My Husband, My Life, My Love, My Family, My Cancer
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Hi Tanya~I have always enjoyed PF changs. We used to always go after a movie. Lol. Sounds like it must be a good plan! I am glad to hear you had gone out and did some cool things this weekend. Today is my resting day. All I plan to do today is nap on and nap off. I have American pickers on and I am just tired. I'll have some ice cream for lunch, then I'll nap again. I was a wreck when this was going on with our dog. He is my buddy, I adore him he is with me 24 /7 I was crying. And our hound dog was very aware something wasn't right. But luckily, we Dont know how, he is eating walking and seems much better. So weird how things happen. And you are sooo correct of their resilience as well. I wanted to end this post with how happy I was your scan was stable. I am more than happy for you honey. If I was with you I would be making goofy faces and doing a happy dance. If i should break a hip, at least you'd be there to help me lol. Big hugs to you!
Can't wait for some Jamaica pics. And then some Hawaii pics!!! 50s girl is going soon she's already packed!!! Yeah baby!! So exciting. More pics from Claudia! Traveling women here!!!!! Awesome group of ladies.
Love you all ~M~❤️
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........I think my hound dog is a big chicken lol his bark is deep and his growl is mighty. But when the door bell rings. He hides behind mommy and protects the other dog, who isn't feeling well lol. Adorable ! Lol at this cat! Hope everyone is having As much of a painless day as we possibly can!!! Much love ~M~0 -
Micmel, hope your fur baby is feeling better! I get it with the weather..had the air on last Tuesday and the heat on 2 days later. Gave in and put the heat on this morning, the winds made it so cold! Got a call from my onc today, my tumor markers are up 15 points to 63. Wants a redraw in 3 weeks and if still elevated will scan. The good news is that my liver enzymes and other labs are normal. Says it could just be a blip in the bloodwork...I'm so tired of blips.
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Lynnewood~my heat is on. Supposed to drop again tonight, my little old man puppers seems to be feeling better today, was a very odd thing. Still keeping an eye closely on his movements today. I haven't had blood work in almost three months. I haven't had an XGeva shot in almost three months also. I am set to scan on November 14, I would prefer never to scan again honestly. Even just having blood drawn causes me anxiety, I understand completely what you mean. I am sick of reports, tumor markers and or any blood work crap we constantly have to be put through. Isn't it a bad thing to constantly subject patients to all that radiation ? We are this far along in the cancer treatment search, are we seriously hearing things like blip? That makes me mad!! Get it together people, these are people's lives you're dealing with here. Be more precise, and accurate! I honestly do hope it is a blip as well but who needs any added stress! Good to see you here. Hang in there and keep up posted on the re draw! Big hugs ~M~
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So today a fed ex package comes in the mail, we already received the scanned form, I guess just holding the paper in my hands all officially done and all the state seals on it just sent me in a weird zone. It was my advanced directive and my will and desires for the life insurance to be split between the two kids. I read the part where it said, "no artificial means of prolonging life and or feeding tubes or intubation". Even though I checked marked that, it still felt like it was someone's life that This was about. The power of attorney signed and ready. Everything is official. Simple creamation, no big mass. Short ceremony, a few chosen songs, and that is it! I have to admit it feels better to get it overwith. Everything Is settled. That's is the only peace I got from that. So heartbreaking💔💔💔. NEVER thought I would be doing this age. Freaking 47! Wtf
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We are all tired of blips and rolls on the rollercoaster. We need to focus on the good times in our life.
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We completely enjoyed each other, our animals and the company of new friends!
Now back to reality. Boo
I prayed for everyone, everyday while we were gone.
Hugs and prayers,
Claudia
Ps. Chelle, I would so do that road trip with you!
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Claudia~those pictures are really so nice. I am so thrilled you were able to make your trip. I did look twice, but I think I see a smile on your DH's face!! I did I did!! What a lovely site that shows some lovely fall scenery. I can't even believe that you have ridden through some of that lovely terrain. You have inspired me to be more active. All of you have. I am going to try this month to take a trip down to my other house where my DH is working during the week...I am going to slowly add something in each month. I have been feeling really tired, but that's it really. Just have to pace myself.
