My Husband, My Life, My Love, My Family, My Cancer
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Mae~JKL~~Thank you very much. I am relieved. It was a long haul this month. You ladies are wonderful!!
Hello Minnie!!!!! I’m very happy to see you!! How is the hip? Hope you’re feeling well. We missed you! Hugs always ~M~0 -
yayyyyyyy!!!! Such amazing news Micmel!!!!! Doing a happy dance over here for you!!!! 🙌🏽🙌🏽🙌🏽
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Philly~Thank you my Friend, that really means a lot. I am happy for you as well. Let's keep that train rolling!!!!! Stable train!! I don't know if you knew I was from pa or not. I live in the philly ne burbs. I loved your pic of the Psfs building. Must have been a lovely walk/run! Hugs beauty!
GP. You okay honey??
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My beautiful Lily's have bloomed... my birthday flowers. They are lovely... my BFF gave them to me. She's so thoughtful . I love flowers. ~M~0 -
Micmel, congrats on the stable scans!!! Wonderful news. Those are beautiful lilies. You have so many more that are waiting to open up in the bouquet! This thread has slowed down in pace ever so slightly but is still at a "fast" pace in my mind. I hate to think that it may have slowed because some who used to participate are no longer with us. The liver mets thread used to be so fast, I couldn't keep up hour to hour. Sadly, since Zarovka left the boards, it has never been the same. Also, after we started losing so many wonderful women, particularly last year, it became too "real" for a lot of people.
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JFL~Last year was very rough with loosing our sisters. I hope that this year is way better, but some have already left us. I’d like to think of it, that they are off living and having memories made. That’s what I will choose to believe. Or else I’ll loose my marbles worse !
MJH~You doing ok as well. Been thinking of you!
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GOOD NEWS, GIRLFRIEND! And a boogey hello to everyone else. Tried to get a dancing gif in here, but failed. Computer dummy. Sorry. Micmel I am dancing with glee.
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Runor~Hello there!! Always glad to see you! I am relieved. It was a heck of a month....Glad to see May in the rear view mirror. I am happy about my scans for sure. But sick of doctors appointments. I have tomorrow medicine doc, and Friday oncologist visit! Then I can hopefully rest and recuperate knowing my body is stable now. This is scary stuff. Wears you right out. So good to see you. I think of you often and what you’re going through. Much love to you! ~M~
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Micmel, sharing your joy!!
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JFL. So true. I still miss Z, still hardly believe she's gone. Yes, it takes GRIT to stay on liver mets thread. But, there are new people coming on it everyday. I've seen your posts explaining, encouraging just like Z used to do. We learned so much from her, now it's our turn to help the new to liver mets people.💞
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Micmel, wonderful news about your scan. Somhappy for you! After your other dr appts this week, you should try to plan a day trip or overnight trip away. Even just a country drive to a beautiful state park or other nature-y place. Something simple, and hour or two drive away for a change of scenery. It is a great way to celebrate the scan and allow your thoughts on all you’ve been through with your dad this year to settle somewhat.
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Micmel what great news! I hope you are finding some time to re-group a bit!
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Good morning everyone 😀
DH is working on the cabin for a couple weeks (flooring, electrical and stairs! No more climbing a ladder!!!!) Anyway, I thought I’d share a combo pic of a friends drone footage and 5 deer that came around for corn. It’s going to be amazing to live out there full time.
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wow Mae! Where is that? Looks beautiful and peaceful and like you will get some seriously gorgeous sunrises and sunsets!
Micmel - love you too! Yes yes I remember that we are both Philly girls!! 🙌🏽 yesterday I walked down to south philly and stopped at Johns Water Ice and got me a pineapple and lemon wooder ice, yummy! It’s the best in the city! Beats Rita’s any day!
I tried to get up at 9am today, set my alarm so I would wake up and start the day. Couldn’t wake up! Kept falling back to sleep till 10am. This happens a lot to me these days. But tomorrow I must get up early for my monthly MO appt and Lupron shot in the tush. I might need to set off dynamite to wake up lol 😂
Also, passing this along from an MBC support group that I haven’t actually been to but am on the email list serve for:
From the facilitator:
please consider participating in this study about the needs of people with MBC. I have been in touch with this study's author and she is doing great work. She herself has metastatic breast cancer and is working hard to improve the lives of those living with the disease. Here's the link:
https://bsu.qualtrics.com/jfe/form/SV_0wiyMGeZ5f3DCOV0 -
Micmel,
AWESOME news! So happy for you. It’s time for you to get some good news, huh?
I FINALLY heard from my onc today. She was very apologetic (she was at the ASCO conference in Chicago last week) about not calling sooner. Anyway, she said my scans show progression, so time for new meds. Not sure what’s next, but I’ll tackle it just like all of the others...HEAD ON!
