My Husband, My Life, My Love, My Family, My Cancer
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Hello Mel, I am sorry the insomnia is bugging you again. It is funny how we can be wide awake at night and drag ourselves the next day. Stinks though.
Hello Santa and everyone else too
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Just got back from a BEAUTIFUL walk today, comfortable weather in a lovely park. Went with DB, SIL and my niece. We went around the park, stood on the bridge to look at the river, it was actually clear enough to see to the bottom of it. Afterward, we stopped at mcd's for lunch, ate in the van and I did some shopping. Found moisturizer with SPF protection as the sunscreen was just too greasy for my face. I use it on top of my head and everywhere else, but the moisturizer will work much better. So far, today has been very nice.
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Very quiet here. Hope I didn't say something I shouldn't have, removed my chatter.
Hello to everyone! Hope you're doing ok today. 🌻
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Hi Rosie,
There is no such thing as “saying something you shouldn’t”....not in Mel’s living room. It’s good to see you here, so no worries. Hope all is good in your area and with you.
Boo
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Hi all.
Sorry I have not checked in this weekend. I attended the LBBC (Living Beyond Breast Cancer) conference online. This was a first for me. I received an email invite and it was free so I thought "What the Heck". It was all day Saturday and Sunday online. Some interesting, some not so much. I posted some on the Bone Mets and Ibrance Threads.
So back to my normal days this week. Quiet today.
My computer sticky notes say--
Mara should get MRI results this week.
BevJen has appt this week.
Snooky appt this week.
So in everyones pocket and waiting to hear any news.
My BOLD button is not working. I like to BOLD names so you can see them better. Maybe I will ask mods if something on their end. Probably my computer.
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Rosie~I 100% agree withBooBoo. Comfort zone. Say what ever you need to say. Venting is important and we need to be heard !!! So speak away ladies. Like I said not much offends me. I like the freedom to be us here No matter what us may be feeling ! Hugs Rosie you sweetheart you!
BooBoo~ thank you beautiful 🌹🤗
Candy ~ hope you had a good weekend. Ours was quiet Here too. Just people out living. Which is how it should be. ! Lovely weather in the northeast this weekend and so far today! Mailbox run for me Soon. I've been trying desperately to up date my lowly wardrobe. So a package is coming. Got the bulk of the clothing Saturday. I do like everything I got lucky,,Hugs to you. This Monday.
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Rosie, you said nothing wrong and as stated above, you can say anything. Read some of my posts LOL.
Candy, results are Thursday. I believe they will be fine but left the back of the mind open a crack so as not to get ambushed if it is not NEAD.
I did come to a realization when it came to my broken laundry spinner. I tried very hard to be happy with what I currently have. I cannot stand not having the option to wash blankets if need be. My bedding only fits a twin bed but not all blankets fit in the wee spinner that came with the washer. Guess I just worry that if I get put on a drug that causes any bowel or bladder issues, I would have to take my blankets out in to get them clean. I can't take that chance. I bought the same spinner on credit, I don't pay interest on the card anyway since I pay rent and everything. Made a 24 month payback plan and will round up purchases to the nearest 2.00 to get it paid faster. I normally don't buy the 5 year warranty but did decide to go ahead given what happened last time. It just ate at my mind and I decided to get it. I do have the garment steamer as well to disinfect everything but I like the back up of washing.
Other than spending money, just planning to take advantage of the lovely day and go for probably a couple of walks. Supposed to get warmer this week, but that is OK. Nothing ice water cannot cure and of course my granola bars with almond butter and almonds. Suppose I could get the peanut one now that I can eat peanut butter cups with my digestive enzymes. Being able to eat a reese cup has brought so much joy back as I have really missed them while I had the intolerance to them.
Mel, there are things I should replace in my wardrobe as well. When it comes to clothes, I am incredibly thrifty and tend not to buy a lot. Clothes are not one of the things that interest me as far as spending money. I hate to say it but laundry supplies are what really float my boat. I can wear older clothes and feel good, I repair any loose threads right away, darn my socks and so on. Bought new undies that were desperately needed and some socks but that was it. Laundry supplies are the things that give me that lift when I buy them. Very silly but true. That is not to say I am a slob but I dress very casually as there is really nowhere that I need to dress up. My wigs could be considered part of my wardrobe I suppose. I also don't wear that much makeup either so save that way too.
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Ok, I would really like to swap out my oversensitive part of my personality that cries easily.
