My Husband, My Life, My Love, My Family, My Cancer
Comments
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Gracie~🌹Hi sweety, my onc sucks at giving results also. I had to tell him, hey ok going to get those results one way or another. It's my body. I want to know the very next day. It's wrong to make a patient, suffer that mental anguish. I hate it. They need to do something about that. I know from now on. They will call me and let me know. I would seriously have a discussion with them. You don't need the stress or pressure. Remember, I Am always here, Ora phone call away! Hugs dear friend ~M~
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Mae~ your party looks like a lot of fun. You're really something else, the food looks great, the company looks great and I can tell you had a lot of fun. I love the pics. Weren't you exhausted after the cooking and entertaining? I find anything exhausting anymore, and I sometimes take my ritilan. You make it look so easy. So glad you made some wonderful memories. Much love ~M~
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50's~I haven't even begun decorating. I have a good start on my shopping though. I am good at online shopping. I am so thankful for that, I don't think I could handle trucking through the stores, I don't like crowds at all. I just would rather look through websites from my warm bed. I used to have so many heat flashes going out was embarrassing, it's a lot better now. But I still get them. I really need to decorate, our house is the only one on the block almost, that has not gotten them done. I guess I'm going to have to break out the boxes and hope someone else will also help me. It's so much work to put it up, but it seems worse taking it down. If I'm honest. I dont much enjoy any of it anymore. Except, spending time with my family and exchanging presents and the laughter, I can't believe it's already December 2. Wow. Where does the time really go? How is your decorating coming along ? Real tree ? Or artificial? What's the vote? Lol. I find that interesting! Some love the fresh trees, love the artificial Christmas 🎄 trees! Hope your DH is feeling well!! Hope you're feeling well too!Hugs to you! Hawaii was a lot warmer huh? Ugh! ~M~
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Claudia~ wow, that is a big decision, I feel the need to say congrats to you, it may bring you a lot less stress not having such a big homestead to look after all the time. Your DH also works his rear end off! I know it must have been a difficult decision, I am so glad that maybe soon it will settle in your mind and you'll have so many new ideas!!! Will you be taking the horses?? NC is a little closer to the northeast. Lol. I'll be sending you happy throughts and I just want you both to Be happy! You deserve this! Much love ~M~ Not to say the decision was easy. I just want you to be able to not be sooo over worked and stressed! Or even overwhelmed! I adore you! ~M~ P.s. I hope that your commercial property sells quickly for you !
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Claudia~ wow, that is a big decision, I feel the need to say congrats to you, it may bring you a lot less stress not having such a big homestead to look after all the time. Your DH also works his rear end off! I know it must have been a difficult decision, I am so glad that maybe soon it will settle in your mind and you'll have so many new ideas!!! Will you be taking the horses?? NC is a little closer to the northeast. Lol. I'll be sending you happy throughts and I just want you both to Be happy! You deserve this! Much love ~M~
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Lynnwood~Hope the scan happiness is fore front in your mind. I'm trying to keep mine there, but it's boxing with exhaustion!
Keetmom~ hope all is well. Thinking of you and the girls.
Lynne (Man)~ hope you're enjoying yourself. Sending happy thoughts and hope all went well!!!!
Hugs ~M~
Nan❤️😞
NO1~hope all is well with you! Sending a hello!
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My scans are done at the cancer center that my onc works at so no way to get to them any earlier
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Gracie ~ Just call your onc and explain the anxiety associated with the wait. That's what I did. They have to understand!!! I mean seriously!! Hugs. My girl ~M~
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Good Morning Dear ladies~ I slept pretty good I guess. Ehh if that means getting up 5 times to go to the bathroom. I drink so much water all day I'm like trying out for the olympics, with the fastest time for a sprint lol hope everyone is safe and sound and comphy this Sunday morning. I adore you all. Much love ~M~
Ok so question of the weekend is artificial or real tree? 🌲 🎄 🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄🎄
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Micmel, I’ve been super lucky this whole year having never really known fatigue. I’ve been improving my diet and exercise for the last couple years (before cancer) and walk about 10,000 steps or 5 miles a day. I also eliminated microwave meals and soda (maybe once a month), thats why I cook so much, lol
During chemo, I reduced the steps to 8,000 but kept walking, which I think helped tremendously. Now, after chemo, surgery and rads, I’m back at full force and just need to focus more on my weight, my goal is 50lbs by this time next year.
