My Husband, My Life, My Love, My Family, My Cancer
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Hi Micmel, good to know you are feeling good. All well with me. Just ask for prayers for a friend of a friend suffering from stomach cancer. She is having n operation on Friday. This lady lost her husband to pancreatic cancer less than 2 years ago. They came to Spain for a sunny retirement only 4 years ago. Treasure every moment ladies. Love x
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Minnie ~Hello darling. I am sorry about your friend. I am sending as many good vibes and thoughts as I can. I hope her surgery goes very well. I agree to live and love every moment. Hugs to my sisters ~M~
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just checking in-
It makes me sad all the bad news we have gotten here already in 2019. I pray for all and think of you each day.
I went to the doctor on Tues and had ct and blood work. I had my four rounds of ac chemo inand it was time for the scan.
Tumor markers are still going down and had a pretty jump down this time. The spots on my liver appeared to look larger and darker and they feel these are necrotic, so dying off. Phew! I was hoping gone gone but I’ll take any good news bc it’s been bad after bad since nov 2017.
The doctor planned at least six rounds of ac but is now talking doing more. I did complete round 5. We are talking as well about the next chemo or treatment to use.
I also had two blood transfusions right after chemo and that seems to be my normal need two bags every three weeks.
More snow on tap for Iowa! Seems like we are always on the edge of a bad storm and never know what we will be getting.
I did just read that instead of making one New Years resolution, that manybnever stick to, you should make daily resolutions. I thought hey that’s a good idea. I better get started though, lol!
Best wishes to all! I keep reading but just don’t get to keep up posting.
Sara
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Skitzblitz, I was struck reading your post. You talk about treatment and scans and then you mention the weather and that contrast between a life so derailed by this damn disease, and a life so normal that the weather is worth observing ... it just struck me. We've all been sucked into a situation that feels so foreign, but looks just the same. I think that is something I struggle with. Life has gone back to the routine. Dusting, vacuuming, cooking, laundry. And yet NOTHING is the same! I have thoughts I didn't used to have. Like, my dad died at 66, will I even live that long? Why do I keep coughing? Maybe I should have bought more life insurance? No one can SEE these life changing things that happen inside my head, and I can't UNsee them.
So when you talked about cancer, blood transfusions, spots on liver and looks like a storm is rolling in, as if those things all go together, just another normal day, it painted the perfect picture of being torn in two directions at once. Nothing funny about your post but it made me chuckle anyway. Yup. That's the craziness of this disease. Blood transfusions and blizzards. Par for the coarse.
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I never liked snow and I certainly find cancer absolutely disgusting. Snow only effects certain areas. Just Like cancer. I guess we have no choice but to just live life as normally as we can. We just don't have have any choice.. Good to see you skitz and Runor. Hope things continue to go well. Good night ladies.... ~M~
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my dad died at 53 and I always said I’ll be happy to live as long as he did, 53. Well I know now that I didn’t mean that at all. I’m 47 and I want to live much longer.
It’s sad that our new normal life is the “cancer life”, ups and downs, happy and sad. Scared of every new ache or pain. Scared of every doctor appointment.
My uncle is going through his own cancer battle that started in the bladder. He has immunotherapy the same day now as I have my ac treatment. My mom text them my report yesterday and asked how my uncle was. They had shorts answers and didn’t say much back. She’s thought it seemed odd. This then bothered me that’s maybe they didn’t want to wreck my day if he got bad news. All I did last night was keep waking and thinking I hope nothing is wrong, I hope he is ok. It bothered me more about him than anythin. We were both diagnosed in March, coming up on three years soon . It seems if he gets bad news so do i. Our paths are the same but same yet so different. It will be hard on either one of us who go first.
I tell my boyfriend all the time he thinks he gets cancer, he has no clue. I’m a prisoner in my own head every single day. I say and think many the same thoughts you do runor and many more. I tell him I hope you never ever have to find out. I can understand all his dads fears and sadness and thoughts he went through bc I am. His dad passed away now close To two year ago from lung cancer. My cancer made me push him to be with his dad more bc tomorrow might not come for him to do it.