The lady I am phone friends with (originally began as a wellness check call and she asked if she could talk to me as friends) was on the phone with me. I was busy chattering away about the weather and all of that. All of a sudden she was not responding or saying anything. Seemed like something wrong with the call. The next thing I know, she said in a loud voice I have to go, been telling you that for a while and hung up. It left me crying and I am trying not to. I know the call coming into her phone line probably was the reason I did not hear her say anything, but I did not get a chance to tell her I could not hear that. I certainly do not keep her on the phone. I can sense when she wants off the phone, and I go. I don't keep people on the phone who have other calls or plans they need to take care of. Part of me is upset with her raised voice and part of me is hurt. This is the oversensitive part of myself I would like to get rid of because I can't cry every time I perceive something that may not be true. Gonna just keep her call tonight short when she does the actual wellness check and maybe stop calling her. Let her call in the daytime to talk if she wants to. She may be simply tired of the same old talk all the time.
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Mara51506--- I so enjoy your posts. Not that I like reading about a fall or a dryer breaking down. It's your joy and spirit that shines through.
I take each journey with you as you walk to treatments or the store, etc. Love how much you keep moving forward. Admire your walks and tenacity when issues arise.
And, if course, savor the chocolate tales!!!
Sending you a hug and a virtual peanut butter cup.
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Mara ~ I Could sit in my sweatpants everyday, but on the occasion my dh wants to go out to eat or something. I want to have a few things. Just so I feel ok around others I’d they dress up somewhat. I don’t spend a lot either and I love laundry stuff too. I do my DD’s laundry weekly. If I’m. Not going out. Sweatpants it is!
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Mara- So sorry you had that experience. People can really disappoint us at times. Hugs.
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Ohhh no! Mara don’t get upset. I’m Sure it was a mistake. Especially if out of character. I’m sorry your feelings were hurt. I’m Sending you a hug as well..
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Mara51506--- my post to you was being typed before your last post which is why I didn't comment on it.
So sorry you had that call that left you hurting.
Hoping today`s sunshine can put a smile back in your soul.
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Thanks everyone. In the back of my mind I am telling myself not to take it too personally. I am pretty good at not telling a person my feelings were hurt because I am sure she meant nothing by it and would not know I could not hear say she had to go. She is calling tonight with the wellness check, if she makes mention, will let her know did not hear, otherwise I will let it go.
Mel, respect about the sweatpants. I usually am in leggings of some sort or my jeggings too. Mel, now that I am no longer in crying mode, I can definitely see that she was not trying to be rude of anything. I don't plan to mention it when she calls tonight. She does not need to know my reaction to things either.
Dogersgirl, thank you for saying that. I don't really do much else so laundry and walks are the bulk of it. I am fortunate to be in decent health and plan to walk again today. Might go and buy more reese cups at the grocery store. Walking also keeps depressive symptoms at bay. Though I generally enjoy myself, if I do not exercise, I spend more time with that almost perpetual lump in the throat feeling which I hate. Exercise just evens me out more. I am feeling better, just had to vent my feelings out since I would not want to say anything to my friend. She means a lot and I know she would not have been deliberately unkind. I am also glad I am replacing my broken spinner too with a warranty this time. I am so frugal with everything else and making things last other ways, getting the bigger spin dryer will work perfect.
Candy, thank you so much as well, you are too kind.
I did just get a call from the cancer clinic. My app't for MRI results has been changed to a phone appointment, they will call me instead. I take this as good news because I really can't imagine a progression report would be done this way. i was not overly worried but will take this as good news. My brain overall has been NED for going on a year and a half since the last mets shrank away after 2018 radiation. I know I could have progressed but will believe otherwise until told different. I may be oversensitive but that is matched only by my own stubbornness to believe how I am feeling. I will say those beans I added to my diet and the digestive enzymes are the two best health decisions I have made in a long time. Blood results are always good, no anemia now and way less fatigue than I was dealing with before. I am grateful.
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Mara~ I also agree I enjoy reading your post. You’re a go getter! I think that’s awesome. I love the walking. It inspires me. I just don’t like people. I’d rather walk alone in the country away from anywhere and anyone. That’s what I would need!
Dodgers ~always very nice to see you!
Sondra. Hi ya! 🤗
Rosie~ no worries ever. Seriously
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Good evening Mara sorry your feelings got hurt. I probably would’ve felt some kind of way. It’s embarrassing to need someone and then they give you weird energy. This cancer vulnerability sucks. I hope it’s nothing and you can just continue.
Just doing my little doggy paddle swim stuff, gardening and sitting in the sun. Still kitty sitting until Wed.
This month ibrance gave me a nasty itchy rash. Just one of the many SE’s that may or may not show up each month.
Candy did SondraF have a test today. I thought we were eating all kind of stuff in a big pocket today. I depend on your sticky notes bc my memory doesn’t remember.
take care allTany
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Tanya~Whenever I sit in the sun with Ibrance I get what looks like a heat rash. It itches a little and does go away after a little while Of being inside. Everyone is different!! I hope If sondra has her test we didn't over sugar eat and falL a sugar high. Haven't seen Rosie today either. I can picture you little swim bunnie !
