My Husband, My Life, My Love, My Family, My Cancer

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Comments

  • Rosie24
    Rosie24 Member Posts: 1,026

    image

    Wow! I received these beautiful masks from Mel today. Thanks SO much Mel!! I'll enjoy wearing them and will think of you when I do. Such pretty fabrics, and so great that you enjoy making them.

    Candy, I like your zoom meeting idea. I'm not sure I'd be much good at games but it would be nice to meet you and whoever else could make it.

    Mae, Your site by the river looks perfect. Sorry about your elbow scrapes but I bet you were back on the bike in no time? I think of you as a tough cookie. 😊

    Booboo, Dizziness is awful. I have it laying down and getting up from bed for a few weeks on and off. All day long would be impossible to deal with. It must be a symptom of your new treatment since you were given something right away? Hopefully it's helped by your prescribed med and it resolves soon. I feel for you. 💕

    I met a couple of old work friends for a patio lunch today. One is retired like me and the other is still working. The working one was filling us in on remote learning that will be in place to start the school year. Not ideal for anyone, kids, parents, or teachers, but he feels relieved that most area schools are holding off on kids in classrooms right away. I'm really glad to be retired, especially now.

    I hope everyone is staying cool and comfortable.

    Moomala, how are you doing?


  • illimae
    illimae Member Posts: 5,743

    Sondra, sounds like you wanted a California summer but got Texas instead. I feel your pain having experienced both, CA preferred.

    Rosie/Micmel, great masks, I especially like the plaid and turquoise.

    We just got home. Ended up leaving a day early because I knew yesterday morning that I could not spend one more night on that trailers so called mattress. It was awful, about 1.5 inches thick, I lifted it up thinking it was a topper but nope, just wood underneath and so painful. Now to unload and clean up.

    FYI, I did not get back on the bike after falling yesterday but plan to this weekend 🙂

  • simone60
    simone60 Member Posts: 952

    Hi everyone. I've been reading just not posting much. Love your masks Mel, they're so colorful. I've been a little stressed out lately. My sister had a double mastectomy and her tumor was hugh. Its scan week for her so she'll get staged. I'm praying that it has not spread. Cancer really sucks.

  • micmel
    micmel Member Posts: 10,058

    Simone ~I'm sorry and reaching out to give you a virtual hug. I'm hoping that your sister can now be on her way to do her own healing. It's the way we get through. I'll be sending positive vibes and thoughts for you and your family..... yes cancer really does suck. Badly.

  • mara51506
    mara51506 Member Posts: 6,562

    The weather has improved some here, way less hot and humid. At least for a day or two. For now, the days will feel like the low 30s (80s to max 90s) which is quite comfortabe

  • micmel
    micmel Member Posts: 10,058

    Hot, disgusting and humid here. So gross. Like soup. I hate the heat. The summer bake month is august. Yuck.

    Where has Moomala been. I hope she’s feeling ok. I’ve been thinking about her as well. I know she was having some pain issues. Thinking of you!

  • mara51506
    mara51506 Member Posts: 6,562

    Simone, thinking and hoping the best for you and your sister and family.

  • booboo1
    booboo1 Member Posts: 1,196

    All,

    A friend of mine survived colon cancer, and she is also a published author of several books about her journey. But this short series she wrote about her oncologist getting cancer really hit home. His words captured so clearly how I feel about cancer. I thought I’d share it:

    Part 1:

    https://us13.campaign-archive.com/?e=32840218b9&u=4e3c272cf144f2c4dbc8964bf&id=71e4c166b1


    Will send Part 2 next.




  • candy-678
    candy-678 Member Posts: 4,176

    Simone- Hug. :(

  • micmel
    micmel Member Posts: 10,058

    BooBoo~ I guess no one really knows. Until they hear those awful words. Then the game changes. As we all know all too well If anything it would make doctors more sensitive to what we have to go through as a cancer patient. I honestly think most have no clue how hard and destructive it truly is.

  • mara51506
    mara51506 Member Posts: 6,562

    For those waiting for neck down scan results, they were clear, NED from the neck down still. Feeling lucky at this time.

  • micmel
    micmel Member Posts: 10,058

    YayMara!!!!!!!!!!! Congratulations. You said you kinda knew but confirmation is awesome. 🍾🎊🎈🎉 💗😉🥰. So happy for you Maybe today you’ll get your masks. I hope so. Hugs to you. Great news. For sure

  • candy-678
    candy-678 Member Posts: 4,176

    mara- Woohoo !!!! Good to get the official word.

  • booboo1
    booboo1 Member Posts: 1,196

    Mel,

    You said it exactly right. Until you are “the one” who hears those words, it’s just a word. When it’s you, the word cancer takes on a completely different life of its own.

    Mara, so glad for you! May you stay ‘NED’ until there is a cure.

    Simone, I wanted to let you know I’ll keep your sister in my prayers. My youngest sister was diagnosed the year before me, so I really can say I know what you are going through. I’m so sorry. It’s bad enough that we have to fight this insidious disease, but to see someone we love going through it too is hard to even comprehend. Big virtual hugs to you.




  • illimae
    illimae Member Posts: 5,743

    Yay Mara! Congrats 🎉

  • chicagoan
    chicagoan Member Posts: 1,084

    Fantastic news, Mara! Hope you stay NEAD for a very long time.

  • mara51506
    mara51506 Member Posts: 6,562

    Thanks everyone. I certainly hope for the same thing. Pushes me to want to make sure I stay in shape and take advantage of my luck. I may weigh too much but my physical strength is good.