My normal life is cancer life but dang it’s still mixed with snow! I’m waiting for spring and sun and my cabin! Waking up and drinking coffee there and looking right out my windows at the lake and thinking how can someone take this away from me? I’ve grown more fond of nature, the small things, happy to have another birthday. Things I took for granted. It’s not all bad.
Sarah
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I honestly don’t even think I know a family that isn’t effected by cancer somehow at this point. My nephews fiancés father was diagnosed in October of 2018, a rare blood disease they said. Nothing would touch it. Nothing. No chemo even came close to helping. They didn’t even know what to call it. By mid December they summoned the family to the hospital one night and and said he wouldn’t live the night. He lived bout a week longer than they said but it was sad. He was going to walk her down the isle in June at their wedding in OCNJ. They had everything set deposits all made. The family is devastated. My nephew is devastated. Now forever their Christmas time will forever be marred with this crap. This was supposed to be a good year!! Lots of good news for us all.. cures out the wazoo for every type of cancer. I mean come on it’s 2019. Let’s get a move on people!
I think about Lynne (Man) everyday. No words. Hope she’s keeping herself taken care of. 😞💔.
Good night ladies. It’s late. Looks like some kind of weather is coming Tomorrow! DH is also supposed to arrive tomorrow as well. I hope the bad weather doesn’t keep him. But I’d rather him be safe and wait a day ! Gn!!
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Good Morning Ladies ~ Still thinking of our Lynne(Man). I slept ok. Sometimes when those doggies start whining. It’s like nails on a chalkboard. But I also don’t like sleeping too late anymore. I want to go back to the days where I didn’t have to plan a nap. I Am. 48 not 98. My mom Mom Is seriously 93 up until a year ago she lived alone and was independent. I can’t even hit 50 without worrying. Cancer. Even looking at the word is ugly. I hope all you ladies do something you like today. Thinking of you! Has Parry had one of her weddings yet ? Can’t wait for the pics!
Much love ~M~
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Just wanted to check in. Still catching up on all the posts.
We got back from Canada yesterday and are still getting unpacked and back to normal. Saw MO today and everyone signed a wedding card and gave us a gift card as a congratulations. It was really sweet of them. Weird to think all the office ladies and doctors have been in my life for over 2 years. The American wedding went great. The Indian wedding went great. I didn't even need to rest or take much pain meds. Plus the weather abnormally cooperated! We had many unusually great things happen and I can help but thinking God's hand at work. Hope everyone is doing well! Hope you enjoy some of the cell phone pics we got, I'm super excited to share with you guys
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Parry, breathtakingly beautiful! Congratulations and blessings.
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Parry so beautiful. Glad I am late to see these. Both weddings must have been amazing. Where were the Vancouver ones taken? Stanley Park? Our weather has been outstanding and so happy for you both.
Chemo day today and full house tonight. The friend we helped is here for two more days and she met my son and his partner tonight when they drove down island for the night. Another friend from Saltspring Island who stayed here when she worked in Victoria is also here with her partner who has thyroid cancer and sees his surgeon tomorrow. All ages and this is community to me and I just told my husband how lucky we are to have the space to house these friends in need. Not my son and his partner~~ they drive down the island to visit off every two or three weeks anyway. I love it.
Good night all.
Marian
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Parry, such a beautiful bride, and handsome Groom! 2 beautiful dresses. So glad you felt well too. Made me feel happy this morning, it's good to see something so lovely! Getting up now witha light heart x
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Parry, your pictures are absolutely beautiful! So glad that everything went well! I truly believe that God has his hands in our lives, he has shown this to me many times in my life.
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Parry ~😃😃😃😃absolutely stunning. Look at your beautiful hair style and those dresses. Wowsa! You and your handsome groom, show how it's to be done for sure. I cant even tell you how beautiful and how much that picture of you in white is truly wonderful. You're beautiful bride.. just like we knew you would be, congrats to the happy couple.. I stil remember the first pic you posted. Under the tree. Him on his knees. So romantic! Thank you for sharing. ❤️ May you have decades more of pics to take. We love you Parry! 👰 🤵 🍰🎎💍
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Hope these pictures come through clear enough for you all to see how successful Ibrance/Lerrazole/ Xgeva has been for me. All of the dark spots are cancer except for the dark oval spot is my bladder. The darker one was taken in 2015 before treatment. The lighter one was taken this week.0 -
Marian~i think it's pretty special the way you help people. Those are things people do not forget when they are going through a struggle with their health. It does make you realize how absolutely valueable our health is to us all. Glad you got to spend some time with your son. It's always so nice to see you!