Those pics are really very romantic and peaceful. We thought about you everyday and we're hoping all was safe and good weather. I second the BOO at reality. Thanks so much for sharing that with us. Best I can do is a little tree that's changing so beautifully out my back yard! I am up too late again which sucks, my insomnia kicking in again. I guess that is payback for sleeping pretty much all day long ! Much love ~M~
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.....it's very cloudy but the reds and pinks are starting to come in. This weekend my DH and I are going for a nice long drive and he takes wonderful photos. I'm going to have him put some on my phones. Good night0 -
I apologize for not responding. So much going on here but no I don’t live in Texas. I contributed through a Diocese Office. I was born there. Ditto sister, 1 brother, Mom and most of DH’s family. My husband’s X BIL lives in Houston.
I have been in stress mode because I had 2 friends dealing with BC issues. One just got good news from a surgical biopsy - the other one not so much. She is Stage IV as of last year. Chemo drug was working but as of last scan she’s not in remission. Docs are changing her meds. She lives 6 months in Ohio where her family is and 6 months here in Collierville, Tennessee. Her husband is a Fedex pilot. Our group at church will see her next month.
Background on me - I took early retirement from FedEx. I stay busy esp with sometimes although becoming more regular latelybabysitting 2 year old grandsons. We have 5 kids - 12 grandkids. 8 boys and 4 girls.
All set for Halloween. We live in a cove and a kid friendly neighborhood so we will have a lot of trick or treaters tomorrow! House is all decorated with ghosts.
Diane
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Edwards~welcome back! I am sorry that you're dealing with this issue in such a large scope. It's hard enough when you yourself have to process it and all that goes with it, then to have two important friends in your life also dealing with it. Honestly anymore, it's everywhere I seem to look,children,young 20's mothers, 30,40,50. You name it anymore, and there it is. It's just baffling. Gotta be our food and Or environment. How wonderful that you get to spend time with your grandchildren. I am hoping I will be around long enough to see that and feel that sense of love. Perhaps I can fight that long, perhaps I can!!! Used to do hallowhen my kids were little (truth be told I would eat the left overs!? I went all out wth ghosts etc. candy a ton of it. We would get over 175 kids. Now that they are 20,22 I am done with that. Light off please no rings. It's nice to see you here again Edwards! Good to see you. ~M~
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morning ladies~ I slept, but was up and down , because I drank too much water, and slept all day long pretty much. I try so hard to not do that. Sleep all day. Then not only am I useless the next day,I toss and turn.. it's 41 here again. Not liking this too much, I want to take grand puppy for a long walk today and have some puppy time!!! Can't believe tomorrow is Halloween!! Time is already flying by......have a pain free day! ~M~ Do you all still give out candy.??
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.........this is how I feel a lot of days dealing with everything and everyone we all have to deal with every single day. Sometimes we find we still put ourselves last!! But this made me laugh!0 -
Good day all,
Claudia and Micmel thanks for sharing the pictures. It's all green here in FL but it's been cold in the mornings for the last three days. I know you laugh at us Floridians but I did live in New York for the majority of my life so I know cold.
We don't give out candy. Too much for me the up and down. I hope they end early since there's a serial killer that hasn't been caught nearby. I hope the kids go to all of the indoor parties and stay safe.
I'm resolved to sleep at night whenever I can and am careful not to wake up my DH, he has work in the morning.
I hope everyone has a pain free day and can enjoy some of this season.
I listened to a radio lecture - Coping with the emotional residue of a life - threatening illness with Cheryl Krauter - New Dimensions Radio. She is a BC Stage IV patient herself. She has some good points and I think some of what she recommends is exactly what we do for each other here; listening to each other tell our stories as we travel through treatments, trials and SE.
Have a good day all.
Tanya
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Tanya~ You are so precious! That's exactly what we do for each other here. I worry about you all! Your wins are my wins, I get scanxiety right along with you all. You're all a sweet kind group of ladies and I am happy you're all here.
Excuse me but did you say serial killer???? Are you even serious? Why isn't that jerk running around with a cancer ridden body.? Perfect example of why I'll never understand how things work. Hurting innocent people. Makes me so mad. Halloween tonight egads....and yuck! I'm. I am not doing any candy either. Lights aregoing off and I really hope they don't knock anyway. The dogs will bark at every ring and Or knock! I'll be glad it's over. But I honestly hate the holidays. Everything jammed down Our throat. It's ridiculous! I Am not even decorating for Christmas this year. I just don't have have it in me. Yuck! Hope everyone is doing well. Today is a funny pain day for me. I had my grandpuppy today, so I am thrilled, can't believe how much bigger he has gotten in a week!!! Much love ~M~
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.......here is my visit today with my grand puppy!!! I love him so much ~M~0 -
Happy Halloween All! I'm a bit sad because we aren't trick or treating...kids are to old.. I will be happily handing out candy.
