad that you recognized that it’s very easy to slip back into old patterns, it really is hard to change, I am guilty of this myself. Illimae, giving up my job was the hardest thing I ever did, and after all was said and done, it was the BEST thing I ever did!! I love the description of your new job duties!!! Hope I acknowledged every one, this thread moves so quickly! Just know that I think of you all daily. Pots, come back on and tell us about yourself!
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keetmom, Allie did a great job. Love the pictures. I've refused any pictures during my MBC ordeal. Your photos are making me think about that!
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Keetmom, you are as lovely as always! What is the weather like up there? Are you enjoying all of your kids being home? I love it when the gangs all here!
Hugs and prayers,
Claudia
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Muddlingthrough, you should definitely reconsider having your picture taken. Our loved ones love us regardless of what cancer has done to our physical appearance. They will see their Mom with love in her eyes .0
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I just read through 3 pages of posts. You can't miss a day or 2 on here!!
Keetmom-Love your pics! Beautiful!
Runor-Hope the blood in your urine is a simple fix (medication).
Lynnwood-My sciatica is better. Of course I made an appointment with pain management, last week. I have an appointment this Wed. I thought I should cancel it, but I still have pain on and off, but doable with tylenol.
Mae-Love your new avatar!
Lynne-I will certainly miss you. Send me a message once an awhile, and we can go out for lunch again!
Micmel-Hope your surgery went well.
Muddling-I let them take pictures, but I have to have something on my bald head. No "baldy" pics!
Beautiful day today. I should go out and enjoy it!
Hugs to all!
Lynne
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Lovely room Micmel, enjoy it. Hope the procedure is all over with by now.
Keetmom, lovely photos!
Off for my usual treatments tomorrow, not seeing my Oncologist this time so I must be doing well.
X
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Hello ladies~ I am home and in bed! I had the best experience today with my procedure... the doctor was wonderful, the staff was fun, they played classic rock and roll for me because it was local anesthesia after all! Which btw isn't easy either. They took the necrosis out Licketty split. It was The adhesions that was hardest part my goodness. The numbing needles were huge, and it took way more than I would have liked to numb it. The first time he made an incision I felt it through my abdomen like lightning!! So more needles. It turned out they needed to go a lot deeper than they thought to get to the adhesion. It was because of my liver surgery, those were forming since June of 16... over a year in the growing. He said they look granular, and didn't think there was any worry, not to mention I had a scan may 18 and it was stable. So that was good. But the music they played took me back. They played YES “round about". And then after yes came allman brothers sweet Melissa. My surgeon and everyone looked at me and said “welp you're meant to be here". It was my song with my name.... then big ole jet airliner by the Steve Miller band... then some doobie brothers. I honestly never had such a good experience as I had today. Putting aside the pain. Of course and the digging that was going on in my abdomen..like wow. As if they were digging for treasure. I could feel the tugging and they used a laser to cut the skin out and I could smell the burning flesh. But it wasn't honestly all that bad. I'm just glad the lumps are gone. Now a few weeks to get the wounds healed. The shower is less than two weeks. Yikes !
Thanks Minnie about my. Room. And Grannax, I honestly don't want to leave mine either. I love it. He got me a new side table and I love it. I can't wait to get it. I think like Wednesday it's supoosed to arrive. Plus my best friend bought me a new comforter to go with it also. She's something that special sister/best friend of mine. She was my neighbor since we were 12 and have been friends forever. I had such a good day even though I had surgery? Damn that's weird. Lol. Here is the end table, I am waiting for!! Can't wait. Love the new room!
Hope everyone is doing well. Love to all!
Gracie~where you be ? Sweetheart. ~M~
Waves a special hello to GP and Stilllivin 💜.
Also Pots welcome to the thread. Would love to learn about you and your family.
Keetmom~ beautiful woman. I adore the pics. I honestly think they are lovely. The beautiful flowers radiate in the background and beside you. You have a very determined look on your face of a strong magnificent mother, who is not only beautiful inside but outside. I love how you rock those head wraps. I just could never pull it off. You're beautiful my friend. Love you. And well done Allie!!
