My Husband, My Life, My Love, My Family, My Cancer
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good morning everyone, I hope everyone has a productive or a relaxing day - whatever your preference today
I thought I'd get more stuff done yesterday but i had to rest more than I expected. Trying again today.
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Well counts lower-- ANC 500 2 weeks into Ibrance cycle. Told to hold med and repeat lab in 1 week to see how I rebound. Bummed. I think my time with Ibrance is coming to an end. I don't like this cancer. I am tired of it.
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Oh Candy,
I hear you. I am tired of it too. I keep saying, after every difficult drug, that I am considering stopping all chemo meds, but I don’t do it. I’ll hang in there if you do! I don’t know how many drugs you have tried, but there really are a lot out there. So even if your days with iBrance are over, you have barely begun to try all there are out there. Hugs to you
Moth and Dodgers, thanks. I took a motion sickness pill today, and I am not spinning like I was. Still not completely stable but a little better. Also thanks for the info on vertigo, Moth. If things don’t improve over the next couple of days, I’ll contact my MO again. Good stuff to know.
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Booboo great you’re getting a break
Mara the masks are so cute and colorful
Mae I’ll be on the internet looking for those jelly beans. Looks like fun go a party. One day we’ll get to party again
Mel bummer about the desk.
Candy can you take 75 ibrance or use a dosing schedule like Mel every other week? I hope this break allows you to get stronger.
I had my bloodwork and shots today too. ANC low 1.3 but I still got faslodex shots. Next week the back surgery Monday and then zometa Tuesday.
Tany
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sending both of you hugs. I want nothing more for it to leave all of us alone. Terrible mean ugly cancer
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Hi to everyone! I've been reading, just not posting here. Have had a lot going on -- some extra scans and other medical stuff, but all is okay. Wishing everyone well.
Mel, your masks are beautiful! And it's so great that you've found something that you enjoy going!
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Candy, also in your pocket for the appt as well. Port flushes don't smell to me but I can definitely taste when something is injected like saline or the blood thinner after it has been used.
Wore one of my new masks out to the store today from Mel, so much easier to breathe. I wore one of my masks which have an KN95 filter. Not going to do the filter again. I cannot breathe through the filter. Just the mask covering my mouth is enough as I view it protecting others more than me. If I get paranoid, I can by a face shield.
Our grocery stores here seem to be mostly back to normal due to store limits and good shelf stocking. The stores also close earlier for the most part for cleaning and restocking. I have stocked up on rubbing alcohol and hand sanitizer because I do believe when school gets back in this September, there will be a run on that kind of stuff. We will see.
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Mara, it looks like you are a Spring, and those mask colors are really nice on you. I really enjoy figuring out the best way to store things. First, to decide what to keep, then to maximize storage space and fill it in the way that makes sense and looks good. Think vertical!
Regarding disinfecting and supplies, I use bleach water for groceries. For glasses, keys, phone, and mail I have a little spray bottle of isopropyl alcohol. Purse I just leave alone for 72 hours. Yes there is some price gouging on amazon, so it is worth comparing to other possibilities. But I do like being able to shop from the safety of my house, for the things that are priced properly. Candy, next time ask the dollar store lady if she could please, ever so sweetly, save a can of Lysol for you.
Wow, Sondra. Drinks at a pub along the river. Nice!
Candy, maybe your new MO will change your dose and/or schedule so you can stay on Ibrance as long as it works.
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That is what I am thinking. Going to clear out unwanted stuff and see how much storage I actually need. I have also thought of having someone install nice wooden boxes above a couple of my door frames if I still need more storage. We will see as time goes on.
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I am here to let you ladies know that fed ex sucks. I’m more and more disappointed in the service they provide. I can’t believe the way they do things sometimes. I got a delivery date for my desk and it never came. They have the package at their warehouse because I called. Why is it not in my living room? It’s like 49 mins from my house. I’m ready to go and pick it up. So frustrating when you pay for a service and the service sucks out loud. People pay hard earned money for things. My DH works his ass off for things we have, as all of you and yours do also. Makes me so frustrated. Times like this we should have chanced ikea. But this was rated so much better. I just want it to get here. I want my craft set up. Good thing though, my DH’s final piece arrived today. Which is wonderful. He deserves to have his work space. He works long hours from home especially since this covid thing. Almost like they have to over work to prove that they can work from home with no lapse in performance. 11 , 12, hour days. I can’t wait to see his face when it’s done. I hope everyone had a good night. My one dog tag is old. He just is slipping away. Legs are bad. Eating slowing down. Falls a lot.. wobbles when he walks but doesn’t wimpier in pain and he is always wagging his tail. How do we know ???? Ugh! I love the old guy!
