My Husband, My Life, My Love, My Family, My Cancer
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muddling~ that sounds delicious. Like something our resident chef Mae might make. You have made me hungry. I asked around and have been told that Claudia has a lot of company at her home visiting at this time and she is always so very busy. So knowing that she has many people at her Home this week makes me feel a little better. I hope she knows how much we care. She's also another tough one. We have such a strong bunch.
I miss 50's sweet smile as well!
Lynnwood~Awful heat I’m so sick of it all!!
Tanya? How are you sweet one?
Magda.... thinking of you..
lynne(Man)Hope those two oncs agree and you can get cracking on your treatment. I am sending hugs.
Divine~ How is your foot healing ? Haven't seen you either hoping you're ok as well!
Blueshine~ been along time also. Hmmm that stuff worries me...
Waving hello to Holmes... it's just too hot for me outside. Yuck!
I write~how is the little grand baby. Juniper? Share some pics I wanna see. (Unless you're not comfortable doing that.. I totally understand) and your tooth.!?
Runor~ Hello darling. I'm waiting with you to see how things go. Urinary Tract infection ?
Minnie ~ how are things in Spain ? Heat back off yet?
Grannax~ I won't leave my new room I'm a room junkie now. Just have to wait for my curtains and have DH put up my rods. It's really lovely. My cabinet arrived today. I love that also. Hope you're doing well.
Mae~ I am having gym envy. How I miss going to the gym so much. You're a powerful woman. 😊
Elle~ how are you?
MJH~ loving the pic! Never saw a wren that close before ,Ya know you have been pretty busy this summer yourself. How are the grand kids ? Summer is almost over already. Fall will bring Cooler temps!
Soon it will be blood work time and visit oncologist time. I get used to not seeing them all and I honestly hate the smells of the infusion center. I'd rather never have to go back ever.
I put my cabinet together today I made a few not noticeable mistakes. I'm going to ask DH to look over it. It was tricky. But I really like it!
Parry~I hope you're feeling ok. Thinking of you new friend.
Pots ~ Hello!!!😊
Patty ~ love you girl
Gracie~ thinking of you sweetheart. Everyday
Chelle~ ❤️
Nan~💜
Bigbhome~ we miss you hope to see you soon 💙 hope DH is ok also!
NO1~Was really good to see your familiar name here after a while. So nice to see you. So glad you're doing ok.
GP~my friend waving hello
The shower is Saturday. Ugh stress is kicking in full force. Cleaning to be done. Vacuuming, DH wants to shampoo the freaking taco packet off the floormakes me so mad darn dogs. All of the food has to be picked up... the chairs have to be arranged Saturday. The decorating has to be done. Good thing we will have 5 people here helping. The presents are being sent here, some of them. I am not wrapping them all, some I will for sure. I already feel exhausted. My poor DH. Will be exhausted I'm sure. Hope I make it. Much love ~M~
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There is my cream new cabinet for my room. It took forever, I had to start from scratch. So many pieces ugh!0 -
I also had to share this. Made me laugh. I had to admit. My name was on it! Yikes
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Dear ladies - I love all the love, support and affection you show each other on this thread. I
read all you posts, rarely joining in, but feeling the warmth. I've been so much better after my dramatics three months ago (new bone mets bringing a broken femur then dramatic bilirubin levels) Now on 3-weekly chemo and feeling great sat doing nothing but with no energy when I try to do activethings. So I decided to get some creative projects going and stencilled this (actually spent longer choosing phrase)Wishing you all energy, peace and comfort with ths pesky disease.
With love
Sarah
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Micmel, thanks for the reassurance re: Claudia. Also that's a pretty cabinet you assembled! More pics when your curtains are up, ok? The shower preps will all get done and you will all have a great time.
I used to use a spray called Spot Shot for carpet stains. If they still make it, get some and try it. Might buy you some time on having to do a big shampoo right now. We took up most of the carpet and got hardwood floors so I seldom need a stain spray now.
Scwilly, that's a pretty sign, and true!
Hello to everyone.
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scwilly~Hello beautiful, welcome back. Always love seeing you here and I am pleased to hear you are doing better than the last time you posted.. I do agree about the love and the support we have. These women are like my sisters. I wish so much we could have like a paid convention, where we could all really meet and feel the support and love we share. Always remember you had a bar stool here with your name on it. Always.
Muddling ~thanks for the mention of the stain remover...my hubby is looking for something now lol. We are preparing for this shower, and I am not allowed to over work myself. Or I won't be doing much bridal showering. I'll be laying flat on my back. So these next two days I'm going to rest up. Hope everyone is doing well this Thursday morning.
We need to send some prayers out for our fellow sister Patty Peppermint , this is a woman that has been fighting so hard for as long as I have been on these boards. She is a mom, a sister,a friend , and seems like family to me now, she's struggling with what the doctors are telling her and she's scared. Im scared for her and all of us really. Take a moment please ... and say a prayer for her and her family. I am not really religious, but at times likes these I hope someone is listening. I can't bear the loss of this woman. Love you all tons of it ~M~
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Sending all positive thoughts Peppermint Patty's way. To all of us, really, and to Patty especially.