💙Bigbhome....hope all is improving with DH and you're resting..
💜lynne(Man) glad your nerve is better. That is so painful. Glad your son is ok!
Muddling. How are you today darling ?
Grannax~ glad your sinus infection is better. I hate them!
Minnie~ A big ya hoo for not seeing oncologist, that is certainly is abonus!
Lynnwood~ Thank you so much for thinking of my procedure, it's mean a lot to me. Thank you!
Lynne(50's)~ Not a day that will go by that you're not mentioned or thought of! For sure !
Tanya~ Hi darling. How is that gorgeous family?
Elle~ Hello my friend. Thinking of you today !
Mae ~ Hello dear. I thought of you when they played that music, wondering if you would like those songs too. Still have B52's in my mind!!
Runor~Hello sweetheart, sending a cyber hug!
Anyone hear anything about Magda? Or Z???
Hello Daniel and Leslie! You awesome Couple!
Iwrite~ hello lovely lady!!
~M~
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One of the final touches on my room!! Can't wait my sweet DH! ❤️❤️❤️❤️❤️❤️LOL at it saying the nightstand you C LOL That is certainly the truth
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Hi all! Nice to see you keetmom 😀
Micmel, aren’t fun surgery rooms the best, it reminds me of my port and the singing surgeon.
So Wednesday is my first day on permanent sick leave/disability and I have Jury duty on Thursday, ugh. My official retirement date will be in January once all my leave time is exhausted. I’m more excited than I thought I’d be. 😃
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jury duty BOOOOO! Last day of Work Yay 😁! Jury duty BOOOOOO!!! Last day of work YAY!!😜. You deserve to enjoy every single second. You worked you're arse off for them. I love your new pic lovely lady.... are your eyes green or blue.?? They are a very great feature of yours..
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micmel, they’re green, very green and they are usually the first thing people mention to me “wow, your eyes”. They’ve served me well but make things difficult sometimes because the sun really penetrates, I never go without sunglasses.
Here’s a pic in my cat hat from last year.
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I could tell they were very pretty right off the bat. What a lovely color they are. I have to admit I haven't seen that many people with such a beautiful green depth of color. They are truly striking. You're a beauty for sure. I hate the fact that I cannot Rock a hat or a head scarf ever. Awful!! You guys. Just lovely. I love the cat hat! Have a good night. “Green eyed lady, oceans lady, child of nature... friend of man". Sorry music haspenetrated my head today from that operating room!! Lol. ~M~
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I'm doing fair today Michel and glad you're home.
I'm a green-eyed lady* too. Very green like yours, illimae. Maybe I need a cat hat.
*Song from Sugarloaf, one of my fav songs.
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muddling~ two green eyed ladies!! I think that hazel eyes are really lovely. Seemsto be more rare than I realized especially since brown seems to dominate the genes. I have three siblings. They all have dark dark brown eyes. I have blue. My mother has dark brown eyes and my father has deep ocean blue eyes which I got from him. I am the only child with blue. Maybe that's why they have always dis liked me. Or maybe I was just 🐣 hatched. Because I am nothing like any of them. Trust me. That's a good thing. I say more green eyes. They are captivating! Goodnight sweet sisters. Less than two week count down until her bridal shower. As of today we are having 30 people. That is quite a turn out for sure!! I can feel the heat flashes already! Much love ~M~
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I so enjoy reading your posts! You're a busy bunch! Micmel, I'm glad the music had you grooving...makes all that poking and prodding more bearable.
I was diagnosed with MBC in May 2017 after being “clear" for almost 4 years. I remember being in shock when I got the phone call at work from MO that I had a “thingy” in my sub-abdomen...yes it’s in an odd place. I wanted to run as far and fast as I could to get away from the cancer. I started Ibrance and Faslodex in June 2017 with such hope and thought I would keep working, that I could manage this, that the drugs were the newest and best.
