My Husband, My Life, My Love, My Family, My Cancer
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Hi, MJH! Look at you on skis!
Tanya, hope your knee is feeling better.
Grannax, sending all positive vibes for safe travel, a perfect shield against germs, and fun on the runaway.
Hi to everyone. DH and I are having a quiet Valentine's day here. Already been in the candy box, LOL. Quiet is good!
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MJH. Where do you live? What channel was it on. That's exciting. I've still got a little work to do on my gown. I had a sewing machine disaster this morning. Ugh. While trying to do alteration. It's going to be an early morning.
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Grannax-I live in Maine. The segment was on a Boston station which is affiliated with NBC called NECN. Why did that darn sewing machine have to act up today? Good luck getting the gown the way you need it! I know you will look MAHVELOUS!
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Grannax, Have a wonderful trip to New York. I have no doubt that you will look beautiful. Enjoy every minute.i look forward to seeing pictures.
Hugs and prayers from, Lynne
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Grannax, have a GREAT time in New York!!! Your fan club here is anxiously waiting pictures! It sounds very exciting!!
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grannax have a safe trip! can’t wait to see the gorgeous pictures. don’t forget your a little unstable and you may have to hold on a little tighter to the male model. wink wink
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Hi ladies ~. Grannax. Thinking of you. Hello Holmes lynnwood, muddling...Donna....Tanya... Parry darling. Gracie....
I'm so much suffering... I'm recovering slowly from the flu and that is helping. My suffering , is coming in droves. The circle of my life is coming to a close and I can see it starkly each day. My thinning father, coming into my life right at the end of his to close the ties that needed binding and mending! Like placed in a perfect bow for me to open and have the seething pain of the end of a parents life hitting you smack in the face. Having. A limited time to feel the love and forgiveness I deeply need to be a complete woman to die a complete adult with all ends closed that needed to be done.
I want to run. I want to sing and feel happy again. I want to see a mountain top and Scream please I beg. Give me another chance to live and love completely with out anger without fear of Ioving unconditionally with judgement. I'm begging to live and laugh feel alive and free and if I want to skip I could. If I want to look at the sky and feel safe again I want to see colors as colors not the vibrant memories of the beauty I will lose when my eyes close and there is nothing left to see. I want to see really see everyone and everything for who and what they are. Not just passing faces.i need tonlove my family forever ..watch them with their babies and smell that baby smell again. Looking into my bloodline and eyes of a child my grandchild. I want to open doors and help people smile daily. I want to love and live like I'm dying. But not actually know it's happening actively each day. My mind is bent and screaming for peace and understanding as to why all this was slammed into my life and sent me faced down, filled with sand as if I was blown in with a hurricane on a beach that's abandoned. I can scream forever and no one will hear me. I'm stranded in reality hell. Every song Rips my soul . It speaks of life and loss. I'm sick of loss. I have lost too much in the past three years it's destroyed my inner soul. I'm weak and wounded. I look like a sewn up doll with a made up face and under that face is still a scared little girl who is loosing her father again for the fourth time In my 48 years. Except this time it's the final waltz. Emptiness doesn't begin to express the hollow hole that has replaced my broken heart. 💔.
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Good morning all
The leg looks ugly as bruises usually look worse before they look better.
Micmel I’m sorry that you are despairing right now. You have a lot on your shoulders. I hope you feel better soon. Will your DH be home this weekend?
Grannax I saw an ad on TV news here in Tampa about NY fashion week. You leave tomorrow have a safe and wonderful trip.
MHjan I love the picture. I’ve never tried cross country skiing it looks invigorating and beautiful. I have arnica but I’m using some medication from my doctor now. They’re concerned about infection bc of the immune system depression.
Hugs to all
Tanya
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MRI showed extensive mets in left lobe of liver, right is still stable from Y90. Will probably switch to Doxil and maybe have another interventional radiology procedure. Don't know yet. Having a rough one; progression is hard to process......