Runor~Hello darling. Hugs to you my friend
Lynnwood~ nice to see you too! Ready for the snow? Yuckiety yucks! I don't like the snow very much at all. Keep singing this song Lynnwood, and starting my 27 month next week. It’s amazing for me also. I wish we all had this response. I am so pleased!
Much love to you ladies ~M~
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Micmel,
And you are SO important to us!
I agree about the gray skies. It is depressing, but I’m choosing to do something to chase away those blues. I may bake something, or watch a good movie, or read.
Sending love and support to all of my MBC sisters (and brothers), and especially to you, Micmel.
Hugs,
Laurie
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Hi Melissa and everyone else!
I never thanked y'all for all the good wishes for Leslie's scans. So far the results we got from her MRI came all back negative for new mets. We are waiting for the liver scan results, so heres hoping those are negative also.
So sad to read about Lynne's daughter. I cant even fathom the pain she is in. My heart goes out to her 😢
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Parry, You look gorgeous in both dresses. I actually gasped when I saw the pictures because they are filled with such beauty beginning with the joy in the faces of you and you groom, to the stunning outfits, to the wonderful settings. I am so happy to hear that you felt well for both weddings. You still had your hair, and along with the extensions, your hair looked perfect. God definitely had his hand in things. Thank you for brightening our day by posting the photos.
Lynnwood, What a dramatic change in your scans. WOOHOO! I am happy that your treatment continues to work so well. I hope it works for many years to come.
Marian, You have a generous soul. You are a blessing to people who know you. Make sure you take care of yourself as well as others.
Micmel, You have a lot going on in your life, and it is easy to understand why it could be overwhelming at times. Remember that you are important, and let others help you. I am glad that Ibrance and Femera continue to keep your cancer at bay. You and Lynnwood will become our champions as you break records for the longest successful treatment
It has been really cold here lately. My DH and I spent a few days up in the mountains. When we got up yesterday morning, it was 17 below zero. Needless to say, we did not go skiing. We are expecting that storm tomorrow night and Sunday. The meteorologists are predicting 1 to 2 feet of snow. I hope it all fizzles out. I will be happy to leave for Florida's warmer weather in 8 days.
As I mentioned last week, my scan results were not as good as I had hoped they would be. I will be starting on Taxol when I return from Florida. I could have started before I go, but I decided to wait so I won't have to worry about SEs while I am enjoying my vacation. I was given the choice between Taxol and clinical trials. I always thought that I would jump at the chance to participate in a trial, and I surprised myself when I uttered the words, "I would rather do Taxol." I decided that for now, I will go with something with a track record, a history, rather than an unknown. I am glad there are so many treatment options available to me because I still have a lot of living to do. Hopefully Taxol will work for a long time. My last two treatments never worked, so this will be my third treatment change in 6 months. I am blessed to have an MO who listens to me, patiently answers all my questions, and doesn't give up on me.
My DH and I are having lunch with our oldest grandchild today. I am looking forward to seeing him. He brings me so much joy, as all my grandchildren do. He will graduate from high school in May. Three and a half years ago I didn't think I would still be around to see that. How did he grow up so fast? I was in the delivery room when he was born, and I remember it like it was yesterday.
My DH and I are supposed to go to see my mother-in-law on Sunday to celebrate her 100th birthday. 100!!!!! Wow. It looks like the celebration will be postponed due to the storm, but we will definitely find a time to celebrate. I have never known anyone who was 100. It blows my mind. She has seen so many changes in her lifetime. When she was born, women were not allowed to vote. Can you imagine that?
I hope that everyone has a good weekend. If you are in the path of the storm, stay safe and warm. If you are not in the path of the storm, stay safe and warm anyway.
Hugs and prayers from, Lynne
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wow Parry the wedding pictures are gorgeous. The professional ones should be amazing. You are a beautiful bride. I’m happy that you weren’t in pain and had such a lovely time.