By fall 2017 I could feel that it was getting harder to keep working, it took way more effort to keep up, the fatigue was noticeable. To stop working was one of the hardest decisions I've made, I had moved across the country in 2010 for my dream job. I stopped working in Dec 2017 and am on LTD. By Xmas the MO thought I had another progression, this time specks in my lungs were growing and turning into something worrying. By March they were big enough to biopsy. Eeek! Now I have cancer in 2 places, still the same cancer. Back into chemo....i just finished Taxol#14, three weeks on one week off, and so far it's been shrinking the tumours. I'm due for CT scans at the end of August. Taxol kicks my butt for sure, the neuropathy is noticeable in my feet now. Three more chemo booked for August. Not sure how many more after that.
I'm 63, have three “kids" (daughter 36, son 34 and son 32); i've been married for 45 years next weekend. DH drives me crazy and is also my best friend. He retired in January. I love doing Pottery...working with clay at the community studio is what keeps me sane...I have One adorable grandson. AND we are moving back across the country at the end on August to be with DD and grandson and DS and wife....and to get away from the nasty winters here. If we don't move now, i'm Afraid I won't be able to do it next year. I have a great friend helping with the sorting, purging, packing; DH and I have purged....going through old photos and papers was the worst. Letting go of stuff has been hard but it will cost us a dollar a pound to move it!!! More than anything, I wanted my stuff and the kids stuf organized so that if something happens to me then things are in order. DH wouldn’t be able to do this on his own and I didn’t want to leave a mess for my kids.
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Pots~that cleaning up and getting everything in order, I so agree with you on that one. We did that last fall. Basement, every room, every closet and got rid of anything we obviously we didn't have to have. When we started looking round we realized , we had so much crap!! It feels like a huge weight lifted for us all.the last thing I want Is for DH to be stuck with grief and, going through my things as well. It's bad enough to have to donate the clothing or what have you. Didn't want to make it worse.
Did the living will, medical advanced directive, and power or attorney all done. That felt better also. I want to be cremated and that was stated. And my kids are to split my life insurance policy with DH overseeing the money until they are at least 30 or purchasing a home.
I'm sorry that stubborn cancer of yours won't getthe hint and go away!!!! Ok ladies. Long day for me with my operation. Sleep tight. I hope I can. I have three new incisions yuck! Good night! Love the fact that you also have your person. Makes all the difference. Hugs across the miles. ~M~
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Thanks for sharing your story Pots! We are also in purge mode! Just finishing up our attic and boy did we have a lot of junk!! Found my wedding China up there... I guess couples nowadays don’t have China, my sons girlfriend looked at me like I was crazy when I was telling her how we would pick a pattern and collect all of the pieces. For some reason my husband didn’t want to get rid of it so there it will stay. It’s been up there about 35 years so a few more won’t matter. Attic is all clean and neat and so is basement. It feels good when it’s all done. Micmel I remember when you cleaned out last year and how hard you worked. It looked great! Hope everyone has a great day!!!0
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Decluttering, downsizing, purging, simplifying....however you want to say it, they are all near and dear to my heart. I've cleaned out many a relative's homes and do not want to leave a big mess for ds.
Our house is big, lots of spare rooms to hold stuff and I'm a good organizer, shelving and boxing things up. The problem is, I realized I'd stored a whole lot of junk. It's not a quick process, but I've managed to streamline different areas the last few years.
Clothes are easy to go through and get rid of. I put all my photographs in photo boxes. Dh and I gradually spent the months from Thanksgiving till spring putting things we no longer needed to the side and had a huge garage sale last spring. Bye, bye, xtra Christmas decor, too many gas cans and tool boxes, books, outdoor furniture, 10 speed bikes and more. It was very satisfying. Helps clear out the cobwebs of the past so you are more open to the here and now. I had soooo many cans of paint from home projects over the years. I bought a few 5 gallon buckets, poured all the whites in one, the beiges in another and greys in the third. And we've used all the paint now on various projects!
I try to be mindful and not bring more in to the house.
An excellent book on the matter is The Life Changing Magic of Tidying Up by Marie Kondo.
There is a thread on bco on this subject. If you're interested, pm me and I will send the link.
