My Husband, My Life, My Love, My Family, My Cancer
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Gumdoctor, I’m sorry to hear about the liver issues. Jumping in your pocket for scans tomorrow.
Speaking of pockets, this is what I think of when we’re all going through scan time and I’ll be serving up a buffet in these, guest stars are possible and valet parking is an option, lol.
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Mae~Lmfgdao. That is seriously hilarious! I totally agree.... you have a great sense of humor. I adore you ! 😃😃 plenty of room in those pockets for the support we all need/give!! Great find!
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Illimae: that's just perfect even if you have to jump into it from the other side of the world! LOL
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Thank you All for your suppprt.
Scan is moved to Wednesday. Insurance. Dr Angel will call as soon as she sees rad report.
She reviewed Guardant liquid biopsy report. 2 different Ibrance resistance mutations occurred.
She thinks I will have to come off Xeloda but will wait til after scans.
I have been on Xeloda for a total of 10 days. This is mid-cycle #2.
Gumdoctor
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Mel,
Did not know you have lost your hair twice. Once was enough for me, but I know before it’s all said and done, there will be a ‘next time’. I’m ok with that, but I think I may agree that’s it. Not sure yet, but I’m thinking that is enough. I am ready for the day I say ‘ENOUGH’. I guess I’ll need to get to that point and see.
Love you, Mel.
Booboo
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Gumdocter,
I am sorry to hear of the trouble you are having. We'll all fit into those pockets of the dress Mea found.
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Yndorian~Hello lovely... it's kinda cool to think you're on the other side of the world. Yet here we are here together. I hope you're feeling good today.
Mae~ that is so perfect. Sooo perfect, im sure it will look like live animals all around moving.
Gum doctor~Those pockets will be filled with support and love... take one day at a time. And we are here living with you.
BooBoo~Once on AC chemo... then I had surgery and during that healing time it had come back. Albeit.... very short. Was back. It was the hardest part of everything for me, even over loosing my breast. Like a steam roller came my way and flattened my life Kablam! The second was the nine abraxane chemos that followed. Hair gone within two treatments, again on my pillow and everywhere. Worse than a dog. For me anyway. Some people, it may not be the worst part . For me it really was.. just traumatic. You're a sweet woman. I wouldn't want that for you or any of us.
Simone ~welcome to our second home. Pull up a stool and get to know the wonderful family and support system these amazing ladies are to me and to this second home. I hope you will find support with us as you navigate a place you never wanted to be. Hugs to you! 🌸
Dinner time !
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Gumdoctor, Ugh is right. As if your miserable time at the high X dose wasn't enough. So sorry you're in limbo until your scan and treatment decision. I hope you're feeling all the support from us here.
Lynnewood, I too sympathize with you about your mom. Having to deal with a rough time (also with X) and be there for your mom is a lot to manage. My mom was always a worrier, to the point of losing sleep over things, and I'm not sure she could have handled my diagnosis. I'm glad this came after she was gone, and completely understand your avoidance of it since your mom doesn’t grasp it now.
Mae, Awesome dress! Maybe we should pass it around to whoever needs it for scan/procedure/any reason support. I’m with you for your upcoming day (Friday?) and will bring lifesavers to be neat in your pocket.
Grannax, Hoping your news is good, of course.
Mel, Glad you had a fun night with your friends. They sound like great people. I also didn’t know how much you’ve been through. I see all of the lists of medical history that we all have, but don’t really comprehend how it was for each person. My history is still short but believe it or not, I was disappointed to be told I wouldn’t be having the expected chemo at my first MO appointment. Once my mets were shown she said it wasn’t worth the harsh effects and it might come along later.
Philly, Hello! Please keep on sharing whatever you’re doing or going through. Your energy and outlook on life are great to learn from, good day or bad day.
Tanya, Hello! Your big family must be so nice when you get together. My DH and I have mostly adult company, but when we have grandkids around we’re pretty tired once they’re gone!
Hi to everyone else, and hope it’s been a good day.
Lynne50s, Gracie, Parry, thinking of you (if you’re still reading here.