Lynwood 1960 your skeleton pictures are amazing. I can just imagine what the written report said that accompanied those results.
50’s girl Florida is waiting for you. We are having 70’s during the day and 50’s at night. Im sorry that you had to go through a few treatments. I pray taxol is the one for you. I had it years ago and was allergic to it. My friend is taking it now 3 weeks on and 1 week off I think is her schedule. I hear about clinical trials all the time but I probably would go for tried and true until there were little or no other options. Congrats on your mother in law being 100!!!! Wow that’s a long life. She’s a living historian.
Take care all
Tanya
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Congrats Parry! I have no idea how you managed to look so great during active treatments. And I agree, both dresses are stunning.
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BooBoo~You're so sweet, I am anxious to hear how your experience went today R your doctors appointment. Did you find a palliative care group afterall, affiliated with your hospital? I'm so glad you're moving forward with the medical card. I so much hopenyou find relief. We will arrange lunch soon how nice that will be. Watch out for the snow! Yuck.
Daniel~ I am so very thrilled to hear that Leslie is doing good! We are all in her pocket hoping she hears good news on the mri front. Good to hear about her. I was starting to get concerned. Please tell her hello for her sisters!
Lynne(50's)~Sometimes I wish I could go down to 100 mgs to maybe get less fatigue. But my onc insists. Don't change if it's working. Anastrazole and ibrance round 27 coming up next week. I wish we could all just pop a pill and have limited side effects. Having to deal with this is crap. 💯 years old. Imagine even writing that for your age. That is just plain fascinating! The stories she must have. That's wonderful. It's always nice to see you. I hope taxol kicks some major butt. I had to have abraxane, I am allergic to steroids. So I wasn't able to do the taxol! I wish you well . Sweet woman!
Tanya~ Hello lovely lady. I am so jealous of hearing about your weather. Lol we are sitting here watching the projections for snow. Nothing like New England area. But 6 to 11 inches. Have some errands to run. I better get my snow boots out. Feel some warm sunshine for us please!!??
Mae~Hi there! I had meant to ask you if you watch the bachelor. ? We seem to watch the same shows. Celebrity big brother is coming on next week I think! I enjoyed that. Hope you're doing well and have. Your privacy back! Good to see you. As always.
Goodnight ladies. elleonwheels. Hope you're doing good as well haven't seen you. Blueshine. You either. Divine??
~M~
Still thinking of our Lynne (Man) waiting for her. 💜
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Parry, you are so beautiful and you both look so happy in your finery. I am fascinated by both sets of traditional wedding wear. Gorgeous!
Lynne 50's, I hope taxol works very well for you. What schedule will you follow? I had it once a week for twelve weeks, starting right after dx, then went to I/L.
Micmel, thinking of you. I know what you're going through with your dad. I still can't believe my dad passed away in November. It isn't "real" to me yet, at times, even though his health failed drastically during his last year.
Waving to everyone here. We're getting ready for severely cold temps and strong wind. Rain first. We haven't used the wood stove in a while, so it was time to sweep the chimney and make sure it was all in safe working order, just in case. I hope we don't need it, but if we do we'll be toasty warm.
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Tanya, I am definitely looking forward to your Florida weather. Thank you for your kind words. I am going into this Taxol phase with an optimistic mindset. I am sure I will settle into a routine.
Micmel, It is unfortunate that you cannot decrease your Ibrance dose since it could make a difference in your energy level. Of course,the 125 mg dose is working, so I am sure your MO is thinking that if it ain’t broke, don’t fix it, right? Thank you for you good wishes about Taxol.
Muddling, Thank you, too, for your thoughtful comments. The plan is to do 8 weeks of Taxol every week, then my MO might change to 3 weeks on and 1 week off. Unless some new treatment/drug is discovered, I suspect that I will be on IV chemo for the rest of my life. I plan to be around long enough to go through them all, and I hope that each one works for a long time. I am preparing to lose my hair with taxol. I have already ordered some scarves. I am up in the air about a wig. It seems like people one the boards rarely wear them because the aren’t comfortable.In my case, I probably will buy one and wear it when I see my grandchildren. They are still unaware of the fact that I have cancer. I know it would be very upsetting for some of them. Obviously they will have to be told eventually, but not yet.