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MJ, Darn,darn,darn! I am sorry to hear about the progression in your liver. I am sure you and your MO will come up with the best plan for you going forward. In the meantime, lean on your family and those of us here for the support you need. You are living a rich and full life, and I am sure you will continue to do that. You seem to find joy in each day, keep it up.
This disease sucks big time.
You are in my thoughts and prayers.
Hugs and prayers from, Lynne
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Micmel, wish I were closer, I’d come right over and give you a big hug! Losing a parent is hard in the best of conditions, but your situation is making it so much harder. Hugs girlfriend!!!
MJH, I hate hate hate progression!!!! Will be praying the Doxil knocks that back!!!! Sending you big hugs too!!!!
Tanya, hoping that knee heals up quickly! It must have hurt like crazy!!!!
50’s, keeping you in my prayers!
I know I’m missing a lot of you, will try to get caught up a little this weekebd
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Oh MJH ~💔 what the hell is going around here ? Like no! Damn it. I am so angry with this disease. I have no words. I am here sweet friend. We all are. Struggling right alongside. On the same train
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Ok everyone, I'm several pages behind but I caught up as best I could, I even took notes!
Gracie, Alan is a lovely man, super nice and genuine, his wife Lisa is totally awesome too. In your pocket for the brain MRI and hoping for great improvement.
Micmel, I hope you back gets better and wish you felt well enough to go have some fun, maybe a quick springtime getaway 😀
Tanya, sorry to hear about your fall. It's scary when it happens and our recovery takes so long.
MJH, I'm really impressed with your skiing, very cool of you to get out there. Also, wishing the next treatment knocks those liver met on their ass!
So, here’s how it all worked out with the cruise, DH drives Alan’s tour bus and they brought us along as crew on the On the Blue cruise, which is an annual music cruise (Moody Blues, Zombies, Alan Parsons, Todd Rundgren, etc). Alan begins a tour tomorrow nigh, we’ll probably go to the show, then I fly home Sunday and DH continues driving the bus for a month.
I had drinks for all of you as promised and have more stories but I’ll spread them out a bit, for now, here’s more pics! Starting with the aquarium at Atlantis, Nassau, Bahamas.
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Mae, has anyone ever told you that you are a fascinating person... ? I enjoy your stories. And experiences. You make me smile everyday. I love your attitude and acceptance of this shit disease. You love anyway and live anyway. To the fullest. You are amazing! Be safe and have a blast.... until your next story and adorable collages... some cool shit for a change 😎! Love Todd Rundgren always have. 🎶”Hello it’s me, I’ve thought about us for a long long time. Maybe I think too much but somethings wrong, that something here doesn’t last tooo long. Maybe I shouldn’t think of you as mine”. 🎶 Great song!!!!! I’m so envious.
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Aww, thanks micmel. I have every intention of cramming as many good times as possible into whatever time I have left. Here’s a few more.
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Good grief Mae~ That water is so beautiful!! I have been on one cruise to Bermuda it was awesome except we sailed from New York rough waters!!! 🤢 love it all. Have another drink for me!! Much love ! ~M~
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and now after those food pics I am hungry. I am thinking my flu has finally lifted! The problem now is my son. His boss came to work today sick. WHO THE HELL DOES THAT WHEN ITS FLU SEASON???? Like he's the best boss but then does that? Uh no! You're putting every single employee and their families at risk. And I cannot have this again. It just may kill me. It's like epidemic proportions around this area with this out break. I don't want to go anywhere.. nooo way! I'm going to rest and stay home the weekend. 'Monday I will finally Go back toVisit. I might donn a mask. Just to be sure. For s little while longer. I don't know how long one is contagious? Lynnwood?? Anyone anyone?
Be safe on your travel home Mae!
