Ringworm drug for dogs (Fenbendazole) might also cure cancer
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Goldie
Just wanted to let you know that my FenBen ordered from the UK was shipped on 5/29/
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Amazon is once again selling the 1gram, 3packs (yellow box) for 8.20!!!!
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Frisky, I am so sorry to hear this. It sounds terrible, I hope they allow a dose reduction. I really wish trials allow us to play around with dosages (though I can understand the argument against it). A few years ago people were on high doses of Xeloda that are virtually unheard of. So many people may have stopped it just because of side effects. I had that experience with Afinitor. After a couple of weeks I was ready to quit. I had a dose reduction and suddenly my life was back to normal. Lets hope that its the case for you with this drug and you feel back to normal real soon. I really admire your courage and willingess to be a pioneer on the trial. We're all rooting for you. Hugs.
Ann
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Hi Frisky, sorry I didn’t write earlier. I read all your posts after you started the new medication. You are going through a hell! Wait a little bit if you can and if it doesn’t get better, stop with this torture. You are not a experimental mouse.
Prayers and hugs are coming your way! Elena.
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Frisky: Chapeau! You are so brave! I still putting my hopes in fenben. Nobody would have to go through this hell! HUGS
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Frisky,
What is the drug you are testing? You should also be writing about it in the thread "Are you or have you been in a clinical trial?".
https://community.breastcancer.org/forum/8/topics/868597?page=10#idx_276
I am sure a lot of people are missing hearing about your experience, as they wouldn't think to look in this thread about the dewormer.
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Ann thank you so much for your understanding....
I had talk with the nurse about what happened last night and how I never wanted to re-experience it...she talked to the doctor and told me that I should not reduce the dosage and to take pain killers to deal with the pain.
So I took the two pills again and at the first sign of nausea I took zofran, dealt with the chills by using two heated pads and took an ibuprofen as I started feeling the aches come on...so far so good...I have nothing too dramatic to report....and in one hour I'll go out and see how I'm doing energy wise...
Hopefully the taking all these medications will amount to a positive outcome....
Update....the fatigue is real, I could hardly get to Trader Joe's and back...but, it's very hot and humid in Manhattan today, and I think a little green tea before going out might have helpe boost my stamina
Thank you Elena and Yndorian for your support...this time as you've read my update I'm managing well....I will give it my best effort!
Husband thank you for the information regarding the other thread...I'll check it out...the medication is PF -0873600 I’m taking 100mg the maximum dose
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Magnesium citrate at bedtime (3-4 capsules) is good for constipation.... A hot pad on your abdomen can help too -- brings blood to area.
Sending you good vibes and hope things get better pronto.
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thank you so much Santabarbarian, I would rather resolve the various SE without taking the drugs....natural will always be my preference...no SE to speak of
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Magnesium Oxide works even way better for consitpation than Mag Citrate. Citrate is more to keep you soft and better for everyday absorbtion, but if you are really consitpated I can promise you 3 Mag Oxide and YOU WILL GO!!! Good luck.
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thanks Nicole...so relieved to resolve that problem naturally! What do u take for fatigue?
I made a pot of strong ginger tea...will try a cup of that instead of the zofran next time I’m nauseous....
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I haven't found anything for that yet.
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My wife and I had our talk with the radiologist today. My wife has only months to live, the radiation was for palliative purposes. She still adamantly refuses to take the Fenben. I yelled and swore but nothing. Also, is there any examples from BC ladies of it working for them?
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That's a really good question Mike. I saw somewhere a woman with breast cancer that said she got results, but I have tried to find it, and I can't remember where it was. I doubt it was on here. So maybe Joe's Facebook page? Or his blog?
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Yes that is what I asked earlier this week if anyone with breast cancer or hormone receptor positive BC took it and it worked.. I hope Husband11 finds it.
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mike why the dire prognosis? You wife has just started taking the hormonals, why not continue with the other lines of therapy? What is the radiologist saying or seeing?