Lynnwood, you make a very good point. The next generation is not much interested in receiving our stuff. I'm letting ds know that he is welcome to auction off our home's belongings when the time comes and to not have any guilt about it.
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Well, for nine months I have not had much use of my right hand due to some evil mix of neuropathy, actual cancer, lymphedema, and maybe even carpal tunnel for all I know. ( That's what I thought before dx.) Last night the pain was so bad I was whimpering before the tylenol could take effect. Every evening I tell myself to calm down...breeeeeathe...calm etc and try to list the positives, of which one is that my left hand is fine even if it's not my dominant hand. So, this morning I wake to my left hand completely numb. Some of that went away with movements but each fingertip is still numb. Damn letrozole (Ibrance?), which I need to stay alive. Very, very down today. Trying hard not to ask myself what is next and why bother. All I can remember is the onc who talked to me the day of dx saying "There is no cure. There is NO cure. I can treat you until you can't tolerate the side effects." He isn't the onc I usually see but he was right, damn it. Pain, check. Crushing fatigue, check. Weight gain, check. Hair loss, check. Bone issues, check. Yadda, yadda, yadda. But at least I could use my good hand and flipper hand for some things. Sorry I'm just whining so will close now. I know you all understand. I'll probably adapt to this additional crap, but, wow, how I hate to ask for help with simplest things. Life in reverse.
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Good morning friends!
I heard from Z, and she was vacationing with her family.
Micmel- so glad your surgery went well and you are home recuperating.
Sending a fruit pizza photo. Shouldhave gone hiking instead of baking, but yummm.
New granddaughter is scheduled to arrive tomorrow. My daughter has looked forward to being a mom for sooo long. It’s wonderful to see our children’s dreams come true. Glad to be here for this!
Have a great week everyone!
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Iwrite, that pizza is almost too pretty to eat. Hooray for new grandbaby! Thanks for news on Z, too.
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50s girl I will miss your posts. You are always encouraging and the reason I hung around for your comments and sharing your trip to FL. You are special and will be missed. Take all the time you need.
Muddling sorry about your hand. Sorry about all of your checks and our checks after the diagnosis.
Micmel I’m glad you had happy surgery. Love your new bedroom
Hi grannax, Big b, keetmom-love the pics,
Welcome Pot I hope you will find comfort here.
Minnie hope all is well
I had my follow up today and there is keratin in the bone marrow which indicates cancer. Onc describes it as you can’t see the criminal but the crime scene is there. We’ll stay the course for. Now and continue with scans etc.
Getting my zometa and faslodex today.
I try to do everything that I am able to do. The many things that I’ve wanted to do but put off because of work, kids, bills, health, etc. I am in a place now where I can do them and so I am unapologetically forging my way through adventures. I love my grandchildren and family near and far. I cherish the time we spend together. I’m happy my grand babies lived with us and across the street for these past few years and although I will miss them when they move back north I am grateful to have Had this time.
Thanks to all of you ladies for sharing your souls families and pleasures.
Have a wonderful afternoon
Tanya
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I write missed the fruit pizza pic while writing. Congratulations on the new grand baby
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Iwrite-That pizza looks delicious! Congrat on your new grandchild!
Micmel-So glad your surgery went well. Heal quickly!
Pots-We've been in our house 34 of our 35 years we've been married. Talk about clutter! We have 4 adult children that still have a lot of stuff here as well. The cellar is not finished, so it's packed to the ceiling in places. We also have a two story garage, that we have never put our car in. The bikes, toys, tools, and more crap (besides the motorcycle) reside there. He bought a plastic shed, to put more stuff in too! I don't seem to want to do it. I did go through my clothes once, I need to do it again! Get rid of those Making Strides and Relay for Life shirts (all 26 of them). I may wear one once in awhile, but they are all long sleeve crew necks (I prefer v necks, I feel like I'm suffocating otherwise). I really need to go through the 35 years of photos too. Seperate them for our 4 kids and send the relatives their pics. I don't want to leave it all for him. I know the kids won't help in that.
Tanya-So sorry there is new cancer in the bone marrow. Good luck with the Fasolodex (I so hated those shots!) and Zometa today!