I'm sure I told this story before, but it is often on my mind, There is an attractive, fun loving couple well-known to everyone in our small town of 5,000. She is 48 and last December suffered a debilitating brain anyeurism. She is cognizant but physically impaired and her life will never, ever return to its happy go lucky state. She needs round the clock care. Her husband is 58 and hasn't left her side, taking a work leave of absence. A few months ago, he learned he had stage iv colon cancer spread throughout his body. Pretty much no hope. It's devastating as they were so full of life and truly loved by all who know them. The town has stepped up in amazing ways and helped them. It’s still shocking how such a vibrant couple has been cut down in the prime of their life.
Simplicity is what works best for me. I realize how strung out my life used to be, covering waaay too many bases. Dh and I are slowly pulling out of the nosedive we took while caring for his mother. I'm taking time to sort out my feelings and not rushing or pretending like its all okay instantly now. But I gradually feel the oppression lifting, whereas a few weeks ago, I wasn't sure I'd ever shake it.
Still in an air boot, see the doc in about two weeks. Chomping at the bit to get back to my walking exercise but will not push it as I want to thoroughly heal and not backslide.
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Hello all. I often read this thread but cannot keep up with the fast moving posts for me to post regularly.
Some of you may already be aware as a I posted this on the liver mets thread and others may have posted too but in case you did not know, Robin passed away at the end of July. I read about it from her sister’s post on Inspire. Abraxane appeared to be working on her liver but the scar tissue essentially took over and led to liver failure. She is sorely missed.
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Robin is rpoole1962.
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JFL~Oh my god. No no no not sweet Robin. I loved her and have had many conversation about Willy. We shared such love for that dog. I’m so heart broken.. I knew I hadn’t seen her... I am in shock. I’m speechless
Love you sweet sister Robin ~~M~
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Thank, JFL I was wondering what had happened. If is not cancer, it's scar tissue? OMG. How do we deal with that? Robin was one of the first I met here. She was kind and helpful which was what I needed because I was a basket case back then. 😢💞
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I’ve been away on vacation and popped on the boards to read a bit and read the absolutely heart wrenching post from our friend Patty. Very upsetting. I am sending prayers for a peaceful passing and for strength for her sons. This is absolutely breaking my heart, she has gone through so much. Not a good day, my onc called and my tumor markers are up again and she’s ordered another ct. Now the endless waiting for the pre cert number before I can schedule.0
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So get this my liver numbers still are off the roof, pretty much said not much else we, can do, well I'm on a blood thinner now to get it to go away hopefully I will start feeling better soon.
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Keetmom: Cisplatin was very successful at bringing my liver numbers down. I see you have been on Carboplatin, Cisplatin is related but stronger.
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I am really storming the gates here for all of my sisters. A lot of things going on this mid week here. I am tearing up thinking of Robin, and knowing what Patty's doctors said. Keetmom and Lynnwood, my sisters. You are all in my thoughts. Sending you strength and love on so many levels... ~M~
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Lynnwood Where was Patty's post? I'm so sorry to hear about your markers going up. How can we continue the waiting demanded by this horrid disease?
Keetmom Noooo it can't be that there is nothing else. Praying for miracles and in tears for Patty. 😢💞
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Grannax, it was on the Patty thread. She is in a hospice house and still in much pain. Dr tells her 2-3 weeks to live. Her boys are going back to school and she doesn’t want to die before they have to go back. Her sister is coming to help her, she is allowed to leave the hospice house as she wants and she wants to pack up her things. She is asking for prayers for her and her boys. Breaking my heart.0
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Keetmom, sending you my very best good vibes. ❤️ I believe in possibilities and I’m hopeful that you will see improvement ❤️
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Just catching up here after a bad tummy bug had me laid low for a couple of days. So sorry to hear bad news, prayers for Patty, and Robins family. Thinking of you too Keetmom and Tanya and all our other sisters too. This disease makes me sad and angry. I watched a news item just the other day about a woman swimming across the English Channel, a relay, they said she had advanced cancer. I thought wow, that's some woman that can do that. Then when they interviewed her she said she had breast cancer which had been successfully treated 2 years ago. I still think she is amazing but people just don't understand what Advanced Cancer is!!! It doesn't go away as we all know. Rant over!!!!
Micmel, I love your new cabinet. Hope the Shower goes really well ❤️ I'm on the angry list too lo
Love your sign scwilly too!
Divine, I know a couple who experienced similar illnesses, and now rely on their family to care and arrange care for them. They were such a lovely couple. Life is cruel as we all can agree, but and a Big BUT, we are here, and each day is a new day, and make the most of each day we have. ❤️ ❤️
Micmel, the heat has dropped a little from 110 to about 95 but we are getting some easterly winds this weekend which will be welcome.