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Tanja, I scanned today.. I posted in the Ibrance thread but will cross post to this thread tomorrow. Results late next week.
I'd have though about that gyro but I was too busy trying not to think about my full bladder the last ten mins of the mri!!
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SondraF I remembered! I was there.
Mel it could be the sun. I didn’t take my ibrance today. Well how are we supposed to get vit. D? I’ll call Dr tomorrow. Did your Dr cite a study that accompanied your dose schedule 2 weeks on 2 off?Tany
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Tanya~He just said since I have such limited disease and that the size effects were bothering me. That we would try that. DR Nakajima doesn't mess around. He's a scientist doctor! Couldn't hurt to bring it up. It's better in my opinion. If wouldn't hurt to have a discussion...... it's one week on and one week off
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Thanks to those who reassured me I wasn’t the reason for the “quietness” yesterday! I know people have other things to do and that’s good.
Tomorrow is my consult with an endocrinologist about my parathyroid issue. It was postponed from April because I was a new patient and they wanted to do an in person appointment. My calcium levels have been high for about 6 months and borderline high for a while, and a PTH test my MO ran was high too. I never knew the two were connected. We’ll see what he says.
I had a relaxation massage last week that was awesome. I wish I could do them more often.
Sondra, Glad the mri wasn’t too bad for you. Hoping for good news, of course.
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Rosie~no way you did anything. I hope your appointment goes well. My calcium levels tend to run low. Which I find odd. They vary point to point each blood test. I guess it’s time to take a supplement. It was one point low. Then the dreaded bloodwork flag. L
Wish you nothing but well..
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Moomala,
Checking in on you... How are you feeling?
How is the eating and weight status?
Best,
Stacey
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sbaaranson ~welcome to the thread. Hope moomala is doing well today. Good to see you here. Hope all is well
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Sondra, glad you got your MRI today and in your pocket for the results.
Tanya, thanks for the kind words. My friend called for the wellness check and she mentioned that she was sorry she sounded so abrupt. A call was coming through for going strawberry picking. Her other friend was there to pick her up. She apparently said she had to go several times.I explained that the line went quiet and I did not hear her. I then said I hoped she had a nice time. Air cleared, did not tell her my about my reaction. My common sense knew there was nothing hurtful and I am glad I did not mention anything about it. Would have felt foolish if I had. I really just have to stop jumping to conclusions so quickly.
I too would like to hear from Moomala, I know it has been a tough road for her lately.
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Good Morning Ladies ~ just checking in I just woke up and want to go Back To sleep ,Its Like I was never asleep. I hope today brings some Goodness for us all.
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Good morning Mel and All,
I am having a COVID test done today. Have been feeling bad the last three days...slight fever, weird taste, vomiting (over the weekend), etc. I am hoping it’s just a stomach bug, but I am paranoid about COVID, so decided it’s better to know if I have it. I won’t have results for a couple of days, but I’ll check in and let you know the results.
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BooBoo~I think it's a good to get tested. Better safe than sorry. I really hope it's just a bug 🐛 and not covid. I'll be thinking of you for sure. I'm watching a classic. “Stir Crazy", with Richard Pryor and Gene Wilder. Very funny. I'm enjoying my morning. Sometimes mornings can be ok. I struggle with getting out of bed. Dh left town overnight so I had dog duty. I was up about 722 not too. Bad at alll. They were really actually good. Tag is getting old and can't manage stairs. So we are nearing the rainbow bridge. His back legs are a pitiful site and he has to be carried up flights of stairs. He can do a few. But that's about it. I'm sad. I love this doggie!
Feel better keep us posted please!!?
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also a shout out to Simone. Hope you’re doing well also my friend. Blueshine Haven’t seen you , elderberry a hello to you too!
jensgothis! Philly , my sweetheart, Marie,Minnie my darling hope you’re doing ok in Spain!Chelle ♥️ As always! Mae~hope you’re doing good and had a nice weekend. Thinking of you ! 🌻
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Boo---So sorry you are ill. Hopefully just a stomach bug--- crazy we say that now. Even a stomach bug can be rough, esp for us.
Mel--- Glad you are enjoying your morning. I think I have seen that movie--long ago.
Mara--- Glad you cleared the air. I too understand taking things wrong that people say. I seem so much more sensitive to that since... you know.
Moomala--- Please check in.
Also, Philly--- check in.
Another day of nothingness. I was thinking today... even if no COVID around, what would I be doing? Just not much. Cannot find a volunteer thing I am interested in right now. Cannot constantly be shopping. Friends are at work or busy with their families. Just still feeling at a loss of how to spend my time. I have been counting the things I am thankful for. And just trying to live life. But just restless in how I am supposed to spend my days.
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