    Mel, I am looking forward to the masks as well. Almost like waiting for christmas. Not sure if the mail has been yet but will be waiting with glee for sure. I will model them as promised as well.

    Simone still thinking of you and your sister. I can empathize when two familiy members are dealing with cancer. I of course had my Stage IV then my mom got StageIV lung cancer. She passed a long time ago but it was hard to deal with the both of us at the same time. I will send healing thoughts your way.

  • candy-678
    candy-678 Member Posts: 4,176

    Not much to do today. Laundry in washer. Going to walk on treadmill in a minute. Just thinking. My world is so small anymore. Out of workforce due to the cancer-- cannot change that. My circle of friends/acquaintances is smaller and smaller, and the ones I do have are at work or caring for their own families.

    But if we could get rid of Covid, I could do some volunteer things. Have a life of some kind. Not work full time, but do different activities on certain days-- "today I go to the food pantry to volunteer", "tomorrow is my day to volunteer at the town library", etc. I could meet new people, get a new circle of acquaintances. Find new things to get interested in.

    Yes, I am still Stage 4 and feel yucky most times, but I could have some sort of a life. Limited, but something. And have the flexibility to rest when I need to.

    Now it is nothing. I was thinking today, who can I call or text. Everyone is busy. Everyone has their own lives and activities. And if I do get in touch with someone, how do I carry the conversation. I am inside my house all the time. Not much to say. They do not want to hear about the cancer, my labs and scans.

    Sorry, just thinking aloud. You know, too much time on my hands. But, at least, I am showing a desire to do stuff, not depressed enough to want to just lie around all day. The desire to live is still there.

  • chicagoan
    chicagoan Member Posts: 1,084

    Candy,

    Good to be thinking about the future and things you will be able to do once the pandemic has eased. Have you thought of setting up a zoom prayer meeting for other house bound people at your church? There is one that I sometimes facilitate-the first part is just check-ins, then we ponder a scripture passage, pray for the world and end with a hymn. Not everyone is home bound but all of us have had some limitation in our normal activities. Or, if that sounds like too much, could you volunteer to make weekly phone calls to older people at your church? I bet there are many people who feel much like you and would appreciate some friendly conversation and just knowing someone from the church cared enough to check on them.

  • candy-678
    candy-678 Member Posts: 4,176

    Chicagoan- Our church is small- 75 on a good Sunday- before Covid. Mostly - 90%- 70 years and older. We do have a small Ladies Circle Group - 7 on average- that met once a month. Had bible study, prayer, discussed fundraisers. I asked the President if we could do Zoom now-- they are not meeting in person as of yet. She said if she can get them to agree--- older, not used to technology, and set in their ways. Facebook Sunday Services is a lot for my church.

    I did call a woman in my church today. We talked for a while--- discussed Covid, a daughter of a church member that was just diagnosed with breast cancer at the age of 40 with her first mammogram. Cancer discussion always seem to come up- lol. But at least I got to talk with someone today.

  • simone60
    simone60 Member Posts: 952

    Thanks everyone for the virtual Hugs, thoughts, and prayers. My sister's scan result came back with no evidence of disease. It's such a relief to know she is not stage 4.

    Mara, I'm so happy to hear you had good news also.

  • micmel
    micmel Member Posts: 10,058

    Simone ~🌻🌻🌻 very pleased to hear this news. I’m glad for your family. Hugs to you for relief.

  • Rosie24
    Rosie24 Member Posts: 1,026

    Mara, Glad to hear about your good scan report!


  • moth
    moth Member Posts: 3,293

    Simone, what a relief. Yay Mara on your good scan news.

    I have a port surgery date - Aug 24. Hoping it's not painful to get it inserted & I won't regret it. 😨 my veins are getting hard to access

  • BevJen
    BevJen Member Posts: 2,341

    Simone,

    Great news, and I'm sure you are so relieved. Best wishes to your sister.

  • micmel
    micmel Member Posts: 10,058

    Candy~I feel like once someone knows you have cancer, they just assume you’re going to talk about it. Or it starts off with “how are you feeling?today?). Then you’re reminded of how crappy you’re feeling at that moment. I would just rather not bring it up. I know people want to know but we, us, get sick of being the cancer people to everyone in our life. When we come here, we come here because we’re all alike and don’t have to explain why I’ve made over 150 masks and can’t stop, just to keep my mind busy so I don’t think about having cancer. That’s exactly why I enjoy it like I do. Takes my focus away. Love the pretty prints and fabrics. I find small doses of satisfaction in that. It may be odd but I find it’s been working for me. I don’t always want to be the cancer lady.

    I mailed Bliss’s package yesterday just in case I forgot to mention that. Darn it Mara, that it’s taking so long , your tracking didn’t have a date that said it would arrive. Don’t know how long that would take from Out of the us. Don’t deal with that too much. Anyone have thoughts ?

  • moth
    moth Member Posts: 3,293

    We buy things online often & shipping from USA to Canada can take weeks as things can get stuck in Customs.

  • mara51506
    mara51506 Member Posts: 6,562

    Mel, do not stress on it. When it comes you will know because I will take pictures of the masks you sent. I don't think it will be weeks but we will see. I am still looking forward to it. Typically when I order something from the states like a wig or something, takes sometimes a week and a half to closer to two weeks from when I ordered. Not so bad at all.

    Simone, so glad to hear that your sister is not Stage IV.

  • booboo1
    booboo1 Member Posts: 1,196

    Moth,

    No worries. You will not feel a thing when you get your port inserted. They will put you in a twilight sleep and when you wake up it’s done. Was one of the easier surgeries I have had. Let us know once you are done, okay? Hugs to you!