Just to be clear though, I didn’t host or cook for that party, is was work related and catered. I do, however, have friends over for TV night and dinner every Sunday, I enjoy it and find the tradition helps maintain social ties and prevents me from getting too lazy for my liking. It doesn’t work for everyone, especially anyone in pain but like I said, I’ve been very lucky.
Hope everyone is enjoying the weekend.
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Mae~I know and realize my fatigue is because of the ibrance. It can be really rough, but has put me in NEAD and I'll keep taking it as long as I am able. I do walk as much as I can, and I agree it does help. I walk Chief quite a bit, and I have my dogs as well. I don't even know how many steps I do a day. I took off my Fitbit long ago. When I was having my major heat flashes, and jewelry was not even tolerable. I'm sure I come close to 8k but don't know for sure. I am so happy you don't feel fatigue honestly. It's the pits! So glad the party was fun! You deserve it. Having the Sunday night feast? Tonight ? What will you watch now that American Horror Story is over I still have to watch the final two episodes! Have a good Sunday darling. Much love ~M~
Real or fake tree Mae?? Or do you not celebrate Christmas? Which sometimes I wish I could save all my money from the holiday! Ugh!
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Micmel - We have a prelit artificial tree we bought a few years ago, because our last real one was awful! I had wanted to buy a new one this year because a section of our lights don't work, but with making the decision to move, I don't want to drag along a new tree. We will wait until next year. I really like the new ones that have the snow tipped branches! They remind me of the ones at the tree farm we went to every year as a family, and pick out and cut down our tree. We did it the year after our son moved away, and actually got depressed because it just wasn't the same. Dh ended up working today, so no decorating yet. You will laugh, but the property we are looking at in NC, is 16 more acres than we have now! Fortunately, nine of those acres are wooded, so we will leave them wooded. The picture I posted of Dh and Dgs, was taken on that property, not our property here. There is a Clydesdale farm right down the road. Beautiful horses! We will have to build a house and barn, put up fencing, so we will live in our motor home until its done. Of course horses are coming! We are going to build a much smaller house and barn than we have now! Less to clean and maintain. Chelle - Just for your info, 21 acres north of Durham, NC for 99,000. Your money goes a lot farther outside of CO! Like I said, this will be a grand adventure! Just like when you take the plunge! We can share all of our worries and fears, and more importantly, our successes! Because it will work! You have a huge advantage over us, inn that you will have an income, less than you hoped for, but something. We won't have that, nor will we have the ability to get any sort of loan, as he is self employed here, not there. But, it will all work out the way it is supposed to. Don't ever forget, God always answers our prayers, it may not be what we had in mind, but if we listen, there will be an answer.
50's - Thanks so much for your encouragement! It means so much to me! Dh put the word out yesterday that we are selling, and we have a showing on the 1199th. I was so shocked, I could barely think, of course it didn't help that I had gotten pretty dehydrated and wasn't feeling well. Much better today, but still shocked! Dh reminded me that when we moved from Oh to Sw Fl, years ago, we had everything we owned sold in a month! I had forgotten about that! Whew, I don't know if I can handle things that quickly now. We have a lot to sell as we don't want to move it all. Great news, was how excited Ds got when we told him, he had been missing us! That did my heart good!
Gracie - There are lots of organizations out there that can help you with things like rides to cancer center, housecleaning and meal prep. I am going to try to look into some for you so you can contact them. You need to get after your MO, you need those results sooner. I have never waited more than 4 days and that was unusual and only happened once in 5 1/2years.
Keetmom - How is your dad doing? How are you? Getting ready for Christmas? You have a lot on your plate. Don't forget to take care of you!
Leapfrog - You sound amazing! I think you are going to be just fine. Enjoy your garden planning. I get so much enjoyment from that!
Minnie - What a beautiful love story!
Hugs and prayers,
Claudia
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micmel, we don’t do Christmas, no tree, no fuss, etc. We do get anniversary (12/24) gifts for ourselves, lol and each other. We basically have a thanksgiving type dinner again and I make my best friends family meal of Butterball Soup (like a chicken soup with matzo balls), I love it and when her family moved away, I got the recipe and make it myself.