Mae-Love your green eyes. Our son-in-law has light green eyes. Unfortunately, the two boys didn't get his eyes. Matthew (the 7 year old) has our daughter's dark blue eyes (he looks just like her with the blonde hair too), and Aiden (the 5 1/2 year old) has our son-in-law's father's eyes (he passed shortly after he was born), which are a light blue (with his red hair!). I have blue, as do our 2 daughters. My husband has brown, as do our 2 sons.
Muddling-Sorry to hear about your right hand (I hope that you are not right-handed!). I too have neuropathy in my hands and feet. They too hurt at the end of the day. I asked my oncologist how long it takes to go away after stopping Taxotere (it started about 4 months ago), she said she had one woman, who was a bank teller, that it took 2 years, but she was on her feet all day. I hope it goes much sooner than that! I hope your's gets better soon too! It's good to vent, and we don't mind you doing it here! Hugs!
Thinking of the rest of you too!
Last night, I was going to go in the pool, after dinner. Our son and granddaughter went it and I hung out on the pool deck. We had pizza on the regular deck, and when we finished, all the sudden we could smell a skunk. Needless to say, I didn't get in that 80 degree water. I should have went in earlier with them! I'm talking my husband into going in with me today! Humidity is coming back tonight! BOOOO! It's sunny though.
Off to my pain management dr tomorrow. Of course the sciatic is just about gone! Seems like a waste of a co-pay to me! Then off to Dana-Farber in Boston on Thurs. 5pm appointment. Traffic shouldn't be bad either way. We'll miss the workers going home.
Enjoy your Tuesday! Hugs!
Lynne
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Pots, thanks for your story. Seems a lot of us have been with our DHS for a long time. Mine drives me crazy at times too but I love him and I know he loves me.
Muddling, sorry about your hand. My issue is my right leg, hip joint is destroyed and I have neuropathic pain, and it is getting harder and harder to walk. I have to rely on DH to do many things now which drives me crazy.
On the purging, clearing out, we have lived in Spain for 15 years now, so had a major clear out before coming here, and now I just keep clearing little bits at a time, the things I know otherwise will never move, ever! 😂
Tanya, sorry to hear of your problem too.
Micmel, hope you are relaxing.
Illimae, my friend has lovely green eyes like yours too.
Lynn, hope you get to manage that pain.
Love to everyone else and good night from over the pond x
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I will go over all the posts in a little while. Just woke up, from another nap. Today is a tad harder, I realize that I am one of thee most stubborn people, I am sooooo in patient with things. My DH has been busting his rear end preparing my new room for me. I love the paint color and my night stand arrived today😊😊😊 yes it did. I was sleeping and my DS was Home for lunch from work. I thought I had heard a little noise before he left to go back to work. When I woke up, I saw the box and knew what it was. I stood there looking at the box. Hmmmmm wonder how heavy that is?. (Stubborn side of me). No way you're crazy you just had surgery you idiot YESTERDAY! (Good side of me) yeah but I bet you could do it, you know you REALLY want it next to your bed this single instant (stubborn side of me). Oh my goodness that's a really really bad idea. Go back to sleep, you're obviously losing your mind.(good side of me)..
.. ahem.... so there I was sliding the box one step bump up at a time with my back and rear end. Almost there see I knew you could do it!!! (Stubborn side) yeah dumbas* you're only half way up to the room, and you have lymphadeama and your arm is throbbing. (Good side). I finally get the box up the stairs. Into my room and then l, took some breaths, and assembled the handles. I realized I am not very patient. Lol. Anymore. I need too be though because that hurt! And surgery yesterday. Duh! So pain medicine it was and then I slept three hours. But man. What am I gonna be like when the chair and ottoman come? Lol hope everyone is doing well.
I guess the basement thing was also a very stubborn thing as well. Lol. Oh geeze. Much love to all ~M~
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Thanks Lynne, Tanya, and Minnie. It will be what it will be but I want it to pass me by.
Micmel! You shouldn't have done that. I probably would have also. And paid dearly for it later. Rest!
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