Well,the hundredth birthday celebration has been postponed until Tuesday due to the expected snowstorm. Today we will be celebrating my granddaughter’s birthday as well as my dh’s. Over the next 5 days we have 5 birthdays- dh, mil, grandson, granddaughter, and step grandson. Busy week.
Hugs and prayers from, Lynne
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Lynne 50's, ask or PM me if you have and questions about taxol. I'll be glad to share my experience with it. I liked the soft caps when I lost my hair. Similar to this: https://www.amazon.com/Comfy-Chemo-Turban-Cancer-B...
I also had a couple of crocheted caps that were soft and warm. My chemo clinic had them in a gift bag at my first tmt along with some other things. I had bought wigs but I did not like any of them at all! I wore one once, when I had to go to the bank with my husband to sign some papers. I'd advise you to go to a store with experienced ladies who know how to measure and fit you, then get your regular stylist to style the wig for you. I should have done that but didn't want every person in town to know my business, and trust me, they would've.
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We love this thread
. Parry, wow, wow! So beautiful, so happy! Lynnwood, yes to that scan!! Woo hoo!
Hugs to All!
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Lynne, I understand your choice. I think sometimes we would like to be the one pioneer, but when it comes down to it, we go for the safe sure road. Will be sending positive vibes your way. 100 years old, such a grand age. My Mother will be 90 next month, and insists there will be no fuss. Her big worry was the Minister announcing in Church her age. She does not want the world knowing her age. She does not look 80, never mind 90. Enjoy your Grandson. As we know every moment we share with grandchildren is all the more precious now. Just to say, I am a wig wearer. Find a good one. I don't know I'm wearing it
Love to everyone, feeling tired tonight. Have been out all day, Indian food for lunch, then just time with friends. X
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Muddling~Hello friend. I received a call from Hospice today saying that no one was home with him and he apparently soiled himself. I was in the middle of a nap. Hearing the nurse say she was concerned that he was alone too much again. Soon they will intervene and recommend he goes into an actual facility. Boy he would hate that, but he would have help. The reason that hasn't happened is because my step monster needs his money to pay for her 7 bedroom house. (I counted) it's really sad. It made me feel horrible. Knowing he was lying there like that. I talked them into making. One time exception to go help him. They said no one could reach my step monster or my neice. It makes me so mad that I am so helpless. I wish I could take care of him. I know it’s too much for me but it bothers me.Sigh thank you for the kind words I know you understand! Hugs my friend. ~M~
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Lynne (50's)~I beg every time I go into see him. He said exactly what you said word for word. He's Japanese and is a very good oncologist. I really hate the fatigue, but feel very lucky to be able to rest when I need to. My DH and I both got a cold, his Chest sounds tight. He has bad asthma. I'm coughing up a storm. Keep washing yours hands!!
I am another one who had a magnificent wig... custom made. It was gorgeous. On the fake head. I wore it twice maybe. It was hot and it itched me. You really could barely tell the difference, but I could. It wasn't something I could get used to either. I preferred the feminine cotton caps. Scarves were nice also. But anotherimportant thing Is to get a specific sleep cap. Your head gets cold at night and without it, I would not have slept at all.. my head was very cold and I had to have something to sleep in, they make those especially soft. My DH washed them in Woolite and they were soft and sweet smelling. The hats that were made of materials were too hot for me. I liked the cotton feeling. Comfort was my angle. I hope that you sail through taxol with straight A's. We love you! ~M~
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Minnie~Hello darling....always nice to see you here! I am sure by now you're sleeping peacefully. Soon to be me I hope. Heat flashes got me going on and off tonight. Weird how that happens and then doesn't. I'm glad you're always spending time with friends. That's pretty cool. I saw my best friend last Sunday and we watched the movie money pit with Tom Hanks and Shelly long and we laughed. It was so nice to leave cancer behind. Especially with her. My longest friend. I find it interesting you loved your wigs. Were they long? Or short ? Color? Much love to all! ~M~
Gracie ~ you ok girl? Miss your sweet smile.
Still thinking of our Lynne (Man). Everyday. 😔
Elleonwheels! Hugs for you too
Mods~ thanks for noticing our little piece of Home. 😃.
~M~
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