Tonight we’re having roasted pork loin chops, red potatoes and steamed veggies while watching The Walking Dead. (I usually post food pics on the what’s for dinner thread)
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Thanks Claudia! I’m in a little bitty town though, 60 miles from a larger town and there is just nothing here in the way of help. No checked the first time I had cancer and all of the non profits, cleaning and such wouldn’t come this far. As far as meals, I’m celiac as well as allergic to dairy and soy, so can’t have meals brought in. So when I say I’m on my own, I’m really telling the truth. I have friends who will help with rides if the time comes, and my son, but he works full time and has to pay bills, so he can’t help often. But if you find some info I wouldn’t mind checking again. Thanks so luch
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lol at you Mae for knowing there is a what's for dinner thread. lol it sounds like something I would really like to adopt the no fuss no crap!!! I personally enjoy your food postings lol it gives me ideas on what to ask my DH to cook, he's amazing at it. Maybe another reason why I've gained weight!! I believe my hormones are evil! I can't loose anything no matter what I do. I walk a lot and really only have one meal a day! I have no appetite at all! Imagine if I did!!?? I would be be like the Nutty Professor.lol have a good time tonight! Post your grub!! Much love ~M~
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Claudia~That sounds like an adventure in itself. I am happy for you and your DH, that your have made your decision! Now it's just take one day at a time, and making sure you get enough rest and drink enough water. You sound like me and push it to the limits! My DH just made me sit down, I was a little flustered. He knew I had reached my limits ! I need to rest for the rest of the day, or Tomorrow won't be very productive. Which I need to continue decorating, my DD did do a lot, but let's just say seems to always be tired. Why do young ladies complain about mostly everything, and think that they know mostly everything about everything ? The 20's were odd I guess! Lots more to be done! When does offical packing begin for the move? You're going to be on another adventure.!! Yes your are! I wish you nothing but happiness and a smooth transition! Much love ~M~
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Gracie~ does your hospital have a social worker that is assigned to your hospital? Like in the infusion department... and work directly with the patients. They are amazing and work miracles. They know a lot of people and organizations. Remember Connie Cares? We figured out how to get you a pump!!! Let's figure out what you need darling ! Big hugs to you my friend. Take it one day at a time. It's all we can do! 💕
Much love ~M~
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thank you so much for your comments. I need to keep reading to get to know everyone. X
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Mel, the local hospital is almost broke. In fact I would be surprised if we have a hospital in a year. The hospital where my onc is, is still an hour away
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Good Monday morning to all from sunny Spain. We had a first Christmas outing with friends yesterday and very nice is was too. Even managed one glass of wine, when to be honest before, I would have started with a g &T, followed by the wine. Never mind I can enjoy everyone just as much when sober lol. However, so much rich food and I'm on the loo all morning!! Still worth it all for some fun!! Put our 18inch Christmas tree up. All the grandkids are in Canada and Scotland, so just a little one for us. No moaning in this thread, happy thoughts to everyone today. Lots of love xx. MInni
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Gracie and Chelle... I've got back on here at last to tell you I'm thinking of you. With a new week starting I hope you both get good news, I hope and pray you will be stable. I really feel for you. There's nothing worse than being up all night worrying. I do it too at times and other times I take a pill because I figure I need my sleep more than anything.
Micmel...I'm not like you although I wouldn't mind if I could sleep so much. For me, the fatigue is always there, like a heavy fog but I can't sleep during the day. I doze and I actually can fall asleep while someone is talking to me but when I lie down to give into the fatigue my muscles twitch and jump and ache and keep me awake. Sometimes my brain sort of "jumps" as if it was asleep but my body is awake. Hard to explain. All I can do is try to keep going. I'd love nothing more right now than to zonk right out and sleep for an hour but as soon as I do the muscle aches start. Oops I said I wasn't going to complain any more!!
Claudia...big decision but if you're like me you're always better when you have a plan and it will be lovely to be near the ones you love again.
If I've left anyone out, I'm sorry. I pray for all of you every night and during the day but when it comes to writing a post my brain fog kicks in and sometimes I leave someone out and I feel bad for doing that so just know that you're all in my thoughts, always
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Bigbhome. What a dream come true for you and your husband. I can just picture that land, the horses, the smaller house and barn and being closer to family. How long do you think it will take to build the house? It sounds like a daunting task to me but it sounds like you've done this before. When do you think think you'll actually move there? I'm guessing you already know that there is a good MO near by?
