My Husband, My Life, My Love, My Family, My Cancer

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Comments

  • illimae
    illimae Member Posts: 5,739

    Great news Tanya, woo hoo! 🎉

  • Minnie31
    Minnie31 Member Posts: 494

    Glad your visit went well Micmel. Well done.

    Tanya, what temperatures do you have this time of year? Our weather has cooled over the last few weeks, but still lovely in the sun during the day. Can still sit out in shorts in the middle,of the day. However, we are forecast some rain this weekend. Can't complain when you live somewhere with over 300 days of sunshine per year.

    Thinking of you Sheilamarie. Hi to everyone else. Best wishes to all having bloods, scans etc

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107

    Sheilamarie, good luck on your new treatment! My onc said Xeloda is my next treatment when the time comes. Tanya, YAY on your scan results... such great news!!!


  • micmel
    micmel Member Posts: 10,055

    Mae~Hello beautiful....Hope things are well for you and DH!! Hugs friend.

    Lynnwood~😊😊 Hello to Lynnwood. Hugs friend

    Minnie~Hi darling....It was a bittersweet thing. Any time I get after this with him, is just time I will use wisely. I hope he doesn't pressure me to stay over night there. i don't want to hurt his feelings, but I'd rather have a gum scraped before being around that woman. (Stepmonster!) one visit at Time! Ty for asking. It was surely interesting... I don't think he's that close as it was presented to me initially. I thought he was “receiving hospice". He is yes, but only for one hour a day and he is still able to move and walk with a walker. No equipment, around yet. Which makes me think he's the step before hospice comes in hourly to hourly to maintain the death process as the body shuts down. I didn't see any of that. I believe he's alone too much and isn't eating correctly. I think having more people around him more often would be a definite improvement for him. I think he's going to be around longer than they think. He's still smoking cigarettes..!!!! They are allowing him to smoke... because he cannot be this weak and battle any withdrawal symptoms for nicotine, and alcohol. He's always loved his beer. He is receiving medicine for withdrawal maintenance.I'm going to try to visit weekly. It's all I can do. It will have to be enough.

    Love you ladies! Much love ~M~

  • Lynne
    Lynne Member Posts: 368

    Micmel-I am so glad that your visit with your father went well. I know it was very hard for you. I'm glad you are going to visit once a week. I don't blame you for not wanting to stay over with the stepmonster.

    Snow coming in tomorrow night into Fri afternoon. So far they are saying 4-8 inches. I hope it's the 4. We still haven't gotten to the leaves in the backyard, lowered the pool water, and the front oak tree (as well as many of the neighbor's oak trees) haven't lost even half of their leaves yet. Sunny but very windy today. Tonight it's suppose to go down 11 degrees tonight. BRRR! Not ready for this yet. My birthday is the first day of winter and that is not until December 21st! Snow should wait until then.

    Stay warm my friends!

    Lynne


  • micmel
    micmel Member Posts: 10,055

    Lynne~(Man). Thank you. I figure I shouldn't waste anymore time knowing his condition is deteriorating each week. He's over 6ft tall and weighs 120 lbs. he's just so skinny. It certainly was an eye opener that so much time was wasted. I need to just realize that whatever time I have with him may be able to be spent making a new relationship that just is accepting of each other and our differences. As long as she is around. I wouldn't want to sleep anywhere near her. I don't trust anything about her. We are bringing lunch for him! I need to make sure he eats on my watch! Hope the snow stays away!!! I don't want any either. We are supposed be getting a mixture-of sleet and snow!! Yuck! Hugs to you! Ty for asking about my father. ~M

  • micmel
    micmel Member Posts: 10,055

    imageI saw this today on BCO and it made me laugh. I happen to love stuffing. But when you put it like this. Lol

  • Parrynd1
    Parrynd1 Member Posts: 343

    wonder what they would say about Easter, lol!

