My Husband, My Life, My Love, My Family, My Cancer
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love you Gracie my sweet friend. Thank you. Lots of fluids and I feel a little Better tyvm
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Hi, Rosie! Hoping I and L are doing okay for you! I was de novo too. From zero to stage 4 in one CT scan.
Mae, I have loved all your photos and reporting on your trip! Cheers 🍹
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The show is over but it was fun. Goodnight all 😀
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Hello Rosie, it is regretful that you're here. But if you were looking for a place to find kindred spirits, this is it. This must be one hell of a shock and I am sorry. Fingers crossed that the bag of tricks has something for you!
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Welcome Rosie!
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You know you are a rock star when you roll around on a tour bus! Awesome experience, Illimae!
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Rockstar in my own mind, lol
Breakfast with band and crew, then off to the airport to fly home tonight.
The real world is waiting, H&P treatment tomorrow, Brain MRI on Wednesday and results on Friday.
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what a great time you had Mae! one definitely for the memory books!
micmel i’m glad you’re feeling better. i’m sure your dad has missed your visits.
grannax how is it going in new york
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Mae you are a rock star!!!!
Thank you so much for sharing. Put smiles all over my face.
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Mae, WOW!!! What a trip you had!! I’m jealous!! Rosie, welcome!!!
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OMG Mae, you are a total "Roadie"!
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Hi Ladies, Daniel and Leslie too
I'm trying to catch up with everything as I have been so busy lately. Preparing for the Canada trip and getting all the info to the right people regarding my little electric scooter which will travel with me.
Mae, love the photos and impressed by your company! You will be able to name drop for a long time !!
Grannax, good luck with the show.
Mary Jane, I am sorry to hear your news. Big hug for you.
Melissa, sorry you are under so much pressure. So hard. Remember not to overdo it!
Lynn 50s, thinking,of you too. Tanya, hope that knee is better, shout out to muddling, Lynnwood, and everyone else. Thinking,of all undertaking new treatments, I,do,think,of everyone.
A neighbour of mine passed last week. She had been battling a lymphatic cancer for some years. A sad loss, we weren't close, but she was a Lovely lady. However another friend had successful surgery on a stomach tumour and is doing very well.
So tired tonight. Sending love xx
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Hello Ladies~I have always been able to communicate it's been a strong trait of mine. I'd talk to a door if It would answer me. During this time of estrangement with my father and step mother. My DH and my little family was my circle and no one came in that circle. My DH is very protective of our relationship and I am too. We protect it at all odds. This weekend he was here and I was so happy and I wasn't able to be close to him like I desire and deeply need. Like recharging my batteries. I was just so sick and recovering. I didn't want to get him sick because he has a trip coming up with his son and it is a very special time choosing a college. I'm excited for them both. My DH, was such an angel and took over the clothing for my father that we had washed. Everyone's taking turns doing it. He was so nice. I knew it was upsetting him that I would cry. He sees the sadness and exhaustion that I went through that week written all over my 10 lb thinner face. He is worried I'll be catching bugs going over there everyday. I never thought of that. I may need a mask. My DH is having a hard time trusting them. Well not really them, but her. He wants our sanctuary back of our aloneness. I don't blame him One bit. It's my father and I can't turn away now, but no one came to my cancer meeting where I was told basically there was no cure and pop these 6 pills and hope it keeps it at bay a long time. No one helped cover me up or do my laundry except my DH. That's the honest to god truth. I love my DH so very much. He is my best friend and my life. I want to respect his feelings and make peace of what time I have left with my father. Now my step mother has been dragging out the photo albums. My heart is confused but filled with love. Just different love. I know nothing is easy. So I take a deep breath and face another day..
Hope you ladies found your strength today!
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Micmel it seems as if you’ve made peace with your dad. Do what your heart is guiding you too.
Tanya
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Micmel, it seems to me that your husband sees the toll that your fathers illness is taking on you.. especially since you got the flu, no doubt from all of the germs you have been exposed to. You have also had the added stress of dealing with this very difficult situation. I'm sure that he is very worried about you. I know that you are in a difficult spot. Your husband does not trust her because she has hurt you in the past and he does not want to see you hurt again. You want to be there for your father as he transitions from this world to the next. I can see both sides, neither is right or wrong. I agree with Tanya, follow your heart, one day at a time. It will always lead the way.