I had a great weekend with family and am looking forward to even more fun events this week. My granddaughter will be in a play on Tuesday and my grandson has another gymnastics meet on Sunday. Fun for Granna.👧👦😍
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Good morning Minnie~😊 I am so glad that you had a nice outing with your friends at Christmas time!! I can't even imagine drinking anything alcohol, it just makes me feel sooooo dehydrated. Next time please have one for me! It's so nice that you got to get out and have a little extra fun. I can't remember the last time I was even able to drink. Ibrance doesn't like alcohol! I used to love one here and there! I guess maybe now you're going to settle down to sleep! Have a great painless sleep! Hugs! ~M~
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Leapfrog~good morning!! Hope you slept well! I am in amazement that you can stay awake all day while battling fatigue. I just get all weak and tired if I don't rest and even if it's a half an hour. It makes a difference. Yesterday we began Starting of the decorating. Ugh! Not only Is it a pain in the a**, it makes quite a mess on the floor of the house. Yuck! Still not done the outside at all, half of the house is done. But I still have half the tree to finish and other things to still even buy! I hate money!! Hope you have a good day strong woman!! Hugs and hugs! ~M~
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Grannax~I love hearing the excitement even in your words when you talk about those grandchildren of yours. I hope I will see the day that the grand babies come around for my family. Although, clearly my princess without a country is not even close to ready! She still wantsexpensive things. Lol. That changes once babies come! Please enjoy yourself during the show and gymnastics outing!! I am sure they will bring the house down! Yay! Hugs and hugs ~M~
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That kind of fun for Granna, is exactly what we are missing out on with our Dgs's. I love being Nana and watching the boys grow and thrive! Every time I visit, the oldest, 4 1/2 years, wants me to take him to Marbles Museum! It has become "our" place! He is so sweet when he asks! Dh and I love taking him and I take him when I go there by myself. So much for kids to see and do there! There is also an interactive life and learning museum close to them. It will probably take 6 months to build our house. The barn will be built first, so the horses can get out of the weather. We will build a little deck off the motor home, and the barn will have a laundry area. So no trekking to the laundromat. We lived in the motor home for 2 1/2 months, 2 summers ago and loved it! We have so much to sell, its overwhelming. I'm trying not to get ahead of myself, and just focus on one day at a time. I am going to call in a professional to help with the furniture. It is all to large for a small house. I am thinking that downsizing like this will be such a relief as it will be so much less to deal with.
Gracie - Is it at all possible for you to move closer to the cancer center? That could help. The hospital in our county is horrible. I am lucky in that we live 4 miles from the next county, so if Dh is home he will drI've me to commercial property there to meet paramedics. Or if home alone, I have a friend who is a medic who will see to it that once I am stable, I will be transported to Mayo. I don't know your situation, but maybe moving is something to think about. I don't know about where you live but in Ohio, there is The Council on Aging. They are a tremendous resource. They helped us so much with my grandmother! I can't say enough good about them.
Mae - You sound like so much fun! Next time I go to Houston, maybe we could get together? We may be going for a few days in January. Your anniversary sounds like a great time!
Got to run, Skittles and I are going to take a shower! Yes, the dog. He likes to get in the shower with me. He is stinky right now and I can't stand it!
Hugs and prayers,
Claudia
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Hi Claudia! No, not possible. I’m on a very small fixed income and rents up there would be really high. My little house is nothing fancy but it’s paid for so I don’t have a house payment. I couldn’t make a house payment so it’s abgoid thing it’s paid for. I’m just kind of in a crappy situation, so I just gotta make the most of it. And my only family and friends are here, that helps
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Morning everyone!
Micmel, sorry Ibrance doesn’t like alcohol:( My treatment likes it, and chocolate and candy..... No pic of last nights dinner, I forgot and ate it all before remembering.
Bigbhome, what brings you to Houston? I’m down to meet/lunch/drinks, etc, just let me know.
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Mae~Hi there. I hope you had a good time last night. I agree with Claudia, you do seem like a lot of fun! I think a lot of us have a lot in common, it would be so nice to see everyone. I would love to sit and talk to you all ! I'm glad you had a good time. Lol at no pics. I don't blame you. I eat fast myself! Hope you have a good day! Much love ~M~
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Claudia~I am glad you are having someone help to get rid of the things you need to unload before moving. My DH and I have two sets of everything. Literally! Two houses! So when we consolidate, it will be sale galore! I hope things move smoothly for you. Like you said one day at a time. It's all you can do. I began decorating with DD and I realize I used to like it when they were little. When their eyes would light up, and it was almost magical they way they loved Christmas 🎄! I guess time gets in the way of something really great All the time, and it's annoying! I wish, I could bottle a certain time in my life right before I was diagnosed. I was my happiest and my most secure in my life and who I was. I was never happier. Then WHAM, cancer. I sometimes sit and can't believe this has all happened. Then all I have to do is look in the mirror. 💔 Much love ~M~
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