I asked her several questions about the scan, and because I also have sarcoidosis, she is going to have another colleague review the scan. Sarcoid and breast cancer look alike on films, so it makes it more difficult to know which disease they are looking at.
But onward! Thinking positive, enjoying the FL sunshine, and wishing all of you good scans and sending positive vibes!
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Mae,
My sister lives in the hills near Junction, TX, and they have deer pics like yours almost every day. Some of the deer are ones I’ve never seen before (Fallow, etc.). I think they are so beautiful to look at. Your cabin reminds me of the same peaceful setting she is in. Enjoy
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Hey LovefromPhilly,
I’ll always be a Philly girl! We saw a guy with an Eagles hat down here in Clearwater, and said “Go Eagles”. Had a good chat with him and the Cowboys fan sitting at his table (we told him to get better friends!).
Anyway, my new nickname for you is ‘Lazybones’!!! Nah, just kidding. I’m finding myself doing the same thing...staying in bed longer and longer. I us d to get up at 5:30am every day for years, so I’m enjoying being well rested!
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booboo, sorry about the progression but glad you’re hitting it head on.
Junction is on our way to the cabin but we’re a few more hours west, definitely beautiful land in the hills.
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These are the Rose flower petalsthat were in the arrangement next to my fathers ashes during the memorial. My step mother split them with she and I and bought this adorable heart container for me to have with them inside! I was so touched...beyond special! ❤️ I will cherish them forever! Infinity!!! Life is damned hard! As we all know!
♾♾♾♾♾♾♾♾♾♾♾♾♾♾♾♾♾♾
BooBoo~I am sorry to hear about your progression! I am hoping they read it again and that changes. Like you said. It can look a lot like each other. I am hoping against hope. That it will be non progression! I am encouraged by your attitude like Mae said. Because let's face it, I would be in a fetal position/ weepy woman. I know I have inner strength that I tapped into with my father, but my process may take a little longer than others. You're amazing women!!
Mae~Still loving that cabin! Like I said. You're someone I could hang out with!
Philly~If you all knew actually how much I honestly sleep it would make you nuts. I have been on ibrance for 31 months. It's a heavy load because I believe it's accumulative. The highest dosage 125mgs. I honestly want to try a lower doseage but he insists I'm too young to even think about that. I realize from the beginning they were aggressive with me. I am amazed at your energy also. Salsa dancing... running. Going out late with your friends. I can't handle not sleeping. I get weak. Cranky and achey. I will live through you guys! I guess.
Much love ladies !
Muddling. How are you?Lynnwood~ you doing ok on the new TX? Gracie~Miss you my friend !
Rosie~ Hello! Skitz~Hope you're feeling good!
Divine~How is the porch?? Pots~Haven't seen you ether
Bigbhome ~Missing you.
Blueshine~Hope all is well
Donna~Hugs my friend
Elle on wheels ~Hope you're good too!
Tanya~Hello Beautiful~ Minnie~how is the Hip?
MJH~Thinking of you! Marianelizabeth~Waving Hello! Nan~of course. NKB~Been awhile! JKL~JFL~. Hugs to both. Runor~sweet honest having my back friend! Love you! Parry~Hugs beautiful bride.~Grannax~Hope the family is also well and those special grandchildren! Masonsma~Been A long time also.
So much time has gone by and I know my world had been thrown upside down with my father and with him entering hospice. Once that happened. My skies of emotion opened up. I would not change a thing. My step mother called me last night and told me she had something for me. I automatically thought it was my pictures that I lent her for the memory board. She asked me to meet her at the home and help her understand some financial things and be there for her because they were getting a little rude with her. Everyone else there has been amazing. So I went with her because I know my father would have wanted me to do that. It was so very difficult to even move my legs into the home. I stared down the hallway I once walked down. Tears came and I didn't even know. She, however was almost a different person, she apologized for all the years and we both came clean for our own shit. We were honest with each other. I feel less weight and feel like, I could let go of some pain and had some questions answered that I needed. I am in caution mode, but made sure she knew that she had to respect my sweet loving DH. Or else no relationship ever. If we go, we leave your life as a unit together. No one to the other. We support each other.(My kids also)Back against the wall. The respect starts now. Or else. I'm Not going to be able to pretend, my DH is my priority. He's been there when no one else was.I want to honor my father and I know somewhere she does love us. But boundaries must be respected. One day at a time. Is all I have to offer. I miss my Dad. For sure.
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on my I god so far behind and so fast!
Halaven is kicking my butt. I have every not so common side effect of achey bones and muscle, back pain, fatigue. Low white counts. I have a scan next week and I figure this chemo, that has been one of the harder ones on me,will of course be the one that works! I sure hope so though.