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Rosie, Welcome to our group. I am sorry that you have reason to join us, but you will find support and information here.
Mae, WOW, those pictures are fantastic. I want to dive into those beautiful warm blue waters. It sounds like you had an unbelievable fun-filledtime. I am happy for you.
Micmel, I hope you are feeling better and gaining strength.
Tanya, How is your knee? I hadn’t even thought of the increased risk of infection due to Ibrance. I am glad that your MO is on top of things. Thank you for asking how I am doing on Taxol. I had my second infusion yesterday, and so far I am doing well. I had very sore legs for 5 days last week, so PA suggested I take Tylenol three times a day beginning yesterday, and so far that is working. I have had no energy surge or crash from the steroids, just two days of very red cheeks. My dh calls it my glow. Lol. I am all prepared for the hair loss that is probably coming in a couple of weeks - wig, scarves, hats. I am planning to get a short haircut tomorrow because friends on these boards have recommended that. I hope taxol works because I feel that I can’t afford to have another treatment fail as quickly as the last two. It is all in God’s hands.
Minnie, I hope you had a good night’s sleep and aren’t as exhausted today. When do you leave for your trip to Canada? How long will you be there? I know you are looking forward to it.
Sending good vibes to everyone.
Hugs and prayers from, Lynne
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50sgirl, I'm glad to read your update! I've been wondering how you are doing. A short haircut is probably a good idea. My hair was long when taxol took it, past my shoulders. It was a mess.
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Muddling, When you were on Taxol, did you find that SEs became worse over time? Were they cumulative? Thank you for your help.
Hugs and prayers from, Lynne
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Mae, more great photos. Atmosphere must have been electric!
Welcome Rosie x
Lynne, we leave Spain on 7 March, overnight at Heathrow, flying next morning to Victoria, with drop down in Seattle, so we will be in the USA for a little while. Staying in Canada until 28th. My Oncologist kindly arranged my treatments round my trip. She is wonderful. I have my usual treatment on 1 March, and next on 2 April. Looking forward to family time, the grandkids are at a wonderful age, 2 and 5. Can't wait! My granddaughter is counting sleeps, she is not the only one.
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50sgirl, I did not find the se's were cumulative with the possible exception of excruciating nerve pain in my hand. I actually started to feel better overall, even though the fatigue was really real! I don't think that taxol caused all my problems in my hand since the undiagnosed cancer and long-standing arthritis had already devastated it. I do think some of it came from taxol though. I didn't ice; didn't know anything about it and I'm sure MO didn't think I'd live through the first few weeks. I did though 😊
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Thinking of you...Lynne (50’s) I hope taxol is Mild for you. I danced with abraxane. That was the chemo I was on when I learned of my bone mets. I am allergic to steroids, so for me taxol was out.
Lynnwood~ty for your sweet words. I’m surely doing the best I can.
Minnie~Hello darling
Tanya~hope the knee is healing.
Muddling~ I had the flu come and conquer....me I wasn’t a happy camper at all. It was rough. Went back to see my dad today. Only for a small time. Just enough to see him and get his full laundry basket. I had my DD go and get the laundry for me while I was sick. It makes me feel like I can offer some help. My step mother was flipping out at how good the laundry smelled for him. It’s kinda just how normal People do their laundry I don’t know! I just want to make Everyone happy. It’s a curse ! Love you ladies.
Parry ? You ok ?0 -
Minnie ~ hi darling enjoy the gma time. I am so envious!! Hugs to you beautiful
Mae~ Safe travels home our roadie ! Well done in the reporting arena. Golden globe here you come!
Rosie~ hope you're not in the storms path! Ick!
Grannax 🤩🤩 modeling and representing ! Fashionista!
Lynne(50’s)~ for me the effects were accumulated over time and my feet knew it. So did my toe nails I barely made 9 sessions. It wasn’t bad a day after but fill with Tylenol and or aleve first. Pump your body with Claritin ....