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Rosie~Hello dear. I hope You’re also doing well today. You're sweet to offer your support to these special ladies here and I just wanted to ask you how you weredoing??I haven't seen you in a little here.. 💞🌹
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Hi Mel, Thanks for asking about me. I’m feeling pretty good and hoping that’s actually good!
DH and I aren’t really theater people but “Come From Away” is playing here and got rave reviews from several friends. I just got tickets for Weds. It’s the true story of a small Newfoundland, Canada town (Gander, I think) whose airport received many planes diverted by the 9-11-2001 events. They took passengers into their homes and showed remarkable hospitality. Looking forward to seeing the play.
I’m always looking for new tv series to watch. We enjoyed The Crown but also liked Shameless, Breaking Bad, and Marvelous Mrs. Maisel. Yes, I’m kind of a couch potato sometimes.
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Rosie~Handmaids tale. Incredible. Orange is the new black. So much fun to watch. Dexter.
Nothing like hearing that you're feeling better. That makes me smile. Those good days are really what the little things we have to grab onto with both hands. I wish I could stop napping. I feel worse after. But it just comes around. Every day the same time a calling. Anyone hit a rock around the Same time every day? With exhaustion ?Maybe I'm just so abnormal and ibrance doesn't help.....the highest dose. Ugh! I really hope your good days turn into great years upon years. Hugs to you! ~M~
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Good Morning my Beautiful friends. I am reporting for pocket duty. Since Mae found the ultimate pocket attire, we should all Be just fine. I wanted to give a shout out to Shetland pony. I had read she's really struggling with the possibility of something else to deal with. On top on MBC which is horrific.... already. Just wanted her to know the love extends past only those threads.
Love you guys. Lots.
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W
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Goodmorning everyone.
Micmel,
I also get tired at specific times during the day. I hits me about an hour after I take Ibrance. Most days I avoid the naps by doing something\anything that keeps me moving. Days 16-21 are the worst and I normally give in. I'm the same as you, I am still tired after taking a nap.
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Simone~I some days have errands to run and that helps a lot. But other than that I am out like a light. My dogs napping happily right by my side. I need to just force it. Do something physical. Yesterday I vacuumed downstairs. Today I'm going to do my errands. I think I can I think I can. The endless Hills we climb. Good to see you again Simone. Hope your bar stool is comphy!!
Hugs ladies.
Waving to Tanya. And Minnie! Divine......
Have a safe, and he happiest day possible....
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Thank you Rosie. Yes it is a really really bad time right now.
For nearly 2 weeks now, I have been posting a beautiful, positive post on Facebook every single morning. After yesterday's news, I did not know how I could possibly post. But I did it. Focusing on something...anything positive...pulled me up out of the pit.
Yes I feel tremendous support here. And I surely need it right now.
I have to wait for tomorrow's CT and then Dr Angel's call to know where we are going from here...I know what my gut tells me is going ro happen...sometines we can be wrong...trying very hard to stay occupied with brainless things today...could not sleep so found things to study online to help me understand better what is happening inside my body...
Appreciating everyone here...more than normal right now...in the middle of this impossibly hard time...
Gumdoctor
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GumDoctor~I am wishing so much that I could be sitting with you helping you occupy your mind. I understand,I do. I went from stage two to stage four (denovo all along just didn't know it after round one of hurried chemo). I heard the words. It's in. Your liver and your liver is basically acting like a cray person. I know that feeling of walking on uneven ground. When your eyes know you see a flat smooth surface. That's what cancer does to us. Takes away the smooth of our walks, rides, thoughts, hopes , dreams. But please remember we love you here (I hope you know how much you're cared for). We will live in your pocket if we have to. You're not alone. We are here. This is a loving bunch of women. Who never judge or forget. I know we all view things differently and people lend support in different ways. My way is to just tell you. You mean something to me and I am thinking of you and have been. Hugs my sweet friend. Sometimes indeed our gut can be wrong. Oh yes it can. Sometimes itcan be a huge hairy asshole our guts can be (sorry if that grossed anyone out). I'm choosing to believe madam X has reeked havoc on your system. 🧡💜💞 my sweet friend!
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Hi everyone, I come and read the boards a couple of times a week. I don't have anything to post really. Not feeling the best. I do think of all of you very often.
Gumdoctor, I've been reading your posts and keeping you in my thoughts. Lots going on and I hope you will soon find a comfortable and effective plan.