Micmel, the flowers are such a neat idea. That was nice of her to do. You can't change the past but you can change your future. Sometimes we may not really know all the reasons things happened in the past but a good cup of coffee and confrontation may help. We learn things we hate but we learn things we never really knew as well. I'm so glad your scans are good! I went down on my dose of Ibrance and that's when I ended up with liver Mets. Maybe just me but I don't recommend it for that reason. I know how I felt after 18 months so can't imagine how you do. I so forgot the fatigue from low white blood cell counts, it's hard on me. I can't stay up past ten much anymore. I was an all night we girl so it's hard on me now.
Mae - the cabin is so cool! We bought a bunch of land and three places at a lake right before I was diagnosed. We ended up with a super deal, after me haggling to no end. We have that all paid off and now it's time to redo my cabin. My mom did hers already.
Jfl- how is the new treatment your on going?
Parry, you are a true fighter and it comes with hardships. I'm always so happy to hear from you but so sad when things are going the wrong way.
So scan and chemo next tues. off to Florida on Friday for a girl trip with my daughter and sister! Short but much needed!
Hugs to all!
SarAh
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Skitz, sorry to hear Halaven is giving you a tough time as far as side effects are concerned. Hopefully it is giving the mets just as tough of a time. I am doing super well on tamoxifen/Navelbine. It has been 6 weeks now. My liver enzymes, which have been somewhat elevated for a year, since I did Y90, have returned to normal range. My alkaline phosphatase which spiked a few months back on erdafitinib, my most recent trial drug, has returned to normal levels as well. Tamoxifen/Navelbine is very tolerable. I pray it is working, as it seems to be, and that it will work for a long time. I think the tamoxifen is improving my bone mets while that navelbine is tackling the liver mets. Enjoy your girls trip! Where are your traveling to in Florida?
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Skitz~I'm sorry that you're having such a hard time on your tX I always get so upset hearing that because, we are already struggling. But I believe the tougher it is, the stronger it May be working. Ibrance kicks my rear end everyday.... but I've been stable on it for 31 full months. On and off NED before with all my surgeries. The tougher the chemo, I was told Is a reflection of the cells battling to not Be killed!! Think of it as GOT in your body with Jon Snow running around. Whhoooooophoooo! We know he's a hottie. So he said battling for you!!!!!! Missed seeing you! Glad you're here!
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My family is doing well, Micmel. I'll see them next Sunday at my BFF's Anniversary Party. #50. Then they start vacations and kids camps etc. Very busy summer planned.
Did I tell you I have a garden? First time ever. Everything seems to be growing so fast and already producing. I enjoy going out to water etc everyday.
I'm trying to tear down the rotten fiber board on my old she'd. Yep, you read correctly. My goal is to turn it into a garden shed made out of old doors and windows. So far I have torn about half down. Today I got the yucky old doors off. You just never know what an old lady can accomplish with a hammer, screwdriver and crowbar! Of course I am going to need help to reach my goal.
Boo boo. Where is the progression? Sarcoidosis must make it difficult to read scans. Let us know what TX will be next for you please.💞
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Hi All, We think this is may be the best place to start this question.... we're looking for looking for inspiring stories that involve people with MBC and a caregiver who has really helped. We're collaborating with Healthline to bring out inspiring stories. We know there are many on this thread, and beyond, and we're reading, but if you have a specific example to share, please reach out to us
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I'm here. TMs up. Not happy. Really kind of scared.
Micmel, glad for your good report.
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Hugs to you MuddlingThrough
. We're all here for you!0 -
Grannax,
Progression in pelvis. I also started having pain in both hips and my lower back, so that’s usually an indication something is up. I’m going to see my onc on Friday, so we’ll see what happens. No worries though. Just another brick in the road on this journey!
I have this mental picture of you with that crowbar! You are awesome! Go kick that shed’s ass Grannax
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Thanks, Moderators.
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with you muddling 💜💜💜💜💛💛💛 when I am facing scary information I try to remind myself that I am only in the information gathering stage. That somehow helps me feel a little better. Maybe it will help you feel a little better too 💚💚
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Muddling~Poop!! I was told so many times by my onc that there is so many things to try. I felt a positive feeling from him and he never minces words, ever. He spells it out for me. I told him I wouldn’t never do IV chemo ever again. He knows This. He then said. Tumor markers can rise for many things. If you’re fighting off some type of infection, sometimes it has also been linked to tumor burn. Our bodies just don’t stop fighting these cells. They are in constant battle. When I was sick with my pleurisy, mine took a jump! Try to breathe. I am hoping that they will tell you, when they retest, that they have gone down. I am with you! Gentle hugs. ~M~~0