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Mel, I am so sorry to hear about your dog. Hugs going out to you and the family. I am glad your husband got the last piece of his furniture. I do agree, delivery services need to perform better than they do for the amount we sometimes spend.
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Mel, I also have an old guy. He’s lost about 14 pounds and he’s skin and bones. He’s lost the muscle in his back legs, and they give out on him once in a while. I’m in the same boat, when to decide. He was due for shots, and my thought was shots or euthanasia. I couldn’t bring myself to do euthanasia because he still wags his tail, eats, and gives love. We spent the money on the shots. Darn things. You can’t let them go if they’re not truly suffering.
Sorry about your furniture.
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Sorry to hear about your dog micmel, it’s the worst. Tonight DH was cracking peanut shells and it sounded like the dog door. For a split second I thought biggie was coming in, I ended up crying because I know all our dogs are dead. It’s the biggest and most painful loss I’ve known, all of them.
Well, nothing to report, on off to bed.
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Mae,
I hear you. I love my boys so much. It is truly the hardest thing in the world when we have to lose one. But my DH told me if we were going to have them, then I must accept that we will lose them when their time is up. Just part of their circle of life. I like to think of all of us who have given our furry babies good homes and lots of love. There’s nothing more or better than any of us could do.
Woke up with less spinning. Not quite clear-headed yet, but on my way.
Tanya, in your pocket for surgery.
Mel, I have experienced the same with recent delivery. It truly sucks. So sorry. Hoping it comes today.
BevJen, hope you are doing well.
Waving hi to Mara, Candy, Moth, KBL, Shetlandand all the rest of our crew.
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Mel- I am sorry about your dog. It is hard. They are a part of our family. My cat is my "roommate". We share this house. And I am alone so much that he is my best friend. He is 10 years old. I hope he doesn't outlive me though--- he won't understand if I am gone. I hope a family member will take him in, but I don't know.
Not much here today. Still bummed about the Ibrance/neutropenia issue. I know so many are worse off, but I just am upset that I am not tolerating the Ibrance. Will we tweek schedule and that will do it, or will I have to move to something else? What next and with what side effects? And that means 1 treatment down. Scary.
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Mel, still thinking of you and your dog and family. What can I say but what others have said above. Our furry family is just as important as other humans in t he family. They never argue or judge you and most are usually waiting for a stroke, walk or food.
I am having the weirdest day. I went for a walk this morning, did my really steep up hill climb in the park, takes almost an hour, smart enough to time it. Came home, had breakfast and fell asleep for a couple of hours. I am going for the same walk this afternoon to get out. I want to see if the same thing happens when I get home. Other than the walking, little bit of laundry and getting rid of clothes I do not want. Pretty much decided what I will do to the corner of the living room to hide the groceries but will need to save up for it.
So I did the same walk I did this morning. Same steep hill. Made it through, little sweaty but feeling good. I will see if I fall asleep again
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I had 3 big dogs until fairly recently and they all went within a few years of each other. The cat just a bit before that. It's always tough. I now have a vet who does euthanasia at your home. It's wonderful. So calm, no stress. He also helps with making the timing call - very skilled in hospice care for animals, keeping their pain and mobility stable & buying them extra time with medications and lifestyle modification. Like, we got tons of carpet runners so they wouldn't slip on floors, or lie down and be unable to get up. Yoga mats and those foam puzzle shaped locking floor pads which people buy for playrooms also came in handy. Ramps for steps. Also had a special harness https://helpemup.com/
I also have a large pet stroller which I used first for the newfie and then the others used it. The newfie esp loved going for walks in the stroller. We would go like always, 2-3 times a day, following our routines and he'd get out in the park, go sniff and pee and then when he had enough, he'd go back in the stroller and enjoy being pushed, catching all the smells in the air. The newf was the first to go, then the malamute shep. My English setter died spring of 2019.
Now I have a young girlie who looks like a lab crossed with a greyhound. I started her in agility last year. I really need to start playing agility again.