  • micmel
    micmel Member Posts: 10,055

    Parry~I’m not stuffing a bunny!! we have Ham. Not much to do with that except oink noises. Lol eggs up the rear end. NOT! Lol

  • micmel
    micmel Member Posts: 10,055

    I am sitting at the dispensary.... waiting to get my medicine. It's seriously packed like a deli counter. I mean wow. It's like the super market before a bad storm comes blowing through. Supposed to get a little snow and everyone buys everything like they'll never get out. I can understand if they were calling for a foot. But a dusting? Please? I come the same day every week. It's funny! ~M~

  • runor
    runor Member Posts: 1,615

    Been unplugged for a bit. So much happens! Micmel, so glad your visit went well! Sending hugs to everyone.

  • Grannax2
    Grannax2 Member Posts: 2,387

    Tanya. Doing the happy dance for your stable PET results.

  • micmel
    micmel Member Posts: 10,055

    Runor~always so nice to see you. I was wondering if all was ok! Glad to un plug once in a while for sure. Glad to see all is well. Hugs to you and everyone as well! Thank you for the thoughts with my dad. It was difficult for sure. You never know what you're walking into!

    💗~M~


    Waving hello to Grannax, since she snuck in there somehow. Lol. One of our stars ⭐️ congratulating our other article/interview 🌟!!

  • tanya_djamila
    tanya_djamila Member Posts: 1,540

    Thanks to all for cheering for my good scan. It’s like I have party going on inside my head but all around me are just acting normal. But you guys know what this news is like. Thanks again

    Minnie FL weather is still warm 80’s. But today it started at 60 and will go up to 70’s. The next few days it’s supposed to cool off.

    I hope anyone who has scans or tests coming up they all have good results.

    Micmel I’m happy your making plans with your father. It’s admirable.

    Take care ladies

    Tanya

  • micmel
    micmel Member Posts: 10,055

    Tanya~ Yea we do!!!!!!!! I'll be following behind you for sure. Bloodwork Tomorrow then scan 26 and onc visit 30th. So I'm hoping and hoping since I feel pretty good. That's a sign that I'll continue on the stable train with you! I'm thrilled for sure! Hugs hugs 🌷😊🍾🎈 wonderful wonderful! ~M~ As far as my dad is concerned.... we do what we have to. Has anyone ever heard the song from Mike and the Mechanics, living years? I heard it the other day and it stopped me in My tracks. It was all about a dying father and a child who didn’t get to say goodbye! It was emotional, I have to admit. It was like a sign. Go go see him... have no regrets...just do it. Now! So ty for caring!

  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,107

    Micmel, here comes the snow!! Cold outside too! I love the song the living year... very emotional song with a strong message.

  • micmel
    micmel Member Posts: 10,055

    Lynnwood~Oh I sooo agree. I am watching it from my window right now. Coming down pretty heavily. Well see how long it lasts. Hope not long.

    That song has always gotten me. Especially now. 😞. Bundle up! 💙 friend ! ~M~

  • bella2013
    bella2013 Member Posts: 370

    Ladies, I don’t envy your cold temperatures but I am jealous that you get to see the snow fall. I do miss that part of winter. There is something so peaceful about falling snow❄️.

  • micmel
    micmel Member Posts: 10,055

    snowing it is. We have over 4 inches right now! Beautiful but annoying. I cannot shovel. They called off DS Work. So he is home with me! I’m thankful for that! We are eating dinner watching the snow fall! Be safe everyone

  • MuddlingThrough
    MuddlingThrough Member Posts: 655

    Tanya, yay for your results!

    I had scans last week and blood work and onc visit today. All stable, nothing new, keep on doing what I'm doing. Slight reduction to a liver met. No mention of compression fracture from last time but I felt it was healed or nearly so. Still lots of bone mets but now they say "sclerotic" for many of them so I choose to think that means healing. Hoped for more but will take it. I may never make NEAD but stable is a good thing.

  • tanya_djamila
    tanya_djamila Member Posts: 1,540

    Muddling yes stable is wonderful news. We live in between scans and try not to think about progression.