Sheila Marie. Thinking of you. Bigbhome too! Hope you're all well. Divine....Gracie hello...Minnie? How are you lovely ? Thinking of our Lynne's. Missing Manchester and filled with concern. Hi MJH! Awesome skiing. Like wow. But progression Boo I'm in your pocket! Tanya, hello beauty! Parry... Skitz, thank you sweet friend. Runor.... with you as well. Donna, hello there hope your day was good. Missing my Chelle! NaN! Blueshine,masonsma..JKL...Bella....JFL...Edwards.........Chicagoan..Grannax...NY NY!!! Runway girl! 🤩 Hope the machine mishap worked out ok!(I'm too sexy for my shirt toosexy for my shirt so sexy it hurts) If I've missed anyone! I'll be back! Goodnight ! Ladies !
Ahah!!! Daniel and theeee lovely Leslie. !
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Hey y'all
long time no talk. We are fighting the flu over here, just as some of you are (Mel I am looking at you
. Gabriel gifted us all with it although, as per usual, he bounced back waaay before us. Just to be prepared, what temperature does you doctor deem high enough to make a trip to the ER while on Ibrance? They are kind of laid back about this stuff here and don't necessarily suggest that as a first option. They said stop Ibrance and take Tylenol like you normally would. Leslie has been running an almost constant temperature of 101 for the past two days.
Y'all have a good weekend
Mae - I love love love Florida and the Bahamas. Enjoy the warmth for me, too
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sounds like the same thing to me. My fever was up and down for four days. Didn't eat for two. Headache terrible aches stomach issues both ways followed for me. I am so very sorry. I have the nasty cold as well. I was told anything that cannot be taken down with medication should be called in at 100.3 was my number given. Maybe the others will have other opinions. My onc sees it as a before the storm hits measure. And precautions. Dehydration being the worst. And risk for us! Please feel better. This is the worst flu season I can remember! It's everywhere so scary! Hello sweet Leslie!
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So, a quick story.... Alan’s wife Lisa introduced me to a woman who is very active in charity work and cancer research support (everyone knows about my health, I’m intentionally open about it). We chatted for an hour or so while I got nice a drunk on bourbon and coke. Super nice lady, I don’t recall her name but she’s married to Neil Armstrong’s eldest son, yeah, that Neil Armstrong, the Astronaut, they’re friends of the Parsons.
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Mae! What beautiful pictures!!!! You look just marvelous!!! I’ve never been on a cruise or to the Caribbean. How cool that you can go do that! I’m so glad we can live vicariously through yours and others experiences lol😁
Alan Parsons is, as far as we are concerned, one of the greatest musical minds of our generation! What he did to engineer the sound on “Tales of Mystery and Imagination” was truegenius! It’s so wonderful to learn he’s also a really great guy with a wonderful wife! My son has been sent an offer by Decca records to come talk to them, but I don’t think he’s going to accept. He’s afraid they will try to tell him what to produce and he’s old enough now (40), that he just wants to do his own thing.
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Good afternoon all
I’ve been reading and writing but clearly not making time to share.
Dorimak the Midwest winter is brutal this year. I keep watching weather reports and shaking my head. We couldn’t take the drudgery of winters in NY so we left the winter wonderland 12 years ago after my first bout with BC.
Donnabelle I hope your MRI goes well and you get something for the dizziness.
Lynnwood 1960 you said Gods angels help us and for sure the man who extended his hand immediately was an angel. Small kindnesses of humans make the world go round. Helping strangers is also brave, strong and kind.
MJHJan I’m sorry to hear about your liver progression. I know there are more treatments and I pray yours are swift and thorough. You have more cross country skiing to do. You’re right you can’t leave us alone for a minute. Lol
Gracie I’ll be in your pocket Thursday for your MRI.
Grannax you should be in NY today. I hope your feeling appreciated cherished and proud as you represent us all. I’m tingling just thinking of you and how you grace that stage. Standing O!!!!
Mae boating/cruising you look fabulous. Thanks so much for sharing and allowing us a peak at musical genius/royalty. I’ve never been on a cruise but it looks wonderful. I’m with you cramming everything good into whatever healthy time is left.
