My Husband, My Life, My Love, My Family, My Cancer
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LOL perfect Mae! Perfect! 💃🏼💄👩🏻🎤👠👗🍾🥇🎥
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Grannax~How did it go today and where are the pics??? Are you too tired to even think? Wishing you the best today.
Lynnwood~thinking of you! 🌷
Hugs ~M~
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i have been working non stop on decorating this bra for a contest. I am not one for all the Hooplah for pink and October being breast cancer awareness month. I think ALL cancer is important. So instead of having it drummed Into my mind everywhere I go. I just entered this contest and am hoping to do well. Everyone has their vision. I chose “Loving support" as my title,dedicated to my sweet DH. Because of his support I am here. It's because of his love, I fight hard everyday. So I have to make sure it's done before October 24, so I have been sewing up a storm and glueing like crazy. I'm enjoying myself though. Do you guys want to see progress? Or the final product? The last year 2017 winner was included in the invitation to participate. I don't like leopard bras. They look good on some people, but not me, maybe it's my skin tone. I am just using a plain white Bra and bringing in my own colors. I want to learn to crochet and or cross stitch. I never realized how much I enjoy watching television and sewing. I am getting old ladies. Next I'll need a rocking chair. I'm going to bed soon. Late already, sheesh!
Have a good weekend! Much love ~M~
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last years winning design. Wish me luck! Ladies. Thinking of anyone who has testing or any scanning coming up. Wear deep pockets and well all jump inside to support you! Night... ~M~
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hi everyone, just catching up reading over the past week. Mae, glad all went well for you. Grannax, I hope you rocked that catwalk!! Micmel, good luck with your support creation.
Returned home from Cruise on Thursday with a nasty cold, no voice. Feeling very down as this holiday has made me realise how little I can do compared to before. Don't want to go away any more. DH says I need to talk to someone, as he thinks I'm suffering depression. Where does this lead me, to more drugs? Sorry to come back on a downer. X
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Minnie~I don't blame you for not wanting to go anywhere. It's a lot of work and stress for your body. In my opinion everyone could use to talk to someone. That's what we do here. I mean we are all certifiable already! 😝😝😝 you're not a downer either. I know that cold well, it kicked my rear end. I also lost some of my voice. I had my palliative care doctor up my Effexor, there Is nothing wrong with taking something if you need it. Im glad I did... it helped me with my heatflashes, and honestly has helped. You travel a lot and maybe you're just sick of it... take a good snug in your blankets and sleep and dream about the things you did do. My sweet friend you're amazing. And you were missed. Sorry about the cold.... mine took about two week to go away. It's unreal! Much love .... ~M~
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Micmel, the bra you’re creating sound great. I know it will inspire many. There’s a small display at the cancer center where I go with decorated footwear, shoes, boots, flipflops, ect., that women have decorated/created to help describe their personal journeys with bc, and I often stop and look at it when I’m there.
Hey, my foot is coming along. Almost three weeks ago,I was able to shed the air boot cast and was instructed to wear sneakers all day long, no bare feet, flip flops or slippers. No walking for exercise just yet, but my next appointment is this coming week and I’m hoping to get the okay to exercise and be released fro doctor’s care. What a long, slow but necessary process. At least I’ve been able to get yard work done once the air boot came off.
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Lynwood 1960 were here praying for strength and best results.
Grannax when you awaken pictures please.
Thanks for representing us Grannax. I know you made us proud
Tanya
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Minnie, I know I can’t just go somewhere either. If I do, it’s going by myself and I just don’t have the energy or strength to do it. Heck right now I’m struggling to get my house clean! Thought about hiring someone every couple of weeks to help out. But would give a lot just to be able to get in the car and drive to my daughters house in Wyoming
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The mind says yeah I can do that! But then the body catches up and it's like a ton of bricks falling, except the bricks are our limbs. Just showering is exhausting. I just took one and now I need a nap. It does feel better to be clean, but it's like a chore for me. Ugh! But am very thankful that I can shower on my own. It's all just so difficult to go through. I miss the gym so much. I miss my car drives with DH lost just anywhere driving and seeing the Sights. I miss my old life everyday! Hugs to all. Hi Gracie!!😊 much love ~M~
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Hello Divine!! Glad to hear the foot is on the mend! Hoping for clearance for you!