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So many of you have been busy living life to the fullest, it makes me happy to read about your adventures! Gran, can’t wait to hear about your glamorous modeling trip and the fun you had in NYC. Mae, it’s just amazing that you had such a cool experience. Love a lot of the artists that you were lucky to see, particularly Todd Rundgren. I have been his fan since college. Back then, my university had a senior concert each year as part of the graduation celebration, and it was Todd Rundgren! Sooo talented. Minnie, enjoy getting ready for your big Canada trip. I always love the lead up time to a trip, shopping, packing and the wonderful anticipation of what is to come. My “big” trip was up to Anaheim last week to see my Boston Bruins take on the Anaheim Ducks (my daughters favorite hockey team). Hubby, son and daughter, we were all together and enjoyed it a lot, and the Bruins won! I have been so dizzy and tired that I wondered if I could make it, and I am glad that I made the effort.
I hope treatments are being easy on everyone. Lynne 50s, I only had 3 taxol treatments before it failed, but it was fairly easy on me. As much as I look like an alien with no hair, I have to admit that it is so easy not having to deal with the washing and styling. Get some sassy caps and scarfs and maybe a crazy wig. I had a pink and blue wig that I just loved, and I didn’t care what anyone thought about it!
Micmel, thinking of you and hoping that things settle down and that you take care of yourself.
Here is a picture of us at the Pond in Anaheim for the game.
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Just FYI, guessed who just turned 44!!!!
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Thanks for the welcomes! Being new at this and not having any serious side effects yet, I am still juggling the mixed signals to my brain of knowing I have an incurable disease but feeling ok physically. I know that won’t last, but I feel like for hubbys sake (and mine) I want to stay positive and keep making travel plans. DH was a widower when we met 10 years ago, and he had seen his first wife through many years of a debilitating illness. He was ready to “get back out there” and start having fun again, as was I. It just seems so wrong that now he has a second wife with a crappy diagnosis. Hoping for a good run on the I/L or something else!
Tomorrow is my first cycle check up, and yes, Micmel, we have a frozen mix in our morning forecast. Ugh 😑
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Happy Birthday to you... Happy Birthday to you! Happy Birthday dear Mae.... Happy Birthday to you! 🧁 🎂 🍰 🎈 🎊 🎉!! What a month you have had !! You go girl !
Donna~great photo. Loving that! Sometimes we do have to push don’t we.
Rosie~ welcome back! Hugs my
Friend.
Stay safe in this storm!0 -
Donnabelle, the Ducks are my favorite team too! I grew up in Huntington Beach and went to several games in the Paul Kariya/Teemu Selane days.
Thanks micmel, I hope you’re well and resting.
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I’m here just struggling with skin mets pain. Open sores now and pain meds not doing much. As a woman it’s hard to see my body & this part look like this. Still reading and sticking with everyone in my thoughts. Having a hard time with my birthday tomorrow and not allowed to soak in a nice hot bath anymore. MO didn’t put in the orders for the new chemo so now I won’t have treatment this week and it will be 4 weeks since I was last on any treatment. It will push off my SRS for brain mets and I’m pissed. Started having frequent involuntary twitching all over from the new mets....soooo just in a slump. I love seeing the pictures and news about everyone. You all brighten my day :
Take care ladies
Happy Birthday Mae!
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Happy Birthday Parry my sweet sister 🧁🧁 I wish I had a magic wand to wave away all our sadness. More more and more everyday I wish I had a cure in my pocket to pull out and give it to everyone. We are here my beautiful friend. Yes we are. Just singing a different song. A scary song we sing. But we keep singing! 🧁🎂🎂🎉🎊🍰🎈🎈🎈🎈
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Birthday greetings to Mae and Parry! Mae, pizza pie and apple pie sound like the perfect b-day dinner to me! Parry, sending you gentle virtual hugs to feel better from these d*** mets. Pester your oncologist relentlessly until he helps you.
I saw on the news this morning that two scientists have run the genome on great white sharks. They found that sharks have a lot of extra DNA which they say is used in the shark to keep its cells healthy, as in not mutating into cancer cells and/or wiping out cancer cells that might form. Whether this can be adapted for humans is the next question. It's worth a try. Come at this this invader from every possible angle.
I'm so glad to read of the trips and also just the daily life you all share here.
Not a lot here. We're making arrangements, yes, those arrangements. Partly done and working on the rest. Heavens to Betsy, it's so d*** expensive, even very modest choices. My reactions to the process are interesting. More about this later. In the meantime, I'm doing fairly well. We have some snow and sleet today. ❄❄ ☔
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