Mae, I like those pockets! I do jump in the pockets when I read of scans and other tests.
Tanya, sorry you were so unwell when you had to drive so far. I hope you are feeling better now.
Micmel, I hope your injuries are healing. You really got banged up and then you smacked your shin!
Grannax, I'm hoping your results are positive for you.
Thinking of Gracie every day. Prayers for her and her family. I find myself thinking of Z, and Patty, Magda, and so many others. It makes me sad but not depressed, if you know what I mean. All of us humans do the best we can, for as long as we can. All the ones I mentioned and all who still post here are connecting and teaching and supporting each other.
Lots of personnel changes at my oncology center. So far, my doctor is still there, but almost all the good nurses have moved on. I feel distant from it all, more so every month. I wonder when the day will come that I will say "no more". One day I think it will be soon and then another day I have a spark of fight and think I'll battle on for a good while!
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Dear Gumdoctor, sending you strength, support, and love.
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Muddling~ 🙇♀️♀️ I am so happy to see you my sweet friend. I was concerned since we haven't seen you around, but completely understand being lost in the sea of life and cancer and appointments. We never get rid of cancer, but people change jobs, nurses come and go. It bugs me too. Seeing a familiar face, when you're already scared makes me feel calmer.
Kendra~ Welcome to my second home, I love that you posted for our sweet Gum Doctor, who is always ready to lend her support. I hope you as well, will pull up a stool and get comphy at the bar with us. The more the merrier , although it's a club no one wants to be apart of. We need each other. Oh yes we do! So welcome to you again. Have the best day possible!!
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Alright, so I just started the Handmaids tale, I’m about 5 or 6 episodes in and while I’m finding it interesting, I must admit that it really angers me too. As someone who is fiercely independent, not religious and child free by choice, this whole women are nothing more than baby makers for chosen and powerful men, is tough to watch.
Anyway, that is all 🙂
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I need to find a place where I can see that show. Many people are talking about it...
Not available on Netflix in my country☹
But please, warn me if it have crude rape scenes because I do not like them ...
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Mae~I agree with you. But the show is seriously amazing. The twists and turns, the craziness of the way people are treated. It makes you really think, geeze could that really happen here ? I find offred an extremely excellent actress. I totally agree. With you that sometimes you want to beat someone’s ass, with the way people and kids are treated. But I am way too hooked to stop. I am all caught up on the third season. I could watch for hours.
Yndorian~ I hope you’re able to find somehow to watch it. It really makes you appreciate that we aren’t treated like that.
I still find it entertaining and I love Serena Joy. ! Waterford. The love hate relationship. Which happens with many characters!
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I got bad news from my MO yesterday. Xeloda did not work at all during my 3 months on it. Three months wasted. Liver mets are much worse plus n0 new ones. Mediastinal lymph node are is worse and causing problems. I'm frustrated and disappointed.
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waving to Philly!!! Hot hot hot this week. Tomorrow 97 and Saturday 98. That’s gross. And my vans air conditioner has decided to take a shit. The wonders of summer. Ugh! Miss you.
Hi Jensgothis..hope all is well....
Gumdoctor, you’re in my mind and in my heart.
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I’m sorry grannax. I presume there’s something else to move on to, right? Hopefully whatever is next really knocks it back for a good long time.
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Grannax~Sweet woman. There has to be another TX. I know when I discussed progression he told me there were many options available to try and that a lot of them aren’t even really known of too well. I am holding your hand and knowing how strong you are. Please just breathe and your onc has to get you back on track !! Hugs beautiful!0 -
Grannax, Sorry to hear about X. Hoping your MO can get you on something else.
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Goodnight ladies !! Hope everyone sleeps well. Tomorrow is supposed to be terribly hot. Yuck I’m happy I really don’t have to go outside!
Thinking of Gum Doctor.....Gracie....Parry....MJH....
sleep well ladies.
~M~
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Grannax and Gumdoctor, I’m so sorry to hear that X didn’t work for you. Finding the right treatment is just maddening. I’m reading along and sending good thoughts to all who are struggling with treatments or life. I’ve been a bit more blue than usual. Just waiting for it to pass and looking forward to feeling better.
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