Tanya ~ Hello darling. Hoping you are having a good Saturday so far!
Minnie~ Hope you’re resting nicely. Snuggled in bed!
Grannax~Hope you had a blast.
Lynnwood~ thinking of you!
Shelia~ waving hello!
Much love ~M~
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Please know that what I'm about to say is not about this thread, this is just the thread I feel most at home, so this is where I tend to speak up or vent most...
Can I just say that sometimes I feel like I’m not in the right place with bc.org? I follow many threads and it blows my mind that people are so negative about pink, October, the use of the word survivor, etc. I think awareness is so important. I love pink. And I survive this damn disease every day of my life. I’ve never fit in with the majority when it comes to politics and I have my own religious/spiritual beliefs but to feel like there’s such discord amongst those with breast cancer is a bit too much. Im sorry. Im just kind of tired of logging in to these threads (which I used to find so full of hope and inspiration) to see more pink/October bashing... I find it discouraging and hurtful. Like, am I wrong because I love seeing the pink? Seeing the awareness? Taking pride in being a survivor? That’s how it makes me feel - wrong - in a place I should feel comfortable.
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One other thing - It's a rare occurrence to witness, but apparently there are people who feel like being rude to other members is okay. So sad
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Micmel, soooo happy to see you posting again - now all is right with the world! And, yes, please post pics of your bra design.
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Shelia~Last year the was a thread devoted to campaigns and fund raisers using pink and whatever means needed to raise money. I just let people say what they want about it. My take is everyday should be cancer awareness day period, colors are just that. Someone decided along the way to use pink. I m in the process Of decorating a bra to support a breast cancer contest. Trust me it is pink. Just pick your bco family and a place where there is No judgement or backlash for feeling how you feel. I am not overly religious, but respect those who are and I am trying to find my place in this awful journey. I don't close myself off to listening and learning what I can along the way from some, others I just leave alone to do their thing. I decided to make this thread, so everyone can know without a doubt you have a place to feel loving pink is just fine. Being yourself is just fine too. Love you sweet friend! ~M~
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JKL~Hello darling...I am feeling better.. sluggish though still. I wonder why they tell you to nap for fatigue.. but when you wake up from the nap, my head needs like 20 to fully wake up. I really hate that feeling. I hope you didn't catch the mean head cold rolling around. You're such a sweetheart to care about me.
Shelia~I have had someone be especially rude to me on another thread as well. I don't do too much posting else where, now that we have lost our Patty girl😪. I never want anyone to feel that way here And it made me happy to know you don't feel that way here..... to me it's our thread. Our home. It is for us all. So vent away. People can be dicks for sure. Sorry to say. Just make your family and keep them close to your heart. I find it. Happier to log into a thread that has your best interest at heart. Oh and Shelia I am thinking it's the same person that was awful to me too if I'm reading what I think you're talking about. Trust me when I say it. You're safe here from that. That member has never posted here, sometimes I think they are just so angry and just doesn't really realize how it comes off. Don't worry, got your back!
Much love ladies ~M~
JKL 🌷💙 you're a wonderful friend to me.
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SheliaMarie, I am genuinely happy that Pinktober is positive for you and makes you proud of surviving. I'm so glad that it represents awareness to you. I honor your viewpoint. All of us need things that make us smile, and those things will be as individual as we are.
I am not a fan of the pink. However, part of it is the actual color which I don't particularly like, part of it ties in to the pink aisles in the toy store which I see as brainwashing little girls, and part of it is that Pinktober sometimes seems like a money grab by some organizations that may not use much of the money for actual patients or research. Some are reputable, I know. I just don't like it, but you and I are both entitled to our opinions and to be treated respectfully. I hope the fundraising will help.
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Thanks Mel. It is indeed the same rude person. Love ya back...