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Moth~That is adorable. Omg so precious. Yeah I’m pretty much seeing the writing on the wall. My Dh also contacted a vet that does it at your home as well. My other dog, won’t be good they have been buddies for 17 years together. Deeohgee already. Is protective of his old friend. When he falls. He barks and gets very upset when tag is struggling with something. He’s taken a few trips down the stairs. Now he can’t go near them alone, he needs help every night getting up with a sling we use as his back legs. The way down we help him and block him from falling. It’s not easy on me. I have to be honest, he falls in the yard and I have to go out and help pick him up. My back let’s me know it’s not happy with me. I feel like I need another person to help me. When dh is here , he takes care of him. I do my best, it’s a difficult task anymore. I hate to think of him gone. I can’t do this alone permanently. If dh has to go to work again far away for the week. I don’t know what I’ll do
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Moth, that story is definitely very cute, I love seeing pups in strollers for the ones who may not be able to walk still able to get out and enjoy the outdoors.
Mel, all I can offer is my sympathy and hope that your husband can stay to help you with your dog after it falls ass well.
I did the second walk, same route and hill. I was a sweatball when I got home, even though it was not hot. I also did fall asleep after. Two hours walk is sufficient, no need to keep walking. Just getting supper.
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I realize like someone else said, it's part of owning them. Sometimes I wishI never opened my heart to love a creature like this. They are always there.... don't care how you look, wants affection in appropriate doses. Doesn't really bother you unless they have to go out or are hungry. Love unconditionally. My dogs didn't care if I had hair. They knew totally I needed affection and attention they could feel the sadness of finding out about my cancer. They don't care what I'm wearing or if I washed my hair that day. Little precious angels on earth. (Cats too) I just wish some weren't treated badly. That I can't handle either.
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Moth, I love seeing dogs in strollers, so cute!
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makes me want to get one for tag. But he's too big for me to pick up and put him in. I'd say he's 60 lbs. Deeohgee is 75 lbs at least. Bigger dogs. I miss walking them. We walked a lot together. Those were the days! (In my Archie and Edith bunker singing) lol.
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My guys were able to walk into the stroller by themselves and I only had to give their butts a little boost. My stroller is all open in the front and very low to the ground. But it wasn't always easy to push them, esp up hills. The newf was about 90 lbs, the malamute cross was close to 80 at her prime but by the time she rode in the stroller she was a skinny old lady, probably 70lb... The setter was my small boi at 50
But if your back is very sore this might not be a great solution for you as it is not always easy to push or maneuver. Before stage 4 came calling, I had a master plan of all the dogs I would get & the dog sports we would do and the plan was to get increasingly smaller dogs so I could carry them up stairs & help them into the van etc even when I was much older. Now I wonder if Olive might be my last dog. Definitely large dogs are harder to care for when they age & lose full mobility.0 -
Wow newf are huge dogs! I couldn’t do it. Deeohgee is a hound dog and quite a challenge he is always hunting and always on the roam. He bellows it sound like a fog horn. Tag is a mix breed. Chow, Goldie, retriever gorgeous dog.
Such a little love. I would love the stroller. Great idea for sure. I wonder what that would cost?0 -
Good Morning ladies Hope everyone has a nice day today. Supposed to be gorgeous here. Shame I never feeling like moving off the couch. Hugs to anyone who needs one. BooBoo.... Moomala....Candy.....
Tanya ~ it was only 80 here yesterday! Perfect day. When it gets to 90’s I want that pool of yours !
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Good morning, Micmel. Have a great day. I try to get outside and sit under a shade tree if it’s not sweltering. I love a little breeze under the tree.
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Today is much better. Spinning has stopped. Still can’t move my head around too fast, but I’m hopeful that as the drug leaves my system, the vertigo will go away completely.
I just love hearing about everyone’s animals. Just makes smile. I’ve posted pics before, but would love to see pictures of each of yours.
This is my Huey Lewis. My baby. Love this boy to pieces.
This is my Teddi. He’s DH’s boy. Broke a few bones in his paw when he fell into a hole in the ground at the park.
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booboo, Huey and Teddi are super cute!
Top pic is Sarge & Maizy (mom and dad)
Maizy 2002-2013
Sarge 2002-2014
Sarge and Maizy’s unintended babies
Fat (top left) 2004-2014 sweetest soul ever
Marge (top right) 2004-2015 BIL’s good girl
Edith (bottom left) 2004-2016 chill, love cuddles
Big (bottom right 2004-2018 playful and crazy
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Morning all.
I am going to try to post a pic of my cat. See how this goes--- I am not to computer sauvy.
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Did it. This is my roommate, my son.
Boo- Glad you are feeling some better.
Windows open this morning for some fresh air. Now in the 60's. Will close them later and have on AC-- in the 80's today. Another day inside. Woohoo. Covid increasing numbers in my area and my ANC 500 right now. Isolation.
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