Lita57
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Lita,
Your Mr C certainly gets around. It seems him has danced with quite a few of us. Hope you get the scumbag.
I second the heat and dehydration. Drink, drink, drink. It's still scary.
Can't wait to hear about your new glasses.
Will join the que with prayers on Sunday.
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Lita I too am a silent follower of you and your journey. I admire you greatly and will join the que this Sunday. I too have brain mets with liver and right lung nodules involved. I am praying for you and your family as well as those who are taking care of you. Gods peace and loving touch be with you always
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Lita, I'm so sorry about your fall. I'm glad the radiologist is trying to get you in quickly. As difficult as it is to be pushy, I think it's really important to act quickly to get things rolling. And I love Chelle's candle idea.
I also wanted to volunteer if no one has already to get and have your contact information, so that I can give it to anyone who might want to send you a card. Feel free to PM it to me, or let me know if someone else already has it. Hugs & praying w/out ceasing for you... Deanna
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I will update everyone when I get back. Got lots of errands to do today.
Whole Brain Radiation Starts TOMORROW!
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Good luck, Lita, on the radiation! It can do amazing things and I'm betting it does a number on your mets.
We met on the medical marijuana thread, and well, (cough), this bud's for you!
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Here I am next to full brain mask and with my TEMPORARY glasses. The shiners and bruises look a little better today but still hurt. Had blood work done today. RBC still low, but WBC creeping up
).
I'll have more details later. They want to put me on Alzheimer's meds as a protection to help memory issues. Dr. Fisch specializes in brain mets, and later I will consult with neuro oncs in another city. Brain mets very serious as it's confirmed in leptomeningeal area, so we must start radiating ASAP, sadly.
Keep those prayers coming...I can FEEL them!
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Lita, such a warrior! And I love your stupid cancer button. I am hoping a little of you rubs off on me!
Mary Anne
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I have one of those masks! When I finished rads they asked if I wanted to keep. I said"yes, I earned it!"
Best wishes, Lita!
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So glad to see you moving ahead with WBR, Lita. I am in awe of your beaming smile through it all.
And thank you for your contact information. If anyone wants it, just PM me. Deanna
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Lita, I know that what I think does not matter, but I am so damn PROUD of you. I know how scared you were about WBR and the fact that you are leaning into the treatment AND getting the Alzheimer's meds is giving yourself the best shot. I will be thinking of you tomorrow, if you have any WBR questions let me know. Good thing, is the treatments are very quick overall.
Again, I am thinking of you and rooting you on and your smiling is a lot more than I managed myself. I cried my first day so you are giving yourself the very best chance.
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Dear Lita,
Like so many here, I'm a regular reader but seldom post. I always look forward to your posts though for your wisdom, compassion and, my favorite, your irreverent humor. May our prayers lift and sustain you and your family during your treatment and the days ahead.
Hugs,
Marti
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Lita. Even with bruises and temporary glasses you look fab -your smile lights up this board! Thank you for being such an inspiration for all of us. Now get rid of your second husband!!!!!
Bab
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I love your smile Lita! Will be with you in spirit tomorrow!
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SUCH A BUSY DAY!
I'm pooped. After all this medical stuff, I went to a live support group and then on to Staples Office Supply to buy a dry erase board, a BIG calendar to write all my up-coming appts. on and new BRIGHT red pens. We have plenty of Post-it notes, so I plan to put those all over the house, too, to remind we what to do and where things are.
I'm making check-off lists for my board, and will slowly check them off. I guess the lesson here is to PREPARE as best one can for the onslaught of memory lapses and neuro losses. Dr. Fisch can't say exactly what will happen once the ball really gets rolling. He assured me that EVERY patient has a slightly different experience. I'm hoping my attitude will help: Just think of the radiation as God's healing beams of light, penetrating my skull and KILLING those damn cancer cells. Dr is hoping for a GOOD response and some shrinkage. We will do a brain MRI when it's all over and plan for any additional "clean up" with either cyber knife or gamma knife radiation.
Am a little concerned because all during this WBR time I'll be OFF all IV chemo, so I imagine the other little darlings in my bones, pelvis, abdomen, etc., will keep on growing. Dr said to try NOT to eat a lot of antioxidants at this time (other than what's in usual food), but no special antioxidant vitamins or even drink green tea (high in antioxidants).
Wasn't up to driving to pharmacy to pick up Alzheimer's meds yet....they probably weren't ready anyway cuz Dr has to call them in. I need to have SOME down time b4 all this starts. It's already after 5 PM and I've been at it since 8:30 this am! I'll go pick that stuff up tomorrow am. My 'roid rage is starting to act up ;o).
I did manage to mail off my insurance refund claim for the airline tix I cancelled. Boy, what a hassle THAT was. They will probably need more docs (they ALWAYS do!)
On a positive note, Dr says I CAN continue to use CBD tincture to help me sleep at night. As I've posted earlier, they did call in a sleep aid for me just in case, but Dr says I'll probably be fatigued enuf from rads to sleep, and he also said I DON'T have to take the full 16 mgs of steroids a day. I told him that I'm titrating up to about 8 mgs, and he says that's probably enough. It will also be easier to taper down from them when the time comes, too.
Sorry this is such a long post, but I really won't have much news tomorrow. The sessions should only take about 15 mins, and they're not painful. Also nice that I only have to go Thurs and Fri this week and then I'll have the weekend off. Then all 5 days next week. That is probably going to be rougher, but I'm just going to take it one day at time.
Thanks again for all your love and support,
Lita
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Lita, I'm very happy to see you moving forward with a plan in place and the will to keep at it. I have radiation daily for a couple more weeks and I'll be sending you good vibes while trapped in my own face cage, lol
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Lita your cheering squad is in high gear! Mara used Namenda, she said it was very helpful for memory loss. The rays will be shining bright. So smart that you prepared, and it's so exciting to hear of a Doc that actually seems to give a damn.
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Lita - you are a force to be reckoned with! I am so inspired by you! Give 'em hell!!! Just imagine all of us arm in arm surrounding you in the room tomorrow focusing all of our energy on obliterating those brain mets! Flash that dazzling smile, give a sly wink, and flip Mr. Cancer the royal bird! I'll be lighting a candle for you on Sunday. Sending you love and support
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Lita,
So glad to hear your tx plans are moving forward, but sorry about the gardening incident. Your smile still shines!
Caryn
PS: I love Dr. Fisch! Out of the very large numbers of doctors I've seen over the last 6 years, he was one of my favorites
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Lita- you never cease to amaze me with your great attitude and take charge ways. You rock!
Babs
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Lita, your perseverance through all of this is awe-inspiring! Sounds like you are in good hands, so rest well with the CBD. I'll be thinking of you Sunday while lighting a candle and toasting to WBR success. Hugs, love and support.
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Lita - Awesome work. You are amazing at caring for yourself.
>Z<
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Good luck Lita, time for some good news for you.
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You can do this!
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Good luck tomorrow Lita I will muster up all my good vibes and send them your way.
Also I bought a candle today will be nice to do something together for you.
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Lita, still by your side, you are such a trooper. Hang in there, we are all praying for great results.
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Lita, Holding you in the light as you venture forward. I've been so inspired by your candor and kindness. Much love to you.0
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Cheering for you Lita! You are one tough cookie
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I'm praying for you today, Lita. May God bless you with strength to face yet another demon. May He bring you peace today.
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Sending prayers, hugs and good mojo your way!
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Lita, praying for you this morning for strength and endurance as you go through WBR. Your attitude is so amazing and infectious - you make us feel like we all can conquer this beast! Love seeing your sweet smile in the pic - you rock, girl!
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