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Muddling ~ I know several people that are bothered by it, but I see it as, the more research the better for every cancer. When I was a young girl I loved pink and purple. I am older now so purple and pink aren't my first choice anymore. I try not to pay attention to things I cannot control, if someone doesn't want to see pink or wear pink. I totally respect that, without a doubt. The way you chose to express your feelings about a topic is the way it should be done. 😊
Not insulting with capital letters and insinuating yelling at another member. It's just not cool. Aren't we all fighting for the same thing? Not one opinion matters more than another. Like Sheila, also allowed to be the other side of the coin as well. Different opinions form great ideas! 😊
Love to you both ~M~
Okay it's like 417 and I want to nap. I ran out of thread.. so I can’t work on my bra now,so I have to run out at one point today or tomorrow to get more white and pale pale pink thread. I need clothes pins to keep my eyes open. 😳 ugh! I also need to eat something. I wish I had an errand person!!
Hugs ladies ~M~
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Thanks, Micmel. The yelling and insulting is disturbing when I read it, but I try to remember the hard row that person(s) has had to hoe with this disease. Sometimes the blast is sharp but I think it comes from pain. ???? I try to recall that but sometimes want to snap back. Easy enough to click away to something else.
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I try to understand that, too, muddling. However, it’s not been an easy road for any of us. We’ve all been in pain, suffer daily from it, but don’t feel the need to be rude to others. Sometimes she acts like her road has been harder and I promise you, she can’t know that.
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Personally, I like the color pink, not everything pink of course but some. I am also not opposed to awareness but it’s tricky. Because of Komen and breast check reminders, I knew I needed to see my PCP immediately upon finding the lump but also because of the pinktober campaigns, I never realized how at risk I was and mistakenly assumed that early detection meant early stage. I had no idea that you could get bc or mbc so young and we are rarely reminded that Susan Komen was only 33 at dx and 36 when she passed. Awareness needs to be better and research needs more funding but pink has its place.
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Micmel-Welcome back! You were missed! Glad you are feeling better.
Sheila-I'm so sorry you had to put up with rude people. Hugs!
Had my 3rd CMF treatment yesterday. The white cells were back up. I also got my every 3 month Zometa too. I'm tired (I got about 4 hours sleep last night. Thank you pre-chemo steroids!), and had diarrhea right after I got home yesterday. Took my prescription yesterday, and an oxycodone last night (my ribs are killing me), so something worked. None today. Just feel a little week. I did go shopping with my husband earlier, but now I'm wiped out. I know it will get better as the week goes on. I should start packing for our 2 week trip. He said he's all packed. All he packs is his clothes and scuba gear. I get all the toiletries etc, put in my suitcase. I did check all my drugs, to make sure I have enough for the trip, and enough when I get back. I got some Tide packets to wash clothes in the sink in our room. I'll be wearing bathing suits most of the time, but we'll have to dress for meals. It should be interesting. First time we have done a 2 week thing, in a long time. We leave in a week. I am delaying my chemo by a week. I'll get it the Thursday when I get back (if my white cells are ok!).
Enjoy the rest of your weekend everyone!
Lynne
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Hi, Sheilamarie, I agree, the more awareness the better. No need for abuse here or anywhere else. None of us chose this road, whether early stage or late.
I just lost a load of text on this fecking iPad, so I will say Lynne have a great time! I feel a bit better Today. X
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Excellent points, Illimae. I really like that we can say what we think, and I'm really reading to understand, not just this subject, but all of them.
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Muddling~that kind of behavior is why I am so glad, we have this place to come to and not worry about that... we definitely have one thing in common and that one thing isn't unfortunately how we feel about pink. It is the beast cancer! Ugh! Hate you cancer.
Sheila~ Its definitely anger, but one thing I push to my mind is the amount of confusion one may feel with issues with many many brain mets & I also remember the steroid rage.... I learned long ago (when I lost the tip of my nose for saying I was Nead/remission, that was not welcome apparently) just like someone else said or maybe yourself even, just click away. I have learned never to bother even adding a point or an opinion. It never seems to matter. Overall it's just really sad. I just am glad none of us are like that.