    Bella I don't miss snow at all. I guess too many freezing cold days. Too many shovels scrapers sliding on ice for me. Enough already. Every year I end up going north even though I don't plan it and I'm miserable. I think it got worse because I've been in FL for 11 years.

    Have a good evening stay warm.

    Tanya

  • bella2013
    bella2013 Member Posts: 370

    Tanya, notice I said watching it fall. The end. I don’t miss having freezing temps for 5-6 months a year. I don’t miss shoveling or driving in it!

    I have been back in Florida for 19 years. Being able to tolerate cold does get worse the longer we live here. It’s mid 50’s in Jacksonville today...I am freezing

  • micmel
    micmel Member Posts: 10,055

    Muddling~ congrats to you!! Stable is like a song. So sing it loud and proud! I have my bloodwork tomorrow at 11.. so I'm following the scan crew as well.. but that's the 26th. So very happy for you!

    Not a big fan of shoveling , though I cannot. It's still snowing now. I don't enjoy the snow honestly. Getting older and being sick. My body temperatures are totally bonkers. I'm either too cold or too warm. It's not even thanksgiving yet? The ground has close to 6.5 inches on It already! Stay warm (in Florida)......Hugs ladies. ~M~

  • holmes13
    holmes13 Member Posts: 192

    Sorry i haven’t been on for a while but i just needed sometime away from cancer and what it is doing to everyone. it’s just hard sometimes.

    micmel- i’m glad your visit with your dad went well and that you gave him that time to say he loves you.

    tonya and muddling- congratulations in the scans. i’m doing the happy dance.

    sheilah- i hope you do well on xelod

  • SheliaMarie
    SheliaMarie Member Posts: 284

    I have zero appetite. Normally this would make me so happy!! For a few months I’ve been losing weight. Approximately 1 lb a week. Totally okay. The last couple of weeks it seems to be falling off. And it just gets more and more difficult to eat. I’d like to think that it’s all the pain and the pain meds, but I really am worried. Has this happened to anyone else

  • micmel
    micmel Member Posts: 10,055

    Holmes ~Hello there ! Very glad you're ok. I can understand the need to be away from things Cancer! Always a pleasure to see you here. Hope all is well with you and yours!!

    SheilaMarie~It's happening to me right now... I have texture issues, taste buds don't work well and im never hungry. I have lost 18 lbs in three months. It's like I have no hunger whatsoever. I have to be reminded to eat. It's like my body, has been trained to not need food. Not to mention nothing appeals to me at all. I'm thinking of you and know you're beginning a new treatment. I hope it's mild. Or none! Even better. Hugs to you! ~M~

  • illimae
    illimae Member Posts: 5,739

    I lost 25lbs on chemo, which was technically ok since I’m quite overweight but not enjoying food made me very sad and angry. I have gained it all back 🥓🍕🍦🍷

  • SheliaMarie
    SheliaMarie Member Posts: 284

    That’s the thing, Mae. I’ve needed to lose 40+ lbs for a few years. I just don’t want it to be “cancer weight loss”, if that makes sense.

  • micmel
    micmel Member Posts: 10,055

    Shelia~When I did heavy chemo i was hungry. Not so much on ibrance. Get those nutrition shakes ready. You have to at lest try to maintain. My palliative care doc was like hmmm. Part of it was because of my reconstruction! It was a brutal surgery andhunger wasn't now on my list at all! It still really isn't. I am thinking of you!

    Love to all ~M~

  • micmel
    micmel Member Posts: 10,055

    well it sure did snow.... maybe 4 inches. But for some reason no one seemed prepared to believe it was actually going to snow. The temps were hoovering around freezing. Was looking more like rain and slight sleet. I guess we got a combo. I am thinking about California and the people there. It's a terrible thing and I just hope that there aren't too many more losses of life. I'm thinking of the families and loved ones still lost.

    Hope everyone is warm... hello to all you ladies!