Breast cancer comes in many forms, I feel your wife might not be satisfied by any MBC success story....I'm assuming she thinks the therapy would be useless...and she's right there's no guarantees...but in view of her predicament why not try? It's not expensive or invasive?
What about the McLelland line of off label medications that block the various pathways simultaneously?
She might be inspired by Jane's story....both Joe and Jane were given 3 months....and yet here they are to share their tales. Honestly, without knowing and trying their protocols, would make me very depressed....
From Joe’s blog; “The stories are now coming in too fast to chronicle all of them here but JUST in the past week, people having success with Ovarian, Breast, Colo-Rectal, Melanoma, Lung, Pancreatic and Liver Cancer have reported remarkable results....and as the above attached research suggests, this regimen SEEMS TO BE cancer agnostic.“
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Mike, I'm sorry about your wife's condition but it sounds like she is taking a decision and you should be respect it, no matter how painfull it be for you. I'm so sorry. You are such a loving husband
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"mike why the dire prognosis? You wife has just started taking the hormonals, why not continue with the other lines of therapy? What is the radiologist saying or seeing?"
She TNBC so no hormonals. Radiation can't stop the cancer to her dura or brain lining. Brain lining swells, puts pressure on the brain eventually death.
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Mike, I had TNBC - metabolic therapies are very effective against TNBC. Metformin, Statins, etc... which are a part of Jane McLellands protocol. I am so sorry for what you and your wife are going through. Has she already been through Carboplatin and Xeloda?
Frisky & Nicole, For fatigue there is a pretty great natural helper - hyperbaric oxygen. It stimulates killer cells and red blood cells. The chamber is under pressure and with a stream of pure oxygen to breathe... this pushes oxygen into your blood cells in greater concentration. When I had hideous anemia at the end of chemo it was the only thing that made me feel slightly normal.
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She's already burned through Xeloda, not tried Carboplatin yet. Does Carboplatin get through the blood brain barrier?
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I do not know about that. Is Proton radiation a possibility for her? Can you try hyperthermia? There is a hyperthermia expert at UMD.
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Thanks Santabarb.
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for those of you interested in the details of my new and improved ibrance saga postings, please check out this thread
https://community.breastcancer.org/forum/8/topics/868597?page=10#idx_276
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Mike - carboplatin/gemcitabine was my first chemo after discovery of my brain met (triple negative). I asked my oncologist if it penetrates the brain barrier and she said there is evidence to believe it can especially when there is some swelling/injury to the brain. Apparently this disrupts the brain barrier a bit.
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Thanks AllyBee, I Googled it and found, yes, it does penetrate the Brain Blood Barrier (BBB). Also, OHSU Ptl, OR has developed several compounds that disrupt the BBB temporarily (for a day or so) so you can get some chemo in. Isn't Carboplatin usually given with other things? I seem to have read that. Thanks.
Grasping at any straws to save my poor wife.
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Mike: Inhaled perillyl alcohol works too without SEs. If she wants to try. Search it in google
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Do they have an idea of what subtype she is of TNBC?
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No idea. Her biopsy was sent to two different places for analysis and it came back she wasn't qualified for any of the targeted treatments out there.
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Ask the MO if he has any clue about subtype. If "basal," BRCA, or BRCA like I believe Carboplatin is one of the most effective chemos.
Another thought... there are doctors out there who do western Medicine but innovate in dosage, administration, etc. Who give complimentary therapies so you tolerate the chemo, and boost the efficacy of it. Dr Keith Block in the Chicago area is one. I had a consult from him, followed his plan, and did very well. It might be worth a visit to a doctor like this...
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Hi Mike,
Check to make sure she does not have a CDK12 mutation. Maybe 3% of breast cancers have this mutation.
But, if anyone ever has it, it is associated with being an exceptional responder to immunotherapy.
There is an immuno trial for cancers of any type with CDK12 mutation:
https://clinicaltrials.gov/ct2/show/NCT03570619
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