Mae~I like pink also... I don't necessarily choose pink if I am shopping. But most of my clothes are Victoria secret and say “Pink" on them lol. Since I have gotten cancer, I don't let things bother me like I used to. I know you don't either. My bed cover right now is pink lol
I have to agree with your point that, somehow I knew, if you find a lump. That's not good. Wether it was a commercial or through pharma advertising. I knew to have it checked out. The urgency of getting it looked at was driven home somehow.
Lynne(Man)~ thank you darling. Every time I read a post, you're going some where and or doing something. You're amazing. Simply amazing. I'm glad you were able to get your treatment., I'm sorry your stomach is bothering you. Literally a pain in the ass.
Minnie~You and your words. Lmao @fecking...that's awesome. I'm sorry you lost your post. Also, glad to hear youre feeling better. I am not into the abuse crap.
Another suggestion is blocking the person who is nasty.
Much love to all ~M~
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Shelia, I respect your opinion regarding bc awareness thru the month of October. We are allowed to approach it however we want as individuals. I prefer people with opinions, even when they don't agree with mine! I would hope never to attack someone's beliefs.
My views on the matter are that sometimes the awareness takes on a party or circus atmosphere as tho it is a celebration (and not about educating), which masks the difficulties those with this disease deal with.
Also, sadly, some organizations collecting donations are bogus, and too many people throw money at them only to make themselves feel good. They don't bother to question whether their donations are being spent to truly help those with bc in some way. Giving a mindful donation is what helps.
Bc awareness brought the topic to the forefront and its positive impact cannot be denied. Some of us feel the movement now should shift from awareness to emphasis on research and finding a cure.
I've had varying degrees of passion about the matter. One year I wrote a very thought out letter to the editor of my local newspaper that I was proud of stating the kinds of thoughts I've put in this post.
It feels to me like people do seem to be getting the message to make sure you know your donation dollars are being spent smartly. And really, people should know that about any cause they donate to.
I'll leave it at that, and am not meaning to stir any controversy on this wonderfully supportive thread.
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Thank you all for sharing very valid opinions on the matter. My whole point was that the original thoughts behind pinktober were good, and though some corporations will misuse and abuse it, I’m grateful for the awareness it has brought and in no way does it offend me. but don’t get me wrong - we’re very aware, let’s work on a cure! And agreeing or agreeing to disagree, either is okay. Belittling is not. Much love to you all... I sincerely mean that
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I just want them to find a cure. Its time already. I'm working on my bra decorating...I have decided that I need a project for sure. It's imperative to my mental health...I'm gaining ground, so I'm taking my time so it will be beautiful!! I have to have it done by October 24. So each day something needs to happen. It's already 10:54 Pm. Time flys. Have a good nights sleep.... much love ~M~
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My approach has always been don't type anything online that you wouldn't say directly to that person face to face. In the back of my mind, I picture whomever I'm addressing as sitting in my living room with me. I wouldn't attack anyone there, so why do it online? Differences of opinion do not need to escalate. It's a shame so many people hide behind the anonymity of the internet and use it as an excuse to spew ugliness.
I'd like to share an online experience I had about 5 years ago, not associated with this forum. In the news was a tragic story about a family visiting the Pittsburgh zoo (I live an hour from there). The parents lifted their handicapped two year old son up to better see a wild dog exhibit. There were warning signs not to do this, and the area was shielded, but somehow, this child fell into the exhibit and was killed. Huge differing opinions surfaced as to who was at fault, and about a year later, the matter was settled in a court of law. I don't even remember what the outcome was.
Comments online about the story ranged from some people who thought the zoo should be closed down to other people who claimed it was an intentional act by the parents.
I posted a comment that this was an accident no one, the zoo or parents, wanted to see happen. And guess what? Some people vilified me for being a smug, self-righteous beotch! How dare I try to take the middle road, they claimed!
It was an experience that left me shaking my head and realizing that you will even be attacked online when you try to see both sides of an issue!
There are all kinds of kinds, as the saying goes.
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