Night night everyone from across that big pond called the Atlantic 😘
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Keetmom, hope your liver numbers go down soon and you are feeling better. I will say a prayer for you and all of the ladies here.0
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hello Beautiful ladies. I am exhausted from thinking about everything today. Robin, Patty getting that crappy news. Doctors are so cold sometimes. It's just sad all around. I'm worried about Magda. I'm worried about some of you ladies and your tumor markers rising. (Lynnwood and Keetmom)I desperately want to reach out and make everyoneok. Makes me feel so helpless. I am here with you all holding your hands. My friends, my sisters.
I need to rest my back hurts. I scrubbed a bathroom, full bathroom, I made up all of the thank you gift bags for the shower. I did 35 of them. I am taking rubber ice cube trays and placing rose petals and flowers inside the ice cubes for decoration around the goodies and keeping drinks cool. She asked for it, so I am trying to give her what she wants. I also carried a lot of things that I had on the shelves down there before my transformation of my room. I did quite a lot today. My DH shampooed the carpets and fixed toilet seats. Got my van inspected. Mowed the lawn, trimmed the edges. And now is also totally exhausted. DSS, was also a great help the precious young man whom I adore for sure. I don't evenknow what I would do with out them all here to help.
Love all of you ladies. ~M~
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I think it’s going to be beautiful Micmel! Will be hoping and praying it’s a wonderful day
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Micmel, be careful not to overdo, we Mother’s tend to do that when our kids are involved. My son and I always play skee ball together on vacation and even though it killed my knee and back I played with him every night. He never knew I was in pain, he just knew we were having fun. I knew that we were making memories. I hope you enjoy the shower, it sounds lovely! Post some pictures when you can.0
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it is truly sad to hear about Patty. I can't even imagine what is going through her mind right now. She loves her boys so much.
keetmom- I'm praying that they are able to get your liver numbers down
Lynnwood I'm also praying that your tumor markers are wrong and that there is no progression.
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Saw MO yesterday. We have stopped the A-train for a couple of weeks. My tumor marks had risen so in all probability it wasn't working anyway. She also told me she is retiring but will continue to follow me over the next couple of weeks and that she would leave the next treatment decision up to the new MO. I am so happy for her retirement but sad for me because she has been with me every since my first diagnosis. My new MO is very good so I am not too worried about my care going forward.
Prayers for all and a special one for Patty.
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NO1~hi sweetheart, tumor markers can run high when your body is fighting a simple cold or infection. I am choosing to believe that is what is going on here with all of you. I am getting nervous myself because I have blood work in two week so. Ugh!! I Am keeping everyone close-to my heart. I care so much for you all. I am rocked with emotions for Robin. I was reading over our PM’s and she was truly a sweet loving friend of mine. I am wrecked. 💔😢😪😥
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Micmel, in case I don’t have time to post later, have a GREAT time at the shower!! Enjoy yourself and don’t overdo... as the mother of the bride your job is to enjoy. Let others pick up the slack, you’ve worked so hard and deserve a break.
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Thank you Lynnwood, if it wasn't for my sweet DH none of this would be happening. I swear sometimes I don't feel worthy of having such a wonderful loving man in my life. I feel somedays so lost inside myself and grief. I will do my best to enjoy the shower. Seeing people I haven't seen in over 15 years is difficult when cancer has ravaged your body and not left you laying face down on the beach with bites and cuts taken from your body. I don't want to discuss it over and over. It's humiliating really. I'm going to try to be in the moment with my DH.
My maniac dog, is driving us crazy. He's just nuts. That is my worry. He is a lunatic because he's a walker coon treeing hunting dog. He always wants to be on the hunt. So he chases down food, I have seen this dog open doors. And closets. He's amazing. Very smart dog... I used to constantly walk him and allow him to smell everything and tree squirrels and whatever he wanted. I got sick. And now I'd rather lay in the tree, than walk him. He is nine but in the shape of a dog that is 5. He's amazingly fit. Beastly strong. That's my challenge for tomorrow. I love him, I remember ladies saying they had to get rid of their dogs because it was so difficult to take care of them. I honestly feel like that somedays. But I do realize if it wasn't for HAVING to put them outside while I was sick, forced me to move and get up. Instead of just constantly staying in bed during chemo, which would have been extremely easy to do. They made me do things. I had to get up and feed them, it was constant. I believe nownthat it helped get me back on my feet. I had no choice. So in ways they are good.
Everyone have a good rest of your weekend. Sending thoughts across the miles to all. I hate cancer. Patty ❤️.....Magda.....all of us together. We know how hard this is. With Robins death I have no idea what is going on. I really don't feel much like celebrating. She posted her beautiful picture here I'm searching for it.. I'll find it.
Much love ~M~
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this is my beautiful friend Robin. This is the pic I have of her and how very beautiful and special she was. Her mom and Dad must be suffering and I am sending every thought I can their way. I am just devastated about her passing. Everytime this gets harder and harder. I hope you have no more pain my sweet friend. Fly like the angel you always were, people just didn't recognize angels before. I will always have a place in My heart for youand I hope Willy is ok also. I know that dog never went anywhere with out you. I love you my friend. My beautiful special friend. ~M~
💔😞💜
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