50’s did you have any SE’s? Hopefully you’re strong from your time off and vacation. Maybe they’ve figured out how to minimize the SE’s. I read you were icing your hands and feet.
Micmel once you’re fighting the flu. I went to a funeral and wore a mask. I heard coughing and sneezing and went and sat in the car. I paid my condolences and also visited the deceased while he was alive. My mom has bronchitis but we’re still determined to do our trip. She’s hopeful that 10 days of meds will get her strong enough. Definitely wear the mask to visit your dad and slather hand sanitizer everywhere.
Daniel sorry you guys are down with the flu. My ONC says 100 degree fever with cough or cold symptoms ER. If it’s during the week I try to just speak with a nurse at the office. We all dread ER.
Holmes thanks for your kind words.
Muddling is the candy all gone?
ADDK and Parry I hate the pain meds dance. I take it when I have to but Do much better with the medical marijuana. Side effects are horrible on the codene family and CBD THC doesn’t give me any SE’s. Parry did you start the gemzar now?
Enjoy your weekend ladies.
Tanya
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To those who are having bad news with scans or back into treatments, I am always unhappy to hear it. For those dipping crab claws in butter seaside, I am glad to see it. To those who sashay their hot stuff down runways all glammed up, I cheer for it. To those who get bruised during extreme athletics, I fall for it. And Micmel, who battles flu and the tasks of dealing with dying father and her own illness I have a hug and a bottle with a little something-something to add to your coffee so you'll care a wee bit less about all this stuff. Just for a little while. I am here and wish with all my might for good things for all of you. Everyday.
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🙏🏻❤to all.
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Tanya, you know me well! That heart shaped box of candy IS mostly empty now. In my defense, DH has been helping himself to it too. I'm glad, because he likes the yucky ones I don't like.
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I’ve asked everyone on the tour to wave hello to all of you wonderful ladies 😀
It’s showtime, we’re off to the venue!
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Hello Mae & crew! AWESOME FREAKING PICTURE WOMAN!! Wow. You're like I said pretty damn cool! 😎 you're going to win a correspondence medal for sure. With this reporting stint. 🙇♀️🙇♀️🙇♀️🙇♀️!!! Have a total blast and I love all of you ladies. Thank you for being here. Everyday Is hard. Knowing these words are waiting is something I cannot express ! It makes me laugh and smile and cry sometimes. But you're all such a specials family to me. I hope each and everyone of you know this. like a big ole sick family. Sticking it out together! Sisters at battle!! ❤️🤩
Have a . Total blast. Lol I got a little drunk. I cannot imagine having cancer and being actually drunk. You're something else. Dont you feel sick?? I'd yak! 🤮 go Mae go Mae!! To all of you doing your things. Go get em!
MJH lol at you cant leave us alone ! So true. Hi Tanya, Gracie. Dear sweet Runor and Bella. Donna Parry, muddling. I want some chocolate tooooo! Flu clouds are parting finally. Wowsers!
Love to all !
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I thought I'd come out of the shadows and say hello to everyone. I'm newly diagnosed and have found a lot of comfort in reading about your everyday lives mixed with the realities of also living with MBC. I'm 59, diagnosed de novo, and hoping like heck that my oncologist's “big bag of tricks" will give me some more pretty good or even good years!
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Rosie~Welcome to our little home. Our slice of craziness and some good laughs and support that is endless. We love each other and respect what each of us brings to the bar!! It's like cheers. Everyone will know your name! I welcome you with open arms and hope you'll stay around and be apart of our team FU! Cancer. Life is hard. Having friends who get it makes all the difference! Hugs to you! Although I am sorry of your diagnosis, please know you're not alone. We are all here too.
Much love ~M~
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Hi Rosie!!! This is a great group!
Micmel, hoping you are resting and getting lots of liquids!
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