Just got an email saying to 100% coverage for my Foundation One testing so now we wait to see when it comes back...wondering what kids of genetic mess is in my cancer0 -
Keetmom~ Hello beautiful! I never really liked dressing up, it always bothered me and I never felt comfortable! I was always freezing and it usually rained. Once in a while we would get a nice Halloween, but where I grew up we had no sidewalks, so we always had to find some place else To go. I never really cared for the tons of Halloween Make up and etc... my kids loved to go out and trick or treat., then for a few years after that, we gave out candy for a while. It's really expensive to buy all that candy. That can add up to a monthly gas payment. Unreal actually! I do enjoy seeing the little ones in their costumes. Some can be really adorable, it's set to start soon! The little ones start like around 6 or at the slightest hint of dusk!
Hope everyone has had a good day. I have been so busy today. Got Chief around 1130, played with him and walked until 200, took him home and then my daughter finally got around to asking to go birthday shopping with her. Her birthday was the 21st. I took her to Gabes. It's a lot like marshalls. She got a ton of things fr like $83.00 and that included 3 pairs of shoes. She was happy. She's always wanting new clothes! So onto thanksgiving. I love the meal, I honestly do. It's the clean up I cant stand! Can we skip the holidays ? Much love ~M~
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Hi all, DH and I had dr's appointments today, he has an odd spot on his back but the doc didn't seem alarmed, trying cortisone. I have a rash on my right arm and neck, which the PCP thinks might be shingles but it itches and doesn't hurt, so I'll have MDA see me Friday. With that out of the way, we enjoyed fried chicken and a marathon of recorded episodes of Preacher.
Looking forward to tomorrow, when the parents at work bring in candy that was either leftover or secretly pinched from their kids haul, either way I score!
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Mae~Glad that the doctor seems to think That the spot on his hand, is nothing to beworried about! That's what we all need to hear! I am relieved for you Mae and your DH! Turning our lights off did the trick, not one person rang the bell. So we were all relieved! I can't wait to sleep tonight. I need it. Mae, I just stole a Twix bar. My very favorite, I like them so much it's scary! Not too much tv for me tonight, I am going to bed nice and early. I need the sleep, it was a very busy day! Much love to all! ~M~
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Sorry about not posting the pics yet. I tried a couple of days ago, then the server shut down. We were having a lot of wind and rain that day. Many people are still without power (including my 85 year old in-laws). We lost ours for only a second, then it came back on. I will try again.
I want to say to Lynne, it was nice seeing you yesterday, even though it was at the oncology office! I'm glad you came up to me! I saw you earlier there, and thought you looked familiar. Have a great vacation in Hawaii!
Had my chemo yesterday. The machine they automatically get the lab reports back from the hospital was down. I got there at 9:30, had them access my port, finally saw the PA at 10:30, started my steroids at 11:30 (once the got my labs back) and finally got my chemo at noon and left at 1pm. Ridiculous! My husband always comes and brings his work laptop. Well his company was still without power yesterday, and had the generator on for part of the day. Needless to say, he didn't get much work done. I brought a book, and forgot my glasses, so I didn't get to read either. LOL
Last night was Halloween. No grandkids came this year (my granddaughter was with her mother, my grandsons went around there house 2 towns away), and I was by myself at home (youngest was working, daughter at the boyfriend's, and it was the hubby's bowling night), so I passed out the candy for the first time in about 20 years (or more). We had people dropping off there kids in our neighborhood because the town next door (and the one next to that), postponed their's until next weekend because of the storm. Still lots of trees and wires down. I had to tell the kids around 7pm (it ended at 8) to only take two, because I was afraid I'd run out! It was fun seeing the little ones though, and I didn't freeze walking with the grandkids! I wore my Bob Marley Hat I got on vacation, it kept my bald head warm! LOL
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Here's a pic from my sister's Halloween party of us. We had just landed from Jamaica. I wore my souvenirs and the hubby wore his still damp wet suit and mask (he went diving the last 3 days we were there). The oth
er pic is our 2 grandsons, 6 1/2 Super Mario (Matthew) and almost 5 Minion (Aiden).
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Well, that didn't work well. I tried to post 2 pics, and only one showed up. I guess I have to do them one at a time. Her
e's the grandson's pic.
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Here is a pic from Jamaica. In the water on our Anniversary.
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Me
floating.
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Beautiful water0 -
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A shark my hubby saw diving. 8ft reef shark. This is why I never was interested in diving. I do snorkel though. I like the smalle
r fish much better!
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